Deafness or just infection?

Ok guys I'm hoping someone has been in my shoes and can tell me what might be going on. Saturday I thought I just had an ear ache becausey left ear just kind of throbbed, bought ear drops and took Tylenol. Sunday it throbbed here and there and just mostly felt like my left ear was under water (all sounds are muffled) Mon-today there has been No pain just the muffled sounds. It's kind of hard to hear out of it. I'm so paranoid because I know one of the side effects of Cisplatin is hearing loss. I still get the ringing in my ears, but this is unlike Nythimg I've ever experienced. Anyone familiar with this?

Comments

  • tnsilcncer
    tnsilcncer Member Posts: 64
    Hearing
    Did you have cisplatin for chemo?
  • KristynRuth86
    KristynRuth86 Member Posts: 140
    I did have Cisplatin
    lol I did this post on my phone, so please excuse ALL of the typos!
    anything* because*

    Yes I did have Cisplatin, I know hearing loss is a side effect, but I didn't realize it could be gradual like this. I've been done with treatments since Oct 2010.
  • KristynRuth86
    KristynRuth86 Member Posts: 140
    I did have Cisplatin
    double post, dang I should have never did this on my phone lol
  • D Lewis
    D Lewis Member Posts: 1,581 Member
    Kristyn
    I have had something similar, off and on. It seems to be related to ear-stuffiness (maybe borderline ear infection). It may also be related to my edema and swelling in the inner ear area. Sometimes I am muffled, sometimes I am not. You might check with an ENT and ask to have your ears examined and your hearing checked. I'm betting it's not permanent hearing loss. Mine isn't.

    Deb
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    D Lewis said:

    Kristyn
    I have had something similar, off and on. It seems to be related to ear-stuffiness (maybe borderline ear infection). It may also be related to my edema and swelling in the inner ear area. Sometimes I am muffled, sometimes I am not. You might check with an ENT and ask to have your ears examined and your hearing checked. I'm betting it's not permanent hearing loss. Mine isn't.

    Deb

    Ditto - Great Answer
    Couldn't say anything more.....

    JG
  • tnsilcncer
    tnsilcncer Member Posts: 64

    I did have Cisplatin
    double post, dang I should have never did this on my phone lol

    Haha!
    I didn't even know you could get on here on your phone. I'm kinda technologically challenged though. ;) I had Cisplatin and I was supposed to have 3 treatments but because I got the stuffy underwater thing and my ears started ringing all the time, my oncologist said it wasn't worth the risks to do the last one. But my symptoms started within a few weeks of my second treatment so I agree to see the ENT. It's amazing how long the side effects of what we go through can hang on and even appear! I hope they look and just figure out you have allergies and it's nothing a little decongestant can't fix!

    Hugs!

    Karen
  • timreichhart
    timreichhart Member Posts: 194
    Skiffin16 said:

    Ditto - Great Answer
    Couldn't say anything more.....

    JG

    about the hearing
    I had a hearing test done soon as my cancer treatments stopped and the ENT doctor said both ears are pretty bad hearing low sounds and he told me I would have to get hearing aids since of the hearing loss from all the cancer treatments. But the kind of hearing aids I needed was about 6k and insurance doesnt cover it so I am just going have to deal with the hearing loss right now.
  • Hondo
    Hondo Member Posts: 6,636 Member
    Hi Kristy

    Some times the Eustachian Tubes in the Ear can become stopped up and will not drain like they should; this will give you the underwater effect in your ear. You may need to see your ENT if it don’t go away in a few days, he can prescribe some medication to help dry it up.

    Take care
    Hondo
  • CajunEagle
    CajunEagle Member Posts: 408
    Hondo said:

    Hi Kristy

    Some times the Eustachian Tubes in the Ear can become stopped up and will not drain like they should; this will give you the underwater effect in your ear. You may need to see your ENT if it don’t go away in a few days, he can prescribe some medication to help dry it up.

    Take care
    Hondo

    Also Kristy.......
    have him check for dead skin tissue in the ear canal that was due to radiation burn. ( I can't remember if you had radiation or not.) I couldn't believe the amount of residue they removed from my left ear area a few months after treatment. I was a sort of welcome relief.

    Larry
  • rozaroo
    rozaroo Member Posts: 665

    Also Kristy.......
    have him check for dead skin tissue in the ear canal that was due to radiation burn. ( I can't remember if you had radiation or not.) I couldn't believe the amount of residue they removed from my left ear area a few months after treatment. I was a sort of welcome relief.

    Larry

    Deafness
    Cisplatin caused hearing loss in my left ear.Plus I had a major earache a few month's back & Dr took a look & said radiation caused ear wax to harden. I used mineral oil & it finally came out & I can hear a bit better now. It is best to go in & have both ear's checked.
  • Scambuster
    Scambuster Member Posts: 973
    rozaroo said:

    Deafness
    Cisplatin caused hearing loss in my left ear.Plus I had a major earache a few month's back & Dr took a look & said radiation caused ear wax to harden. I used mineral oil & it finally came out & I can hear a bit better now. It is best to go in & have both ear's checked.

    Hondo's Explanation was my problem
    I went 50% + deaf in both ears 2-3 months out. Went to a GP and had my ears flushed etc but no improvement. Went back to my ENT, he took one look and said : "Your Eustachian Tubes are blocked".

    He had me equalize, and they both popped and squealed and I felt the fluid drain down my throat and my hearing came back. It was a very happy moment. I hope yours is as simple.

    I didn't Get Cisplatin.

    Scam
  • KristynRuth86
    KristynRuth86 Member Posts: 140

    Haha!
    I didn't even know you could get on here on your phone. I'm kinda technologically challenged though. ;) I had Cisplatin and I was supposed to have 3 treatments but because I got the stuffy underwater thing and my ears started ringing all the time, my oncologist said it wasn't worth the risks to do the last one. But my symptoms started within a few weeks of my second treatment so I agree to see the ENT. It's amazing how long the side effects of what we go through can hang on and even appear! I hope they look and just figure out you have allergies and it's nothing a little decongestant can't fix!

    Hugs!

    Karen

    Thanks!
    Thank you so much Karen!! I really hope you're right and I also was scheduled for 3 Cisplatin, but only did two!
  • KristynRuth86
    KristynRuth86 Member Posts: 140

    Hondo's Explanation was my problem
    I went 50% + deaf in both ears 2-3 months out. Went to a GP and had my ears flushed etc but no improvement. Went back to my ENT, he took one look and said : "Your Eustachian Tubes are blocked".

    He had me equalize, and they both popped and squealed and I felt the fluid drain down my throat and my hearing came back. It was a very happy moment. I hope yours is as simple.

    I didn't Get Cisplatin.

    Scam

    <3</b>
    I can't even explain how much I love you guys!! I have so much relief right now. I'm more convinced now that it's something like y'all said about congestion, or skin or something! I have an ENT aptmnt May 26 so I'll bring it up and pray it's something simple! It's really annoying. I don't even like to talk because I hate the way I sound. (like if you're laying in the bath tub with your ears under the water). I love how I can count on y'all!!
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member

    <3</b>
    I can't even explain how much I love you guys!! I have so much relief right now. I'm more convinced now that it's something like y'all said about congestion, or skin or something! I have an ENT aptmnt May 26 so I'll bring it up and pray it's something simple! It's really annoying. I don't even like to talk because I hate the way I sound. (like if you're laying in the bath tub with your ears under the water). I love how I can count on y'all!!

    Thoughts and Prayers Girly...
    I'm sure it'll be nothing serious and hopefully they can give you some quick relef...

    John
  • Hondo
    Hondo Member Posts: 6,636 Member
    Skiffin16 said:

    Thoughts and Prayers Girly...
    I'm sure it'll be nothing serious and hopefully they can give you some quick relef...

    John

    Hi Kristy
    If you start having pain or ear ache call your ENT right away, other than that the fluid should drain off eventually.

    Hondo
  • ToBeGolden
    ToBeGolden Member Posts: 695
    Hondo said:

    Hi Kristy

    Some times the Eustachian Tubes in the Ear can become stopped up and will not drain like they should; this will give you the underwater effect in your ear. You may need to see your ENT if it don’t go away in a few days, he can prescribe some medication to help dry it up.

    Take care
    Hondo

    Eustachian Tube
    An Eustachian Tube connects the middle ear (where the 3 bones are located) and the throat and it balances the pressure in the middle ear. If the Eustachian Tube is blocked, the cells of the middle ear use up the oxygen and actually create a vacuum. This pulls and holds the ear drum in, which can be both painful and cause a severe hearing loss. It is the hearing loss and pain many people get while flying. It also often occurs in children. Chewing gum and/or swallowing can briefly open the Eustachian Tube and restore the proper pressure. But the correction of the pressure could be short lived, since the vacuum will be created again.

    A doctor (especially ENT) can easily diagnoses the condition by noting the position of the ear drum (if the Eustachian tube is blocked at the time he/she is examining you). But the condition tends to come and go in adults, and the diagnosis can be missed. Testing will show a "conductive hearing loss". The tests can be done with an audiometer or with tuning forks.

    Sadly, chemo as well as many other medications attack the sensory cells (called hair cells) of the inner ear. However, this type of loss is progressive or constant. I don't think you would notice a fluctuation in hearing. And of course there are mixed hearing losses.
  • hawk711
    hawk711 Member Posts: 566

    Eustachian Tube
    An Eustachian Tube connects the middle ear (where the 3 bones are located) and the throat and it balances the pressure in the middle ear. If the Eustachian Tube is blocked, the cells of the middle ear use up the oxygen and actually create a vacuum. This pulls and holds the ear drum in, which can be both painful and cause a severe hearing loss. It is the hearing loss and pain many people get while flying. It also often occurs in children. Chewing gum and/or swallowing can briefly open the Eustachian Tube and restore the proper pressure. But the correction of the pressure could be short lived, since the vacuum will be created again.

    A doctor (especially ENT) can easily diagnoses the condition by noting the position of the ear drum (if the Eustachian tube is blocked at the time he/she is examining you). But the condition tends to come and go in adults, and the diagnosis can be missed. Testing will show a "conductive hearing loss". The tests can be done with an audiometer or with tuning forks.

    Sadly, chemo as well as many other medications attack the sensory cells (called hair cells) of the inner ear. However, this type of loss is progressive or constant. I don't think you would notice a fluctuation in hearing. And of course there are mixed hearing losses.

    constant ringing
    I have constant ringing in my ears, but it is at a low level and doesn't bother my hearing. Unless you ask my wife, she'll say it does, lol....

    I had wax build up in my ears from the radiation and when cleaned out, my head felt better and the ringing went down a little in volume

    good luck Kristyn
    Steve
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    hawk711 said:

    constant ringing
    I have constant ringing in my ears, but it is at a low level and doesn't bother my hearing. Unless you ask my wife, she'll say it does, lol....

    I had wax build up in my ears from the radiation and when cleaned out, my head felt better and the ringing went down a little in volume

    good luck Kristyn
    Steve

    Cisplatin & Tinnitus
    As you are probably already aware...the two are very related. In some patients that have had Cisplatin, the possibility of Tinnitus is always a possibility to some degree.

    I personally had some tinnitus going in, I had three sessions of Cisplatin and seven of Carboplatin, but I don't think the tinnitus is any worse than before treatment.

    Best,
    John
  • Daddisgrl
    Daddisgrl Member Posts: 116
    In addition to the wonderful
    In addition to the wonderful posts above; how are your teeth?
    I'm a caregiver; did not have cancer; my hub was treated for stage 4 tonsil cancer; right side- 3 cisplatin (100- 75 & 75) 33 rads..
    I had one of the "fang" teeth break; since then I've been having the ear trouble. I've also been having other teeth capped- teeth issues will affect the ear; so keep it in mind. If you haven't seen a dentist familiar with radiation damage; find one to at least have a check up.

    Having said that; my hub has straight hearing loss on the right side- my guess is that it's more from radiation then the cisplatin since it's on the treatment side. I could be wrong but if it was from cisplatin; I'd assume both ears would be affected. He had teeth issues for probably 10 or so months after treatment which is another reason I question teeth. He ended using our regular dentist even though I wanted him to see one at the university- our dentist gave him a root canal in one tooth which he says went bad & wanted to either retreat (insurance wouldn't pay) or do a reverse root canal where he cut the gum & went in the bottom of the root- I know dental work (such as pulling teeth) is not good to have the 1st year; so I insisted he see the University dentist who said he didn't need the proceedure.

    Are you using fluoride trays? If not; you should get them if you had radiation.

    His treatment ended 12/24/09- his throat was not fully healed until the end of August; so a good 8 months. I always watched him getting scoped. He had problems with mucus probably as long & the last thrush infection he had was a year later; so expect things to not be right for a good year. He went fishing in Mexico 10 months out & it kicked his butt- lowered his immune system

    I typed this out yesterday; didn't get to post it. Hopefully the information is useful to you.