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Mwee's picture
Mwee
Posts: 1341
Joined: Nov 2009

Hi Loves,

Just checking in with a quick update. I've been AWOL off and on lately. My last carbo/gemzar infusion did not go well. I had another bad allergic reaction to the carbo inspite of days of pre-meds/bags of steroids etc. I was 13 hours in that d**m infusion chair and still could only manage 1/2 the dose of carbo. SO... I'm now switching to cisplatin and would appreciate some advice on what to expect with that.

My dear 93 year old mother-in-law passed away last weekend (NOT from OVCA!). I'm not making light for she will be greatly missed, but it was a blessing for her. I'm so very grateful that I was able to visit her while I was on my break from chemo in March. I know many of can relate to this problem... I was so very fatiqued from that last infusion and we had to travel to NYC and all, but I was able to be there.

Tomorrow I'm throwing another b-day party. This time for my cutie of a seven year old granddaughter. Extreme silliness will abound and it'll be just the thing to help their grandfather.

My 5 year anniversary of my diagnosis (3C) is coming up next month. Considering the statistics I was given at the time, I think it's cause for a celebration! Any ideas?

(((HUGS))) Maria

carolenk's picture
carolenk
Posts: 909
Joined: Feb 2011

Glad to know you are doing well. Sorry to hear about your mother-in-law. Congratulations on your five-year anniversary! You are an inspiration to us all. I am not much of a party planner so I have no suggestions to offer except let someone else plan & execute the party for you. Keep up the silliness, I am sure it is healing for you!

Cafewoman53's picture
Cafewoman53
Posts: 737
Joined: Jul 2010

Wow five year anniversary that is awwsome ! How about a picnic? With lots of balloons,they make a celebration so colorful ! What is the date ,I think I will buy some teal balloons and celebrate too!
Colleen

kayandok
Posts: 1223
Joined: Jun 2008

sorry to hear your last infusion didn't go well. 13 hours is way too long to be in one chair. Cisplatin had a lot of side effects for me (nausea and throwing up along with the usual fatigue) but there are many that tolerate it well.

Congratulations on 5 years!!! I have my 4th coming up and was wondering the same thing. I'd say do whatever you want to do, you deserve it!!

hugs,
kathleen

vj1's picture
vj1
Posts: 151
Joined: Jun 2010

Sorry you had a rough time with chemo. Your plate is full but take time to enjoy your 5th anniversary triumph. Enjoy, Enjoy!!

Verna

Lisa13Q's picture
Lisa13Q
Posts: 683
Joined: Jul 2009

Wow...five years.....what an amazing accomplishment....sorry your last chemo didn't go so well...This stuff is tough on the body....honestly, cisplatin was tough on my Mom....my best advice on that is stay hydrated....it had a huge impact on her kidneys and salt and potassium...lots of gatorade....Have a ball with your grandaughter...and for your anniversary do whatever you want....and DON"t GET CHEMO on that day!!!!! Love, Fang Fish

clamryn's picture
clamryn
Posts: 508
Joined: Jun 2010

Lisa, I love your picture. I get my next infusion on Tuesday and I am going to close my eyes and think of Fang Fish and him just eating up all my cancer cells.

Linda

clamryn's picture
clamryn
Posts: 508
Joined: Jun 2010

Congratulations Maria on your 5th anniversary. I was sitting here thinking about what you could do to celebratre. Do you have any old wigs???? If you do, how about burning one of them. Sing a song as it burns..... kind of like a ritual. Whatever you do... make it memorable.

As I read your post and saw where you had to sit in the chair for 13 hours, my heart just broke for you. That is just awful. I hope and pray that the cisplatin will work for you.

Enjoy that little granddaughter. My little 5 years old granddaughter likes... you guessed it....Justin Bieber. And she also likes American Idol. So we are going to do American Idol on her birthday. I am looking forward to that. Those grandchildren sure are good medicine. Enjoy.

Sending (((Hugs))) to you.
Linda

Hissy_Fitz's picture
Hissy_Fitz
Posts: 1869
Joined: Sep 2009

Maria, I understand totally. My infusions took HOURS and HOURS. We came as early as we could, and when we left, it was just us, the chemo nurse, and the cleaning crew. After the first two, it got better but I never could do Carbo at full drip speed. What kind of reaction did you have? I totally passed out just a few minutes into my first treatmeent. It completely wiped me out. I left the place in a wheelchair.

I have two granddaughters who have "Bieber Fever". One is 7 and the other is 18. I bought a JB backpack to send the little one in CT, and I had to hide it from the big one, for fear she would steal it (she lives with me)!

Have you seen the little tiny Justin Bieber fan on You Tube? Just search for "3 year old crying over Justin Bieber." It is the funniest thing ever!

Carlene

Hissy_Fitz's picture
Hissy_Fitz
Posts: 1869
Joined: Sep 2009
kikz's picture
kikz
Posts: 1347
Joined: Jun 2010

I had cisplatin post surgery. I ended up in the hospital two out of the three cycles. I got taxol on day one intravenously, day two was ip cisplatin and day 8 was ip taxol. I am not sure if it was so much chemo in a cycle, the ip or the cisplatin but I was pretty sick and had to postpone infusions a couple of times. I know part of my problem is that I wouldn't eat or drink much when I felt sick. From what I've read here and what my doctors would tell is that it is crucial to drink a lot of fluids. I just couldn't. So I probably made things worse for myself. Anyway it was worth it. My CA 125 post chemo was 7. I know you will do what you need to do, don't we all?

Good luck,
Karen

Mwee's picture
Mwee
Posts: 1341
Joined: Nov 2009

guess it's time for me to hike up those Big Girl Panties and get ready for the cisplatin. I've heard that it's tough on the kidneys and I always have trouble forcing down enough fluids. Hey/ as long as it works, I'll do whatever it takes. I have two full weeks before my next infusion and for me that's like a vacation and I plan to kick p my heels and have some fun. Margaritas anyone?
(((HUGS))) Maria

poopergirl14052's picture
poopergirl14052
Posts: 1185
Joined: Nov 2010

Hi am sorry to hear of your complications from chemo but better days are coming. I say you should have a teal panty party and pin them on pic of fanf fish..lol. Had my lsat tx 1week ago left me worst pain and fatgue ever md says it is cummulative so the more you get the worse you feel. I wil have one or 2 of those drinks too. congrats on five years...val

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