Good Day!

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Thought I would update all of you on what is going on with John and I. Yesterday was 12 weeks post-op. John is doing great. He has gained 10-12 LBS; he weighs in at 145-147 lbs (he is 6’ tall). His energy level is increasing (hemoglobin on the rise) and he is back at the gym most days. He is learning how to eat smaller amounts of food at one setting and to eat more frequently. John was the kind of person that would go all day without eating and then eats a very large dinner, so this is a big change but he has gotten the hang of it. John has not had any issues with dumping, just severe pain if he eats too much. He has a little more peep in his step and is back doing his normal daily activities. Today we went out for a late lunch and then bought a Christmas tree. Don’t want to rub it in (I know Eric mentioned how nice it is here in Florida) but I went Christmas tree shopping wearing Shorts, T-Shirt and sandals, got to love Florida weather in December. So we will start to decorate the house for Christmas. I thought of Niki the other day because when I got home from work (after dark) John had hung lights outside. I love Christmas lights. Years ago when we were at Christmas tree farm (in Michigan) I was discussing with John how we should hang up lights outside. John said to me “why should we do that we don’t have kids” I started to say something and a women standing next to us said how she did not have a lot of money and that she would take her children and ride around different neighbors looking at lights. She said how much she appreciated people that put them up for her children to enjoy. The next day John started hanging lights outside, and he has every year since then. Never thought when I heard EC in May, I would see John hanging lights this year. I have been reading everyone’s post but have not posted been very busy at work and been in the process of applying for a promotion (along with everything else I do all day). Well I am happy to tell you that I accepted a new position (promotion in the same company) on Thursday.
So I thought I would share all the good news with you my family. Six months ago I found out that my husband had stage three EC and today with the help of all of you and a very gifted medical team, John is doing marvelous. The way I made it through is with all of you out here cheering for John, giving me pep talks or letting me cry on your shoulder. William and Loretta helped me find the correct surgeon that did MIE surgery. Loretta got on the phone several times with me and walked me through what I needed to do. When I look back I still cannot believe how kind and wonderful total strangers (not any more) were to me. The people on the board helped save John’s life. The best thing about John having EC was finding all of you here. I have learned so much about life and the human sprit here, some very valuable lessons.
For all of you that are new here I hope my post gives you some hope.
Love to you all
Erica
Wife of John
Diagnosis-T-3, N-1,M-0-- 5-17-11
Chemo/Radiation-completed --7-11-11
MIE surgery with robotics-- 9-9-11
29 lymph nodes & tumor-cancer free

Comments

  • TerryV
    TerryV Member Posts: 887
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    ALL of that makes for a GREAT day!
    Erica,

    That is all wonderful news! Glad John is doing so well! Isn't it wonderful to see our spouses becoming more of their former selves again? I know Niki will be relieved when Jeff is done with post-op chemo.

    Congratulations on the promotion! I hope it's added money, added status, but NO added stress :)

    Thanks for being here for ME also! I know that Nick & I wouldn't have made it through this alone.

    MUCH Love & MANY Hugs!

    Terry
  • JReed
    JReed Member Posts: 428
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    Christmas Lights & Promotion
    Hi Erica & John:

    All of the smart Michiganders end up in the warm southern states eventually don't they?
    My husband's mother and father were born and raised in Houghton Hancock in the UP - they have been divorced and remarried and each live in sunshine states now. His mom and stepdad live in Florida - West Melbourne and his father and stepmother just moved from San Francisco to Charlotte, NC to be nearer to her son.

    That is so cool that the mother told you about driving her kids around to see the lights. When I was little, my parents would do the same thing with us. Those memories are so dear now. We didn't have a whole lot back then, but we could afford gas for the car, and we took many road trips, but the trips to look at the lights are my favorite. In fact, where I live in Marshall now is where we used to see the most beautiful Christmas lights.

    So happy that John continues to do this because others enjoy it so much. And I'm very happy to hear that he felt like doing that. It does give me hope. We are just beginning our journey with EC. Don had his PET scan today and he will he EUS on Friday (with a visit to the cardiologist on Wednesday). I don't really know where we're headed, but I know that it is gonna get worse before it gets better. Even though I know that, I don't really know - so I'm anxious to get going with treatment, but scared at the same time. I do know that our lives are forever changed, but not exactly sure how it will change. The lights and decorations are not up yet at our house but I'm so looking forward to being able to look back at this December and see how far we've come.

    Thank you for sharing and giving a newbie hope!

    Hugs,
    Judy
  • Ericalynn
    Ericalynn Member Posts: 200
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    TerryV said:

    ALL of that makes for a GREAT day!
    Erica,

    That is all wonderful news! Glad John is doing so well! Isn't it wonderful to see our spouses becoming more of their former selves again? I know Niki will be relieved when Jeff is done with post-op chemo.

    Congratulations on the promotion! I hope it's added money, added status, but NO added stress :)

    Thanks for being here for ME also! I know that Nick & I wouldn't have made it through this alone.

    MUCH Love & MANY Hugs!

    Terry

    Hi Terry!
    Terry,
    The promotion is a Director position and it is added money and well the stress part who knows, but I have learned from this year that life is too short to get too stressed out about work, now the key is to hang on to that thought during the heavy stress times LOL! It is so nice to have John back he really is himself these days, the first time I really realized he was “back” was a couple of weeks ago and he was crabby just normal John crabby and I started laughing (to myself) and I thought well here he is he is back, I ignored his crabbiness and just smiled. I think of all of us here everyday and I am so glad that I found this board. I can’t wait for Jeff and Niki to be done with his Chemo and then we can have umbrella drinks to celebrate!
    So glad that you are here posting and still cheering from chilly Iowa, love my Florida weather, I’ll be complaining in the summer, LOL
    Love to you and Nick
  • Ericalynn
    Ericalynn Member Posts: 200
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    JReed said:

    Christmas Lights & Promotion
    Hi Erica & John:

    All of the smart Michiganders end up in the warm southern states eventually don't they?
    My husband's mother and father were born and raised in Houghton Hancock in the UP - they have been divorced and remarried and each live in sunshine states now. His mom and stepdad live in Florida - West Melbourne and his father and stepmother just moved from San Francisco to Charlotte, NC to be nearer to her son.

    That is so cool that the mother told you about driving her kids around to see the lights. When I was little, my parents would do the same thing with us. Those memories are so dear now. We didn't have a whole lot back then, but we could afford gas for the car, and we took many road trips, but the trips to look at the lights are my favorite. In fact, where I live in Marshall now is where we used to see the most beautiful Christmas lights.

    So happy that John continues to do this because others enjoy it so much. And I'm very happy to hear that he felt like doing that. It does give me hope. We are just beginning our journey with EC. Don had his PET scan today and he will he EUS on Friday (with a visit to the cardiologist on Wednesday). I don't really know where we're headed, but I know that it is gonna get worse before it gets better. Even though I know that, I don't really know - so I'm anxious to get going with treatment, but scared at the same time. I do know that our lives are forever changed, but not exactly sure how it will change. The lights and decorations are not up yet at our house but I'm so looking forward to being able to look back at this December and see how far we've come.

    Thank you for sharing and giving a newbie hope!

    Hugs,
    Judy

    You are in the right place
    Judy,
    The UP is COLD! We have been in Florida 10.5 year’s love the winters the summer can be brutal but you just stay in the air conditioning or a pool. I was happy that John started putting up lights one more "normal" thing that he is doing.
    Everyone here knows exactly how you are feeling we were all once were you are now. There are ups and downs along the way and it all just kind of flies by. John did quite well with Chemo/Radiation. He went to the gym everyday while he was doing chemo/rad (he was working out before he started treatment) towards the end of treatment he had a lot of fatigue but when he was tired he laid down took a nap. All I can say is keep posting here keep talking to us ask questions and take it One Day At a Time! I know it sounds like a cliché but it does work. Don’t project to far into the future it does no good. There is hope and there are a lot of people here that are living proof.
    Keep us posted on EUS results.
    Hugs to you both
    Erica
  • Heeran
    Heeran Member Posts: 171
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    love your post
    I loved your post so much that I had to read it twice. it gives me so much hope as my mom is nearing her surgery date next Thursday. I would love to see my mom like she was before. Right now her body looks the same, but it's not her. She's fatigue, depressed, has fear anxiety over the surgery, and feels guilty that her family has to take care of her. I hope and pray she has an outcome like John's.
  • Luvs24
    Luvs24 Member Posts: 75
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    Heeran said:

    love your post
    I loved your post so much that I had to read it twice. it gives me so much hope as my mom is nearing her surgery date next Thursday. I would love to see my mom like she was before. Right now her body looks the same, but it's not her. She's fatigue, depressed, has fear anxiety over the surgery, and feels guilty that her family has to take care of her. I hope and pray she has an outcome like John's.

    Hope...
    There is always hope. When I arrived in Florida (and my sister left the same day) my dad was not alert, tired, just kinda "there". It was tough seeing him like that. But a few days after (almost three weeks after the surgery), Mom and I were talking in the kitchen (open concept from where he was sitting), said something about what he had or didn't have and he piped up saying "I did have that"...And he had been right. OKAY....Dad is coming into it! That was a GREAT step.

    Good luck for the surgery, and document things after. I can't say that enough because days start flowing together and you won't be able to see the little steps being made.

    Beth
    Daughter of Roy
    DX 06/17/11
    T3N1M0
    Robotic Ivor Lewis 10/07/11