I AM STILL DANCING WITH NED

azgrandma
azgrandma Member Posts: 609 Member
in Ovarian Cancer #1
Praise God
I am still cancer free, God has answered my prayers yet again. I will no longer have to get PET scans unless my blood counts start to go up. I can now get my port taken out of my chest and be back to normal again.
God bless you all for praying for me and my family
Hugs Lynda

Comments

  • Pythiaschad
    Pythiaschad Member Posts: 22
    #2
    NED
    Great to hear but what does NED stand for?
  • srwruns
    srwruns Member Posts: 343
    #3
    Way to
    Way to gooooooooooooooooo!!!!!
  • anicca
    anicca Member Posts: 334 Member
    #4
    What great news! I'm very
    What great news! I'm very happy for you.

    NED = No Evidence of Disease
  • Havehope2
    Havehope2 Member Posts: 22
    #5
    Congrats!
    Enjoy the good news. I wish you only NED years to come your way!
  • kikz
    kikz Member Posts: 1,345 Member
    #6
    Havehope2 said:

    Congrats!
    Enjoy the good news. I wish you only NED years to come your way!

    I am so happy
    for your good news.

    Karen
  • djinco
    djinco Member Posts: 87
    #7
    Very happy for you.
    God is faithful and good.
  • LaundryQueen
    LaundryQueen Member Posts: 676
    #8
    djinco said:

    Very happy for you.
    God is faithful and good.

    NED
    Good for you, AZGrandma! May you have a lifetime of NED.

    Unfortunately, the declaration of "no evidence of disease" is about the best state that the medical people will allow us to believe we are in after successful treatment.

    Other people who go through successful cancer treatment get to be called "cured" but not us. Or is this the new medical term that every person diagnosed with cancer has to deal with now?

    I was telling my husband that I wish we could allow ourselves to THINK in terms of being "cured" after a period of time rather than just having NED. It makes me think of those people in AA forever calling themself an alcoholic whether or not they still drink alcohol.

    My husband said, "Maybe it is better not to be called "cured" because women will take better care of themselves while in remission to avoid the disease recurrence." Yeah, as if we knew what that was! OK, I know he means well.

    Here's an interesting story:

    Someone with kidney failure received a kidney from a donor who had been cured of malignant melanoma 10 years or more prior to their demise. The kidney recipient took the necessary immunosuppressive drugs to prevent rejection of the kidney and ALSO got malignant melanoma. I don't remember if they were cured or not but I think not.
  • azgrandma
    azgrandma Member Posts: 609 Member
    #9
    LaundryQueen said:

    NED
    Good for you, AZGrandma! May you have a lifetime of NED.

    Unfortunately, the declaration of "no evidence of disease" is about the best state that the medical people will allow us to believe we are in after successful treatment.

    Other people who go through successful cancer treatment get to be called "cured" but not us. Or is this the new medical term that every person diagnosed with cancer has to deal with now?

    I was telling my husband that I wish we could allow ourselves to THINK in terms of being "cured" after a period of time rather than just having NED. It makes me think of those people in AA forever calling themself an alcoholic whether or not they still drink alcohol.

    My husband said, "Maybe it is better not to be called "cured" because women will take better care of themselves while in remission to avoid the disease recurrence." Yeah, as if we knew what that was! OK, I know he means well.

    Here's an interesting story:

    Someone with kidney failure received a kidney from a donor who had been cured of malignant melanoma 10 years or more prior to their demise. The kidney recipient took the necessary immunosuppressive drugs to prevent rejection of the kidney and ALSO got malignant melanoma. I don't remember if they were cured or not but I think not.

    I am so happy
    I am beyond words right now, just so happy to be alive
  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    #10
    azgrandma said:

    I am so happy
    I am beyond words right now, just so happy to be alive

    Wonderful
    Thank-you for sharing your good news with us ! If I wasn't so sore I would be doing the happy dance for you, but I'm doing it mentally !
    Colleen
  • vj1
    vj1 Member Posts: 150
    #11
    Cafewoman53 said:

    Wonderful
    Thank-you for sharing your good news with us ! If I wasn't so sore I would be doing the happy dance for you, but I'm doing it mentally !
    Colleen

    SUPER!
    So happy for you. May I ask how far from your original dx are you. I am approaching my 2 yr mark in May; have been NED since finishing chemo Nov/09. Just wondering because of the port removal, etc. Again I am so happy for you and thank you for sharing!

    Verna
  • Mum2bellaandwilliam
    Mum2bellaandwilliam Member Posts: 412
    #12
    vj1 said:

    SUPER!
    So happy for you. May I ask how far from your original dx are you. I am approaching my 2 yr mark in May; have been NED since finishing chemo Nov/09. Just wondering because of the port removal, etc. Again I am so happy for you and thank you for sharing!

    Verna

    Way to go lynda.
    Yay, what wonderful news , keep up the good work x
  • LPack
    LPack Member Posts: 645
    #13
    Praise the Lord, Lynda!!
    I
    Praise the Lord, Lynda!!

    I have had my port in since February 2008. I pray one day I can get it out too.

    I am so happy for you and your family. God is good (all the time)!

    Love,
    Libby
  • Pythiaschad
    Pythiaschad Member Posts: 22
    #14
    anicca said:

    What great news! I'm very
    What great news! I'm very happy for you.

    NED = No Evidence of Disease

    Duh
    I guess I am still a newbie and feel silly. I guess I should have thought of that.
  • jloe
    jloe Member Posts: 174
    #15
    Fantastic!
    I was just listening to some older music (my time) and as ZZ Top says "we're havin a good time now".
  • azgrandma
    azgrandma Member Posts: 609 Member
    #16
    jloe said:

    Fantastic!
    I was just listening to some older music (my time) and as ZZ Top says "we're havin a good time now".

    it has been almost 14 months since chemo
    it was a year on Feb 16 since my last chemo. I got my post in in Nov of 2009, so ready to have it taken out
  • Sandy10
    Sandy10 Member Posts: 80
    #17
    HAPPY DANCE!!!
    SOOOOOOOO HAPPY FOR YOU!!!!!!! I love to hear happy news! can't wait to be well enough and well long enough to get my port out!!!! gives me something to look forward to!! it's the little things........ LOL!! :) Congrats again!!! ((((HUGS))))

    Sandy
  • poopergirl14052
    poopergirl14052 Member Posts: 1,183 Member
    #18
    keep dancing forever!!!
    great to hear you are kicking up your heels. Life is good,
  • Cindy Bear
    Cindy Bear Member Posts: 569
    #19
    Great news
    That is great news.. Good for you. Keep dancing..
    Hugs,
    Cindy
  • mopar
    mopar Member Posts: 1,972 Member
    #20
    PTL!
    Lynda:
    This is the best news I've heard all this week! Blessings to you and your family as you move forward with your life with renewed hope and joy!

    (((HUGS)))
    Monika
  • azgrandma
    azgrandma Member Posts: 609 Member
    #21
    mopar said:

    PTL!
    Lynda:
    This is the best news I've heard all this week! Blessings to you and your family as you move forward with your life with renewed hope and joy!

    (((HUGS)))
    Monika

    We have to keep the faith
    I think we all need to keep our faith and be positive. I have to say it feels fantastic when you get the news, no evidence of cancer. We havebeen celebrating all weekend

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