HAPPY THANKSGIVING AND PAIN MANAGEMENT IDEALS. Love to you ALL today on T day....

megmacmd said:

morning calm
So what is the real story? How are you really? I have followed your posts and am praying for a great thanksgiving for you and your family Looking forward to gathering my broad for probably the final time at home will make the best keep a smile try not to worry them too much being their mom and hoping for their happiness and joy in life not the reality of EC not a popular cancer like many others have been kind of a stepchild noone has ever really heard about it despite all the GERD adds on TV Hope all have a great thanksgiving no matter what stage or where ever they find themselves Meg

chemosmoker said:

Must DEMAND REAL & GOOD pain management. HAPPY T-DAY!
Plearush,
The ONLY one I haven't tried yet is Dilaudid. That is supposed to be a stronger but they don't make it in a long-acting so they avoided it for me to date, Have spoken of it now though.

We just switched to LIQUID Oxycodone, and it does work better than the pills, takes getting used to though. I like the effect.

I am what my Oncologist called a 'fast metabolizer'. They started me on Oxycontin 80MG at 12 hr intervals that VERY quickly went to 8 then 4 and now I am at 160mg every 6 hrs. On top of that I do 40ml (equals about 80MG of Oxycodone tablet i think) of liquid Oxycodone at 2-3 hour intervals. They prescribed me 40-60ml every 2-4 hours or something close to that-I will have to look, but it is a LOT. I think if MOST took what I did they would drool and sit helplessly for the day and that's NOT quality or quantity. LOL.

Have ALWAYS had a high tolerance. I wake up at a 9-10 on the 0-10 scale daily and always have. Takes me that first 30 minutes to become "Eric" and it does feel sadomasochistic to me at time with the pain and the waiting. Master drugs, slave Eric. But I am EVERY SO Grateful for the pain free days. They get me to a 2 down to a ZERO (0) at many times, and I get to feel like me and live. That cannot be priced.

I hope everyone has the best T day they can, despite their stage and so forth as was said above. We are going to be with good friends and Michelle hit me HARD last night reminding me she was so sad, as this will probably be my last Thanksgiving, and her last Thanksgiving WITH me. What a painful thing to sleep/wake with last night, so I am up now and aware and feeling that, and thinking too much.

But I am at peace and seriously Grateful for the fact that I AM here, CAN be pain free, my son fly's in today from Houston (Haven't seen him since we moved up to Tennessee first before this recent move to Florida-HE was actually born here in Clearwater, last July!!) and now we get to have him here with us!
He's going to spend a week WITH us and then go live with a friend nearby for the future while I am busy deteriorating for lack of a less honest and real way to say that. Michelle is good with reality--TOO good; (I like a LITTLE denial now and again; come on! LOL) so I put it it there that way, and leave it alone!

I love each and every one of you, I consider you all my family and I sure hope NO ONE is ALONE, everyone has plans with family or whatever type that takes on, and turkey day is 'edible' at some point!

What a "holiday" for us EC patients, huh? Turkey and EATING is today's holiday theme. Eating, with a disease that prevents and disrupts just that activity or at least makes it painful. Interesting. I will leave that at that, too.

We have more good friends planning to drive to see us from Houston the first week of December, I consider them our/my BEST friends, they are neither EC nor cancer, just really really good people and my friends. I look forward to the time with them for a few days.

I have SO much to be grateful for. Michelle comes to mind first, no matter what, especially if 'thanks' is the word involved. She is a caretaker from HELL I can attest. I am one lucky man. I am sure she wants me still to be in bed right now, but with my son coming today, and it being T day, and the pain, and the thinking at 90 MPH (part of that metabolism I have always been blessed with), I can't sit still so more sleep is out.

I hope all are safe and may God bless you each and every one.
-Eric

plealrush said:

You are blessed
Your positive outlook has helped me. Michelle is an awesome possum tell her I said so!! Glad for your son's to be with you today. That in itself a blessing and huge! Although you suffer because of what is going on in your body , you were given the opportunity to make every moment count because I think of the ones taken from this earth with no notice or chance to really cherish their loved ones . Will pray for pain free day with energy for you and Michelle. You go Eric!!! Thanks for sharing your pain regimen, we have doc coming tomorrow and I will discuss with him!