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Sundance CT Scan Finally Scheduled *** (NEW UPDATE) ***

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Well, I had blood and lab work today and a meeting with my onc. The first question out of his mouth was “Why haven’t you done scans?”

LOL:)

Apparently, I fell through the cracks, which is hard to imagine with my immense girth:)

Somehow, the orders never got to me so I was completely unaware and nobody ever called me to reschedule. All of this time just flying by and I’m wondering….When? You have to love technology – making our lives better all the time:)

I almost cancelled this appointment because initially I did not see anything to discuss. “How are you feeling?” Ok, pay the cashier on the way out:)

So, I figured I would show up and at least talks scan dates with him. He put in the order for a CT for chest, abdomen, and pelvis……“ASAP.”

Therefore, just like that, I am finally scheduled for tomorrow afternoon to take a couple of snapshots and see what really happened “inside there.”

Nervous? Excited? Hard to say, maybe a little of both. This is the post and the results I’ve been waiting on this past year – this is what I fought for – what I believed in – what I put myself through. And now we’re down to it…

You all know what I’m hoping for – I know it’s probably not permanent, but it could be, but only time and clean scans from here on will tell that story. Until then, I’m trying to buy some time and extend until I have to fight again. A year with no treaments or surgeries sounds pretty good about now.

If the news is good, we’ll savor this victory and if it’s not….then we got plenty of time to talk about that.

I should know something next week and will be releasing the “Results Post” right after that.

After a year’s worth of waiting, you don’t want to miss this one:) You’ll recognize the title instantly.

What’s done is now done – the results are already inside me, we just have to decipher the code – I can’t change anything – we fought hard and gave it what we had – and now the rest is out of my hands – I can only hope now and dream of better tomorrows.

You know, it’s funny, how the emotions never really fade away as the time rolls by – in fact, they might even be more intense than they ever were. After all of these years, you’d think I’d be jaded, but I still bubble with hope and optimism that something good will happen.

I've been so sick this past year and coming out of my last cycle, I am back at work, very tired by the end of day, but beginning to not feel that terrible "chemo feel." Depression has moved out (his lease was up) and Hope has moved back in.

I have no misgivings about my future, but feel ever so privileged to be able to share my story and journey with you and that I’ve got such incredible friends here and am a member of such a wonderful community.

And I hope it is good news that I can post to you...you know I like to write all kinds:)

Stay tuned. There’s still room in the “bandwagon” if anyone wants to jump back on, LOL:)

Keeping everyone in my thoughts and close to my heart.

-Craig

SisterSledge's picture
SisterSledge
Posts: 342
Joined: Feb 2011

I love good news and I'm really looking forward to yours. There's no way I can wait a week! When I get a scan done, I can go to the hospital records room a day or two later and pick up a copy of the radiology report...I can also stop off at radiology and request a disc copy of the scan images, which are ready within 24 hours of request. Please, for our sakes if not your own, fetch your results instead of awaiting your onc's leisure?

wolfen's picture
wolfen
Posts: 1326
Joined: Apr 2009

I'm glad they finally got the ball rolling again. It seems it was dropped for a while and you were left on the sidelines. As you said "Ain't technology grand?". I'm certainly hoping for great new results for you.

Glad to see your area was spared the dam* tornados. Felt so bad for others. JBG in transit to Louisville for chemo today, so keeping fingers crossed.

Luv,

Wolfen

Annabelle41415's picture
Annabelle41415
Posts: 6554
Joined: Feb 2009

Hoping for good scans results for you, just know that everything will be fine and you will be back to your old self real soon. I'm surprised that your doctor didn't go over when they wanted the scan done while you were going through chemo. Just curious why your doctor hadn't mentioned it.

Kim

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

extra prayers and good vibes for you this week!.
And you must promise , if everything goes fine, I'm sure about, you start with the book! we will find publishing house here if in US not interested ! LOL..
Take care brother!

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

hi craig,

you'll be fine. have a resveratrol and tumeric sandwhich with a mean green juice and join us in the walking post.

goodluck my friend,

hugs,
pete

Jaylo969
Posts: 827
Joined: Jan 2010

we are keeping you in our thoughts and close to our hearts as well.Be looking for many sparks as they are being sent this very minute from bama to texas.

Best wishes Craig.

-Pat

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Hey Craig, Good luck with the scans, we'll be thinking of you all week. Hugs, Cynthia

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

Here's to good news for you Craig and best wishes also hugs Tina

thirtyfiveppt
Posts: 8
Joined: Jan 2011

I am wishing you well and good fortune with the scan results. Have a nice long break from treatment.

smokeyjoe
Posts: 1428
Joined: Feb 2011

Can't wait to hear your great results :)

AnneCan
Posts: 3692
Joined: Oct 2009

Go in, get that scan done + get those great results we are all waiting to hear about!

Aud's picture
Aud
Posts: 480
Joined: Oct 2009

It is so good to read your post and to hear that you are feeling better. I am hoping with you for clear scans!
in the Light,
Audrey

geotina's picture
geotina
Posts: 2121
Joined: Oct 2009

Fingers and toes crossed for good results. You have given this your all for a very long time so I sure hope you get the break you so deserve.

Hugs - Tina

lizzydavis's picture
lizzydavis
Posts: 893
Joined: May 2009

Hi Craig,

I am thinking of you with positive thoughts and praying for good news!
My best wishes are going your way!

Love,
Lizzy

lizzydavis's picture
lizzydavis
Posts: 893
Joined: May 2009

Hi Craig,

I am thinking of you with positive thoughts and praying for good news!
My best wishes are going your way!

Love,
Lizzy

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

I really really have a good feelin about this one! I have been anxiouly awaiting your scans too! Me, Dizz, Beth, Wendy...and everybody wants to make this our BIG toast at CP9...to our friend Craig...who will be changing his name to NED HEAD!!!! Cheers!

jen

dorookie
Posts: 1736
Joined: Jul 2007

I second that, it will be GREAT NEWS and I say Craig is buying the first and maybe the second round of drinks!!!!

Craig, my prayers are with you as always, i am very glad your treatment is done and I will say a prayer for you that you have some peace during the scan and the waiting on the results, as i am still waiting on me. Give Kim a big hug and try to relax, hey ask for the orange flavored stuff it wasnt that bad, best I have tasted thus far....

HUGS
Beth & Wendy

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Craig,
I am so happy that Hope has moved back in. I am hoping and praying for you my friend. I hope to see a wonderful post in the next week. Hugs from Hawaii.

Aloha,
Kathleen

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

i will be praying for good news for you and that maybe you can get a good long break...Godbless....johnnybegood

Fight for my love
Posts: 1530
Joined: Jun 2009

Pray for good results of the scan.Best luck with it.

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pf78248's picture
pf78248
Posts: 209
Joined: Jul 2008

So thrilled to hear hope has returned, Craig. That is great news and my prayer is for excellent scan results! Keep us updated and even though I don't visit this site as much, I do keep you and many others in my thoughts and prayers.

I will be anxiously awaiting your good news!

Hugs and Healong,
Priscilla

soccermom13's picture
soccermom13
Posts: 226
Joined: Feb 2010

your way Craig! It's your time now to not worry and have wonderful things coming to you!
I have not been good about sending messages this past year but you have been in my thoughts and prayers for quite a while.
Many hugs friend!
Shanna

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

Hi Craig...sorry I'm late in this post....or look at it as a today is your scan post! Wishing and wanting the best of outcomes for you my dear! I will be looking for your update.....:)

Love and hugs, Gail

mukamom's picture
mukamom
Posts: 402
Joined: Oct 2010

on the table right now getting scanned.....hoping all will be well. Will be watching for your results post.

hugs,

Angela

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Many, many thanks!

Enjoy the holiday and we'll see what happens when the docs and staff open up shop again in a few days!

-Craig

thingy45's picture
thingy45
Posts: 633
Joined: Apr 2011

I am new on this road and I am learning so much from all of you. Hope, trust and above all couriage.Friendships here are made along the way. In the end we all are like an extended family. There for Craig a big hug and wishes for clear scan.
Marjan

SisterSledge's picture
SisterSledge
Posts: 342
Joined: Feb 2011

I'm sitting here with fingers and toes crossed in hope, awaiting good results from your scan...typing is near to impossible and my family laughs when I walk!

RESULTS, RESULTS, RESULTS!!!

Lovekitties's picture
Lovekitties
Posts: 3348
Joined: Jan 2010

Dear Craig,

I am sending my best wishes for the best news on the scans.

Hugs,

Marie who loves kitties

BettyJoM's picture
BettyJoM
Posts: 86
Joined: May 2011

Its going to be good news this time. All the fighting does pay off in the end.
you will let us know as soon as you do right? Good luck

sasjourney
Posts: 395
Joined: Jul 2010

Craig,

Praying and hoping for great results for you! You deserve this! Stay positive and enjoy your weekend.

Hugs,
Sara

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Yeah, Craig! Glad to hear that "depression has moved out- glad his lease was up, lol! And Hope lives on!" Maybe it's good that you got the scan scheduled so quickly, so you didn't have to ponder it for weeks at a time. I know you've now got to wait a few days over the long weekend for results, but at least it's not like you've had the date on your calendar for weeks. Praying for you, my friend! :O)

Hugs,
Lisa

janie1
Posts: 753
Joined: Apr 2011

Thinking of you and having only positive thoughts about the scans. Love your caring, kindness, AND, that sense of HUMOR. Oh, the irony in all this stuff.

lesvanb's picture
lesvanb
Posts: 911
Joined: May 2008

my fellow traveler on this path. I always have you in my thoughts.

love, Leslie

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

"Houston, we've got a problem..."

I've been researching the "Mumbo Jumbo" terminology that litters my report trying to decipher the results. I've made sense out of most of it, but there were a couple of "Attention Getters" that caught my eye.

Along with the mis-handling of the scan date itself, my onc decided we were not going to have a meeting to discuss the test results. "If you call me, I'll call you back." After nearly a year of jumping through your hoops, you don't have 30-minutes to go over the biggest scan I've had in recent years?

So, I set about to find out as many of my own answers as I could - and boy did I.

But, I've got a couple of questions and clarifications that I want answered and he is hard to understand over the phone.....so I set up and appointment for this Friday, very late afternoon.

I want to get all of the facts before I post anything as I don't want to misrepresent anything...I don't want to guess, have waited too long not to be sure. An eyeball-to-eyeball meeting should do the trick.

So, we're going to be delayed with the "Results Post" a few more days as I track down the final details, I'm afraid to say.

Just wanted to let you all know so you could relax. I don't want to worry anyone. I've just seen things that I've not seen on any other scan. That's always a little unnerving to say the least.

My apologies but please bear with me. I'll get this handled and then let everybody off the hook.

-Craig

SisterSledge's picture
SisterSledge
Posts: 342
Joined: Feb 2011

Well, I'm hoping you're over-reacting and a sensible reading by the doc will put all of our minds at rest...however it goes, know we're here to support you and help deal with anything that comes.

Love,
Janine

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Craig,

It might be good to check who the radiologist who read your scan was and compare with who the radiologist was on past scan reports. Just saying this because sometimes they write things different and interpret things slightly differently. A couple of years back, after getting two nebuliously written scan reports, I asked my onc about this and we discovered that both of the poorly written scan reports were done by the same person & I had never had that particular radiologist read any of my other scans. Since that time, I write specific instructions down when I go to get the scan... Write the date of my last scan for comparison & also write "please compare all present and past nodules and SUV uptake by being as specific as possible in regards to any increases or decreases in nodules' sizes and in comparing SUV uptake on the PET portion of the scan. I've been fortunate since then that my scan reports have been much more detailed. Now I wonder what info they left off before! I had something new on my last scan report (in March) that I had never seen before on any report too. Was kind of confusing but after asking about it, I found that it was actually something positive.
I'm hoping and praying that is what it will be for you. Praying for you, my friend...

Hugs to you and I will be thinking of you. I'll be in sauna sessions and 2 dr appts all day Friday myself- so while I sweating away in the sauna, I will definitely take time to pray for you.

Lisa :)

lizzydavis's picture
lizzydavis
Posts: 893
Joined: May 2009

Hi Craig,

I used to get a copy of my scans early when I fractured my neck. I was a basket case by the time I saw the Doc. It seems that what I thought I read was totally different than what she reported to me.

Keep those positive thoughts going! I will keep you close in my thoughts and prayers.

Hugs,
Lizzy

Devasted
Posts: 186
Joined: Jun 2009

Craig,

Wishing you all the best for your "scan results" appointment~

All the best... D

pete43lost_at_sea's picture
pete43lost_at_sea
Posts: 3908
Joined: Nov 2010

hi craig,

hang in there mate. praying for you.

hugs,
pete

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

I'll check back on Saturday for an update...hoping for the best one!

Love to ya, Gail

Lilmiss82's picture
Lilmiss82
Posts: 257
Joined: Dec 2009

You've been through one crazy year and I really hope the best for you! Scans are scary and the wait for the results is just as bad. I'll be thinking of you and hoping for the best.

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Good luck my friend!

Annabelle41415's picture
Annabelle41415
Posts: 6554
Joined: Feb 2009

Hope that the meeting with your doctor is a good one with good news. You are in my thoughts.

Kim

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