2nd faslodex down, MD Anderson to go...
And, update...Amtrak was adopted by a friend of the vet tech. Very mixed feelings, but I know I did a good thing so I am at peace with the outcome. Hopefully, a fresh start and happy ending for Amtrak.
Comments
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I had my Faslodex injections
I had my Faslodex injections yesterday too! OUCH is right! This time they did it in my hips rather than buttocks~ it is so much worse than last time~ and last time was bad enough! I am not only swollen HUGE, I am bruised, and there is a nickel sized blister on the injection site. :-( Just noticed it this evening, as it still had the bandaid on it...I will be calling my oncologist in the morninng! I am willing to put up with the pain as long as the Faslodex keeps the beast at bay! But ouch, ouch, ouch! :-(
Bittersweet indeed with Amtrak, so happy that you are at peace with your decision~ you have done a good thing~ so very like you!!!!!0 -
Good Luck
Cynthia, at MD Anderson. I hope that you get some confirmation/answers that you are looking for. I am hoping that the Falsodex helps and keeps everything under control for you. My fingers are crossed and I am sending positive thoughts your way.
Best,
Clementine0 -
Wishing you the best at MD AndersonClementine_P said:Good Luck
Cynthia, at MD Anderson. I hope that you get some confirmation/answers that you are looking for. I am hoping that the Falsodex helps and keeps everything under control for you. My fingers are crossed and I am sending positive thoughts your way.
Best,
Clementine
Hoping also that those mean, nasty Faslodex injections help. By the way, I love the pic of you and your beloved. Beautiful!
Hugs, Renee0 -
Finger and Toes cross here .. for you CC --missrenee said:Wishing you the best at MD Anderson
Hoping also that those mean, nasty Faslodex injections help. By the way, I love the pic of you and your beloved. Beautiful!
Hugs, Renee
Please rest in the fact that our 'Pink Support Bus' will be following you and Danny to MD Anderson. Hoping and praying that all your concerns, questions will be resolved, as well as a new plan of action put into place.
I am delighted that your body is tolerating your new Faslodex injections. So sorry that the injection of faslodex hurts so much. I wish I could take this pain from you, dear Eileen.
Happy news about Amtrak, sorry that he is not part of your happy world, but you gave Amtrak a new lease on life -- and I am sure he will be eternally grateful. Not many people would provide emotional and medical care for a strange cat -- ring worms and all.
Our bus has recently been modified recently to include a pizza oven, overhead night bunks and a spa center offering Medi-- pedi, and facials. Karaoke stage has been revamped to accommodate more singers.
Strength, Courage and Hope.
Vicki Sam0 -
For Chen: Get that Emla Cream or Lidocaine Patcheschenheart said:I had my Faslodex injections
I had my Faslodex injections yesterday too! OUCH is right! This time they did it in my hips rather than buttocks~ it is so much worse than last time~ and last time was bad enough! I am not only swollen HUGE, I am bruised, and there is a nickel sized blister on the injection site. :-( Just noticed it this evening, as it still had the bandaid on it...I will be calling my oncologist in the morninng! I am willing to put up with the pain as long as the Faslodex keeps the beast at bay! But ouch, ouch, ouch! :-(
Bittersweet indeed with Amtrak, so happy that you are at peace with your decision~ you have done a good thing~ so very like you!!!!!
Don't think they give points in heaven for suffering when you don't have too. LOL
Best,
Doris0 -
For Cypress Cynthia: Emla Cream or a Lidocaine Patch
Hi,
I was on Faslodex for about 7 months, then progression. At the time, it was only 1 shot, though I had a booster for the first two times. I believe that I can reboot this drug when the times comes again.
They sprayed that awful freezing spray on my skin before injection. I never had any pain or any awful experience on Faslodex. I made certain that the side that was been injected hung loose and all my weight was put on the side that wasn't being injected. You might think about it next time around.
Emla cream I used for my port area during chemotherapy. I applied the cream an hour prior to treatment and covered it was some kind of bandage that was included, sort of like a saran wrap. It is a prescription, so you have to have your doctor write one up.
Another option might be a lidocaine patch to apply after or before. They can be cut in half. It is a prescription. It is suppose work for 10 hours, I use the patch on my ankle. My podiatrist agrees with me that it only works for about 3 hours. My patch helps me to be pain free in that area and does help with the walking.
You might try the different patches and see if it helps with a pain free injection.
Best,
Doris0 -
Doris,SIROD said:For Chen: Get that Emla Cream or Lidocaine Patches
Don't think they give points in heaven for suffering when you don't have too. LOL
Best,
Doris
I mentioned Emla to
Doris,
I mentioned Emla to my Dr and he is more than willing to give me a prescription for it~ but getting the shot isn't the major owie part...the nurse this week didn't hurt me at all. It is the after-effect hurting me so much~ swollen the size of my hand, bruised and as I said, a water blister at the injection site. Can't imagine Emla would have helped...thanks anyway, Doris! I know your heart is with me!0 -
Dear Eileenchenheart said:I had my Faslodex injections
I had my Faslodex injections yesterday too! OUCH is right! This time they did it in my hips rather than buttocks~ it is so much worse than last time~ and last time was bad enough! I am not only swollen HUGE, I am bruised, and there is a nickel sized blister on the injection site. :-( Just noticed it this evening, as it still had the bandaid on it...I will be calling my oncologist in the morninng! I am willing to put up with the pain as long as the Faslodex keeps the beast at bay! But ouch, ouch, ouch! :-(
Bittersweet indeed with Amtrak, so happy that you are at peace with your decision~ you have done a good thing~ so very like you!!!!!
Have a safe trip and productive discussion. I hope you will benefit from this consultation and come back inspired and confident.
Good luck
New Flower0 -
Like us, Amtrak is blessed
Like us, Amtrak is blessed to have you in his life. You did a very good thing there, and something that many would not have done.
Those shots sound very painful...I'm sure hoping that stuff does what it is supposed to. And yes, I'll keep everything crossed for your visit at MD Anderson. I'll be looking for your update on that.
Hugs,
Linda0 -
My nurses have made me putSIROD said:For Cypress Cynthia: Emla Cream or a Lidocaine Patch
Hi,
I was on Faslodex for about 7 months, then progression. At the time, it was only 1 shot, though I had a booster for the first two times. I believe that I can reboot this drug when the times comes again.
They sprayed that awful freezing spray on my skin before injection. I never had any pain or any awful experience on Faslodex. I made certain that the side that was been injected hung loose and all my weight was put on the side that wasn't being injected. You might think about it next time around.
Emla cream I used for my port area during chemotherapy. I applied the cream an hour prior to treatment and covered it was some kind of bandage that was included, sort of like a saran wrap. It is a prescription, so you have to have your doctor write one up.
Another option might be a lidocaine patch to apply after or before. They can be cut in half. It is a prescription. It is suppose work for 10 hours, I use the patch on my ankle. My podiatrist agrees with me that it only works for about 3 hours. My patch helps me to be pain free in that area and does help with the walking.
You might try the different patches and see if it helps with a pain free injection.
Best,
Doris
My nurses have made me put all my weight on the side not being injected and told me to try and relax the muscle to be injected. I will ask about the freezing spray.
But, for me, what bothers me most is later--the lumpy, warm, itchy feeling at the site. Nothing I can't handle though really (cortisone cream with aloe). All things considered, I feel I have been very lucky as, although I react adversely to numerous meds, I am tolerating all cancer meds ok. Maybe it is my mindset that I HAVE to tolerate them? ;-)
But thanks for all the info as I know Chen is my faslodex buddy and some of this may help her and others!0 -
Don't forget to include anVickiSam said:Finger and Toes cross here .. for you CC --
Please rest in the fact that our 'Pink Support Bus' will be following you and Danny to MD Anderson. Hoping and praying that all your concerns, questions will be resolved, as well as a new plan of action put into place.
I am delighted that your body is tolerating your new Faslodex injections. So sorry that the injection of faslodex hurts so much. I wish I could take this pain from you, dear Eileen.
Happy news about Amtrak, sorry that he is not part of your happy world, but you gave Amtrak a new lease on life -- and I am sure he will be eternally grateful. Not many people would provide emotional and medical care for a strange cat -- ring worms and all.
Our bus has recently been modified recently to include a pizza oven, overhead night bunks and a spa center offering Medi-- pedi, and facials. Karaoke stage has been revamped to accommodate more singers.
Strength, Courage and Hope.
Vicki Sam
Don't forget to include an animal shelter on the bus! There's a manx calico hanging around now. Why me?! LOL!!!0 -
For Cypress CynthiaCypressCynthia said:My nurses have made me put
My nurses have made me put all my weight on the side not being injected and told me to try and relax the muscle to be injected. I will ask about the freezing spray.
But, for me, what bothers me most is later--the lumpy, warm, itchy feeling at the site. Nothing I can't handle though really (cortisone cream with aloe). All things considered, I feel I have been very lucky as, although I react adversely to numerous meds, I am tolerating all cancer meds ok. Maybe it is my mindset that I HAVE to tolerate them? ;-)
But thanks for all the info as I know Chen is my faslodex buddy and some of this may help her and others!
Hi,
I hated the spray more than the shot. I have postpone a decision to go back to Faslodex for the time being. I had given the problem a lot of thought for this 2nd time around. You might talk with your doctor about the best solution other than the spray.
I am a hard stick, with very hard veins to access on my one arm. They often use that freezing spray in order that I stop complaining. They often need a laser to find a vein and even then it goes into hiding. The spray is often used with cortisone shots too.
It's the only hormonal that requires a needle instead of a pill and that might be why we don't really like Faslodex. If it works, hey, then there is no complaining.
Very best to you,
Doris0 -
Texas? The bus is going to Texas?Gabe N Abby Mom said:Like us, Amtrak is blessed
Like us, Amtrak is blessed to have you in his life. You did a very good thing there, and something that many would not have done.
Those shots sound very painful...I'm sure hoping that stuff does what it is supposed to. And yes, I'll keep everything crossed for your visit at MD Anderson. I'll be looking for your update on that.
Hugs,
Linda
Ok, Eileen, I'm on board next week to go to MD Anderson with the gang. I hope the consult is affirming and encouraging. I don't think I'd like those shots, but if they do what they're supposed to do, I'd sure do it, too. Keep doing well, please.
Suzanne0 -
Hi Chenchenheart said:Doris,
I mentioned Emla to
Doris,
I mentioned Emla to my Dr and he is more than willing to give me a prescription for it~ but getting the shot isn't the major owie part...the nurse this week didn't hurt me at all. It is the after-effect hurting me so much~ swollen the size of my hand, bruised and as I said, a water blister at the injection site. Can't imagine Emla would have helped...thanks anyway, Doris! I know your heart is with me!
Perhaps try the lidocaine patch after the injection, might be more useful. It really says works for 10 hours but really is only good for 3 hours. However, you might cut up the patch so you can apply it to the area every 4 hours. You can only wear it for 10 hours and then no patch for another 10.
I am using a gel on my knees that has been very helpful with inflammation. It is called Voltaren gel that really helps. It is also a prescription. I use the gel on my knees 3 or 4 x a day. It really helps in living with pain. I don't want the water drained from the knee again. That was painful.
Ask your doctor about it. I had to ask my doctor about it and they said, "why, yes that will help you a lot". Make one wonder why they don't think about it. My sister was given a prescription by her doctor and told me about it. So I am spreading the word. No points in heaven to suffer needlessly.
I had tried over the counter stuff and this Voltaren gel is 100% better.
Best to you,
Doris0 -
Cypress & ChenCypressCynthia said:My nurses have made me put
My nurses have made me put all my weight on the side not being injected and told me to try and relax the muscle to be injected. I will ask about the freezing spray.
But, for me, what bothers me most is later--the lumpy, warm, itchy feeling at the site. Nothing I can't handle though really (cortisone cream with aloe). All things considered, I feel I have been very lucky as, although I react adversely to numerous meds, I am tolerating all cancer meds ok. Maybe it is my mindset that I HAVE to tolerate them? ;-)
But thanks for all the info as I know Chen is my faslodex buddy and some of this may help her and others!
You both probably know this, but just in case. Faslodex takes about 5 to 6 months at times before it shows improvement. It is different than AI's that often show improvement by 3 months. One has to be patient and believe Faslodex will work.
As I said, "you probably already know this".
Now I will get off my Soap Box and stop commenting on this topic. Do I hear voices saying "about time!!"
Best to you both,
Doris0
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