ANOTHER new one!

Marsha Mulvey
Marsha Mulvey Member Posts: 597 Member
The plan was to continue Abraxane until a scan in the middle of November - THAT AIN'T GONNA HAPPEN. Since I could never have any kind of surgery to remove the cancer, (too extensive and in too many places), it is easily detected in my left breast so we can see if the tumors are responding to treatment or not. What's happening there is always happening in the liver but the bones have been stable throughout.

After the first 7 weeks of Abraxane, it was apparent that the tumors were not shrinking but seemed to be holding steady - that was good because we thought it would take some time to really kick in. I just saw Dr. S. last Friday and measurements confirmed - steady. So I had the 8th infusion. BUT...suddenly on Tuesday I noticed very rapid growth, I'm telling you it happens so fast it's scary!!! Of course I called early and they got the message, nurse called back to get info and called again after talking to my onc. Since Fridays are my normal chemo days, we set the appt for this a.m. before the infusions. He confirmed what I already knew, so it's time for a brand new plan of action.

I could have taken a week or so to consider the next options, but like my greatgrandmother used to say, "time's a wastin'", so I made the immediate decision to go with his first choice of HALAVEN. Ever heard of it? I haven't! It just received approval about a year ago - hoping it's a great new drug! We're stopping the Herceptin for now, but continuing with Zometa once every 4 weeks (today was the day for that). HALAVEN has a different schedule than any I've had. A Decadron infusion is the only pre-med, then it is given via slow push over 5 minutes. Including the flush, it will only take about an hour, sounds good, but only if it works! It's considered a 21 day schedule that consists of infusions on day one and day eight, day fifteen is off - then day 22 we repeat, repeat, repeat (I hope for many, many cycles!). It has many of the "usual" side effects of other chemos and one distinct possibility is having to follow with a Neulasta shot to help with the white blood count. We'll check that next week and if needed the shot will be given on Monday.

My scan will be next Tuesday - too early of course to judge the HALAVEN, but needed to see the liver. It's now been about 5 or 6 months since anything has been affective in this fight. Must find the right chemo soon. I won't see Dr. S. again until Nov. 4 and likely won't call before that for results, I always want to see the pictures on the computer.

As you know, I've done fairly well throughout this 20 months and now I'm worried about my family. In a strange way, I think my strength has made the new reality harder for them to take. My mother, who just turned 82 on Sat., and my sister become teary eyed very easily. My son (turned 25 on Sat.) continues to be strong and accept it for now, and my daughter (21) is in quiet denial. She listens to me if I talk about it, but doesn't make comments. They're all unique and irreplaceable!

On a happier note, I went to "the boat" (casino) this evening with my sister. We ate and played the slot machines. Neither of us won but we had a good time. [=[- Corky just stepped on my keyboard! Sould I have spent the money? NO! Do I need to be doing such things? PROBABLY NOT! But, I've posted before that I won't stop living until I have no choice in the matter. Besides, "all work and no play" makes Marsha a dull girl!

Change faces again, now to the serious side. I'm trying to stay positive and strong as I always tell others to do-you know, practice what you preach! I know for sure that I'm full of hopes and prayers - please join me!
Marsha

P.S. I started writing this on Friday but it's now Saturday (thanks to the steroids).
«134

Comments

  • laughs_a_lot
    laughs_a_lot Member Posts: 1,368 Member
    Changes indeed.
    Will put you on the prayer list. Love it that you have a plan of action and are so decisive. This is necessary when you have an aggressive cancer.
  • carkris
    carkris Member Posts: 4,553 Member

    Changes indeed.
    Will put you on the prayer list. Love it that you have a plan of action and are so decisive. This is necessary when you have an aggressive cancer.

    so glad you have new plan
    so glad you have new plan and praying for great results. have lots of fun!
  • Lighthouse_7
    Lighthouse_7 Member Posts: 1,566 Member
    carkris said:

    so glad you have new plan
    so glad you have new plan and praying for great results. have lots of fun!

    Prayers are with you. The
    Prayers are with you. The new plan sounds like the doctors are right on top of everything. All my best to you and by all means have fun.
    HUGS,
    Wanda
  • laurissa
    laurissa Member Posts: 773
    Marsha
    I pray the new treatment does well for you. It is scary waiting.
  • lynn1950
    lynn1950 Member Posts: 2,570
    Marsha, You are amazing! My
    Marsha, You are amazing! My thoughts and prayers are with you. xoxoxo Lynn
  • SIROD
    SIROD Member Posts: 2,194 Member
    To Marsha and Halaven
    Dear Marsha,

    Sorry to read about the progression. I have been reading a lot about Halaven on web sites for those with mets. It's a new drug as you point out and with all drugs, some have excellent response and some don't as you well know. One never knows what drug will be "the one" and I am hoping Halaven for will be for you. You are certainly a trooper and admire your tenacity.

    Hey, a little play does wonders for the spirit, so play away Marsha, you have earn that right.

    Thinking of you and sending positive energy your way.

    Best,

    Doris
  • skipper54
    skipper54 Member Posts: 936 Member
    SIROD said:

    To Marsha and Halaven
    Dear Marsha,

    Sorry to read about the progression. I have been reading a lot about Halaven on web sites for those with mets. It's a new drug as you point out and with all drugs, some have excellent response and some don't as you well know. One never knows what drug will be "the one" and I am hoping Halaven for will be for you. You are certainly a trooper and admire your tenacity.

    Hey, a little play does wonders for the spirit, so play away Marsha, you have earn that right.

    Thinking of you and sending positive energy your way.

    Best,

    Doris

    Hoping the new treatment goes well
    Play when you need to, fight when you need to.

    Sending prayers for peace, good outcome, and wisdom for the docs.
  • natly15
    natly15 Member Posts: 1,941
    Marsha you are an amazing
    Marsha you are an amazing woman. I love your atttude and I agree enjoy every moment of every day. Glad you had fun playing the slots, but it's always fun to get a return on our coins. Well I guess you and your sister helped those machines get a little fatter.

    I'm full of hopes and prayers for you - count me in. ((((HUGS))))
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    SIROD said:

    To Marsha and Halaven
    Dear Marsha,

    Sorry to read about the progression. I have been reading a lot about Halaven on web sites for those with mets. It's a new drug as you point out and with all drugs, some have excellent response and some don't as you well know. One never knows what drug will be "the one" and I am hoping Halaven for will be for you. You are certainly a trooper and admire your tenacity.

    Hey, a little play does wonders for the spirit, so play away Marsha, you have earn that right.

    Thinking of you and sending positive energy your way.

    Best,

    Doris

    Marsha .. so much going on, decisions to be made ...
    You are such a STRONG WARRIOR, on a mission, arming yourself with poise, grace and a " can do " attitude. I pray that Halavan and your medical team will provide positive results, as well as replenish your health, mind, body and soul.

    Gentle hugs .. :)

    Vicki Sam
  • susie09
    susie09 Member Posts: 2,930
    VickiSam said:

    Marsha .. so much going on, decisions to be made ...
    You are such a STRONG WARRIOR, on a mission, arming yourself with poise, grace and a " can do " attitude. I pray that Halavan and your medical team will provide positive results, as well as replenish your health, mind, body and soul.

    Gentle hugs .. :)

    Vicki Sam

    Oh Marsha, I am so sorry and
    Oh Marsha, I am so sorry and so sad to read this. You are an amazing sister and this just isn't fair! It makes me mad!


    I will be praying for you as hard as I can my friend! Try to stay positive and come here to get support.


    Big HUGS!
  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    Marsha- Thank you for taking
    Marsha- Thank you for taking the time to sit in front of the computer to write such a long detailed post for us. In this difficult time, you still think of us. We think of you and have you in our prayers.

    The doctors are place on this earth to help us physically, but we have God to count on mentally and emotionally. And it's remarkable to me how you (and other sisters) have stayed so positive about the challenges life brings. Thank you for teaching us too.

    May God bless you with health and continue to keep your spirit high and positive.

    We're thinking of you.
  • missrenee
    missrenee Member Posts: 2,136 Member

    Marsha- Thank you for taking
    Marsha- Thank you for taking the time to sit in front of the computer to write such a long detailed post for us. In this difficult time, you still think of us. We think of you and have you in our prayers.

    The doctors are place on this earth to help us physically, but we have God to count on mentally and emotionally. And it's remarkable to me how you (and other sisters) have stayed so positive about the challenges life brings. Thank you for teaching us too.

    May God bless you with health and continue to keep your spirit high and positive.

    We're thinking of you.

    Marsha--hoping this drug is the miracle you deserve
    Thank you for posting and letting us know what's going on. I hope the drug does wonderfully for you in a gentle, low-side effect way. You are certainly an inspiration and you give us all hope and strength.

    So glad you got to kick up your heels at the casino. Get your joy whenever and however you can!

    Hugs, Renee
  • aisling8
    aisling8 Member Posts: 1,627 Member
    missrenee said:

    Marsha--hoping this drug is the miracle you deserve
    Thank you for posting and letting us know what's going on. I hope the drug does wonderfully for you in a gentle, low-side effect way. You are certainly an inspiration and you give us all hope and strength.

    So glad you got to kick up your heels at the casino. Get your joy whenever and however you can!

    Hugs, Renee

    As long as it keeps you alive
    Another new one, to me, means hope. And hope is so very important.

    Sending positive energy,

    xoxo
    Victoria
  • DebbyM
    DebbyM Member Posts: 3,289 Member
    SIROD said:

    To Marsha and Halaven
    Dear Marsha,

    Sorry to read about the progression. I have been reading a lot about Halaven on web sites for those with mets. It's a new drug as you point out and with all drugs, some have excellent response and some don't as you well know. One never knows what drug will be "the one" and I am hoping Halaven for will be for you. You are certainly a trooper and admire your tenacity.

    Hey, a little play does wonders for the spirit, so play away Marsha, you have earn that right.

    Thinking of you and sending positive energy your way.

    Best,

    Doris

    I have always admired you
    I have always admired you Marsha for your strength. Keep on fighting!


    Praying,


    Debby
  • susie09
    susie09 Member Posts: 2,930
    laurissa said:

    Marsha
    I pray the new treatment does well for you. It is scary waiting.

    I forgot to add how happy
    I forgot to add how happy that I am that you got out with your sister and played the slot machines. I wish you would have won, but in a way you did, you had fun and that is what counts Marsha!


    Lots of love!!!
  • Double Whammy
    Double Whammy Member Posts: 2,832 Member
    aisling8 said:

    As long as it keeps you alive
    Another new one, to me, means hope. And hope is so very important.

    Sending positive energy,

    xoxo
    Victoria

    Go Halavan!
    I'm going to become a cheerleader for Halavan. I hope this is the one, Marsha. I love your attitude.

    I am, of course, sending hugs, prayers and more positive vibes your way.

    Suzanne
  • camul
    camul Member Posts: 2,537

    Go Halavan!
    I'm going to become a cheerleader for Halavan. I hope this is the one, Marsha. I love your attitude.

    I am, of course, sending hugs, prayers and more positive vibes your way.

    Suzanne

    I too am personally a cheerleader for Halaven
    It has kept my tumors stable. It didn't shrink or get rid of them, but it has given me hope and more time. Which is my goal, to keep me here until they can find something that will work to make this chronic rather than terminal. So far Halaean is the the one that has stopped the aggressive growth.

    Sending hugs and prayers Marsha.

    Carol
  • gami43
    gami43 Member Posts: 281
    camul said:

    I too am personally a cheerleader for Halaven
    It has kept my tumors stable. It didn't shrink or get rid of them, but it has given me hope and more time. Which is my goal, to keep me here until they can find something that will work to make this chronic rather than terminal. So far Halaean is the the one that has stopped the aggressive growth.

    Sending hugs and prayers Marsha.

    Carol

    Marsha - I am joining you
    Marsha - I am joining you with hope and prayers that the Halaven
    isthe drug for you. I love your attitude about the importance of
    getting away from our disease sometime and having fun. Please let
    us know how things are going with the Halaven. God bless.

    Luv & hugs, Teresa
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    carkris said:

    so glad you have new plan
    so glad you have new plan and praying for great results. have lots of fun!

    Praying that this new chemo
    Praying that this new chemo will be the answer for you. You are amazing Marsha and I hope you know that!


    Hugs, Jan
  • survivorbc09
    survivorbc09 Member Posts: 4,374 Member
    carkris said:

    so glad you have new plan
    so glad you have new plan and praying for great results. have lots of fun!

    sorry
    double post