Scan results....

MAJW
MAJW Member Posts: 2,510 Member
in Breast Cancer #1
Where to start......some good news, some not so good....blood work, as always, perfect...tumor marker number is down 4 points...I'll take it! The nodes that were radiated are way down..but still present...no surprise there....some have shrunk that weren't radiated..but others remain the same...but all are very small.... it could have been worse and could have been better...it is what it is....new plan...he wants me to have a monthly infusion of Zometa for my bones...have no clue about this drug and would greatly appreciate input from those on it...side effects, etc...

Now for the interesting part.....he is going to jump through hoops for me to add Avastin to my Xeloda, of which, he is going to up the dosage...(I have tolerated it really well, so far). ....even though the FDA has pulled it for stage IV.....He went into a lengthy explanation as to why it was pulled...Women in late stages of stage IV (I am not in late stages) were mostly, given Avastin, alone...he went on to explain how Avastin works in conjunction with chemo drugs..way to long to explain here....anyway if he can get it approved I will continue the Xelada, 7 days on 7 days off with Avastin every other week....ugh.....but hey what ever it takes to keep the beast at bay....also if my insurance won't cover the Avastin, the manufacturer will cover the cost....sooo...supposed to start the Zometa probably on Monday...the schedulers had already left for the day, so they will call me tomorrow....Needless to say, I am drained....heading to the shower and pj's.....

Thank all of you for your prayers, words of encouragement, kind sentiments, etc....you mean the world to me!
Hugs, Nancy

ps...sorry they wouldn't valet park the bus...but I "heard" y'all as they told you to "move it!". Lol...and who sprayed the valet guys with pink silly string? They were still picking it off themselves when we were leaving...I innocently asked " what happened ? Then said to my husband "let's get outta here before they realize it was my pink sisters!".
"

Comments

  • TraciInLA
    TraciInLA Member Posts: 1,994 Member
    #2
    Victoria and I may or may not...
    ...have gone shopping at Silly String 'R Us earlier today.

    Just a coincidence, though...really.

    :-) Traci
  • New Flower
    New Flower Member Posts: 4,294
    #3
    TraciInLA said:

    Victoria and I may or may not...
    ...have gone shopping at Silly String 'R Us earlier today.

    Just a coincidence, though...really.

    :-) Traci

    Thank you Nancy
    for your update.As you said some good news, some could be better. Xeloda has been somehow working and you are on your way to NED no doubts. I hope your husband will be not jealous when NED and you get together.
    Hugs
  • epark
    epark Member Posts: 339
    #4
    TraciInLA said:

    Victoria and I may or may not...
    ...have gone shopping at Silly String 'R Us earlier today.

    Just a coincidence, though...really.

    :-) Traci

    so happy you got good
    so happy you got good news....wishing you nothing but the best with your new treatment

    hugs
    Eva
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    #5
    epark said:

    so happy you got good
    so happy you got good news....wishing you nothing but the best with your new treatment

    hugs
    Eva

    I was perfectly well behaved!
    But we've just got to do something about Traci - she's really getting rowdy.

    It sounds like your oncologist is on top of everything and I don't think this sounds like bad news at all. Just sounds like he wants to up his troops a bit and since you've shown you can tolerate the chemo you're currently on, he's giving it an extra punch. Go Avastin!

    Hope you continue to tolerate these drugs well and we keep that ugly beast in its cage!

    Suzanne
  • linpsu
    linpsu Member Posts: 747
    #6
    Thanks
    Thanks for updating us on your latest news. Great news about your blood counts! Hopefully the Avastin will do the trick - I'm glad your doctor has approved it for you, given the recent news about it being taken off the market as far as insurance payments go. Take care, and know that we all are thinking about you and praying for you.
    Hugs,
    Linda
  • creampuff91344
    creampuff91344 Member Posts: 988
    #7
    epark said:

    so happy you got good
    so happy you got good news....wishing you nothing but the best with your new treatment

    hugs
    Eva

    Good to hear there is a new
    Good to hear there is a new plan of attack. Here's hoping it will do the trick. As far as the silly string....well, I don't squeel on my fellow kindred spirits, but I did see someone carry a very large bag back on the bus after stopping at Target...wonder who? Shower and pj's sounds good to me. Hugs, Judy
  • Megan M
    Megan M Member Posts: 3,000
    #8
    creampuff91344 said:

    Good to hear there is a new
    Good to hear there is a new plan of attack. Here's hoping it will do the trick. As far as the silly string....well, I don't squeel on my fellow kindred spirits, but I did see someone carry a very large bag back on the bus after stopping at Target...wonder who? Shower and pj's sounds good to me. Hugs, Judy

    Praying that your doctor's
    Praying that your doctor's new plan of treatment will knock the beast out of the universe!


    Hugs, Megan
  • gami43
    gami43 Member Posts: 281
    #9
    linpsu said:

    Thanks
    Thanks for updating us on your latest news. Great news about your blood counts! Hopefully the Avastin will do the trick - I'm glad your doctor has approved it for you, given the recent news about it being taken off the market as far as insurance payments go. Take care, and know that we all are thinking about you and praying for you.
    Hugs,
    Linda

    Cheers to your doc for
    Cheers to your doc for fighting for you to have what he
    believes is good for you. And praying your new tx is all
    that & more! God bless.

    Luv & hugs, Teresa
  • aisling8
    aisling8 Member Posts: 1,627 Member
    #10
    gami43 said:

    Cheers to your doc for
    Cheers to your doc for fighting for you to have what he
    believes is good for you. And praying your new tx is all
    that & more! God bless.

    Luv & hugs, Teresa

    Um, Traci, what happens
    at Silly Strings 'R Us stays at Silly Strings 'R Us:)

    Nancy, I love love love that your doctor is battling for you. Like you say, good news, less than good, but there's still so much hope and that's like a beautifully wrapped gift under your tree.

    I wish you all good things and a fabulous response to the new meds.

    xoxo
    Victoria
  • laughs_a_lot
    laughs_a_lot Member Posts: 1,368 Member
    #11
    will be praying
    Will be praying that the FDA will let the Avastin go through for you.
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #12
    laughs_a_lot said:

    will be praying
    Will be praying that the FDA will let the Avastin go through for you.

    Sounds -- positive ...
    Kudos to your Oncologist and his plan of action for you.

    Keeping you in my prayers -- no side efforts, continued strength, and a feisty attitude.

    Strength, Courage and Hope.

    Vicki Sam
  • jamiegww
    jamiegww Member Posts: 384
    #13
    Wow!
    It sounds like your doctor really cares. It must be such a relief to know you can depend on him. It's nice to know the manufacturer will cover the Avastin if insurance won't. We look forward to seeing you dance with NED!

    HUGS!!!
    Jamie
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #14
    How wonderful to have a doc
    How wonderful to have a doc that will jump through hoops to do what is right for you. FDA and the insurance companies can be some difficult folks, but it sounds like your doc has some tricks up his sleeve!

    I hope you're feeling better this morning after your shower and some rest.

    Hugs,

    Linda
  • Ritzy
    Ritzy Member Posts: 4,381 Member
    #15
    Double Whammy said:

    I was perfectly well behaved!
    But we've just got to do something about Traci - she's really getting rowdy.

    It sounds like your oncologist is on top of everything and I don't think this sounds like bad news at all. Just sounds like he wants to up his troops a bit and since you've shown you can tolerate the chemo you're currently on, he's giving it an extra punch. Go Avastin!

    Hope you continue to tolerate these drugs well and we keep that ugly beast in its cage!

    Suzanne

    I am always well behaved.
    I am always well behaved. Ok, there were a couple of times that the hospital security almost, and I say almost, took me away. lol

    Your news sound good Nancy, and, for that I am so thankful. I hope and pray that Avastin will be your answer!


    Sue :)
  • Angie2U
    Angie2U Member Posts: 2,991
    #16
    gami43 said:

    Cheers to your doc for
    Cheers to your doc for fighting for you to have what he
    believes is good for you. And praying your new tx is all
    that & more! God bless.

    Luv & hugs, Teresa

    Thanks for the update! I am
    Thanks for the update! I am praying that this new treatment will help you!


    Hugs, Angie
  • jnl
    jnl Member Posts: 3,869 Member
    #17
    VickiSam said:

    Sounds -- positive ...
    Kudos to your Oncologist and his plan of action for you.

    Keeping you in my prayers -- no side efforts, continued strength, and a feisty attitude.

    Strength, Courage and Hope.

    Vicki Sam

    Nancy, I am praying for you
    Nancy, I am praying for you and you really do have a great oncologist! Keep fighting!


    Hugs, Leeza
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    #18
    jamiegww said:

    Wow!
    It sounds like your doctor really cares. It must be such a relief to know you can depend on him. It's nice to know the manufacturer will cover the Avastin if insurance won't. We look forward to seeing you dance with NED!

    HUGS!!!
    Jamie

    Your news sounds positive
    Your news sounds positive Nancy! I am glad you can get the Avastin. I have seen a lot about it on the world news lately.


    Good luck,

    Jan
  • dbhadra
    dbhadra Member Posts: 344 Member
    #19
    Gabe N Abby Mom said:

    How wonderful to have a doc
    How wonderful to have a doc that will jump through hoops to do what is right for you. FDA and the insurance companies can be some difficult folks, but it sounds like your doc has some tricks up his sleeve!

    I hope you're feeling better this morning after your shower and some rest.

    Hugs,

    Linda

    glad to see your post
    and see the results from your scan. As you say, some good, some bad, but sounds like your onc has a plan for you to move forward and that's encouraging.

    My scan is Dec 29 and I am already getting a bit anxious...want to know how the Xeloda is working.

    Laura
  • Alexis F
    Alexis F Member Posts: 3,598
    #20
    linpsu said:

    Thanks
    Thanks for updating us on your latest news. Great news about your blood counts! Hopefully the Avastin will do the trick - I'm glad your doctor has approved it for you, given the recent news about it being taken off the market as far as insurance payments go. Take care, and know that we all are thinking about you and praying for you.
    Hugs,
    Linda

    Thank you for updating us
    Thank you for updating us Nancy. Congrats on the good news!


    Lex
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    #21
    Hi sweet Nancy -- Thank you
    Hi sweet Nancy -- Thank you for the update. Here praying the new plan can beat the c*#&#^ out of this beast for good, and forever. Glad some things have improved for you, but we'll keep praying and hoping for a full recovery, dancing with NED. I also pray that there's little to no side effects with he new chemo drug. As always, you're in my prayers (and I am feeling very positive for you).

    Lots of hugs for you Nancy!!! @>~~~

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