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Back in the hospital :UPDATE 1/8/11 plus a bit more after an interruption

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

This time we had the fire dept at the house, and an ambulance here, all at the insistence of the home health nurse.

Not sure what is wrong, just hope they figure it out...

More details when I am feeling better.

Blake

UPDATE 1/5/11:

Symptoms included low grade fever, SEVERE night sweats, severe edema in left leg and groin accompanied by dehydration and mild constipation

ER docs suspect cellulitis, and start me on a cocktail of IV drip antibiotics. I also get a CT of the pelvic area and ultrasound of the legs, along with innumerable blood draws.

CT shows a blockage between left kidney/bladder, with subsequent swelling of the kidney and raised creatinine levels. Tomorrow they will put in an external stent to drain the kidney, then replace that next week with a stent feeding directly into my bladder.

The sweats are greatly reduced, and last night I used a blanket for the first time in weeks, so the antibiotics are having some effect. My bowels moved today, another good sign. It is possible I will be released this weekend.

The left lower extremities remain grossly distended, and amputation with a urostomy sometimes seems a good alternative (this is an attempt at humor, these are not even options). I figure this is where John is sticking his needles.

UPDATE 1/8/11

The stent went in on Friday, and my creatinine level popped right down to normal. For the short term I have two bladders, one making lemonade and the other making blood orange juice.

Still in the hospital. I realized yesterday that I face some serious logistical issues. For one, I do not think I could ride in a car, then there is the issue of getting me from the driveway to the bed. My wife fears she is not up to the task of caring for me (she may be right).

I have figured out how to get to San Diego; it involves a cargo van, an air mattress, lots of pillows and hiring an EMT.

And more:

Sorry, doctor came in and I did not want to lose anything. They are holding me in here till Tuesday morning, and may install the permanent kidney stent tomorrow.

Except for the APR last January I have been ambulatory. Even then I could get out of bed and shuffle around like an old man. Yesterday I got out of bed twice, once so they could change the sheets, and once to try out the wheelchair. Both times took tremendous effort, and both sent the pain scale soaring. I am going to need homecare, along with home healthcare, as I cannot get out of bed to go to the bathroom. Needless to say this puts a big dent in my QOL.

So everyone understands, what I am going through is all about the cancer and is not side effects from treatment. Treatment kept me from this in June, and a good trial may pull me back again in 2012.

Love you all,

Blake

z's picture
z
Posts: 1413
Joined: May 2009

I hope they figure it out too, this is not very fun I am sure. Lori

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Oh my, I'm sorry to hear that you're back in the hospital. I hope that your doctors can quickly fix whatever is causing you trouble this time around.

Best wishes,

Cyn

buckeye2
Posts: 428
Joined: Jul 2011

Sending prayers and hopes that the answer is a simple one and that your days in the hospital are few and painless. Lisa

mom_2_3
Posts: 964
Joined: Nov 2008

Best wishes Blake for relief and answers to this. Sending lots of good thoughts your way.

Amy

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

I hope they can get you feeling better and back home soon. Being in the hospital isn't any fun, but hopefully it's the right place to be to get some help. Hugs-Ann

John23's picture
John23
Posts: 2140
Joined: Jan 2007

Blake.....

Tell me that you secretly believe in Chinese Medicine, and
I'll remove the needles from my Voodoo "Blake doll".

Seriously, I hope you start feeling better soon!

My best wishes are headed your way.

John

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

You had a hand in this!

;-)

tommycat's picture
tommycat
Posts: 790
Joined: Aug 2011

Blake, I can tell you're feeling better if you're able to BS with John. :) Keep getting better okay?

jjaj133's picture
jjaj133
Posts: 869
Joined: Mar 2011

Blake, hope the answer comes quickly and you are home soon. prayers coming your way.
judy

karguy's picture
karguy
Posts: 1024
Joined: Apr 2009

I hope they figure it out pretty soon.I hope you get better soon.

tko683
Posts: 265
Joined: Aug 2011

So sorry that you are back in the hospital. I hope they figure it out so you can start feeling better very soon.
Hugs,Teri

Lovekitties's picture
Lovekitties
Posts: 3327
Joined: Jan 2010

The best part about an ambulance ride is immediate attention at the hospital...at least I hope that is what you got.

Hoping this is just a small bump in the road for you and you can be feeling better and home soon.

Hugs,

Marie who loves kitties

steveandnat's picture
steveandnat
Posts: 887
Joined: Sep 2011

Hope you get better fast will be praying for you.
Jeff

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Blake
Thinking about you an saying a prayer that you're out soon.

Aloha
Kathleen

karen40's picture
karen40
Posts: 211
Joined: Aug 2011

I just said a prayer for you. I'm hoping the doctors can figure this out soon. Your in my thoughts.
Karen

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

Everyone for the well wishes!

PhillieG's picture
PhillieG
Posts: 4885
Joined: May 2005

I hope they figure it out and you get better soon
Phil

geotina's picture
geotina
Posts: 2117
Joined: Oct 2009

Gosh I'm sorry. Sure hope they can figure things out.

Take care - Tina

Annabelle41415's picture
Annabelle41415
Posts: 6179
Joined: Feb 2009

I'm hoping that they figure it out too and hope you get to come home soon. Get better fast.

Kim

lizzydavis's picture
lizzydavis
Posts: 893
Joined: May 2009

Hi Blake,

Just want you to know I am wishing you well. Please keep us posted. We are waiting to hear from you.

Hugs & prayers,
Lizzy

alexinlv's picture
alexinlv
Posts: 194
Joined: Jul 2010

So sorry to hear this! Sending healing thoughts and prayers your way!

lesvanb's picture
lesvanb
Posts: 911
Joined: May 2008

Holding you close in my heart, that you have less and manageable pain, and that this resolves soon!

all the best, Leslie

yoga
Posts: 87
Joined: Feb 2011

Happy New Year Blake . . . . I am sorry that your 'holiday' season has been plagued with so many problems. I hope that things are figured out soon and that you can get back to enjoying your retirement and life in general.

I was thinking though - if you had to go back to the hospital, going in style seems the way to go. Adding the fire department to the mix certainly seems to be stylin'.

Take care,
yoga jo

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Sending prayers from here .
Hugs!

Grace14
Posts: 65
Joined: Sep 2011

You are in my thoughts and prayers!!!

smokeyjoe
Posts: 1428
Joined: Feb 2011

Oh, Blake, I sure hope you get some relief soon.

Matta's picture
Matta
Posts: 39
Joined: Jun 2011

Best wishes Blake for relief and answers to this.

Matta

relaxoutdoors08
Posts: 520
Joined: May 2011

Buckwirth,
I appreciate your being here with your knowledge base and making the links for we who are new to the board. Prayers for your comfort and a good plan.
NB

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

Get better!! Thinking about you!

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Blake,

I'm truly sorry to hear this- hope they figure out very soon what's going on in your body. Prayers for minimal pain or at least pain management & for whatever it is to be cleared up soon.

Take care,
Lisa

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Praying you're doing better now, Blake!

*hugs*
Gail

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

Get well soon

herdizziness's picture
herdizziness
Posts: 3642
Joined: Apr 2010

whatever is wrong is figured out and your on to a healthier 2012!
Winter Marie

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

I hope your feeling better.

hugs,
pete

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

With wormholes.

Sorry to hear about the CEA, and still hoping it is something else.

annalexandria's picture
annalexandria
Posts: 2573
Joined: Oct 2011

sounds like they are addressing at least some of the problems, and i hope they can get everything feeling better soon. And I hope you can get home asap-I always feel so much healthier when I got out of the hospital! Ann

Annabelle41415's picture
Annabelle41415
Posts: 6179
Joined: Feb 2009

You have been through a lot. Glad that they are figuring things out for you and hoping you feel better soon and get to come home this weekend.

Kim

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Hope you feel better very soon , take care my friend!

wolfen's picture
wolfen
Posts: 1320
Joined: Apr 2009

Started to shout out to you, but then saw your update. I'm so sorry things are going so miserably for you. Hopefully the doctors will get this all figured out and cleared up. Hoping you are back at home by now with a plan.

Luv,

Wolfen

lauragb
Posts: 370
Joined: Aug 2011

Keep getting better so you can get out of there.
Sending light and prayers.

Laura

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

to hear this is all happening and thanks for the update,i have been thinking about you and wondering what has been happening.....Godbless....johnnybegood

karen40's picture
karen40
Posts: 211
Joined: Aug 2011

Sorry to hear that your still in the hospital but glad that you're starting to feel a little better. I hope all goes well with the stent placements. Your in my prayers.
Karen

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Hope it gets figured out soon and you're not uncomfortable. Hope you get to go home soon!

plh4gail

buckeye2
Posts: 428
Joined: Jul 2011

I hope you get some over the weekend(typo I meant home) but if the other works out that's great too. Lisa

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

:-D

John23's picture
John23
Posts: 2140
Joined: Jan 2007

I give up....

I see the :-D .........!

Is that - "happy with the way things are going",
or - "totally drugged out"?

Either way, great to see the cyber-smile!

John

Buckwirth's picture
Buckwirth
Posts: 1272
Joined: Jun 2010

Buckeye's "typo"

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Hope you're doing much better now!

*hugs*
Gail

tanstaafl's picture
tanstaafl
Posts: 1292
Joined: Oct 2010

Blake sorry to hear the discomfort and inconvenience. US home care can be overwhelming.

There is a time when affordable nursing care "at home" can be more beneficial than "US standard issue". Crossing a border for affordable full time nurses, home blood draws, Skype assisted phone consults to a personal doctor, to me, may beat dragging it in to dr offices or medical facilities, and waiting on home services for everyday items.

coloCan
Posts: 1956
Joined: Oct 2009

For me,thats still a potential problem as its close to my ureter .....hope matters improve ASAP......Look at the bright side:at least you don't need a bathroom for everything!!!!!

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