Doctor Update
They are not going to take fluid off my lungs as the biggest issue is not the fluid in the lungs but fluid surrounding all my bones and the cancer in the connective tissue in the ribs, spine and chest wall.
I will be seeing a pain management doctor on the 7th of December to try and find something or a combination of something that will work to manage the pain without the severe nausea that I get from narcotics. This will also be the doctor that will coordinate Hospice when it comes to that, but, I AM NOT THERE YET! And hopefully the chemo will push that back even further.
All in all it was what was expected, although I was hoping for a chemo that would be every 21 days,, but it is 3 weeks on and 1 week off. I will get Xgeva on the one week off. So I am pretty much there every week again.
He halted all travel with the exception of doing the 1 1/2 hour drive to Nevada, which I really enjoy, as long as I am feeling up to it. This is good because they have a beautiful concert hall and I really enjoy the concerts!
Happy Thanksgiving to everyone!
Love and prayers,
Carol
Comments
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Thanks for sharing I am new
Thanks for sharing I am new to the site and it is therapeutic to join this community of the pink sisters.. I will add you to my prayers. I hope the drs can help you get the pain under control.
Happy Thanksgiving I hope you can enjoy sometime with your family.
Amy.0 -
So sorry Carol. Praying theSIROD said:So Very Sorry
Hi Carol,
I am so very sorry that it all turned out so badly for you. Hope this drug will help bring you to a NED state soon or at least stable. I learned that stable is a great word.
Your plate is so very full.
Best,
Sirod
So sorry Carol. Praying the new drug will help you.
Hugs, Debby0 -
Carol your ability to fight
Carol your ability to fight has always impressed me. Please let us know how you do with this new chemo and the pain management doc...praying for the best for you.
Hugs,
Linda0 -
Carol sorry for progressionSIROD said:So Very Sorry
Hi Carol,
I am so very sorry that it all turned out so badly for you. Hope this drug will help bring you to a NED state soon or at least stable. I learned that stable is a great word.
Your plate is so very full.
Best,
Sirod
Carol
You are an amazing fighter I learn from you every day . I also like to go to the concerts. I hope this year will be a very interesting season and you will enjoy trips to Nevada with your son or other family members.
I hope and pray that this new Chemo will work for you
Hugs0 -
Sending hugsGabe N Abby Mom said:Carol your ability to fight
Carol your ability to fight has always impressed me. Please let us know how you do with this new chemo and the pain management doc...praying for the best for you.
Hugs,
Linda
Sending hugs and prayers. Hope the new chemo works....keep that amazing attitude!
Hugs,Debi0 -
Very happy they have anepark said:Carol...i really hope this
Carol...i really hope this new treatment helps you..you are one amazing lady...
keeping you in my thoughts in prayers
eva
Very happy they have an option for you to stabilize this disease. enjoy the holidays! always following your progress!0 -
This sucks!carkris said:Very happy they have an
Very happy they have an option for you to stabilize this disease. enjoy the holidays! always following your progress!
That's my new mantra....Carol, I hate to hear this news, but as Chen says " we do what we have to do so we can do what we want." I pray this new treatment regime won't be so hard on you....When you see the pain management team, ask them if an epidural injection would be of any help.....they are even using Botox for pain management in some cases.....don't know if these would be possible or effective in for you but it certainly wouldn't hurt to ask....anything that would ease your chronic pain...of which I understand and sympathize with you....
Never give up....and enjoy the concerts!
My best to you, along with prayers...
Hugs, Nancy0 -
Praying the new treatmentMAJW said:This sucks!
That's my new mantra....Carol, I hate to hear this news, but as Chen says " we do what we have to do so we can do what we want." I pray this new treatment regime won't be so hard on you....When you see the pain management team, ask them if an epidural injection would be of any help.....they are even using Botox for pain management in some cases.....don't know if these would be possible or effective in for you but it certainly wouldn't hurt to ask....anything that would ease your chronic pain...of which I understand and sympathize with you....
Never give up....and enjoy the concerts!
My best to you, along with prayers...
Hugs, Nancy
Praying the new treatment will help you Carol.
Praying for you,
Megan0 -
on the list
You are on the prayer list.0 -
Praying for you Carol.Gabe N Abby Mom said:Carol your ability to fight
Carol your ability to fight has always impressed me. Please let us know how you do with this new chemo and the pain management doc...praying for the best for you.
Hugs,
Linda
Hugs,
Praying for you Carol.
Hugs, Angie0 -
Praying!!!laughs_a_lot said:on the list
You are on the prayer list.
Praying for you. MollyZ0 -
Sending prayers, hugs anddebi.18 said:Sending hugs
Sending hugs and prayers. Hope the new chemo works....keep that amazing attitude!
Hugs,Debi
Sending prayers, hugs and hope.
Jan0 -
Sending positive thoughtsroseann4 said:Hi Carol!
I can only imagine what you are dealing with today but you have come so far. Try to take things one day at a time and refuse to accept negative opinions of what's ahead for you. Believe!
Roseann
Sending positive thoughts and cyber hugs!
Leeza0 -
if another chemomollyz said:Praying!!!
Praying for you. MollyZ
is needed to keep this beast corralled, then I'm here with my lasso ready to help. Wishing you a better experience on this drug than the other. Enjoy conccerts as often as you feel up to it.
Sending hugs and prayers,
Suzanne0 -
Put you on all my prayer
Put you on all my prayer lists and enjoy every concert that you feel up to!
Hugs (^_^)
Robbin0
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