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PET/CT - *****UPDATE*****

Buckwirth's picture
Buckwirth
Posts: 1271
Joined: Jun 2010

Just got the injection, now an hour in the quite room.

No good news from this one, just less bad. I already know I have a lymph node the size of a walnut.

Then to USC Norris on Thursday to go over the results.

Love you all,

Blake

*************

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

to chemo did a good job?

Not shrinking?
Good luck my friend!

Buckwirth's picture
Buckwirth
Posts: 1271
Joined: Jun 2010

Gràcies per les amables paraules que el meu amic!

A créixer de nou. La quimioteràpia treballat, una que és hora de començar un nou tractament.

Blake

Lovekitties's picture
Lovekitties
Posts: 3356
Joined: Jan 2010

Hope you are wrong about 'no good news'...there is always the possibility that chemo will have done a good job.

Will keep fingers crossed for better news than you expect.

Hugs,

Marie who loves kitties

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

sorry!

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Im sure Blake is wrong , hope to see something positive in its PET!.
Hugs both!

idlehunters's picture
idlehunters
Posts: 1792
Joined: Apr 2009

Hope u hear some good news..... sending good vibes your way my friend! Take care and let us know...

Luv ya back

Jennie

Buckwirth's picture
Buckwirth
Posts: 1271
Joined: Jun 2010

I can use them!

Buckwirth's picture
Buckwirth
Posts: 1271
Joined: Jun 2010

It was Gizmo who clued me in. She was walking on me and I noticed the spot was sensitive.

plh4gail's picture
plh4gail
Posts: 1238
Joined: Oct 2010

I want good things for you Blake. Did you already have a CT to know about the lymph node? Or maybe that was before chemo. Maybe it has shrunk now. I'm hoping so and that your results will surprise you in a good way!

Love and hugs to you, Gail

Buckwirth's picture
Buckwirth
Posts: 1271
Joined: Jun 2010

Hugs to you too!

Buckwirth's picture
Buckwirth
Posts: 1271
Joined: Jun 2010

And now I'm enjoying lunch at Tommy Pastrami. All I've had to eat today was a slightly radioactive banana flavored drink.

The Lymph is palpable, and growing.

Same node that convinced them to do my original CAT scan.

Hopefully it is just a node. I should know in a couple of days.

It is a beautiful day here in So Cal. The imaging center is on PCH so I got to drop the top and cruise the beach for a bit on the way home!

Blake

TMac52's picture
TMac52
Posts: 358
Joined: Aug 2010

I hope and pray you have better results when the scan is reviewed.
Tom

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

its always something...Im trying to just settle it in my head that there will always be something going on, Im just gonna stay ahead of it if I can...you just do the same, it will all come out in the wash..Just keep the ole noggin clear.....Buzz

smokeyjoe
Posts: 1428
Joined: Feb 2011

Dumb question here, but if there is a suspicious node why don't they just take it out, especially if it is where you can feel it??? I'm guessing Gizmo is your cat :)

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Blake,

Let us know when you get the results- I hope it is just a node, as you said. You are going to a good place at USC- do you Dr. Lenz there or someone else?

In the meantime, enjoy the nice weather!

Lisa

Buckwirth's picture
Buckwirth
Posts: 1271
Joined: Jun 2010

Syma Iqbal is my Doctor there, she does work with Lenz.

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Which is also palpable, but just because is on a very shallow area, but I didn't ask you where is yours! Really l agree palpable is very unpleasant feeling as you always got the temptation to watch and touch,and always thinking whether is shrinking or growing.There are days I think is much bigger and many other days it seems has shrunk a lot, crazy!.So can it be just a subjective sensation?

Buckwirth's picture
Buckwirth
Posts: 1271
Joined: Jun 2010

It is the left inguinal (groin) lymph node. What I probably should have done was have it removed when they did the APR in January.

The concern is that removing that node will lead to lymphedema, with no corollary increase in life span.

We'll see what the scan shows, and what the doctors say. I like the USC doctor as she is blunt and factual. It was in our meeting with her last year that we understood the meaning of being stage IV and how that moves treatment from curative to palliative. (not saying that people do not survive stage IV disease, just that chemo for metastatic disease is considered a palliative treatment by medical science.)

smokeyjoe
Posts: 1428
Joined: Feb 2011

Sheesh looked up Lymphedema on wiki......now it makes sense!! Thanks for the info.

Buckwirth's picture
Buckwirth
Posts: 1271
Joined: Jun 2010

4/13

My regular Oncologist called with the test results. They fall in the less bad category, the cancer is basically where it was a year ago when I was diagnosed, lots of lymph activity, but no spread to major organs. In a way this is good news, I have bought a year.

A Year. So what does a year cost?

In time:
Seven weeks of radiation. 24 weeks of chemotherapy, though to be fair, this was one week on, one week off, and I did well in the off weeks. So lets call this 12 weeks. The six weeks of radiation led to pain, illness and surgery, so add another 14 weeks.

Total: 33 weeks, leaving about 19 "good" weeks in the last year. They were good weeks, each one precious. To be fair, this does not add up the good days, hours, minutes that occur despite treatment, even in the hospital there were good moments.

In dollars:
I am well insured, so my costs are minimal, but what did this year cost my insurance company?

Something over $200,000. Somehow I feel like I got most of my premiums back now. This next year I can collect the interest! :-)

Side effects from the treatments have mostly been minimal, and I have been lucky enough to be able to work throughout (the company I work for has been wonderful).

So, with this visit to USC tomorrow I start anew. New year, new plumbing, new chemo, and I try to buy another year.

**************************************

4/14

Just got back from USC. Dr. Iqbal is wonderful, very straightforward with almost no sweetener.

They had the written report from the scan, and I got a chance to read it before we met. A little worse than I thought, with lymph involvement from the esophagus to the pelvis, but no sign of organ tumors.

I have a trip to Germany/Italy planned for 5/15. When we get back I will either start Erbitux/Irinotecan or be enrolled in a trial at USC. I want to read about the trial before I make a decision.

Thanks everyone! I really do love all of you!

Blake

ezzi's picture
ezzi
Posts: 10
Joined: Apr 2011

Stay strong, Blake.

I've read good things about Erbitux/Irinotecan :)

I love you, too.

Leslie

AnneCan
Posts: 3692
Joined: Oct 2009

I am sorry to hear the results were worse than you thought. I am currently on irinotecan + erbitux. I hope you have a wonderful trip + fantastic results from whichever treatment you choose.

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Hey, Blake.

I'm sorry the news was not as good as you were hoping for. Enjoy your trip and then see where you go from there. Praying you have a great time on the trip and figure out the best way to meet the BEAST head on.

*hugs*
Gail

jjaj133's picture
jjaj133
Posts: 869
Joined: Mar 2011

Hi Blake, I just want to throw some extra prayers your way and hope you have a wonderful trip.
judy

Crow71's picture
Crow71
Posts: 681
Joined: Jan 2010

It's good news that the cancer is laying off your organs. Hopefully the chemo will do you some good.

I would love to go to Germany and Italy. The trip should be great. I'm excited for you. Hopefully you can have a good time and not worry too much about the ****. And come back ready to beat some ***.

Take care,
Roger

lesvanb's picture
lesvanb
Posts: 911
Joined: May 2008

Hey Blake, thinking of you and I hope you have a great trip before you start the chemo.

all the best, Leslie

Annabelle41415's picture
Annabelle41415
Posts: 6691
Joined: Feb 2009

Sorry that it is not as good as you wanted but you are a strong fighter and you can get through this too. You are in my thoughts and prayers through your journey.

Kim

wolfen's picture
wolfen
Posts: 1328
Joined: Apr 2009

Sorry the results were not better and am hoping the doctor will be able to get things under control after your wonderful trip to Germany. Be sure to take lots of pictures and have a great time.

Your Friend,

Wolfen

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

and so have a lot of others in here and most of which are still here...Don't count on a year, count on a lifetime, and plan the same way....You quit planning, you quit living.....you and I both know that we are both stronger than that...and you nor I want anything candy coated. Just throw it out there and we'll deal with it as it comes. You know good and well that this will be gone, wiped out. Gotta believe that bud, nope, leaving here isn't an option. You aren't going anywhere so get a game plan and get it done and we'll move on with life.......buzz

smokeyjoe
Posts: 1428
Joined: Feb 2011

Have a wonderful trip, enjoy!!! Sorry it wasn't as good as you hoped, but no new tumours is great news.

taraHK
Posts: 1961
Joined: Aug 2003

Sorry the results were not all you had hoped. I'm in a similar situation (not great PET results yesterday). Let's hang in there together! Sending positive vibes and best wishes your way.

Tara

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Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

in fact each day....we just gotta keep on top of em...We'll do fine, wait and see......buzz

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Praying things are better than you think!

*hugs*
Gail

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