Tears...
Comments
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I hate it too. Hate what is
I hate it too. Hate what is does to the person, physically and emotionally. Hate what it does to the family, putting unbelievable stress and uncertainty at the forefront.
Very sorry that things appear to be at a very low point for you right now....wish I could help you in a more concrete way, but please know that you're not alone. There are people who've been where you've been, and now it is only a memory. There are people who were diagnosed at Stage IV who are living pretty good lives.
I don't know the details on your son, but I was very sick---yet am now on my way to a party. Things CAN change for the better, albeit slowly.
May tomorrow be brighter for all of you~
Hang in there, okay?
Your Friend in California0 -
Thank youtommycat said:I hate it too. Hate what is
I hate it too. Hate what is does to the person, physically and emotionally. Hate what it does to the family, putting unbelievable stress and uncertainty at the forefront.
Very sorry that things appear to be at a very low point for you right now....wish I could help you in a more concrete way, but please know that you're not alone. There are people who've been where you've been, and now it is only a memory. There are people who were diagnosed at Stage IV who are living pretty good lives.
I don't know the details on your son, but I was very sick---yet am now on my way to a party. Things CAN change for the better, albeit slowly.
May tomorrow be brighter for all of you~
Hang in there, okay?
Your Friend in California
...My son is now consider mcrc...lungs, liver, peri (whatever)(abdomin), throat. He is on ( I lost count 46 hrs chemo treatments. I fix soup and it made him sit on the john! I feel so helpless..! I just want him to feel well. I want a cure...I hate that this is happening to so many people...young, old... It does not discriminate..It's made me doubt everything I ever believed in. My Faith and Hope have taken a good hard hit. I no I'm not alone and am thankful for this board...It's been a good place to go...when you have no where else to go..
Thanks for listening (reading)
jp0 -
Feeling helplessMrsJP said:Thank you
...My son is now consider mcrc...lungs, liver, peri (whatever)(abdomin), throat. He is on ( I lost count 46 hrs chemo treatments. I fix soup and it made him sit on the john! I feel so helpless..! I just want him to feel well. I want a cure...I hate that this is happening to so many people...young, old... It does not discriminate..It's made me doubt everything I ever believed in. My Faith and Hope have taken a good hard hit. I no I'm not alone and am thankful for this board...It's been a good place to go...when you have no where else to go..
Thanks for listening (reading)
jp
Dear JP,
Fear is a terrible thing...it does crazy things to us. Fear makes us forget who we are, who we have always been and who we want to be in the future. I am so sorry that you and your son are facing this fear head on. I understand how your faith and hope can be affected by this terrible disease but I hope you can keep both, if not for your sons sake, but for your own. You must remember we are not alone on this journey, and I for one will certainly pray tonight for you and your son.
I just made some homemade soup ...I hope next time you make your son soup he won't get so sick. Food and chemo never seem to mix very well. I didn't eat very much some days but seemed to always enjoy bananas.
Blessings and healing to your son.
"Minnie"0 -
disease stinks
You are so right this disease is horrible I hate it. We have to keep praying there will be a cure fast. Time is not on our sides. I'll. Pray extra hhard. Jeff0 -
Your sonMrsJP said:Thank you
...My son is now consider mcrc...lungs, liver, peri (whatever)(abdomin), throat. He is on ( I lost count 46 hrs chemo treatments. I fix soup and it made him sit on the john! I feel so helpless..! I just want him to feel well. I want a cure...I hate that this is happening to so many people...young, old... It does not discriminate..It's made me doubt everything I ever believed in. My Faith and Hope have taken a good hard hit. I no I'm not alone and am thankful for this board...It's been a good place to go...when you have no where else to go..
Thanks for listening (reading)
jp
I am so sorry to hear of your situation. My husband was diagnosed with CIII Colon cancer (spread to Pancreas & Kidney) last year at the age of 29. He too spent a lot of time on the loo - the best thing I found to do was to try to make things as 'normal' as possible. My husband felt guilty when I fussed over him or when I got sad. He would even eat the food I would cook just because he wanted to make me happy. (I ended up making very plain bland food with no spice or flavor so it was kinder on his bowels and body)
My husbands mother also felt as you do (she lost her first son to cancer when he was 16) She gave me some great advice. She said it was very important to let my husband live as normally as possible with minimal fuss. I found this hard at first but she was right. He perked up when I gave him jobs to do (empty bins, do dishes go to bank etc) this is because he was LIVING.
Each of us react and need different things. Before my husband got sick we had such a happy family life (our son was 6 at the time) So I decided that we would continue doing as much normal stuff as we could. We went walking on the days he felt good and watched movies and played board games on his off days.
When he started going to the toilet very very frequently we would make jokes about him checking the plumbing. Little things can perk the whole family up. When one is positive it flows to others.
My son had a calendar and marked the 4 week date after the last lot of Chemo was due. That was our 'family football date'. My husband would mark off each day closer to that date. He had no choice but to make it to that date. We were not saying goodbye to him. We made plans for the future and decided on where we would go for our next holiday.
As hard as it is to watch someone you love get so sick, just remember that you were happiest when life was normal, so try and make it as normal as possible (with more kisses and hugs!!!)
I hope I have not overstepped the mark with my comments, I just know that I loved hearing from other ppl who were feeling like I was (am). You, your son and family will be in my thoughts and prayers. Be strong and smile. I'm sure he loves to see you smile.0 -
Rice CrackersMrsJP said:Thank you
...My son is now consider mcrc...lungs, liver, peri (whatever)(abdomin), throat. He is on ( I lost count 46 hrs chemo treatments. I fix soup and it made him sit on the john! I feel so helpless..! I just want him to feel well. I want a cure...I hate that this is happening to so many people...young, old... It does not discriminate..It's made me doubt everything I ever believed in. My Faith and Hope have taken a good hard hit. I no I'm not alone and am thankful for this board...It's been a good place to go...when you have no where else to go..
Thanks for listening (reading)
jp
I found by husband would cope best just eating dry food such as rice crackers and bread while on chemo, it seemed to help. He avoided meats and 'heavy' food0 -
Thank you...Young Couple said:Your son
I am so sorry to hear of your situation. My husband was diagnosed with CIII Colon cancer (spread to Pancreas & Kidney) last year at the age of 29. He too spent a lot of time on the loo - the best thing I found to do was to try to make things as 'normal' as possible. My husband felt guilty when I fussed over him or when I got sad. He would even eat the food I would cook just because he wanted to make me happy. (I ended up making very plain bland food with no spice or flavor so it was kinder on his bowels and body)
My husbands mother also felt as you do (she lost her first son to cancer when he was 16) She gave me some great advice. She said it was very important to let my husband live as normally as possible with minimal fuss. I found this hard at first but she was right. He perked up when I gave him jobs to do (empty bins, do dishes go to bank etc) this is because he was LIVING.
Each of us react and need different things. Before my husband got sick we had such a happy family life (our son was 6 at the time) So I decided that we would continue doing as much normal stuff as we could. We went walking on the days he felt good and watched movies and played board games on his off days.
When he started going to the toilet very very frequently we would make jokes about him checking the plumbing. Little things can perk the whole family up. When one is positive it flows to others.
My son had a calendar and marked the 4 week date after the last lot of Chemo was due. That was our 'family football date'. My husband would mark off each day closer to that date. He had no choice but to make it to that date. We were not saying goodbye to him. We made plans for the future and decided on where we would go for our next holiday.
As hard as it is to watch someone you love get so sick, just remember that you were happiest when life was normal, so try and make it as normal as possible (with more kisses and hugs!!!)
I hope I have not overstepped the mark with my comments, I just know that I loved hearing from other ppl who were feeling like I was (am). You, your son and family will be in my thoughts and prayers. Be strong and smile. I'm sure he loves to see you smile.
for sharing..I'm so sorry that your family is going threw this too. Your little boy sounds like he really looks up to his Dad...and your family time together reminds me of my own. When our kids were little we went on walks threw the woods and did so many things. Very happy memories. I truly appreciate the prayers. I pray for everyone on this board and then some. I pray for the day when there will be a cure for all cancers.
Peace to you and your family.
jp
TommyCat, Minnie, Jeff, Phil and Pepe--Thank you for thinking of me as well. Hugs to you all.0 -
stay inspired
I think we all feel the same way, it's so easy to come home from work and feel exhausted and just want to lay around. Since most of us aren't teenagers anymore, I still remember staying out most of the night waking up and heading out the next day. Just like a new relationship it seems you were never tired and always happy. It may sound strange but even with this illness I found i'm still able to harness some of that energy, it seems if you push yourself enough you can mentally get over that feeling of exhaustion and continue to be productive. It's hard but in time it seems to be a learned behavior. I just refuse to give into this illness. I spent most of the day outside, I am exhausted but it's the good kind of tired. I wish your family the best, prayed at church today for all the new friends I found on this forum. We definitely need each other to get through those bumps in the road. chuck0 -
I'm putting my arms around you, dearheart!
I couldn't agree with you more....that is why I call cancer 'the beast'.
But I also believe in making the best of a bad situation. I got angry, and decided that cancer had enough of my time, on the days I felt good, I did things I wanted to do...and saw joy in just living...
Hugs to you, dear soul, for caregivers have the toughest job...hearing all of the news, and still required to keep a happy face...
Hugs, Kathi0 -
HUGS beat HATEpepebcn said:All I can say is HUGS!
Praying for you both.
Its good to get the hate out, its cruel how this disease changes our lives, that said
LOVE is the cure, at least the best TREATMENT, this book i just finished said love is the number healing tool.
without love, love of ourselves, our family, our spouse, our family. would we try to live and survive as well as we do without it.
beleive it or not you are helping your son the best just by loving him.
hugs,
pete0 -
I agree
I hate it too..it seem it can rob us of so much. The uncertainty, the pain, the fatigue are all so drainig on the soul. I pray for your family and for all of us..we are all so similar yet all so different. That is why when joyous moments comes we have to embrace them and live completely in the moment. Cancer really gives us clarity as to what is important in life and what is not. I am grateful for this wonderful group of people.0 -
I used to hate this disease
I used to hate this disease but that doesn't do me any good so I now take the energy that I used to use hating and use it for fighting. I am very stubborn and can't stand loosing. I will NOT let the disease OR the treatments hold me down. I mountain biked 8 miles on Sunday, the day after I finished another round of treatment. I was really fatigued after the first 2 miles but kept going out of spite for the disease and the treatments.
Jeff0 -
")janderson1964 said:I used to hate this disease
I used to hate this disease but that doesn't do me any good so I now take the energy that I used to use hating and use it for fighting. I am very stubborn and can't stand loosing. I will NOT let the disease OR the treatments hold me down. I mountain biked 8 miles on Sunday, the day after I finished another round of treatment. I was really fatigued after the first 2 miles but kept going out of spite for the disease and the treatments.
Jeff
Wow! I get tired just thinking of getting on a bike! LOL...You're truly amazing! My husband says I got to get moving...I've been so consumed by fear..that I've let it get the best of me.
You have a great attitude!! Keep on biking!!
jp0 -
thank you
thank you for sharing your hate and fear.
this is a good place to let it out.
Others on this string have shared so many good things about Love, Hugs, Support...
great string and very helpful.
I pray for you and your family.
It's hard to do, but try and replace the hate with love and appreciation for the goodness in life.
none of us get out of hear alive... at halftime of my cancerbattle, i lost my dad to a stroke. Some in the family say that he laid down his life, so that i would survive my fight. (I don't what that hanging over my head) but there's a part of me that believes in those words.
Faith is a roller coaster... it has many ups and downs.
we pray for so many things, but God never seems to give us what we ask for... but he challenges us with the faith of a mustard seed. That's all it takes... a mustard seed.
such a small amount... keep your faith and know that Love will carry you.
you and your family are in my thoughts and prayers.
I wish you the best during these upcoming months.
This IS beatable!!!0
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