CSN Login
Members Online: 11

You are here


Posts: 372
Joined: Aug 2006

Well after 12 rounds of Folfox ending last week Wednesday for stage 3C colon cancer again, ending with a bloated abdomen and waiting, waiting, waiting for the results of the CT scan. My ONC walked in with a smile and said you beat cancer again. He said that most people don't finish Folfox at my levels of dose and he was both pleased and amazed. In eight weeks when I get back from Florida another CEA test (last one less than 1) and if good then out comes the port. The downside is my thyroid. Tests showed that the chemo was likely affecting it and until it improves (starts doing its job) I needed to take thyroid medication. Both my ONC and family doctor believe my abdominal swelling is because of the thyroid. It will take about two weeks of the medication to bring my thyroid numbers to where they should be. I'm still sick from the last of my Folfox last week but I don't care!!!!!! As for my cancer friends here you know I wish I was sharing this news with you all and that we are all NED. Your support and information will always be with me. Cancer needs to become so distant a memory that the word is removed from the dictionary for lack of use or recall of what it was. I will be gone about five weeks and my wife won't let me take my lap top of use my Ipad on our trip so I will not be reading or posting for five weeks. I will be back on this site after that! Hugs Lou
ps my real first name is Lon not Lou. My nearly two year old grand daughter couldn't say Lon but does well with Lou. Take Care!

Posts: 3692
Joined: Oct 2009

Congratulations, this is awesome news! make sure you celebrate.

Posts: 1956
Joined: Oct 2009

but look at you now!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

pepebcn's picture
Posts: 6352
Joined: Aug 2010

happy, happy,happy for you and family!
Celebrate it as better you can, maybe a bottle of French champagne?

thxmiker's picture
Posts: 1282
Joined: Oct 2010

Congrats to you Lou!

I go in tomorrow and I hope I hear as good of news.

Best Always, mike

Buzzard's picture
Posts: 3073
Joined: Aug 2008

You deserve 5 weeks outta here and all to do with cancer.......Have a great break buddy, you durn well deserve it..........buzz

Lori-S's picture
Posts: 1287
Joined: Sep 2010

Woo hoo on the NED. I'm so happy to hear that the thyroid was the problem and not some new cancer thing to have to deal with. You did a great job hanging in there with that damn FOLFOX and you deserve the next few weeks of celebration. Congratulations!!! HUGS

idlehunters's picture
Posts: 1792
Joined: Apr 2009

LOU............ SOOOOOOOOOOOOOOOOOOOOOO friggin happy to hear this for you!!!! Go take a well deserved 5 week break you warrior you!!!! Take care


Lovekitties's picture
Posts: 3330
Joined: Jan 2010

What wonderful news! So very happy for you.

I guess that trip to Florida is to see the new grandbaby.

You will be missed, and will mark the calendar hoping that you are back here to share the happy times of your trip.


Marie who loves kitties

Posts: 75
Joined: Sep 2008

Hey Lou, way to go. You've reached that magic moment we all long to hear(NED). I'm on my second regimen of Folfox, the first was 4 yrs. ago. I've got 9 more rounds to go but you've given me new hope, Thank you and I pray that your thyroid problem will also be successful. God Bless, Randy

Annabelle41415's picture
Posts: 6244
Joined: Feb 2009

You have been through so much so I'm so happy for your news of NED. Please go do the naked happy dance, but with closed windows:) You deserve it from where you have come from. Here's to you guy. Glad for you.


Buckwirth's picture
Posts: 1272
Joined: Jun 2010

Happy to hear! Go somewhere, or just spend time with the grandkids! Whatever, just be sure to treat yourself.


Anonymous user (not verified)

This comment has been removed by the Moderator

ron50's picture
Posts: 1721
Joined: Nov 2001

May it be your last battle with cancer. Now for all the side effects . Best of luck with the thyroid. From what I have heard at least thyroxin does not have too many side effects,cheers ron.

Sonia32's picture
Posts: 1078
Joined: Mar 2009

Hehe as some have said for all the bitching, the worrying etc look were you are now! So happy for you that you are Ned again, and glad you stuck at everything even though you went through a lot.

Have a great time.


johnnybegood's picture
Posts: 1122
Joined: Oct 2008

and congrats.you are brave for finishing all the oxy.you deserve the happy naked dance maybe you can do that while on vacation....Godbless...johnnybegood

pete43lost_at_sea's picture
Posts: 3908
Joined: Nov 2010

I hope you never have to say the word again my friend.
my last folfox is next tuesday week. I hope i am able to be in yor position

Subscribe to Comments for "NED AGAIN"