NEW what not to say ....

MsGebby
MsGebby Member Posts: 659
I have a well meaning friend who said in an email "How devastating it would be to lose you" and then sent a new email asking if I "have a bucket list".

Doesn't send a message of hope at all. But I just giggled because I believe he is not educated enough on the subject. I thanked him for his concerns and said I will kick cancer to the curb.

Honestly, I was taken a back to his comments. Good think my inner self is strong and my exterior is tough as nails

xoxo
Mary

Comments

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    I like the Bucket list
    I like the Bucket list reply...


    Denise

    or say I PLAN on being around long time
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    Yup
    Some people just don't know what to say, but I blame it on ignorance. They really don't Know much about the illness, even if they’ve had family members diagnosed. This is what I’ve learned about my dx, not to keep things inside. If something bothers you enough, say it. It would teach them a lesson – hopefully – and they won’t do this to another cancer patient again.

    Recently I had an ex of mine say to me “I felt so bad for you when you told me”. NO, you do NOT say that to a cancer patient. But they just don’t know.

    Keep in mind people are scared of c. And when they hear the word, right away they think “death”. But you can’t be the person responsible to educate them. So please try not to stress it and remember they just don’t know. Deep down they care.
  • mamolady
    mamolady Member Posts: 796 Member
    Some people just aren't
    Some people just aren't comfortable with silence, if they were their foot may not end up in their mouth so much.......
    Sometimes I wonder if they realize what they said was wrong but they are not sure how to come back from it?

    Oh well,
    Cindy
  • carkris
    carkris Member Posts: 4,553 Member
    mamolady said:

    Some people just aren't
    Some people just aren't comfortable with silence, if they were their foot may not end up in their mouth so much.......
    Sometimes I wonder if they realize what they said was wrong but they are not sure how to come back from it?

    Oh well,
    Cindy

    it is interesting that this
    it is interesting that this person would address this issue though. many comments are aimed a minimizing the illness, or pushing the person to minimize it. However cancer gives us the insight to realize nothing is forever and we should take our opportunities. It is not a death sentence. i am glad to see you withthis fighting attitude you will kick cancer's ****.
  • mwallace1325
    mwallace1325 Member Posts: 806
    Unfortunately
    Unfortunately that's probably not the last dumb thing someone will say to you. It's really good that your inner self is strong and that you can think of snappy come-backs, I always wished I had that ability.

    Best of luck on your treatments. We're here for support, info, sharing, crying or screaming -- whatever you need.

    marge
  • SIROD
    SIROD Member Posts: 2,194 Member
    Lack of Knowledge
    Dear Mary,

    Your friend certainly has a lack of real knowledge in regards to cancer. Some type like lungs, liver, some forms of brain cancers do have a very bad prognosis as they are the vital organs. Some have awful prognosis as they are found when the cancer has hit a vital organ such as pancreatic, ovarian, esophagus and many of this sort as there are no symptoms until they metastasize.

    No one dies from breast cancer unless it metastasize to a vital organ, brain, liver and lungs. With breast cancer the potential is always there that stage 0-3 will morph to stage IV. However, 70% are treated of stages 0-3 and go on to live a normal life again.

    I found it interesting that so many people have so little understand about stages of cancers that it astounded me, still does.

    Bucket list, I don't know how old you are, but a bucket list is a pocketful of dreams. Everyone should have one and work on them to make them a reality.

    I read your earlier post that you are triple positive, that is very, very good.

    Be patient with your friend and tell him a little about cancer. Many, many women with stage IV (the terminal one) go on a live years with the disease. I had widespread lungs and lining metastasis and I am still around, 3+ years later, no worse for wear.

    Best wishes on educating your friend and with your treatments,

    Doris
  • MsGebby
    MsGebby Member Posts: 659
    OH ... it continued. The
    OH ... it continued. The next line from him was about natural medicines. B17 to be exact. I blinked really hard. B17 is Laetrile. The treatment Steve McQueen thought was going to keep him around forever.

    Some of the things I hear are basic lines, like "Your strong. You will get through this" Those statements come from folks who really don't know what to say. I have a lot of friends who simply ask "how are you feeling?" That's really all anyone needs to say IF they feel the need at all to say anything.

    I am fortunate. Most of my friends are quite educated about this subject and know what NOT to say.

    Anyway, this guy made me laugh. Ignorance is a disease too!

    xoxo
    Mary
  • SIROD
    SIROD Member Posts: 2,194 Member
    MsGebby said:

    OH ... it continued. The
    OH ... it continued. The next line from him was about natural medicines. B17 to be exact. I blinked really hard. B17 is Laetrile. The treatment Steve McQueen thought was going to keep him around forever.

    Some of the things I hear are basic lines, like "Your strong. You will get through this" Those statements come from folks who really don't know what to say. I have a lot of friends who simply ask "how are you feeling?" That's really all anyone needs to say IF they feel the need at all to say anything.

    I am fortunate. Most of my friends are quite educated about this subject and know what NOT to say.

    Anyway, this guy made me laugh. Ignorance is a disease too!

    xoxo
    Mary

    Curable!
    Yes, it is but it's curable!
  • Bella Luna
    Bella Luna Member Posts: 1,578 Member
    I Can Relate
    Mary I can relate. I knew someone who, after being diagnosed with breast cancer, suggested I try alternative medicine. I just let her talk as I knew she didn't know a thing about my situation.

    The next time I spoke to her, she seemed upset that I chose conventional medicine. In fact, she said, "I thought you said you were going to try alternative medicine." I was, to say the least, irritated and said that I NEVER said that, she is the one who suggested it. I added that I wasn't going to fool around with remedies and that I had a family and wanted to be around for them.

    She then went on about how "sensitive" I was and that I mistook her advice. Needless to say, I distanced myself from this person as she is one of those individuals who does not apologize even if they are in the wrong.

    It's been two years since diagnosis and I am Moving Forward with my Life! Best of luck with your journey and recovery.
    Ines