Very Bad News on PET

mixleader
mixleader Member Posts: 267 Member
in Head and Neck Cancer #1
I can't believe that I am actually typing this as everything seems so surreal right now. I just got a call from my ENT about my Saturday PET/CT scan. It seems that the parotid cancer has spread to a lung and in the cervical vertibrae as well as still being present in my right cheek area. I am being referred to local cancer center where I have been before and also to a large University for some ideas on treatment. It was already mentioned that this cancer is resistant to chemo and apparently the radiation to the cheek last year did not stop it either. I was feeling confident that this had not spread and I was actually feeling pretty good this morning until this sledgehammer hit me right between the eyes. I am doing my best to remain hopeful, but I feel like the whole world just fell on me.
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Comments

  • jim and i
    jim and i Member Posts: 1,788 Member
    #2
    I am so sorry to hear this.
    I am so sorry to hear this. Sending you a big hug and praying for healing for you. Never give up, miracles still happen.

    Debbie
  • akotke
    akotke Member Posts: 37
    #3
    You are in my prayers. I
    You are in my prayers. I just saw a program where this lady had 21 tumors in her body and they were going to have to disfigure her in horrible ways to try to save her life and with just a couple of treatments the tumors began to shrink and now there are no signs of the tumors. You keep your head up.
    Angel
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #4
    akotke said:

    You are in my prayers. I
    You are in my prayers. I just saw a program where this lady had 21 tumors in her body and they were going to have to disfigure her in horrible ways to try to save her life and with just a couple of treatments the tumors began to shrink and now there are no signs of the tumors. You keep your head up.
    Angel

    Roger
    I am so sorry to read this. I was so hoping that your pet scan would yield good news.

    Praying for you, please never lose faith and hope.
  • jeepman
    jeepman Member Posts: 109
    #5
    So sorry to hear this news.
    So sorry to hear this news. My wife and I will pray for you as soon as I am done typing this and ask God to bless you immeasurably. Never never give up.

    Mike
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #6
    WOW
    Also really sorry to hear this......

    Words can never take the feelings away that you are going through right now....feelings that we all have gone through.

    My thoughts and prayers for finding the right treatment plan for you buddy.

    John
  • Lelia
    Lelia Member Posts: 98
    #7
    Lung mets from parotid tumor
    I am so sorry to hear of this. My husband is recovering from parotid cancer with local mets to bone and lymph nodes and I wonder which University's H&N cancer program you are referred to?
  • adventurebob
    adventurebob Member Posts: 691
    #8
    Prayers
    So sorry to read this Roger. I'll be praying for you daily and thinking of you often. I'll also be hating on this damn disease more today than yesterday. Standing with you,

    AB
  • rush1958
    rush1958 Member Posts: 221 Member
    #9
    Thoughts and Prayers
    Sorry to hear your news. You're in my thoughts and prayers.

    Rush
  • josh r.
    josh r. Member Posts: 264 Member
    #10
    darkness to light
    Many of us have been in very dark times as you are facing now and somehow, often through strong belief in a higher power, made it to another day. I'll pray that you will as well. josh r.
  • Pam M
    Pam M Member Posts: 2,196
    #11
    Bad News Indeed
    Very sorry to hear that you have to go through another round. The news has got to have yu reeling. Hoping you get a team together quickly, and attack that monster.
  • Jimbo55
    Jimbo55 Member Posts: 590 Member
    #12
    Geez
    Wow, so very sorry to hear this news. My thoughts are with you. I know its so difficult for you right now, hope you get some better news after your next visits to the cancer centers. Cheers.

    Jimbo
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #13
    SORRY TO HEAR
    I am so sorry to hear of this news. Please fight hard and do not give up. Prayers and positive thoughts from my family to yours.

    Mike
  • arndog64
    arndog64 Member Posts: 537
    #14
    luv4lacrosse said:

    SORRY TO HEAR
    I am so sorry to hear of this news. Please fight hard and do not give up. Prayers and positive thoughts from my family to yours.

    Mike

    I am so sorry to hear that
    I am so sorry to hear that it has spread. Stay positive and I will be praying for a good outcome. Man, I swear cancer is just not right... I wish they could find away to stop this thing in it's tracks..
  • hawk711
    hawk711 Member Posts: 566
    #15
    arndog64 said:

    I am so sorry to hear that
    I am so sorry to hear that it has spread. Stay positive and I will be praying for a good outcome. Man, I swear cancer is just not right... I wish they could find away to stop this thing in it's tracks..

    So sorry Roger
    I cannot image the "sledgehammer" hit you took hearing all this new information. I can only tell you that we are all here for you. Cancer is an ugly disease and sometimes does not always act like it should. But I am confident in the Dr's in the U.S. to take care of business. Many here have had recurrences and are telling their story here for all of us to read and give us hope.
    My wish is for you to find the strength to go through this crap again. You can do it....
    Be positive as you approach this new treatment process
    All the best
    Steve
  • Jahnsart
    Jahnsart Member Posts: 41
    #16
    From me to you
    I am sending you love, and compassion and all the good vibes I can collect...I know that news like this has you thinking the worst, just consider that, maybe it is just another round...Don't give up the fight, and hang in there. We are always there to support you, when and if you need it.
  • mixleader
    mixleader Member Posts: 267 Member
    #17
    Lelia said:

    Lung mets from parotid tumor
    I am so sorry to hear of this. My husband is recovering from parotid cancer with local mets to bone and lymph nodes and I wonder which University's H&N cancer program you are referred to?

    To Leilia
    I am being referred to the University of Michigan in Ann Arbor. I would like to hear more about your husband since this parotid cancer is so rare. I was beginning to think that I was the only one in the world with it.

    Roger
  • Lelia
    Lelia Member Posts: 98
    #18
    mixleader said:

    To Leilia
    I am being referred to the University of Michigan in Ann Arbor. I would like to hear more about your husband since this parotid cancer is so rare. I was beginning to think that I was the only one in the world with it.

    Roger

    Will PM you later
    U of M is EXCELLENT, that's great news, Roger. I grew up in Ann Arbor, university brat, have been in Columbus for many years and husband is being treated at Ohio State University's James Cancer Center, I understand both OSU and UofM have very highly rated H&Nc treatment programs.

    I am glad to have found a parotid friend and will send you a more detailed message later so as not to clog up the board.
  • Joel4
    Joel4 Member Posts: 263 Member
    #19
    Jahnsart said:

    From me to you
    I am sending you love, and compassion and all the good vibes I can collect...I know that news like this has you thinking the worst, just consider that, maybe it is just another round...Don't give up the fight, and hang in there. We are always there to support you, when and if you need it.

    PET Results
    So sorry you had to get such bad news. Bad news like this is exactly like you said, a sledgehammer.
    I wish you didn't have to go through this right now.
    I have experienced the power of prayer first hand in my experience with cancer and I'll be praying and believing for you in this situation. When I first told my mother about my diagnosis she prayed and prayed. The next time I talked with her she said that the Lord spoke to her with the words ALL IS WELL. Those words became my mantra and I still speak them aloud with faith and I will claim that message for you too Roger.

    God bless,

    Joel
  • Hondo
    Hondo Member Posts: 6,636 Member
    #20
    Hi Mixleader

    Never give up hope my friend; I know the feeling as I too had to go through this crap three times before I finally beat it. It is just another step in life that you must take to get to where you are going.

    If you ever need to talk to someone just e-mail me and I will send you my phone number or e-mail me yours and I will call you. Just click Hondo and all my info and e-mail address is there.

    Keeping you in my thoughts and prayers
    Hondo
  • Greg53
    Greg53 Member Posts: 849
    #21
    Hondo said:

    Hi Mixleader

    Never give up hope my friend; I know the feeling as I too had to go through this crap three times before I finally beat it. It is just another step in life that you must take to get to where you are going.

    If you ever need to talk to someone just e-mail me and I will send you my phone number or e-mail me yours and I will call you. Just click Hondo and all my info and e-mail address is there.

    Keeping you in my thoughts and prayers
    Hondo

    Roger
    Roger,

    Sorry to hear your latest news. Positive energy and thoughts headed your way!

    Greg

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