back onto chemo

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karen1951
karen1951 Member Posts: 103
in Ovarian Cancer #1
i just got the results of my petscan and my doctor says i will have to go back on chemo...i was diagnosed stage IV aug 2101, finished chemo in jan 2011 after a debulking surgery in sept. now i have a mass in my abdominal muscle, and some suspicious cardiophrenic lymph nodes. my first round of chemo was carbo/taxol but my onc wants to try a different round....i don't know what yet because my appt with him isn't til tuesday....i'm really concerned about my options since doxil is not available and the fda just pulled avastin .... anyone have suggestions about what treatment to try?

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  • kayandok
    kayandok Member Posts: 1,202 Member
    #2
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    Karen,
    I'm so sorry to read about your news. Is this mass something that is removable by surgery? I did cisplatin and gemzar for my second line chemo after having a second debulk surgery to remove 3 small tumors. It worked well for me.
    Hugs to you,
    kathleen
  • LaundryQueen
    LaundryQueen Member Posts: 676
    #3
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    kayandok said:

    Karen,
    I'm so sorry to read about your news. Is this mass something that is removable by surgery? I did cisplatin and gemzar for my second line chemo after having a second debulk surgery to remove 3 small tumors. It worked well for me.
    Hugs to you,
    kathleen

    Back on chemo
    Karen: I am so sorry you didn't get much of a break from chemo. I think the FDA approval for Avastin was revoked ONLY for metastatic breast cancer. You might get Avastin in a clinical trial.

    Has your hair grown back much since you were off chemo?

    Best wishes to you.
  • karen1951
    karen1951 Member Posts: 103
    #4
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    kayandok said:

    Karen,
    I'm so sorry to read about your news. Is this mass something that is removable by surgery? I did cisplatin and gemzar for my second line chemo after having a second debulk surgery to remove 3 small tumors. It worked well for me.
    Hugs to you,
    kathleen

    thank you, kathleen for your
    thank you, kathleen for your reply...i will ask on tuesday about a possible 2nd debulking surgery and the cisplatin/gemzar. i just joined this board about a month ago and have found so much comfort and info with all the posts. i didn't know linda p. for long but i read all of her posts. what a courageous girl she was....to share her journey with all of us was a blessing. we are all on that path...she faced it with so much courage and dignity...i hope i can do the same. i tolerated the taxol/carbo fairly well....how did you do with the cisplatin/gemzar?
    karen
  • karen1951
    karen1951 Member Posts: 103
    #5
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    LaundryQueen said:

    Back on chemo
    Karen: I am so sorry you didn't get much of a break from chemo. I think the FDA approval for Avastin was revoked ONLY for metastatic breast cancer. You might get Avastin in a clinical trial.

    Has your hair grown back much since you were off chemo?

    Best wishes to you.

    i plan to ask about a
    i plan to ask about a clinical trial. my july catscan showed suspicious spots on my lungs and my onc said then we may have to go on doxil. but my ca125 was stable...i'm sure he's wanted to wait as long as possible to start chemo again. obviously there is no doxil to be had! i just wonder if a clinical trial would have options available that my oncologist doesn't have access to.
    as far as my hair.....i just had it cut for the third time yesterday! my 60th birthday is monday, and as a surprise, my two best friends took me to a high end salon for a GOOD cut, color and style. it was nice to forget about all this even if it was for only a few hours.

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