peg tube/eating problems

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francma
francma Member Posts: 69 Member
in Head and Neck Cancer #1
Finished my 7 weeks of radiations and 3 chemos on April 18, 2011. I've been with a peg tube from the beginning. I cannot seem to eat a complete meal yet. My taste buds are still altered but getting better. Any suggestions for bland diets as spices flare up the taste buds. I can't have peg removed until I am off the nutrient1 can formula for a month. My repeat Petscan showed cancer free as my monthly exams.

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  • jim and i
    jim and i Member Posts: 1,788 Member
    #2
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    Congrats on clen scan. Bland
    Congrats on clen scan. Bland foods to try, mashed potato, smoothies, home made juices, Cream of Wheat, mashed potato or instant.


    The super thread has a section on foods to eat,

    Debbie
  • Greend
    Greend Member Posts: 678
    #3
    Options
    sounds good
    Sounds like you are on track to have ""whupped" (thats southern for BEATEN) the SOB. Agree with Debbie and keep up the good attitude.
  • cwcad
    cwcad Member Posts: 117
    #4
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    Greend said:

    sounds good
    Sounds like you are on track to have ""whupped" (thats southern for BEATEN) the SOB. Agree with Debbie and keep up the good attitude.

    keep trying to taste something
    Yes it does sound like he is on track. Keep trying differnet foods to see what will and will not go down. I remember after months of tube feeding the first thing that I could eat and not have it taste like concrete was Sugar Pops ceral with milk soaked to mush but I didn't care. something went down that tasted ok.
    Continue on, my friend it will get better. Hard as it is to believe?
  • francma
    francma Member Posts: 69 Member
    #5
    Options
    jim and i said:

    Congrats on clen scan. Bland
    Congrats on clen scan. Bland foods to try, mashed potato, smoothies, home made juices, Cream of Wheat, mashed potato or instant.


    The super thread has a section on foods to eat,

    Debbie

    super thread section?
    Thank you Debbie...those are exactly about all I eat however I have been able to eat Carnation Breakfast drink as doctor recommended. It's my dinner's that are a problem. Will I ever eat a normal portion? or maybe I should try eating alittle every couple of hours. The 3-4 cans I feel needed for my nutritional health but I don't know if it interferes with the appetite. It's so frustrating as I'm trying to return to work but seems they want to put me on long term disability:(
    Sorry but....Where do I locate the super thread

    Fran
  • francma
    francma Member Posts: 69 Member
    #6
    Options
    Greend said:

    sounds good
    Sounds like you are on track to have ""whupped" (thats southern for BEATEN) the SOB. Agree with Debbie and keep up the good attitude.

    positive attitude
    Thanks for your uplifting words
  • francma
    francma Member Posts: 69 Member
    #7
    Options
    Greend said:

    sounds good
    Sounds like you are on track to have ""whupped" (thats southern for BEATEN) the SOB. Agree with Debbie and keep up the good attitude.

    positive attitude
    Thanks for your uplifting words
  • francma
    francma Member Posts: 69 Member
    #8
    Options
    cwcad said:

    keep trying to taste something
    Yes it does sound like he is on track. Keep trying differnet foods to see what will and will not go down. I remember after months of tube feeding the first thing that I could eat and not have it taste like concrete was Sugar Pops ceral with milk soaked to mush but I didn't care. something went down that tasted ok.
    Continue on, my friend it will get better. Hard as it is to believe?

    Thank you for your
    Thank you for your encouraging words. I WILL continue to try. My dinner's are the hardest.

    Fran
  • francma
    francma Member Posts: 69 Member
    #9
    Options
    cwcad said:

    keep trying to taste something
    Yes it does sound like he is on track. Keep trying differnet foods to see what will and will not go down. I remember after months of tube feeding the first thing that I could eat and not have it taste like concrete was Sugar Pops ceral with milk soaked to mush but I didn't care. something went down that tasted ok.
    Continue on, my friend it will get better. Hard as it is to believe?

    Thank you for your
    Thank you for your encouraging words. I WILL continue to try. My dinner's are the hardest.

    Fran
  • francma
    francma Member Posts: 69 Member
    #10
    Options
    cwcad said:

    keep trying to taste something
    Yes it does sound like he is on track. Keep trying differnet foods to see what will and will not go down. I remember after months of tube feeding the first thing that I could eat and not have it taste like concrete was Sugar Pops ceral with milk soaked to mush but I didn't care. something went down that tasted ok.
    Continue on, my friend it will get better. Hard as it is to believe?

    Thank you for your
    Thank you for your encouraging words. I WILL continue to try. My dinner's are the hardest.

    Fran
  • francma
    francma Member Posts: 69 Member
    #11
    Options
    cwcad said:

    keep trying to taste something
    Yes it does sound like he is on track. Keep trying differnet foods to see what will and will not go down. I remember after months of tube feeding the first thing that I could eat and not have it taste like concrete was Sugar Pops ceral with milk soaked to mush but I didn't care. something went down that tasted ok.
    Continue on, my friend it will get better. Hard as it is to believe?

    Thank you for your
    Thank you for your encouraging words. I WILL continue to try. My dinner's are the hardest.

    Fran
  • francma
    francma Member Posts: 69 Member
    #12
    Options
    cwcad said:

    keep trying to taste something
    Yes it does sound like he is on track. Keep trying differnet foods to see what will and will not go down. I remember after months of tube feeding the first thing that I could eat and not have it taste like concrete was Sugar Pops ceral with milk soaked to mush but I didn't care. something went down that tasted ok.
    Continue on, my friend it will get better. Hard as it is to believe?

    Thank you for your
    Thank you for your encouraging words. I WILL continue to try. My dinner's are the hardest.

    Fran
  • francma
    francma Member Posts: 69 Member
    #13
    Options
    cwcad said:

    keep trying to taste something
    Yes it does sound like he is on track. Keep trying differnet foods to see what will and will not go down. I remember after months of tube feeding the first thing that I could eat and not have it taste like concrete was Sugar Pops ceral with milk soaked to mush but I didn't care. something went down that tasted ok.
    Continue on, my friend it will get better. Hard as it is to believe?
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #14
    Options
    francma said:

    super thread section?
    Thank you Debbie...those are exactly about all I eat however I have been able to eat Carnation Breakfast drink as doctor recommended. It's my dinner's that are a problem. Will I ever eat a normal portion? or maybe I should try eating alittle every couple of hours. The 3-4 cans I feel needed for my nutritional health but I don't know if it interferes with the appetite. It's so frustrating as I'm trying to return to work but seems they want to put me on long term disability:(
    Sorry but....Where do I locate the super thread

    Fran

    Fran.
    Here is the superthread:

    HNC  SUPERTHREAD

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