chemo

undertreatment2012
undertreatment2012 Member Posts: 126
in Ovarian Cancer #1
Going through my first sickness since chemo. one of my biggest complaints is the neurologic?// pain and weakness in my legs. any one else have that? It's scaring me

Comments

  • mom2greatkids
    mom2greatkids Member Posts: 528
    #2
    Yes. I have had body aches.
    Yes. I have had body aches. I had them last summer while on carbo/taxol/avastin. I am currently on Avastin alone until the end of this year for maintenance. Some days following the treatment I feel as though I have the flu.

    Some ladies on here have had extreme pain from chemo. Thankfully, mine hasn't been severe.

    I learned that after chemo I had to allow myself to eat whatever I wanted. I was sick after the 3rd and 6th treatments.

    You'll get through this, even though it feels as though you can't.

    Always feel free to call your doctor's office with scares and concerns. I called my doctor's nurse several times.

    I'm sending you a virtual hug!

    Carla
  • Gottalovelife
    Gottalovelife Member Posts: 45
    #3
    I think everyone goes thru it
    When I was on chemo I had the weakness in the legs could hardly make it up the stairs but by the third week before next treatment I was better till the next treatment and start all over again. If you are experiencing nausea be sure to mention to chemo nurse or your Dr. There are so many medications to help with that so don't be afraid to ask and don't be afraid to ask for any kind of drugs to help with anything at all. They told me to take claritin for bone pain, would start on that right after treatment, but I really didn't have much bone pain, Thank Goodness! We all get scared of the unknown, chemo is not fun and does have some not so nice side effects, but we get thru. So stay strong! Also I still had nausea taking compazine and zofran, so finally after my second treatment they gave me a patch to put on my arm and I kept it on for 5-7 days and so I would put that on, take compazine every 8 hrs and take zofran 4 hrs after the compazine and the patch all at the same time, but really the patch helped the most and try to drink fluids as much as you can, I know it's hard but you don't want to get dehydrated.


    Hugs and Prayers
    Cindy
  • Mwee
    Mwee Member Posts: 1,338
    #4
    pain and weakness after chemo
    Sorry you're going through this. It took me forever to realize that I should be mentioning all my symptoms to my ONC and chemo nurses. I guess I just thought that it was all something I had to bear. Don't think of it as complaining. There are many things your ONC can do. Sometime they adjust your chemo dosage, add or subtract pre-meds, etc. Chemo can be a very scary experience, so remember that we're a post away and many of us have been there or doing that right along with you.
    (((HUGS))) Maria
  • AnneBehymer
    AnneBehymer Member Posts: 738 Member
    #5
    Please don't let it scare you
    I am one of those who have had bone pain, joint pain, and all over body ache. At first it kinda scared me but not a lot see I have fybromyalgia so body aches are normal for me. Just keep on top of the pain if it gets worst see a pain doctor who specializes in cancer pain. The normal pain doctor looked at me like I was trying to become a junky and would not increase my morphine from more that 15mg three times a day. I talked until I was blue in the face and he would just throw another pain medication at me to take with the morphine and what he really wanted to for me to have injections. I did ask what the injections were for and they weren't for pain so much it was a mussle relazer. I moved to my new pain doctor all she handles is cancer patients and I am now doing great on 30mg, 60mg, 60mg those are long lasting so I take it and I start feeling much better with the pain. I do hat 15mg of the fast acting for break through pain but I hardly use it. Please don't let the pain get the best of you before you see a pain doctor if you get behind in the pain it takes longer to get the relife you need.

    Love, Hugs, and Prayers.
    Anne
  • undertreatment2012
    undertreatment2012 Member Posts: 126
    #6
    AnneBehymer said:

    Please don't let it scare you
    I am one of those who have had bone pain, joint pain, and all over body ache. At first it kinda scared me but not a lot see I have fybromyalgia so body aches are normal for me. Just keep on top of the pain if it gets worst see a pain doctor who specializes in cancer pain. The normal pain doctor looked at me like I was trying to become a junky and would not increase my morphine from more that 15mg three times a day. I talked until I was blue in the face and he would just throw another pain medication at me to take with the morphine and what he really wanted to for me to have injections. I did ask what the injections were for and they weren't for pain so much it was a mussle relazer. I moved to my new pain doctor all she handles is cancer patients and I am now doing great on 30mg, 60mg, 60mg those are long lasting so I take it and I start feeling much better with the pain. I do hat 15mg of the fast acting for break through pain but I hardly use it. Please don't let the pain get the best of you before you see a pain doctor if you get behind in the pain it takes longer to get the relife you need.

    Love, Hugs, and Prayers.
    Anne

    pain
    YES!! I have fibro too!, that is probably why I have such extreme pain. And I did not know there were Dr's just for cancer patients. Thank you for such an informative post!. Been stressing about this and now I can relax a little. No worries, I will still report, but thank!
  • undertreatment2012
    undertreatment2012 Member Posts: 126
    #7
    Mwee said:

    pain and weakness after chemo
    Sorry you're going through this. It took me forever to realize that I should be mentioning all my symptoms to my ONC and chemo nurses. I guess I just thought that it was all something I had to bear. Don't think of it as complaining. There are many things your ONC can do. Sometime they adjust your chemo dosage, add or subtract pre-meds, etc. Chemo can be a very scary experience, so remember that we're a post away and many of us have been there or doing that right along with you.
    (((HUGS))) Maria

    pain and weakness
    this is a wonderful site. so glad i found it. such good advice and comforting. I, like you tend to think, o it's supposed to be this way. But I'm not taking that chance. I will tell them more than they want to know. LOL
  • undertreatment2012
    undertreatment2012 Member Posts: 126
    #8
    Gottalovelife said:

    I think everyone goes thru it
    When I was on chemo I had the weakness in the legs could hardly make it up the stairs but by the third week before next treatment I was better till the next treatment and start all over again. If you are experiencing nausea be sure to mention to chemo nurse or your Dr. There are so many medications to help with that so don't be afraid to ask and don't be afraid to ask for any kind of drugs to help with anything at all. They told me to take claritin for bone pain, would start on that right after treatment, but I really didn't have much bone pain, Thank Goodness! We all get scared of the unknown, chemo is not fun and does have some not so nice side effects, but we get thru. So stay strong! Also I still had nausea taking compazine and zofran, so finally after my second treatment they gave me a patch to put on my arm and I kept it on for 5-7 days and so I would put that on, take compazine every 8 hrs and take zofran 4 hrs after the compazine and the patch all at the same time, but really the patch helped the most and try to drink fluids as much as you can, I know it's hard but you don't want to get dehydrated.


    Hugs and Prayers
    Cindy

    everyone goes thru it
    sounds like we are a lot alike in our reactions to chemo. Good to know I am not the only one. It stinks doesnt it? But letting me know about your story helped to calm me. I was really nervous, I am high anxiety anyway. thanks!!
  • undertreatment2012
    undertreatment2012 Member Posts: 126
    #9
    Gottalovelife said:

    I think everyone goes thru it
    When I was on chemo I had the weakness in the legs could hardly make it up the stairs but by the third week before next treatment I was better till the next treatment and start all over again. If you are experiencing nausea be sure to mention to chemo nurse or your Dr. There are so many medications to help with that so don't be afraid to ask and don't be afraid to ask for any kind of drugs to help with anything at all. They told me to take claritin for bone pain, would start on that right after treatment, but I really didn't have much bone pain, Thank Goodness! We all get scared of the unknown, chemo is not fun and does have some not so nice side effects, but we get thru. So stay strong! Also I still had nausea taking compazine and zofran, so finally after my second treatment they gave me a patch to put on my arm and I kept it on for 5-7 days and so I would put that on, take compazine every 8 hrs and take zofran 4 hrs after the compazine and the patch all at the same time, but really the patch helped the most and try to drink fluids as much as you can, I know it's hard but you don't want to get dehydrated.


    Hugs and Prayers
    Cindy

    everyone goes thru it
    sounds like we are a lot alike in our reactions to chemo. Good to know I am not the only one. It stinks doesnt it? But letting me know about your story helped to calm me. I was really nervous, I am high anxiety anyway. thanks!!
  • anicca
    anicca Member Posts: 334 Member
    #10
    undertreatment2012 said:

    pain
    YES!! I have fibro too!, that is probably why I have such extreme pain. And I did not know there were Dr's just for cancer patients. Thank you for such an informative post!. Been stressing about this and now I can relax a little. No worries, I will still report, but thank!

    If the problems with your
    If the problems with your legs are due to neuropathy (likely from the chemo) then try 50mg B6 and 250mg Magnesium daily. It helped me a lot, and I still take it to prevent cramping in my feet.
  • lovesanimals
    lovesanimals Member Posts: 1,366 Member
    #11
    anicca said:

    If the problems with your
    If the problems with your legs are due to neuropathy (likely from the chemo) then try 50mg B6 and 250mg Magnesium daily. It helped me a lot, and I still take it to prevent cramping in my feet.

    Pain in legs
    I was on carbo/taxol and had achy legs for about three days after each treatment. I was lucky in that the achiness wasn't really bad but I still reported all of my symptoms, including the achy legs, to my oncologist. My achiness was either from the chemo itself or from the Neulasta shot I received the day after each treatment for my low white blood cell count. My oncologist suggested I take Tylenol for the pain. I have a hard time swallowing pills so I took the chewable baby Tylenol, which helped to some extent. I really didn't want to take anything stronger because my pain wasn't bad. I hope you find some relief from your symptoms. Please keep us posted on your progress!

    Take care,
    Kelly

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