carboplatin
Next Wednesday, I have my first chemo. I'm having carboplatin without the taxol at first. I've booked a hotel stay ten days later. Basically, I had to use some vouchers or they would go past their date and I thought, why not? The hotel is within two hours of the hospital and there are other hospitals nearby too. Am I being too optimistic?
Comments
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I would go!pjdreams said:Yes ! Go and enjoy
Most definitely you should go. You should be fine by day 10. just be sure that meds/products are available to counter act any remaining constipation, nausea or pain.
Have a great time!
I was really sick when I was first diagnosed. I took Carbo by itself for four months. I felt ok the day of and the day after the infusion. Day 2 thru 6 I laid on the couch and slept mostly. I did not eat and hardly drank which was a mistake. You need to drink as much as possible. By day 7 I would be better. Maybe not back to normal but I could sure go sit by a pool or something. I ended up with 10 carbo infusions and by the end they really didnt bother me that much even when they added Taxol.
Wishing you the best of luck. Let us know how things go.
Linda0 -
Good luckwith your 1st treatment
Hi I agree it would be nice to have a board just for PPC but I would also want to post on here too because I just think all of the ladies here are my friends and I want to keep in touch with them.
Good luck with your carboplatin and I am sure your first infusion will be trouble free as it tends to have an accumulative affect.
Tina xx0 -
Enjoy
I think day 10 will be just fine and I LOVE your optitimism... it'll take you far! Carbo causes me to have constipation so you may want to stock up miralax/prunes/colase or it could cause the opposite problem, but by day 10 all that will be history. Drink lots of water for the days right after your infusion and rest all you can. Oh/ one more thing... use the normal precautions and avoid people who are obviously sick with colds and such. Have a wonderful time!
(((HUGS))) Maria0 -
Hotel stay after chemo
Dear wanttogetwellsoon
The chances are good that you will not have a bad reaction to your first carbo infusion--taxol would be guilty of that but carbo doesn't pose a strong likelihood of trouble (allergic reaction) until someone has had about 5 infusions or more.
I can only imagine the situation for myself so I will see what I can think of:
I would definitely want a hotel room with a refrigerator to keep healthy snacks and drinks in.
Also, be prepared for the carbo causing constipation--think about how you will handle that away from home.
You may have post-chemo nausea or even vomiting but the meds usually help that and the nausea may not last long.
Write a list of all the medications that you take to keep in your wallet (you may already have done this).
Since you are doing carbo only, you probably won't feel as badly as if you did taxol/carbo--so it's possible that you will have a only a few days of feeling yukky.
If the hotel has a gym to work out in or a pool--that would be wonderful to take advantage of & remember to pack a swim suit/exercise gear.
See if you can arrange to have a massage, too. I think it helps the chemo work better.
One drawback from being at a hotel for me is that I might be tempted to pack EVERYTHING that I can possibly imagine I might need while I was away from home and have to deal with tons of luggage. LOL!
You didn't say if you will have a companion with you when you stay at the hotel. If you are going alone, that might be another drawback to being at a hotel. I definitely needed someone to be there for me when I came home from chemo. I was a lot sicker than you are so maybe you are feeling strong and have a more independent spirit..even when you are strong, chemo can knock you down emotionally. So think about that, too.
I am sure you will get more good information from others, but that's my two cents worth.
Best wishes,
Carolen
PS. Your screen name is a good one and I noticed that it is future oriented. Your screen name (wanttogetwellsoon) is actually an affirmation of striving for something in the future when you really want to be there NOW. When creating an affirmation, it is always best to be present oriented. Which would be "wanttobewell"--now you have my four cents worth! LOL!
PSS. EDITED POST on 6/1/11: I just realized that you wrote that you were going to the hotel TEN DAYS LATER! Awwww, you will be so fine by then...I thought you were checking in right after chemo for ten days...blame that on chemo brain (yeah, that's my excuse and I'm sticking to it).0 -
in the futurecarolenk said:Hotel stay after chemo
Dear wanttogetwellsoon
The chances are good that you will not have a bad reaction to your first carbo infusion--taxol would be guilty of that but carbo doesn't pose a strong likelihood of trouble (allergic reaction) until someone has had about 5 infusions or more.
I can only imagine the situation for myself so I will see what I can think of:
I would definitely want a hotel room with a refrigerator to keep healthy snacks and drinks in.
Also, be prepared for the carbo causing constipation--think about how you will handle that away from home.
You may have post-chemo nausea or even vomiting but the meds usually help that and the nausea may not last long.
Write a list of all the medications that you take to keep in your wallet (you may already have done this).
Since you are doing carbo only, you probably won't feel as badly as if you did taxol/carbo--so it's possible that you will have a only a few days of feeling yukky.
If the hotel has a gym to work out in or a pool--that would be wonderful to take advantage of & remember to pack a swim suit/exercise gear.
See if you can arrange to have a massage, too. I think it helps the chemo work better.
One drawback from being at a hotel for me is that I might be tempted to pack EVERYTHING that I can possibly imagine I might need while I was away from home and have to deal with tons of luggage. LOL!
You didn't say if you will have a companion with you when you stay at the hotel. If you are going alone, that might be another drawback to being at a hotel. I definitely needed someone to be there for me when I came home from chemo. I was a lot sicker than you are so maybe you are feeling strong and have a more independent spirit..even when you are strong, chemo can knock you down emotionally. So think about that, too.
I am sure you will get more good information from others, but that's my two cents worth.
Best wishes,
Carolen
PS. Your screen name is a good one and I noticed that it is future oriented. Your screen name (wanttogetwellsoon) is actually an affirmation of striving for something in the future when you really want to be there NOW. When creating an affirmation, it is always best to be present oriented. Which would be "wanttobewell"--now you have my four cents worth! LOL!
PSS. EDITED POST on 6/1/11: I just realized that you wrote that you were going to the hotel TEN DAYS LATER! Awwww, you will be so fine by then...I thought you were checking in right after chemo for ten days...blame that on chemo brain (yeah, that's my excuse and I'm sticking to it).
Carolen...
Thanks for your feedback. Yes, if it causes constipation, I'll have to be careful as I have so many adhesions. They're all over the abdomen and stuck to everything. Plus, the cells are on them as well! Never mind. I think I'll take the orange drink I have each morning, but I might have to take extra with me. I'll have a word with the nurse when I see her next Tuesday. I'm not sure why I'm going the day before the actual infusion date, but it's a chance to air any concerns and I'll bring the subject up then.
About the name... I just thought people say .. Get Well Soon on cards... and it usually implies that they will be. I picked the name because I want to be in that category and that's my aim.
I'll be going to the hotel with my husband ... so I'll be able to keep my spirits up. I think some people don't really mind being alone and, usually, I like my own space sometimes. The pool is sometimes a problem as I have psoriasis on my feet, but my consultant has said that the carboplatin will help the condition. Maybe I will get in the pool this time!
Good luck to you too....0 -
Your comments helped a lot ...Mwee said:Enjoy
I think day 10 will be just fine and I LOVE your optitimism... it'll take you far! Carbo causes me to have constipation so you may want to stock up miralax/prunes/colase or it could cause the opposite problem, but by day 10 all that will be history. Drink lots of water for the days right after your infusion and rest all you can. Oh/ one more thing... use the normal precautions and avoid people who are obviously sick with colds and such. Have a wonderful time!
(((HUGS))) Maria
Thanks to everyone. I feel that I'm going to have a relaxing time now... . Tina B wrote that she regretted not doing things when her treatments first started. I'm going to try to make an effort and I think that's the way forward for me at the moment! (( hugs )) to everyone ...0 -
go for itwanttogetwellsoon said:Your comments helped a lot ...
Thanks to everyone. I feel that I'm going to have a relaxing time now... . Tina B wrote that she regretted not doing things when her treatments first started. I'm going to try to make an effort and I think that's the way forward for me at the moment! (( hugs )) to everyone ...
relax while you can, maybe swim a little but not much sun. Order room service, watch a nice movie and enjoy time with your hubby. PS. take your zofran with you just in case...val0 -
There is a "contact us"
There is a "contact us" button on her somewhere. You could send a message via that link and see if the powers that be would consider setting up a separate board for PPC ladies.
Enjoy your mini-vacation! You will be fine!
Carlene0 -
PPC is an equal opportunity diseaseHissy_Fitz said:There is a "contact us"
There is a "contact us" button on her somewhere. You could send a message via that link and see if the powers that be would consider setting up a separate board for PPC ladies.
Enjoy your mini-vacation! You will be fine!
Carlene
I've heard that men can get PPC, too. Having your own discussion board would be good for the guys, too. I noticed that the PPC survivors also post on the "Rare Cancers" discussion board.
LQ0 -
PPCLaundryQueen said:PPC is an equal opportunity disease
I've heard that men can get PPC, too. Having your own discussion board would be good for the guys, too. I noticed that the PPC survivors also post on the "Rare Cancers" discussion board.
LQ
This is the mail I sent to the site admin people... I hope it helps.
I have Primary Peritoneal Cancer. I know that it is classed as a relatively rare cancer but I think there is a case for it having its own board. A lot of women post on the ovarian site because it acts like advanced stage ovarian cancer and, like ovarian cancer, it is often picked up at a late stage. I believe that PPC is not so rare as doctors think and only by picking up individual experiences on a noticeboard is it likely that personal experiences of having it can come together. Some doctors think, based on recent research, that PPC can have its origins in the fallopian tube or on an ovary. My first experiences with gynae related problems was when I had pain in my fallopian tubes when they became distorted due to inflammation so I could go along with that in my case. I don't have any ovaries now, however, and this is the reason why I was diagnosed with PPC rather than ovarian cancer. It has recently been said that many women have been wrongly diagnosed with ovarian cancer when, in fact, they have PPC. On the other hand, people like me who have low grade tumours may have had cells multiplying for a while on the peritoneum before the ovaries and fallopian tubes were removed. Whilst surgical treatments for ovarian and PPC cancers are similar, advice for relatives who might be at risk of getting these types of cancers might be different. That's my main reason for PPC having its own board. There is a further case as men can contract PCC and I think they'd feel quite alientated posting on an ovarian board and the generic 'Rare cancers' board might not give them the support they need. I hope you can give this idea some thought and let me know what you think so I can tell others.0 -
PPC discussion boardwanttogetwellsoon said:PPC
This is the mail I sent to the site admin people... I hope it helps.
I have Primary Peritoneal Cancer. I know that it is classed as a relatively rare cancer but I think there is a case for it having its own board. A lot of women post on the ovarian site because it acts like advanced stage ovarian cancer and, like ovarian cancer, it is often picked up at a late stage. I believe that PPC is not so rare as doctors think and only by picking up individual experiences on a noticeboard is it likely that personal experiences of having it can come together. Some doctors think, based on recent research, that PPC can have its origins in the fallopian tube or on an ovary. My first experiences with gynae related problems was when I had pain in my fallopian tubes when they became distorted due to inflammation so I could go along with that in my case. I don't have any ovaries now, however, and this is the reason why I was diagnosed with PPC rather than ovarian cancer. It has recently been said that many women have been wrongly diagnosed with ovarian cancer when, in fact, they have PPC. On the other hand, people like me who have low grade tumours may have had cells multiplying for a while on the peritoneum before the ovaries and fallopian tubes were removed. Whilst surgical treatments for ovarian and PPC cancers are similar, advice for relatives who might be at risk of getting these types of cancers might be different. That's my main reason for PPC having its own board. There is a further case as men can contract PCC and I think they'd feel quite alientated posting on an ovarian board and the generic 'Rare cancers' board might not give them the support they need. I hope you can give this idea some thought and let me know what you think so I can tell others.
Well written! Good luck and check back in with us now and then even if you do get your own board. Your group will probably be a small, intimate group like this one is.
LQ0 -
Chapel Hill NC Cancer facilities, contact?
My sister, in the UK, was diagnosed with stage 3 peritoneal cancer in February. She has had all the treatments most of you describe, including surgery, stents, blood transfusions, and more. Two weeks ago she was told .. we cannot get rid of this cancer; you can discontinue the chemo, or continue. She elected to continue. In posts going back some time now, DustyGal1030 spoke of fabulous treatment she had received in Chapel Hill, N.C. I live in NC -- if anyone knows anything about the options there, my sister would be here in a flash. Or, if you have other places or alternatives -- they would be deeply appreciated. My sister will be 70 in July .. an amazing woman; and we want to keep her around.0 -
Treating PPC blind ...jhzimm said:Chapel Hill NC Cancer facilities, contact?
My sister, in the UK, was diagnosed with stage 3 peritoneal cancer in February. She has had all the treatments most of you describe, including surgery, stents, blood transfusions, and more. Two weeks ago she was told .. we cannot get rid of this cancer; you can discontinue the chemo, or continue. She elected to continue. In posts going back some time now, DustyGal1030 spoke of fabulous treatment she had received in Chapel Hill, N.C. I live in NC -- if anyone knows anything about the options there, my sister would be here in a flash. Or, if you have other places or alternatives -- they would be deeply appreciated. My sister will be 70 in July .. an amazing woman; and we want to keep her around.
I have Stage 3 PPC but wasn't diagnosed as 4 because the growths on my liver may be benign and the lesion on my lung doesn't appear to be growing. My doctors couldn't get to the lymph nodes when they did the laparoscopy so I could well be Stage 4. The cancer is low grade and I've been told that chemo can't be shown to work. They're starting me on carboplatin on Wednesday and taxol might be added later if I get a response. Carboplatin does 90% of the work and taxol seems to give that extra boost. The trouble is I have growths all over my peritoneum and on the adhesions too. My CA125 has been low normal at 9 and my CEO at the moment is 1. The cancer wasn't picked up by CT scan as it's microscopic. When I asked my doctor how I'm going to be monitored, she said that they might have to just ask me how I'm feeling which seems a bit hit and miss to me.
I don't believe this cancer is as rare as people think. I'm confident that some kind of breakthrough will come soon. However, in the meantime, I think it's scary coming to terms with what I call 'in your face mortality'. I'd love to hear about your sister but don't lose hope as I've seen lots of people here who have received a poor prognosis and are still going strong many years later.0 -
PPC - Wanttogetwellsoonwanttogetwellsoon said:Treating PPC blind ...
I have Stage 3 PPC but wasn't diagnosed as 4 because the growths on my liver may be benign and the lesion on my lung doesn't appear to be growing. My doctors couldn't get to the lymph nodes when they did the laparoscopy so I could well be Stage 4. The cancer is low grade and I've been told that chemo can't be shown to work. They're starting me on carboplatin on Wednesday and taxol might be added later if I get a response. Carboplatin does 90% of the work and taxol seems to give that extra boost. The trouble is I have growths all over my peritoneum and on the adhesions too. My CA125 has been low normal at 9 and my CEO at the moment is 1. The cancer wasn't picked up by CT scan as it's microscopic. When I asked my doctor how I'm going to be monitored, she said that they might have to just ask me how I'm feeling which seems a bit hit and miss to me.
I don't believe this cancer is as rare as people think. I'm confident that some kind of breakthrough will come soon. However, in the meantime, I think it's scary coming to terms with what I call 'in your face mortality'. I'd love to hear about your sister but don't lose hope as I've seen lots of people here who have received a poor prognosis and are still going strong many years later.
Thank you for your encouragement. I am headed to U.K. tomorrow to spend some time with my sister. She sounds like you - her goal is to get on with life. Anne's cancer, when they removed it was the size of a dinner plate - and they told her at the time they did not get all of it. It's a capricious one, this particular cancer. Good luck -- Sounds like you have some tough months ahead too.0 -
Thank youwanttogetwellsoon said:PPC
This is the mail I sent to the site admin people... I hope it helps.
I have Primary Peritoneal Cancer. I know that it is classed as a relatively rare cancer but I think there is a case for it having its own board. A lot of women post on the ovarian site because it acts like advanced stage ovarian cancer and, like ovarian cancer, it is often picked up at a late stage. I believe that PPC is not so rare as doctors think and only by picking up individual experiences on a noticeboard is it likely that personal experiences of having it can come together. Some doctors think, based on recent research, that PPC can have its origins in the fallopian tube or on an ovary. My first experiences with gynae related problems was when I had pain in my fallopian tubes when they became distorted due to inflammation so I could go along with that in my case. I don't have any ovaries now, however, and this is the reason why I was diagnosed with PPC rather than ovarian cancer. It has recently been said that many women have been wrongly diagnosed with ovarian cancer when, in fact, they have PPC. On the other hand, people like me who have low grade tumours may have had cells multiplying for a while on the peritoneum before the ovaries and fallopian tubes were removed. Whilst surgical treatments for ovarian and PPC cancers are similar, advice for relatives who might be at risk of getting these types of cancers might be different. That's my main reason for PPC having its own board. There is a further case as men can contract PCC and I think they'd feel quite alientated posting on an ovarian board and the generic 'Rare cancers' board might not give them the support they need. I hope you can give this idea some thought and let me know what you think so I can tell others.
I have also wanted to see a PPC board. After all CT scans done, nothing showed up anywhere. They only way they knew I had cancer was from a sample of the fluid in my abdomen. I asked the oncologist if I had PPC. He only could say that I have that or else primaery of unknow origin with mets to the pertioneum. So I would also like to see more concentration on PPC in one place. Thanks.
AussieMaddie0 -
the journeyjhzimm said:PPC - Wanttogetwellsoon
Thank you for your encouragement. I am headed to U.K. tomorrow to spend some time with my sister. She sounds like you - her goal is to get on with life. Anne's cancer, when they removed it was the size of a dinner plate - and they told her at the time they did not get all of it. It's a capricious one, this particular cancer. Good luck -- Sounds like you have some tough months ahead too.
I'm live in the UK too. Hope you have a good journey. It's great that your sister has you.0
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