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it is not real

alex13
Posts: 3
Joined: Aug 2011

i am so removed from my illness that i do not know even if it is small cell or not. how stupid is that? if i do not talk about it, it is not real. time to be quiet, and just get lost.

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

Knowledge is power. It's time for you to fight! Start asking questions, lots of them. We care.

lekkerone
Posts: 199
Joined: Jan 2011

I relate a bit to what you say. The entire time I was having tests I felt as if I had stepped into someone else's nightmare and went through the tests (4 months of them)as if I was in some kind of a trance. However, I always knew I probably had cancer. That was never verified until I had the surgery.
Unfortunately it won't go away until you have had the appropriate treatment. Try and gather family and friends around yourself and talk about your feelings. Good luck, Diane

alex13
Posts: 3
Joined: Aug 2011

i thank u both for taking the time to care. i must say i am further into treatment than it sounded. i had surgery on march 31st and they removed the lower lobe of my right lung. after that, i fought pneumonia for quite some time and was in rehab and came home july 21 oxygen dependent. i am tethered to that dang machine with a fifty foot cord and i just hate it. without it, i am short of breath. i believe it is because of the severe copd i was diagnosed with that my recovery is taking so long. it does not help that i have no real support from family - there just is no one. i am ok with that, but don't say u will be there and then back out. sorry, i am venting a bit - i just want to say i have already told more of me than i have of late. thank you for caring.

lekkerone
Posts: 199
Joined: Jan 2011

I care Alex. We all do. Will you be able to get rid of the oxygen in time? I had a lobectomy just like you except mine was my lower left lung. Please keep moving as best you can so you can breathe better. Please keep in touch.

NayPaul's picture
NayPaul
Posts: 230
Joined: Oct 2010

I must say... I agree with u... at least. In the importance that u have someone u can trust to help be at appointments. I know the patient is sometimes awe struck, and it takes a second person to help intake and decode the info.

I hope it helps you to share and learn from this board as that will be open to what u need to hear to make knowledgable decisions.

NayPaul's picture
NayPaul
Posts: 230
Joined: Oct 2010

I must say... I agree with u... at least. In the importance that u have someone u can trust to help be at appointments. I know the patient is sometimes awe struck, and it takes a second person to help intake and decode the info.

I hope it helps you to share and learn from this board as that will be open to what u need to hear to make knowledgable decisions.

Glenna M's picture
Glenna M
Posts: 1576
Joined: May 2009

As others have said...we care!! I know it's not the same as having someone there with you but we are all here to help in any way we can. Even if it's only to let you vent, we understand, we have all been there and understand what you are feeling.

I'm on oxygen therapy also and am attached to a 50 foot cord at home and a portable tank if I leave the house. I not only get short of breath without it but my oxygen levels drop to 77 if I am active and not hooked to the oxygen. I hate the tube also but I don't let it get me down, I just keep reminding myself that at least I am still able to move around and do pretty much everything I want to do. Granted I am moving slower and have to watch out for the tubing but at least I'm moving.

Please stay in touch so we can help you through this.

Glenna

alex13
Posts: 3
Joined: Aug 2011

thank you all for being there for me. hearing from you all and knowing you are there for me has brought a smile to my face.

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

GREAT! Mission accomplished! Now find out exactly what kind of cancer you have so that you can relate to what others on the board with the same type. Once you know what you have then you can ask about the kinds of treatments the will work on it. Remember your doctors are working for you so don't feel shy about asking questions. So glad you are smiling!

granny maggie
Posts: 15
Joined: Jul 2011

I too am on oxygen but without it the coughing and wheezing drives me nuts. We all have our days but the more you get it off your mind to people who have been there it helps. I have a portable tank that I got a backpack carrier and I really like it as it frees both your hands. Hope you have a good week-end and know we're here for you.

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

(ancient TV commercial reference :))

It was great to meet you in the Chat Room, Alex. There, you did not seem like someone removed from your illness but a vibrant caring individual with much left to share with the world.

In here, my new friend, you will find some of the most generous, knowledgeable and kind individuals that you can find on any forum anywhere.

I wish you the best, as you know, and hope to chat with you again sooner rather than later.

Take care,

Joe

medi_2's picture
medi_2
Posts: 510
Joined: Aug 2009

Be careful about throwing that word 'ancient' around...I remember that commercial ;)
Welcome Alex!
Cheers
Medi

Hope4Marge's picture
Hope4Marge
Posts: 74
Joined: Jul 2011

I don't know why that posted three times!

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

These days, Medi, it seems that 'ancient' means five minutes ago :).

Take care, my friend,

Joe

Hope4Marge's picture
Hope4Marge
Posts: 74
Joined: Jul 2011

If someone were to ask Mom what her type was, she would not know other than "stage four lung cancer." I attend all her doctor appointments and know every detail. While it's important to know, I can understand what you mean. It's important to have people and support in your life to get the details, and to also have that protected safe place in your mind to go to when you need to escape it all. Hugs to you.

Hope4Marge's picture
Hope4Marge
Posts: 74
Joined: Jul 2011

If someone were to ask Mom what her type was, she would not know other than "stage four lung cancer." I attend all her doctor appointments and know every detail. While it's important to know, I can understand what you mean. It's important to have people and support in your life to get the details, and to also have that protected safe place in your mind to go to when you need to escape it all. Hugs to you.

Hope4Marge's picture
Hope4Marge
Posts: 74
Joined: Jul 2011

If someone were to ask Mom what her type was, she would not know other than "stage four lung cancer." I attend all her doctor appointments and know every detail. While it's important to know, I can understand what you mean. It's important to have people and support in your life to get the details, and to also have that protected safe place in your mind to go to when you need to escape it all. Hugs to you.

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