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Just saying hi

iza50
Posts: 1
Joined: Jun 2011

I am new. In April/11 I had left lower lobectomy, diagnosed Stage1a adenocarcinoma. Since then my life stopped and I am consumed with fear of recurrence days long.... Just wonder if there is anyone with similar feelings? I may be cured for the moment in my body, but I died in my spirit.
Take care.

Glenna M's picture
Glenna M
Posts: 1576
Joined: May 2009

I felt the same way you did for several months after my treatment stopped. I was diagnosed in May '09 with NSCLC adenocarcinoma stage 1a also and two weeks later they discovered that I also had SCC Supraglottic Laryngeal cancer. I thought it was a death sentence as they were inoperable. After 3 months of chemo and radiation I went into remission and slowly learned to enjoy life again and stopped worrying as much.

You can't let the fear destroy your life there are many survivors here who were stage 4 and they are living life and enjoying it. It's natural to become apprehensive when you are due for a scan because those doubts come back but you have to enjoy life while you can. There is no guarantee for any of us that we won't have a recurrence or a new cancer, but then there is no guarantee that any of us won't get hit by a bus tomorrow morning either. Don't dwell on it or it will consume you.

If you are still having trouble accepting that they got rid of the cancer I would like to suggest, and I mean no offense by this, some counseling. Reaching out for help is nothing to be ashamed of, many of us go through depression post treatment/surgery.

Please post again so we will know how you are doing and we can continue to help you.

Glenna

joep531857's picture
joep531857
Posts: 32
Joined: Feb 2011

Hi Iza;
My name is Joe, and I am fairly new also. I was diagnosed with stage 1a non small cell adenocarcinoma. I had a left upper lobectomy and they saw some of my cancer touching the sack(pleura) that surrounds the lungs. This then made my stage 1b and it also called for 16 weeks of chemotherapy which I finished about 4 weeks ago. My best advice is for you to come here and talk about your fears. I was afraid to go to sleep at night in the beginning. I am now almost 6 mos post op and I live my life one day at a time and enjoy every minute of it i can. I try and not let the little now insignificant things ruin my day. I also have a therapist i talk with and found i need some medication to help me through this period. I still at times think about reoccurence but i have no control over that. I quit smoking, eat right and get a good nights rest those are things i can control. But, I urge you to come to the chat room and the people there know exactly what you are going through. I hope this helped.

lekkerone
Posts: 199
Joined: Jan 2011

I had exactly the same as you on Dec. 1/11. I needed no further treatment and yet I have days feeling exactly as you do. It really makes no sense. My respirologist it really pleased and says I have a 'remarkable capacity for exercise," my xrays are good and yet I still worry....today has been one of those days. Maybe we have to work harder at being thankful and less anxious about the future.

catcon49's picture
catcon49
Posts: 398
Joined: Aug 2008

My dx was the same as yours Stage 1a adenocarcinoma in the lower right lobe. had lobectomy. no chemo. I also thought my spirit had died. After the surgery I just wanted to take pain meds all the time and sleep. Although I felt the drs were walking me down the road to a cancer dx during testing, I never had time to deal with it. I was sent for surgery and felt like a tornado came in and blew my world apart. But here I am 3 years later doing great. I walk, do aerobics, and strenght training. I feel great! I don't know if I have come to terms with a cancer dx any beter than anyone else, but I don't dwell on it anymore. Time has a way of doing that. Somedays I feel as if this has all happened to someone else, it couldn't have happened to me. You may find that you re evaluate what is truely important in life, and come to some peace. God luck and best wishes.

z's picture
z
Posts: 1414
Joined: May 2009

Hello, I see you on inspire. It seems that you haven been given excellent advice and now you need to be pro active with what has been given to you. I know its scary, I had a lower right lobectomy on 9-23-10 and so far so good, it was a squamous cell 1cmx9mm nodule.

This is the 2nd primary cancer that I have had, as the 1st was anal cancer and I completed tx 6-30-09. Both of the primarys have a 85% cure rate. I am fortunate that since I was being scanned for the anal is how they caught the lung. I was a 35 year smoker and quit on 5-4-09. I hope that you will find the peace inwhich your searching for. One day at a time I hope that you will feel more in control of your health, as you can improve it. I wish you well. Lori

Julie2011
Posts: 58
Joined: May 2011

I have been followed for the past 2 plus years for a lung nodule and yes I know how your feel. It seems to have consumed me too. I go to bed thinking about it; I wake up in the middle of the night with the same thoughts and the thoughts keep coming back about the nodule all day. I am glad you had your surgery. I am opting for CyberKnife for the 11 mm nodule. Trying to get authorization to get a needle biopsy - so far still waiting for the authorization. They did get me an authorization for a facility - but when I called to make an appointment they advised me that they DO NOT do needle biopsies in their facility. You may be cured. I think as time goes by you will feel less and less anxious about it. I also have the nodule in my lower left lung. God bless. Julie.

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