blood clot

biz
biz Member Posts: 60 Member
Hi. I'm in the hospital with a blood clot in my lung. Glad I made the decision to go to the ER. I was feeling pretty dumb for a while because by the time I got to the hospital the pain was gone. I'm learning it is better to be safe than sorry.

Comments

  • CherylHutch
    CherylHutch Member Posts: 1,375
    Blood clot pain?
    Hey Biz,

    Glad to hear you made it to the hospital... and you are right, it's always better to be safe than sorry after the fact.

    They found a blood clot in my lung too... just a baby, but still, a blood clot id a blood clot. I am on blood thinners where I have to give myself a shot of them, twice a day... in the morning and at night. I am going to have to do this for 6 months and then they will re-evaluate as to whether I will need to continue with them. My blood clot is small enough that they are hoping that it will just get absolved in the tissue. I have to admit, I'll be a happy camper when I don't have to give myself anymore shots... a blood thinner shot produced a HUGE bruise... so I produce 2 huge bruises/day! :)

    So what pain did you feel? I don't recall feeling any pain with mine.

    Cheryl in Vancouver
  • merrysmom
    merrysmom Member Posts: 51
    hang in there
    Hi, I am really praying for you. I have hyper coagulation problems and wind up in the hospital a lot for that. I really hate it. I will be praying for your clot to clear up fast and that you will be able to go home. Giant hug to you, take care, your friend, barb
  • herdizziness
    herdizziness Member Posts: 3,624 Member
    Biz
    So glad you went, two days ago, my Aunt Wanda (my rock) went into the hospital, they discovered numerous blood clots in her lungs (No DVT, no other hint of why)and had she not made it there, she would not have made it anywhere (she was getting ready to leave AZ the next day for a 2 month vacation in their motor home).
    She still lies in the hospital today, while they try and figure out why she has these blood clots, her symptoms where sweating and loss of breath.
    So glad yours got caught in time, such as my Auntie's did.
    Thinking of you,
    Winter Marie
  • John23
    John23 Member Posts: 2,122 Member
    Biz -
    Re:
    "by the time I got to the hospital the pain was gone"

    Doesn't that mean the clot is no longer a problem?

    I had one in my left leg. The sonogram indicated it was
    behind my knee. They read me the riot act, including
    the data with PE, and how I was going to die...

    I took some herbs for it, and my leg returned to normal.
    Afterwards, they couldn't locate the clot... They said that
    there are times it can just "dissolve all by itself", and the
    clot is no longer a problem......

    So the question is.... if the pain etc, is gone, and they can
    no longer locate the clot, what are they treating you for?

    Just curious...!

    (By the way..... Since I have a permanent PICC line,
    clots for me will be a fairly usual state of affair..)

    Stay well,

    John
  • laurettas
    laurettas Member Posts: 372

    Blood clot pain?
    Hey Biz,

    Glad to hear you made it to the hospital... and you are right, it's always better to be safe than sorry after the fact.

    They found a blood clot in my lung too... just a baby, but still, a blood clot id a blood clot. I am on blood thinners where I have to give myself a shot of them, twice a day... in the morning and at night. I am going to have to do this for 6 months and then they will re-evaluate as to whether I will need to continue with them. My blood clot is small enough that they are hoping that it will just get absolved in the tissue. I have to admit, I'll be a happy camper when I don't have to give myself anymore shots... a blood thinner shot produced a HUGE bruise... so I produce 2 huge bruises/day! :)

    So what pain did you feel? I don't recall feeling any pain with mine.

    Cheryl in Vancouver

    Bruising
    I know what you mean about bruises, Cheryl. Have to give my husband Lovenox shots, too, and the first few days he got a large bruise each time so that he soon had a whole row of them across his stomach. Looked terrible! Anyhow for some reason we changed one thing that we did and the bruising stopped. I was pinching his stomach because it is easier to get the needle in but then I kept pinching while giving the dose. Then I started letting go after I had the needle through his skin before I pushed the drug in and now he doesn't bruise any more. All he has gotten lately is a tiny match head size red spot. You can try that and see if it helps any with the bruising--can you imagine what you will look like in six months if the bruising continues?! Wow!
  • CherylHutch
    CherylHutch Member Posts: 1,375
    laurettas said:

    Bruising
    I know what you mean about bruises, Cheryl. Have to give my husband Lovenox shots, too, and the first few days he got a large bruise each time so that he soon had a whole row of them across his stomach. Looked terrible! Anyhow for some reason we changed one thing that we did and the bruising stopped. I was pinching his stomach because it is easier to get the needle in but then I kept pinching while giving the dose. Then I started letting go after I had the needle through his skin before I pushed the drug in and now he doesn't bruise any more. All he has gotten lately is a tiny match head size red spot. You can try that and see if it helps any with the bruising--can you imagine what you will look like in six months if the bruising continues?! Wow!

    Bruising
    Interesting, Laurettas. I remember the nurse, who originally was showing me how to give myself the shots, had said I could pinch the skin, then release the skin when the last of the blood thinner was in. I never could get used to pinch, enter, release at the same time (I'm a klutz!! LOL!). So I don't pinch anymore... just put the needle in and push the med in. They syringe has this automatic feature where, once all the med is in, the needle is automajically sucked up into the syringe, so then I just have to hold a piece of cotton to the entry for two minutes. Since they have changed my dose to a smaller dose, the bruising still happens but not as back as the first month when I was on a full dosage :)

    Cheryl In Vancouver
  • biz
    biz Member Posts: 60 Member
    John23 said:

    Biz -
    Re:
    "by the time I got to the hospital the pain was gone"

    Doesn't that mean the clot is no longer a problem?

    I had one in my left leg. The sonogram indicated it was
    behind my knee. They read me the riot act, including
    the data with PE, and how I was going to die...

    I took some herbs for it, and my leg returned to normal.
    Afterwards, they couldn't locate the clot... They said that
    there are times it can just "dissolve all by itself", and the
    clot is no longer a problem......

    So the question is.... if the pain etc, is gone, and they can
    no longer locate the clot, what are they treating you for?

    Just curious...!

    (By the way..... Since I have a permanent PICC line,
    clots for me will be a fairly usual state of affair..)

    Stay well,

    John

    I'll rephrase that.
    The

    I'll rephrase that.

    The severe pain in my shoulder, arm, and back was down to milder pain in my back just when I took a deep breath or laughed.

    Thanks for the tips on the shots.
  • Daisy-WD
    Daisy-WD Member Posts: 4
    I have been using Lovenox
    I have been using Lovenox shots for a year now. Since i was dx. Actualy that is how i found out abou my stage IV cc. I have DVT and PE and i will be on shots and live with IVC filter all my life. I was brusing in the beginning too but my hematologist suggested to put a piece of ice cube in a bag and hold it on the injection location for a minute then pinch and inject. It worked for me i have very few bruised points and it hurts much much less :) i have tons of other problems so shot is least of my worries.
    And there is good news for people like me who will use lovenox life time. I heard that Trials for pill format will start soon in us.
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    Daisy-WD said:

    I have been using Lovenox
    I have been using Lovenox shots for a year now. Since i was dx. Actualy that is how i found out abou my stage IV cc. I have DVT and PE and i will be on shots and live with IVC filter all my life. I was brusing in the beginning too but my hematologist suggested to put a piece of ice cube in a bag and hold it on the injection location for a minute then pinch and inject. It worked for me i have very few bruised points and it hurts much much less :) i have tons of other problems so shot is least of my worries.
    And there is good news for people like me who will use lovenox life time. I heard that Trials for pill format will start soon in us.

    Daisy....that's also how I
    Daisy....that's also how I found out about my cancer too...was very short of breath went to hospital, they x-rayed me and saw the mass. Where did you hear about the trial for pills??
  • CherylHutch
    CherylHutch Member Posts: 1,375
    Daisy-WD said:

    I have been using Lovenox
    I have been using Lovenox shots for a year now. Since i was dx. Actualy that is how i found out abou my stage IV cc. I have DVT and PE and i will be on shots and live with IVC filter all my life. I was brusing in the beginning too but my hematologist suggested to put a piece of ice cube in a bag and hold it on the injection location for a minute then pinch and inject. It worked for me i have very few bruised points and it hurts much much less :) i have tons of other problems so shot is least of my worries.
    And there is good news for people like me who will use lovenox life time. I heard that Trials for pill format will start soon in us.

    Interesting about the pill format
    Hey Daisy,

    Do you have a website or anywhere we can find out about the Pill format that may be coming out and who would be eligible for it? The reason I ask... Warfarin is in the pill format, but it is not given to cancer patients who have a blood clot(s). Apparently blood clots in cancer patients are very common but, just due to the nature of the various treatments we go on, Warfarin is not a good idea. The pill format tends to stay in the system longer than the injection so if one has to change chemos and Warfarin doesn't work with the new chemo, then there's a problem while you have to wait for it to get out of your system and change to the injection which is usually a form of "Heparin". I'm not sure... is Lovenox a form of or based on Heparin?

    Anywho... it would be interesting to see if the "pill form" of Lovenox would be a good alternative to those of us on a Heparin injection. I'd be curious to find out :)

    Cheryl in Vancouver
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Good
    Glad you caught it in time. Hope you get released soon.

    Kim
  • pepebcn
    pepebcn Member Posts: 6,331 Member

    Good
    Glad you caught it in time. Hope you get released soon.

    Kim

    Hope the best and a fast recovery !
    Take care of you!.
    Hugs!
  • Daisy-WD
    Daisy-WD Member Posts: 4

    Interesting about the pill format
    Hey Daisy,

    Do you have a website or anywhere we can find out about the Pill format that may be coming out and who would be eligible for it? The reason I ask... Warfarin is in the pill format, but it is not given to cancer patients who have a blood clot(s). Apparently blood clots in cancer patients are very common but, just due to the nature of the various treatments we go on, Warfarin is not a good idea. The pill format tends to stay in the system longer than the injection so if one has to change chemos and Warfarin doesn't work with the new chemo, then there's a problem while you have to wait for it to get out of your system and change to the injection which is usually a form of "Heparin". I'm not sure... is Lovenox a form of or based on Heparin?

    Anywho... it would be interesting to see if the "pill form" of Lovenox would be a good alternative to those of us on a Heparin injection. I'd be curious to find out :)

    Cheryl in Vancouver

    There are couple of web
    There are couple of web pages talking about this but i couln't find any solid information like place date etc. So i asked my doctor he said there are studies going on about this and trils will start but he said i wouldn't be a candidae becaus of my condition. As with trials it would take years to be available for every one but since i will be on lvenox for lifetime it is a hope for me :) If i find a better site with more solid information i will gladly forward it to both of you. I tried warfarin aftr my surgey too but t idn.t help and switched to lovenox. Sorry for the typos im still having problem with my fingertips.
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    pepebcn said:

    Hope the best and a fast recovery !
    Take care of you!.
    Hugs!

    I asked the last onc. I saw
    I asked the last onc. I saw at an appointment about even going on chemo. pill instead of the take home pump....I always get the standard answer that "they are not as effective". When I asked about the blood clots I was told it's a result of the cancer. So, I suppose the cancer itself somehow cause the blood clots.
  • karen40
    karen40 Member Posts: 211 Member
    Hope your feeling better
    Biz,
    I hope things are looking better for you.
    Your in my thoughts and prayers.
    Karen
  • John23
    John23 Member Posts: 2,122 Member
    smokeyjoe said:

    I asked the last onc. I saw
    I asked the last onc. I saw at an appointment about even going on chemo. pill instead of the take home pump....I always get the standard answer that "they are not as effective". When I asked about the blood clots I was told it's a result of the cancer. So, I suppose the cancer itself somehow cause the blood clots.

    Hmmm

    I'd figure, that if my cancer took a few or more years to grow
    unnoticed, and I didn't have clots all that time, maybe, just
    maybe it's the treatments that cause clots, and not the cancer...

    (my mind works in strange ways, I suppose)

    Best of health,

    John
  • toyfox
    toyfox Member Posts: 158 Member
    John23 said:

    Hmmm

    I'd figure, that if my cancer took a few or more years to grow
    unnoticed, and I didn't have clots all that time, maybe, just
    maybe it's the treatments that cause clots, and not the cancer...

    (my mind works in strange ways, I suppose)

    Best of health,

    John

    hmmm
    My husband had his first ct scan after 6 months of folfox. No cancer but a
    blood clot in his liver. His first scan after surgery was normal. His onc
    said the blood clot was from chemo. Now it will be six months of Coumadin.