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desmoplastic round cell tumor

Posts: 1
Joined: Apr 2011

Does any one have this particular type of cancer.

Posts: 8
Joined: Apr 2011

My boyfriend was diagnosed with Desmoplastic Small Round Cell Tumors in January of 2011. He just finished 7 rounds of chemo and is due to start radiation next week.

Posts: 1
Joined: Jun 2011

Indeed, my sister in law was diagnosed in June.. She has completed 2 out of 7 rounds of chemo.. She will be getting surgery after her third round to remove the rest of the tumor on her back and most likely radiation after she finishes her chemo. The chemo has actually shrunk the tumor on her back, tremendously. Which is very encouraging. Her doctor said, her chances of getting rid of the cancer is more than 50/50.

Posts: 2
Joined: Apr 2005

There are two support groups offered online for desmoplastic small round cell tumor. Desmoplastic small round cell tumor is considered a childhood cancer but it can happen to any age group. Because Desmoplastic small round cell tumor is more often found in the pediatric population it is most often treated by pediatric oncologists. Adult oncologists appear to know very little about this rare type of cancer. Desmoplastic small round cell tumor should always be treated by a sarcoma specialist preferably someone who has experience with the disease.

Our group consists of Desmoplastic small round cell tumor patients, caregivers, relatives, friends, and parents. We offer support and share information.

You can google Desmoplastic small round cell tumor Yahoo Group. We are also available on Facebook as Desmoplastic small round cell tumor Support Group. All are welcome.

Patty R

Posts: 1
Joined: May 2017

im curious to know if anyone whom has this rare cancer would be up for talking. I think i might have it but i dont want to alarm my family yet and i would love to talk to someone about this.. I kind of feel alone and im afraid the doctors might have wrongfully diagonsed me.

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