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If your port stopped drawing...what were you told???? UPDATE!!!!!!

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Hey Family!
I have been told by many nurses that my port has one of the smallest work areas they have ever come across. About the size of a pencil eraser. It has worked well for over 2 years but as of about 3 months ago it quit drawing blood. No problems getting chemo put IN but nothing is coming OUT. From all comments from nurses and doctor I took this to be quite the norm. Just something that happens and to expect it. Your port only lasts so long and they say mine "probably" has a lot of scar tissue built up right there and thats why it won't draw no more. I have heard them tell other people at the clinic the same thing...about scar tissue...and its just treated as a common...no big deal thing.

Then I spoke with a friend from here on the boards and he tells me this could indicate blood clots and I should be concerned. Now I am thinking..really??? Craig, I know you have said in the past when you do not get a draw that you get something put in there and it cleans it out and restores blood flow????? Did I get that right? Why is it so important to keep up that blood flow when my people make it sound like...so what??? Just get it out of your arm.

Can I get some opinions here on how your ports work and if we have some that "don't work" 100% like mine and what ya'll do if it don't and opinions on IF IT SHOULD draw or if its no big deal.

Thanks guys!

Jennie

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Jennie

This just happened to me again while I was getting my scope done...it has happened on other ports I've had as well. They couldn't get a return. I had been having s sharp pain or two in my chest above the port area, but dismissed it.

When she asked to access the port and got a funny look on her face, I knew right away what had happened....got right off the scope table and drove down to infusion to get this cleared up.

Go to your infusion center and have them inject some TPA - this is like drano...it helps to dissolve the clots...has to be in the port for at least 30-minutes or so.

After that, they will try to draw blood again - ususally they will get it after that...if it still stays clogged they will refer you to Intervention Radiology where they will inject dye to confirm.

And if it has gone bad, it will need to be replaced...the issue is not whether they can inject in, but can draw out. This could lead to a clot of some type with all the scar tissue buildup around the port from the surgery itself and all of the clumping over time.

I've had 3 of them now - and replaced 2...TPA cleared me up and I'm good to go.

So, try this Jennie...it will either work or won't.

As for Why is it so important to keep up that blood flow when my people make it sound like...so what??? Just get it out of your arm.

"Your people 'ain't' like my people!" LOL!

Seriously though, get it looked and a shot of TPA...we don't want to mess around.

-Craig:)

geotina's picture
geotina
Posts: 2120
Joined: Oct 2009

George is on his 3rd port. This one works perfectly. What can happen and happened to George is that a "sheath" forms at the tip of the port so when they draw up, it covers the end and when they push in the sheath moves and the stuff flows in. For a while, George had his blood draws thru his arm. At some point and I don't remember when, we had to go for the TPN at the hospital chemo lab to break up the sheath. They put the TPM in, wait about 30 minutes and see if they get a blood draw. If not, they try it again. After 3 trys with George, nothing. So a radiologist puts dye in and watches it (I think on an x-ray type of machine) to see if the dye flows in properly. With George it didn't so it was on to port #3.

His first port was removed after his 2nd treatment but I don't remember what the problem was, it just didn't work so the second port was put in on the opposite side.

With port #3 I stopped by the colon surgeon's office for a referral and he happened to be there by the desk and he said he is putting this one in, on a Saturday no less. Well, it has worked perfectly. with port #2 when he replaced it he said it looked fine to him, they needed to be a bit more agressive getting it working at the hospital and if we had any further probelms, to call him personally.

Not getting a blood draw does happen and quite often but it is my experience that if they don't get it flowing properly, both in and out, after a while get it checked out before it stops working all together. For now I would not worry too much as long as they say it is working ok but keep a watch on it. If it is a sheath eventually it will cover it and not move out of the way. A sheath is probably the same thing as scar tissue.

If you need anything else send me a pm.

Take care - Tina

PhillieG's picture
PhillieG
Posts: 4907
Joined: May 2005

Mine returns blood maybe 70% of the time. I had a Flow Test done and it's fine, it works perfectly.
It's also a dual port but almost ever since it was put it the return was never consistent.

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

Mine was inconsistent too Like Phil's, so sometimes I needed an extra flush, but more often than not, I need fluids. Once I got an IV of fluids, I was able to have a draw. Got to the point where once a week I went and got a slow drip--just to keep the vessels plumped up.
And these are only the technical terms! ;)

tko683
Posts: 265
Joined: Aug 2011

Hi Jennie,
I had a port for 4 years and never once had a problem. My husband however has had the same problem you had. After only a few months they could not get blood out of it and it was hurting him. We ended up back in the hospital and they had to go in and fix it...apparently the catheter part of it was kinked and they went in through his groin with some type of device and pulled the kink out of it. They told him that it does happen sometimes from different things like coughing, vomiting, or in his case throwing a baseball..they said if that didn't work they would have to take it out and put a new one back in. He had the power port. Hope they get yours fixed soon. Hugs, Teri

Wenchie
Posts: 88
Joined: Apr 2009

Jennie:
I'm on my 5th port in 7 years (weird issues), however, mine seems to clog up every two weeks due to a sheath forming. I can receive chemo but they can't get a blood return in order to do my blood work. The simple fix for me seems to be Activase. I get the port injected with Activase, I "marinate" for an hour waiting for the sheath to dissolve and then I'm back in business. Ask for Activase!

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Thanks for your input everybody..... I will be talking to my doctor Friday and am requesting the TPA or Activase. Not sure exactly what these are or what the difference is but I am looking into it. Thanks again

Jennie

Doc_Hawk's picture
Doc_Hawk
Posts: 685
Joined: Jan 2012

Hi Jennie and everyone else. My first port got infected and had to be removed and a new one installed. I'd only had the first one in for a few treatments, but they could always get a draw pretty easy from it. With my second (and current) port, at first they had to get me almost upside down and into various strange and distorted positions to get a draw. After I moved from Arizona to Utah, the new cancer center cannot get a draw at all from the port. After reading this string, I'm going to ask about the various procedures some have had done to be able to get a draw.

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Jennie mine had problems a couple of times. They put a medication in called Activase. Its a thrombolytic medication that thins the blood and breaks up clots. The last time they used it for me it took two hours to get my port working. They would try to draw about every 30 minutes and it just didn't want to draw and finally when they almost decided it wasn't going to it worked. Since I've been off chemo since May and only gone in to have my port flushed, it works like a charm every time! Last time it was 2 months in between.

I hope it goes well for you

plh4gail

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

I went in Friday for my Vectibix but onc was not there so I did not get to speak with him about my port. I normally just stop by the lab and have them draw from my arm but I wanted to be sure my port would not draw so I requested the draw from the port. Charge nurse right away demanded to know why I was requesting this when "she knows her port don't draw". I told her my concerns about my port and man did she get sour on me! She informed me that the surgeon installed that port for one purpose ONLY...... To receive medication. The ability to draw blood out of that port is a "side benefit" ONLY!!! Not the purpose nor the intent of the port so they therefor do not consider the port to be failing or defective in any way if it does not draw. I told her I wanted that stuff put in there to clean it out and she said "that's ONLY if you have blood clots and you don't have any blood clots" oh really...how the hell do you know that? You got some kind of X-ray vision that you can see in there and see that? She said..well you have no pain....she never even asked me if I had any pain. A few times a week I get sharp pinching pains in that area but never gave it much thought till now. She said she would send a message to the onc but he would not address it until my Jan 31 appointment since it is not an emergency. She made me feel like I was being stupid for even thinking I had a port problem. Phil, you said your port don't draw all the time ....... Is your port checked for clots...ever??? If not, why not? Am I overreacting about this port not drawing because that is how they are making me feel. I just want to know all is ok. I have read that once a port stops drawing it is a prelude to a total malfunction ...not always but in a lot of cases. I just feel like if I do maintenance on my port and keep it fine tuned that I may prevent having to get another. IS that wrong???

Jennie

chemopt
Posts: 1
Joined: Sep 2014

Looking at the date, this comment may be too late to be helpful, but I found the response from your nurse very worrisome. I do not know if it varies by the type of chemo, but I can tell you that my nurses WILL NOT administer the chemo through an iv or a port if they cannot get a blood return. If there is no blood return, they cannot be sure that the chemo is going into a vein and not into the surrounding flesh, where it can cause all kinds of problems (lesions, boils, gangrene, etc.). Before I got the port, they took out iv's and put in new ones if they stopped getting a blood return. My port stopped giving a blood return after the first chemical was administered today (it still flushed fine), so they stopped the treatment to give the "draino." After that, I got a blood return fine, and they could continue. Everyone from the chemo nurses to the nurses when the port was placed have stressed that a blockage is a bad thing that may require the port to be replaced. If this is still an issue, I would be very concerned about their response and want a second opinion!

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

I went in Friday for my Vectibix but onc was not there so I did not get to speak with him about my port. I normally just stop by the lab and have them draw from my arm but I wanted to be sure my port would not draw so I requested the draw from the port. Charge nurse right away demanded to know why I was requesting this when "she knows her port don't draw". I told her my concerns about my port and man did she get sour on me! She informed me that the surgeon installed that port for one purpose ONLY...... To receive medication. The ability to draw blood out of that port is a "side benefit" ONLY!!! Not the purpose nor the intent of the port so they therefor do not consider the port to be failing or defective in any way if it does not draw. I told her I wanted that stuff put in there to clean it out and she said "that's ONLY if you have blood clots and you don't have any blood clots" oh really...how the hell do you know that? You got some kind of X-ray vision that you can see in there and see that? She said..well you have no pain....she never even asked me if I had any pain. A few times a week I get sharp pinching pains in that area but never gave it much thought till now. She said she would send a message to the onc but he would not address it until my Jan 31 appointment since it is not an emergency. She made me feel like I was being stupid for even thinking I had a port problem. Phil, you said your port don't draw all the time ....... Is your port checked for clots...ever??? If not, why not? Am I overreacting about this port not drawing because that is how they are making me feel. I just want to know all is ok. I have read that once a port stops drawing it is a prelude to a total malfunction ...not always but in a lot of cases. I just feel like if I do maintenance on my port and keep it fine tuned that I may prevent having to get another. IS that wrong???

Jennie

Lifeisajourney
Posts: 217
Joined: Apr 2010

I don't post much, but am an avid follower of all of you brave people. I had power port put in 1/09. Started folfox till May 09-seven in all till I had reaction. They put me in the hospital for 10 days and they drew blood there on the onc floor, used it for lots of things. No one has used it since for blood draw-never at the oncs office or other hospitals I have been at. Always told they needed special permission for blood draws.
After reading this, I wonder what the truth is. I go about every 6 weeks for flush. I am probably done with chemo, refused it after failed liver resection, but keep the port in case I end up in hospital and my veins are crap. One nurse tried to access it for a biopsy, she didn't get access, but oncs office have no trouble with flushes....so now after this discussion, I guess I am worried about if it is still good. Who should know???? The port seems fine, no rush to get it out, but if it is for chemo only, doubt if it will ever get used........Best to all of you, follow you all on your journeys.......Pat

John23's picture
John23
Posts: 2140
Joined: Jan 2007

Most nurses are not qualified to take a blood sample via a port,
central, or mid... and many do not know how, since it was not
within the scope of their job to do so. And usually a port
or other type of catheter needs a physician's order for medical
access (insurance purposes).

However, any nurse that is qualified to administer medications
via a port, PICC, etc, must also be qualified to maintain that
device. Part of that maintenance requires a proper flushing
of the tubing prior to the administering of medications through
that device.

The flushing process of all types of lines involves the flush, the
draw back to check for blood flow, and another flush.

The proper placement of the line is verified by the draw of
blood. If it does not provide a blood draw, the cause might
be clotting or sheathing of the tip, or the tip placement may
have moved.

The problem should be noted and resolved, since either
situation can impair the proper administering of medications
through that device.

It's almost a no-brainer.

Port-o-Cath

More about port maintenance

and:

d) If unable to obtain a blood return and the system flushes
without resistance, have patient change positions, raise arms,
cough, deep breathe, or perform the Valsalva maneuver. These
efforts may change the position of a catheter. If unsuccessful,
notify provider of inability to obtain a blood return. Verify
correct placement and integrity of the catheter with chest X-ray
and/or further studies. Never administer vesicant agents without
a blood return unless catheter placement and patency is verified.

I hope that helps?

Best health to all,

John

geotina's picture
geotina
Posts: 2120
Joined: Oct 2009

If the nurses are 100% sure that the chemo is flowing in properly, then you are ok. Oh, George said his first port failed on treatment #2 because the tip turned in to the vein and to correct it, had to replace it. Again, long as they are confident in administering the chemo then you should be ok. You may and I say "may" be forming a sheath at the tip. Sometimes you can have this sheath for months with no problems, it just covers the tip when they draw in and then releases itself. In George's case, it didn't release and could not be broken up. 99% of the time it can be broken up with TPN should it cause problems.

As far as the attitude, tell her to shove it where the sun doesn't shine. You have cancer, you have a recurrence, the last thing you need is attitude. If the attitude is real bad, send an e-mail to the hospital and I bet they experience an instant attitude adjustment. If they are having a bad day, tough, tell them they don't know what a bad day is.

Hugs - Tina

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

There is absolutely no reason why they can't put some of that TPA to see if it dissolves the clot.

There are 2 camps at my hospital - bloodraw WITH a port - and bloodraw WITHOUT.

The nurses are highly skilled at drawing blood through the port...it's just like getting pre-rigged for for infusion...quick, no fuss and no muss...and a heparin flush to go. Saves wear and tear on many of us whose veins have just had enough, unless the issue is forced.

And Jen....I was having sharp, stabbing pains in my port area too....I dismissed them as well....until they couldn't get a draw. That's when I knew that I was going to have to shake off the Propofol after the scope...and drive down to Infusion...and address the issue...and resolve it.

Pain? Port clogged? Hmmm? Potential for clots, darlin'...and the nurses in the scope ward and the trained nurses at my infusion center all agreed that clogged ports are not something to mess around with, especially if you have sharp pains in the area. You just never know.

You 'drano' them and if they don't unclog, you go to Intervential Radiology where they insert die to see if it is clogged...if it becomes faulty, you replace it. You don't leave it in and just say it is intended for chemo, no big deal.

The best that anyone can tell you if you got a blood clot and had issues from ingnoring the port situation is...WOOPS!

That advice and $4.50 will get you a Starbucks latte....but could wind you up in the hospital too...and haven't you had enough drama in your life this past year?

Your onc will buy off on the TPA...it took one quick call from the blood draw folks to my onc...and then PRESTO! You can't order through the drive-thru quicker than I got my issue cleared up....and it wasn't the first time....and probably won't be the last time.

I told you last time "Your people 'ain't' my people..." Better get on a plane and come get some good old-fashioned Texas health care, LOL! WE ARE the MD Anderson of North Texas - sayin' it loud - sayin' it proud:)

Clots do happen with these ports, so you're right, keeping them maintenanced properly, means a longer shelf life for the equipment and for us:)

Your request is absolutely reasonable and should be complied with...period - end of story.

I'm sure your onc will 'green light' this for you upon his return. If not, you'll just have to "Get Jenny With It."

LOL!

-Craig

WinneyPooh's picture
WinneyPooh
Posts: 318
Joined: Jul 2009

When ever my port gets clogged I have am sent to the hospital to have clot buster put in, They have to have blood return for many of the meds I am on and it would concern me greatly if the staff ever treated me like that, perhaps it is time for a new team. Take care jennie, Keep up the good fight.
Be the bunny.
Penny

Tinker243
Posts: 3
Joined: Sep 2011

Hello Everyone,

My husband has a power port and whenever they couldn't draw blood during a flush, they would recline his chair until his head was below his heart and then it would work. They had indicated drawing blood could cause the flap/valve to pull closed.

As a side note, I'm a friendly neighborhood lurker who has been following everyone since my husband was diagnosed with two primary cancers in March 2011, colon and pyloric. The colon cancer was in the assending colon and the pyloric cancer had invaded the stomach, duodenum and surface of the head of the pancreas. Along with the cancers he also had a fistula from his stomach to intestine. He had 3 biweekly treatments of Folfox, then had whipple the end of May followed by 9 more treatments of 5FU, oxiliplatin, Avastin, and Xeloda. His treatment ended with his last dose of Xeloda after Thanksgiving dinner. :-)
Mid December he had a Pet Scan that came back normal and normal CA19-9 results. His surgeon was also able to get all clear margins during his whipple. He returned to a physically demanding job 2 weeks ago and now we are trying to get back to normal, our new normal. We are thrilled with his outcome and cautiously optimistic.

I'd like to thank everyone for helping me to keep all of this in perspective. We live for today, hope for the best and prepare for the worst. My preparation for the worst is done quietly in my head so my husband can seize each day knowing I have his back. Thanks for listening.

Love and strength to all of you!
Becky

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Jennie,

Have you lost or gained much weight lately? I lost several pounds over the past few months and then my port started not giving the blood return as consistently as it used to. The nurse said she could feel that it wasn't lying perfectly flat in there anymore & was probably due to my weight loss. She said when there's a significant change in weight (up or down), that the port can shift a bit from its original placement and could maybe be kinking the tube a bit which could allow things to go in sufficiently but not as good for drawing blood out.

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

I did a 20 minute workout the last time they tried to get a draw to see if movement would get things going...NOPE. Even laid all the way back in recliner with legs straight up in the air and moing them like I was on a bicycle...LOL..oh yeah..It was comical...but I had to know for a fact that nothing I could do would make a difference. I have gone thru the workout every time I could not get a draw and it has never mattered. Lisa, I have lost a few pounds over the last few months but I am talking only a few. Craig...you know me too well!!! "GET JENNIE WITH IT?????" You got that straight!!!! and I ain't waiting until the end of the month till I see the Onc. I'm calling in the morning cause I just feel like boetchin!! Luv ya guys!!!

Jennie

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

never in 3 years it's never used to drawing blood only oncology nurses are allowed to manipulate ports, so any lab or infusion has been don always through vein infections an malfunctions are consider too common to manipulate it just for a simple blood work !

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

We always access patients ports in the ER. There is a protocol to use, we are taught to do it, and we use it if that is what the patient wants. They don't always draw back blood and those that are tricky in that way...well there are things you can do sometimes as simple as repositioning the pt (sitting up straight, reclining position, even change the position of the arm). And once in awhile it just wont draw back. But not very often. That was my experience accessing ports as a nurse in the ER. It's very easy and a sterile technique.

For myself as the patient, mine didn't always draw back at chemo but still flushed easily and was used for chemo, it got activased once. But mine did not hurt. And at Stanford they refused to use it when I had any surgeries or proceedures. Said its not done there and required a specific nurse.

I hope you get your port issue worked out :)

plh4gail

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Yep.... Had enough BS and decided that since ALL of these people work for me that i am getting what i want till i am satisfied with the answer. I filed a major complaint about that nurse who made me feel so stupid. She has already called me with an apology. Good. I made sure she knew that i was a major tattletale so she better watch her stuff. I have an appointment tomorrow morning for that dye to be put in port. Onc got on that immediately. Thanks Tina... Craig... And all you guys for making me see I deserve better care and shame on them!!! Luv u all. Jennie

John23's picture
John23
Posts: 2140
Joined: Jan 2007

Well, being pushy isn't like you at all. You don't suppose that
you're feeling too much of that medical crack cocaine, huh?
(har har)

Usually they'll ingest some blood thinner (clot buster) into the
device and allow it to work.

I have a PICC line, which is about the same as a port, without
the lil' bag under the skin. I have to service and maintain the
stupid thing myself. It's usually required to inject some Heparin
at the end of the infusion (I take hydration via the PICC daily).
The Heparin dissolves any blood that may be clotting at the tip,
and keeps the valve clean.

I have reduced the Heparin to once or twice weekly, since I don't
need to thin out my blood more than it is already....

They should first try Heparin, or Activase, or whatever they
have that can dispel the clot. Injecting dye and going through
all of that procedure is a great money-maker for them, but
overkill if nothing else was tried first.

Your appointment should have been with an interventional radiologist
(as Craig suggested), since they are the most informed and experienced
with these things.

Honestly gal, you really do get a "treatment", ehh? I told you,
that if you didn't tip them BIG BUX at the holidays that they'd
find a way to get you.... See..... I was right. No tippie; no washie.

Good luck, and better health,

John

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

I am about as pushy as you are! I do get Heparin every 2 weeks after my Vectibix which is why they are going the other route. I am getting the dye done at the radiology department at the hospital who I believe employ the qualified people needed to get the job done but if not my mild mannered self will prevail. As far as cost goes..... My monthly insurance rate is going to be the same no matter what procedure is done. Actually, it's cheaper at the hospital since there will be no doctor copay there. SOOOOO...you stand corrected. : ).

Better Health to ya

Jennie

Kenny H.'s picture
Kenny H.
Posts: 503
Joined: Aug 2010

Get regular flushes with herapin and you shouldnt have any problems.. (at least I havent yet)

dccomp1's picture
dccomp1
Posts: 1
Joined: Oct 2015

I hope someone can help me.  I have CLL; I had chemo two and a half years ago.  I have a chest port.

 

In the years of flushing (herapin), after chemo treatments, I never had any problems. Now it appears I will ungo chemo again in January, 2016.  My schedule has been flushing 3 months, and drawing blood for tests the fourth month.

 

My Problem: four months ago, after my flushing, I returned home.  That evening I has what I thought was the most severse case of flu I have experienced.  I really did not think too much about it.  Then after the next two months of flushing,  I experienced the very same reaction...that's three months in a row.  Finally, this week I had blood drawn for tests...and I experienced the same thing as the previous three months.  I have discussed this with my Oncologist twice, and he says he is unaware of anything that would casue this reaction.

 

I have asked the person doing the flushing had there been any changes in her solution.  She said no, still the same herapin.

 

If I must go through any six months of chemo, with whatever this problem is, I won't survive.  (my prior chemo schedule was three and half days a month for 6 months).

 

The only thing I can think of would be something wrong with the port.

 

Does anyone have/had experience with my problem?

Trubrit's picture
Trubrit
Posts: 5193
Joined: Jan 2013

Dear new member, dccomp1. I think this question would be better addressed in a brand new thread, as this one is old and you require a response  all of your own. 

If you would like help posting a new thread, just PM me, or let me know here. Or I could start the thread and link you. 

Welcome to the forum. I am sorry to hear your woes, but know that someone here is sure to have some helpful advice. 

Sue - Trubrit

Helen321's picture
Helen321
Posts: 1409
Joined: May 2012

I so miss this whole crew <3

 

John23's picture
John23
Posts: 2140
Joined: Jan 2007



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However, since the IT team of this Board appears to be unfamiliar with proper coding, we all are subject to being allowed to post to old posts.

The reaction you are having may be from a bacterial colonization on your port line.

Bacteria, once in your blood, can (and does) colonize on any type of catheter. Since your blood does not travel on the sheath of the catheter, any antibiotic will not kill that bacteria. When you take fluid of any type through the catheter, the bacteria gets into your blood immediately, and causes an immune system reaction.

I had that problem and cured it via Traditional Chinese Medicine. The standard protocol is to remove the catheter, administer an antibiotic for that specific bacteria, and hope for the best. The catheter should not be replaced until your blood work comes back clear of any bacterial infection.

Bah-Dah-Bing; Bah-dah-boom. Done.

Good luck. Oh…… and get yourself a physician that knows what the $%^&* he’s doing. There’s no reason for you to have had to go through all that this long.

Best to you,

 John

 

kareed
Posts: 2
Joined: Jul 2017

May be to late on this but you are having a reaction to Heperin. They use Sodium Citrate on me because of the same reaction you het.

aggie0053's picture
aggie0053
Posts: 110
Joined: Mar 2011

it just happened to me yesterday my 12th treatment they gave me an xray called a venography found like protein buildup . my chemo rn gave me a shot in the port to dissolve it about an hour, it worked

kareed
Posts: 2
Joined: Jul 2017

I was admitted to the hospital due to low platlet counts. I have a power port. The IV was allowed to run dry and blood was running back up the tube to the IV bag. I sat there for 2 hours that way. When they finally got back to me the Port was clogged. The IV therapist tried pushing saline back through the port. After 15 minutes of trying it finally went through but I got a bad pain in my neck where the port goes into the vein. A couple of weeks later I was told I had a small blood clot in my left lung. Tests were done showing I DO NOT have DVT. The clot had to of come from the clot pushed through my port. They want to keep me on Lovenox shots twice daily for the rest of my life. I think not. That is NOT quality of life. There is NO proof other than they caused the clot.

Trubrit's picture
Trubrit
Posts: 5193
Joined: Jan 2013

Hello Kareed - Welcome to the forum.

This is an old thread, and many of the folks here have passed on.  May I suggest you start your very own thread on the forum home page; that way we can reply to your questions and concerns. 

The home page can be accessed at this link https://csn.cancer.org/forum/128

Tru

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