My Mom
Comments
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Cindy
I am so glad that you have posted on this board. Your Mom is so fortunate to have such caring daughter...and one that is trying to learn more about this diagnosis so that you can help educate your Mom. I hope some day that your Mom feels comfortable joining us, but in the mean time...ask away!
I am so happy to hear how well your Mom is tolerating treatment. That is wonderful.
Do you know what type of uterine cancer she has? I wasn't sure what you meant by Stage 1v?
Cindy, there are much worse things to be addicted to than this board...:-) We are here to support you in any way that we can.
Big Hugs! Karen0 -
Karenkkstef said:Cindy
I am so glad that you have posted on this board. Your Mom is so fortunate to have such caring daughter...and one that is trying to learn more about this diagnosis so that you can help educate your Mom. I hope some day that your Mom feels comfortable joining us, but in the mean time...ask away!
I am so happy to hear how well your Mom is tolerating treatment. That is wonderful.
Do you know what type of uterine cancer she has? I wasn't sure what you meant by Stage 1v?
Cindy, there are much worse things to be addicted to than this board...:-) We are here to support you in any way that we can.
Big Hugs! Karen
Sorry about that 1v. Its stage 4b, I need to get all the info from Mom. I know it is the Rare aggessive type.She Started Chemo with CA 125 of 518 and its now 43!! I wish It were lower But thats still real good, Right? She Started her 5th round last Tuesday and thats when they told us its 43.Thanks Karen, Cindy0 -
Hello Cindy
Cindy
I'm very new to the board, just recently diagnosed and haven't had surgery yet. I was looking for a support group and found CSN. Tell your mom that these ladies have provided me w/ info, encouragement, and support. They truly understand how scared, lost, and overwhelmed one can feel. I know I felt like I was talking to old friends, not strangers. I will put both you and your mom on my prayer list. Best wishes and know we are here for you!
Brook0 -
Hoping your mom has a clear scan
Here is hoping your Mom has a long remission after treatment. I know what has helped me is to talk to my daughter. I think she was more upset than I was when I was first diagnosed. Having loving family and friends there to give support is a wonderful thing.
Thinking of you and your Mom. Norma0 -
43 is GREATCynthia Rose said:Karen
Sorry about that 1v. Its stage 4b, I need to get all the info from Mom. I know it is the Rare aggessive type.She Started Chemo with CA 125 of 518 and its now 43!! I wish It were lower But thats still real good, Right? She Started her 5th round last Tuesday and thats when they told us its 43.Thanks Karen, Cindy
A CA 125 of 43 is great, considering that your Mum hasn't finished her chemo yet. The reference range varies a little from hospital to hospital (and country to country) but where I am (in England, UK) anything below 30-35 is considered "normal". (I hate using the phrase "normal range" because it isn't normal for everyone - there are always a percentage of people who naturally fall outside of the range, even when healthy).
So it looks as if your Mum is heading for a value which will be within range by the end of her chemo - which is the most wonderful news.
Hang on in there - we're all here for you.
Kindest wishes
Helen0 -
My Daughter Cynthia Rose
I would like to say I am the proud mother of Cynthia Rose who has been by my side throughout my surgery and treatments. She is absolutely one of a kind. I hope you all have a child like her. It is true, she has been learning and lurking on this site. While she learns she educates me. I have finally stopped procrastinating and, with her help last night, signed on. It is time to lift her burden of teaching me about you ladies and learn first hand. She loves you all and you have helped her so much. I cannot thank you enough. I do have stage 4 cancer and on July 12th my Dr. said she could possibly give me a break from chemo after the 6th month. Which will be the end of August. I am praying my count drops below 35. It is now 43. I will keep reading and learning from this wonderful site. Elly0 -
Welcome Elly!Elly P. said:My Daughter Cynthia Rose
I would like to say I am the proud mother of Cynthia Rose who has been by my side throughout my surgery and treatments. She is absolutely one of a kind. I hope you all have a child like her. It is true, she has been learning and lurking on this site. While she learns she educates me. I have finally stopped procrastinating and, with her help last night, signed on. It is time to lift her burden of teaching me about you ladies and learn first hand. She loves you all and you have helped her so much. I cannot thank you enough. I do have stage 4 cancer and on July 12th my Dr. said she could possibly give me a break from chemo after the 6th month. Which will be the end of August. I am praying my count drops below 35. It is now 43. I will keep reading and learning from this wonderful site. Elly
Elly,
Although no one wants to become a member of this board, it is a wonderful place for information and support!
You do have a wonderful daughter....it is so obvious that she cares about your deeply and is a true advocate. How wonderful!!
You have had a big drop in your CA 125 and that is great news! I am sure it will continue downward, but it very close to normal range now! HURRAH!!
Don't hesitate to ask any questions you have or just vent....that is what we are here for.
Best to you!
Karen0 -
So glad to meet you, Ellykkstef said:Welcome Elly!
Elly,
Although no one wants to become a member of this board, it is a wonderful place for information and support!
You do have a wonderful daughter....it is so obvious that she cares about your deeply and is a true advocate. How wonderful!!
You have had a big drop in your CA 125 and that is great news! I am sure it will continue downward, but it very close to normal range now! HURRAH!!
Don't hesitate to ask any questions you have or just vent....that is what we are here for.
Best to you!
Karen
As Karen said, this is a place for so much cutting-edge information, support, and encouragement. We can help you through your traditional cancer treatments and share tons of information about how diet and complementary therapies might help.
The huge drop in your CA-125 is very encouraging. May it soon fall into the normal range.
We are here for you, Elly. I hope you will feel comfortable enough to share your questions and concerns. By the way, you have an amazing daughter.
Jill0 -
Welcome!Elly P. said:My Daughter Cynthia Rose
I would like to say I am the proud mother of Cynthia Rose who has been by my side throughout my surgery and treatments. She is absolutely one of a kind. I hope you all have a child like her. It is true, she has been learning and lurking on this site. While she learns she educates me. I have finally stopped procrastinating and, with her help last night, signed on. It is time to lift her burden of teaching me about you ladies and learn first hand. She loves you all and you have helped her so much. I cannot thank you enough. I do have stage 4 cancer and on July 12th my Dr. said she could possibly give me a break from chemo after the 6th month. Which will be the end of August. I am praying my count drops below 35. It is now 43. I will keep reading and learning from this wonderful site. Elly
Dear Elly:
Welcome to this site. You have a wonderful daughter who is looking out for you. I am glad that you signed on. It really helps. Dont search the internet, because it is full of way outdated stuff. A lot of women hear are on the top of the most recent treatment that is out there.
Go and read some of the posts here and you will definitely have a positive outlook.
Having a CA125 of 43 is great. Just becasue a "normal" reading is 35 below, an elevated CA125 can be just from inflammation too. I guess what I am saying don't get too hung up on that number. Stay positive and keep doing all your activities as you can.
Sending you hugs,
Kathy0 -
Elly,Kaleena said:Welcome!
Dear Elly:
Welcome to this site. You have a wonderful daughter who is looking out for you. I am glad that you signed on. It really helps. Dont search the internet, because it is full of way outdated stuff. A lot of women hear are on the top of the most recent treatment that is out there.
Go and read some of the posts here and you will definitely have a positive outlook.
Having a CA125 of 43 is great. Just becasue a "normal" reading is 35 below, an elevated CA125 can be just from inflammation too. I guess what I am saying don't get too hung up on that number. Stay positive and keep doing all your activities as you can.
Sending you hugs,
Kathy
To know us, is to love us.
Welcome.
there is so much info here, it's almost overwhelming. Just pick a post and read. Something might pop out at you that makes you think of something, that makes you think of something else, and then, you'll feel better.
I went to your page and it says
Bladder
Cervical
Stomach
Uterine
and that you've had a recurrence. Whaaaaaaaaaaaaaaaaaat????? That's just about overwhelming indeed. No wonder you didn't get on sooner.
Love and hope to you and yours,
Claudia0 -
Hi Elly and Cynthia Rosecalifornia_artist said:Elly,
To know us, is to love us.
Welcome.
there is so much info here, it's almost overwhelming. Just pick a post and read. Something might pop out at you that makes you think of something, that makes you think of something else, and then, you'll feel better.
I went to your page and it says
Bladder
Cervical
Stomach
Uterine
and that you've had a recurrence. Whaaaaaaaaaaaaaaaaaat????? That's just about overwhelming indeed. No wonder you didn't get on sooner.
Love and hope to you and yours,
Claudia
Welcome. Sounds like you are a wonderful family. This is a place to share whatever you want or need and you will always have a receptive ear and many people willing and able to help - day and night.
It's not an enviable club we have, but nice to know it's here for us.
Stay strong. Your sister, Mary Ann0 -
Ellycalifornia_artist said:Elly,
To know us, is to love us.
Welcome.
there is so much info here, it's almost overwhelming. Just pick a post and read. Something might pop out at you that makes you think of something, that makes you think of something else, and then, you'll feel better.
I went to your page and it says
Bladder
Cervical
Stomach
Uterine
and that you've had a recurrence. Whaaaaaaaaaaaaaaaaaat????? That's just about overwhelming indeed. No wonder you didn't get on sooner.
Love and hope to you and yours,
Claudia
Mom Had a little tiny bit Dr. almost missed it on her Diaphram And some on her bladder.Dr Got it all.Her Washings were positive.No Recurrence.She needs to re wright her about her self!But now she is spotting a tiny bit of brown.Should we worry?? She has a Dr. Appointment tomorrow.0 -
I will update my diagnosisCynthia Rose said:Elly
Mom Had a little tiny bit Dr. almost missed it on her Diaphram And some on her bladder.Dr Got it all.Her Washings were positive.No Recurrence.She needs to re wright her about her self!But now she is spotting a tiny bit of brown.Should we worry?? She has a Dr. Appointment tomorrow.
I will update my diagnosis after my cat scan......just to be sure.
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July 19, 2011 - 5:52amCynthia Rose said:I will update my diagnosis
I will update my diagnosis after my cat scan......just to be sure.
I
July 19, 2011 - 5:52am
I will update my diagnosis after my cat scan......just to be sure.
Elly0 -
SpottingElly P. said:July 19, 2011 - 5:52am
I
July 19, 2011 - 5:52am
I will update my diagnosis after my cat scan......just to be sure.
Elly
Mom went to the Gyn Dr. and had a exam for her Spotting.He said he didnt feel any thing and thought it was from the Chemo and thinning of the Mucous Membrane.Sorry about my Spelling!Does this sound familliar with you gals?0 -
Elly
You've mentioned that the doc didn't feel anything. Generally, it's what they see when they look into the vaginal canal that gives them an idea if the cancer has returned there. it could be a tiny abnormal spot that they are seeing. My ob uses an exceedingly bright light to look at the cuff, at least I certainly hope that's what he's looking at.
Claudia0 -
Ellycalifornia_artist said:Elly
You've mentioned that the doc didn't feel anything. Generally, it's what they see when they look into the vaginal canal that gives them an idea if the cancer has returned there. it could be a tiny abnormal spot that they are seeing. My ob uses an exceedingly bright light to look at the cuff, at least I certainly hope that's what he's looking at.
Claudia
Yes he did do that to! I just rememberd!!0 -
constipatedcalifornia_artist said:Elly
You've mentioned that the doc didn't feel anything. Generally, it's what they see when they look into the vaginal canal that gives them an idea if the cancer has returned there. it could be a tiny abnormal spot that they are seeing. My ob uses an exceedingly bright light to look at the cuff, at least I certainly hope that's what he's looking at.
Claudia
The doc also checked the anal canal and said I was constipated. When my oncologist asked me if I were I said no. That was within 7 days. Now I'm taking stool softner twice a day and it feels soooooooo much better! I can hardly wait until my 6 months are up and find out what my CA125 level is at. Thank you ladies for being there.0 -
Glad to hear good news!Elly P. said:constipated
The doc also checked the anal canal and said I was constipated. When my oncologist asked me if I were I said no. That was within 7 days. Now I'm taking stool softner twice a day and it feels soooooooo much better! I can hardly wait until my 6 months are up and find out what my CA125 level is at. Thank you ladies for being there.
Eat a lot of fiber and drink a lot, a lot of water.
That will help gig time with constipation, along with the stool softener.
Hugs!0
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