3 years 4 months

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asuprpixie
asuprpixie Member Posts: 14 Member
in Ovarian Cancer #1
I am happy to say that I have made it to 3 years and 4 months of being NED (3C). Merry Christmas to me!!!! I am still amazed how frantic I become right before my test time. I truly believe that I have overcome this beast, but the devil likes to throw doubt in there right before results time. I finally after all of this time asked what my CA marker was upon first being diagnosed, and I found out it was 149. That really doesn't seem so high for being stage 3C. I guess I just assumed it would be astronomical. I am curious as to the markers of other stage 3C teal sisters when first diagnosed with this terrible disease. I still have so much to learn about this disease.

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  • JoanC
    JoanC Member Posts: 231
    #2
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    3 yrs plus
    I have been NED and out of treatment since Oct.3rd 2008 My CA was 1960 when first dx. It is now a "5" I get my CA 125 test next week and it is still very stressful.
    Merry Christmas to you and all my teal sisters
  • asuprpixie
    asuprpixie Member Posts: 14 Member
    #3
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    JoanC said:

    3 yrs plus
    I have been NED and out of treatment since Oct.3rd 2008 My CA was 1960 when first dx. It is now a "5" I get my CA 125 test next week and it is still very stressful.
    Merry Christmas to you and all my teal sisters

    CA 125
    Thanks for your response. Wow! 1,960? That is up there. My marker has remained at 4 since 2009 (after a couple of treatments). Congrats on being NED for 3 plus years...you are going to hear of GREAT results next week!!!
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #4
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    asuprpixie said:

    CA 125
    Thanks for your response. Wow! 1,960? That is up there. My marker has remained at 4 since 2009 (after a couple of treatments). Congrats on being NED for 3 plus years...you are going to hear of GREAT results next week!!!

    Congrats! I have been NED
    Congrats! I have been NED since Spring of 2010 (diagnosed in Sept, 2009). My CA125 was 4,000 at diagnosis.

    Carlene
  • Kaleena
    Kaleena Member Posts: 2,088 Member
    #5
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    Congrats!
    Sooooo happy for you and others who are NED! Celebrating with you! Congratulations on being NED for over three years!
  • MK_4Dani
    MK_4Dani Member Posts: 314
    #6
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    3C
    When dx in July of 2009 my CA marker was 366. It has been 4 since treatment was complete in Jan 2010.
    Congrats on being NED and ask the doc for something to help you out with the anxiety during test times. Xanax should do the trick.
    Mary
  • kellyh33
    kellyh33 Member Posts: 287
    #7
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    CA 125
    My Mom's CA 125 when she was first diagnosed was 14,301. It seems unbelievable to me now when i read other people's numbers. Unfortunately, the lowest mom's ever got to was 3,628 before it started to climb again.
    Still missing her everyday.
  • asuprpixie
    asuprpixie Member Posts: 14 Member
    #8
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    kellyh33 said:

    CA 125
    My Mom's CA 125 when she was first diagnosed was 14,301. It seems unbelievable to me now when i read other people's numbers. Unfortunately, the lowest mom's ever got to was 3,628 before it started to climb again.
    Still missing her everyday.

    CA 125
    Wow, Kelly. I don't think I have heard of a marker that high. I am so sorry. I am sorry for your loss. I pray I never have to endure this beast again.
  • Robkel7
    Robkel7 Member Posts: 68
    #9
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    149
    That was my original number on May 22, 2011. Surgery on June 7th. 6 rounds of standard chemo. Finished at the end of October. Number on November 15th was 9. Hoping i get to dance as long as you! Congrats! I am also 3C. Love to all.
    Robin
  • jbeans888
    jbeans888 Member Posts: 313
    #10
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    I too was diagnosed a 3c and
    I too was diagnosed a 3c and the highest my ca-125 was a 75. That's not high at all. My last chemo was June 28th of this year. My Dr said the ca-125 is not a good tumor marker for me. I am sure you are the same. I said well then what do you watch? They said the ca-125 and of course we go off the ct-scans and how you feel. I said off how I feel? Isn't ovarian cancer the silent killer?! Somedays I just don't know.
  • carolenk
    carolenk Member Posts: 907 Member
    #11
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    jbeans888 said:

    I too was diagnosed a 3c and
    I too was diagnosed a 3c and the highest my ca-125 was a 75. That's not high at all. My last chemo was June 28th of this year. My Dr said the ca-125 is not a good tumor marker for me. I am sure you are the same. I said well then what do you watch? They said the ca-125 and of course we go off the ct-scans and how you feel. I said off how I feel? Isn't ovarian cancer the silent killer?! Somedays I just don't know.

    I guess you watch for subtle
    I guess you watch for subtle changes in your digestion/elimination. My CA-125 got into 4 digits before I became symptomatic. It's hard to describe but I think you would know when your body felt different.
  • kikz
    kikz Member Posts: 1,345 Member
    #12
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    carolenk said:

    I guess you watch for subtle
    I guess you watch for subtle changes in your digestion/elimination. My CA-125 got into 4 digits before I became symptomatic. It's hard to describe but I think you would know when your body felt different.

    First of all congratulations
    on your three plus years of NED. My first CA 125 was 6900 and it went up to over 9000 in the few weeks before I began chemo. It was 1600 before my debulking surgery and 13 post surgery. This was all in 2010. My latest number was 5 and I am due for my next one in January.

    Karen
  • Tethys41
    Tethys41 Member Posts: 1,382 Member
    #13
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    NED
    It is heart warming to see so many women with NED. I was diagnosed IIIc in August, 2009, CA-125 4,600. CA-125 in March, 2010 was <1. Currently it is 3.
  • shelfish
    shelfish Member Posts: 18
    #14
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    Hurray!
    So happy for all of you. This is why, even though you are "in remission", that we want to hear your stories. My mom was diagnosed 9/23/11 stage IV ca125 648, down to 48 11/29. Just had debuling surgery last week. I am hoping her numbers will be in the single digit. There is hope! You all are proof!!
  • azgrandma
    azgrandma Member Posts: 609 Member
    #15
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    shelfish said:

    Hurray!
    So happy for all of you. This is why, even though you are "in remission", that we want to hear your stories. My mom was diagnosed 9/23/11 stage IV ca125 648, down to 48 11/29. Just had debuling surgery last week. I am hoping her numbers will be in the single digit. There is hope! You all are proof!!

    thats great hon
    thats so great what a great present for christmas
  • lauripiper
    lauripiper Member Posts: 28
    #16
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    9 months
    Mine was 400+ when I was diagnosed and is now holding steady in the single digits. I just wanted to say if your CA-125 is not a good marker for you, there is a new test called HE-4. Ask your doctor about it.
  • carolyn45
    carolyn45 Member Posts: 100
    #17
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    lauripiper said:

    9 months
    Mine was 400+ when I was diagnosed and is now holding steady in the single digits. I just wanted to say if your CA-125 is not a good marker for you, there is a new test called HE-4. Ask your doctor about it.

    CA 1587
    That was the number when a tumor perforated my bowel on Feb. 16 if this year. I was staged 3 C with the "benefit of a doubt" that the fluid in the bottom third of my lungs contained no cancer cells. After 3 rounds of chemo I was at 42. After debulking surgery May 5, the number was 6. This October, 4.4. We CAN win!!
  • heatherstage3
    heatherstage3 Member Posts: 7
    #18
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    im so glad all of your
    im so glad all of your numbers are low. i too am stage 3. i was diagnosed july/2010. im officially in remission as of 3 months ago. merry christmas. live it up ladies. i know i am

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