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Pet scan results

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Had my appt. today for the Pet scan reading. It only took them a friggin week!!! Still in remission and the tumors are still shrinking and not even had the rituxin yet. YES I am very happy with the results. John(FNHL-1-4A-5/10) REMISSION

dixiegirl's picture
dixiegirl
Posts: 1043
Joined: Apr 2006

Oh John, I am so happy to hear remission is still present. I know you are so relieved. I know so many of you have to wait so long for results and it breaks my heart. I am a very lucky woman that I get my results of pet scans the next day. I am so glad my doctor has no patience for waiting!! I don't have the physical report of the biopsies yet, but at least he got the verbal reports.

Congratulations on the great news John. Go enjoy this wonderful weather!

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Beth,
Thank you for the response. I was nervous as a cat and it got worse the closer it got to seeing the Dr. Thinking about it for a week did not help at all. You can not imagine all the stuff (or maybe you could) that goes thru the mind. Still having a hard time shaking this extra weigh but I think it will go this summer. I love it outside and the weather has been great the past few days. Be in the 80's Friday. Take care. John(FNHL-1-4A-5/10)

allmost60's picture
allmost60
Posts: 3184
Joined: Jul 2010

Well..that sums it up for me!!! You da man!!! Sue...(FNHL-2-3A-6/10)

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Sue,
I don't know about being da man,but I am certainly relieved!!! LOL. Just waiting for the call for the "R" appt. Even thought the tumors have shrunk even more from 6 months ago I guess its routine to start the "R" as scheduled. I did not question it. I actually did not even think too. After hearing the remission word my whole body just relaxed. John(FNHL-1-4A-5/10)

vinny59's picture
vinny59
Posts: 1032
Joined: Nov 2006

you go!!!!! tell your body to keep up the good work!!! hahahaha

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Vinny,
Thanks and I will try to keep it up.Maybe if I can do it for a few years they will come up with some sort of cure. Not just for Lymphoma,but all this stuff. All the research that they are supposed to be doing and donations they get you'd think some kind of cure is close. I hope thats where the money is going anyway. All the commercials on TV are either cancer or Hoveround anymore.LOL
I know you are back to work full and that has to be hard on you. What kind of work do you do that lets you go all day? I know at one time you had some donut shops with your brothers if I remember correctly. John(FNHL-1-4A-5/10)

miss maggie
Posts: 929
Joined: Mar 2010

Hi John,

So sorry to had to wait a whole week before getting the results. Darn them. The doctor and technicians should have more of a heart. They have to put themselves in their patient's
shoes.

Great news, Love Maggie extranodal marginal zone b cell nhl remission jan 2011

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Maggie,
It seems so many of us have to wait for results. Its not like we are waiting to see if a loan goes thru or not you know. We are waiting to see if we have to go thru more NASTY chemo treatments or not. It is very frustating to say the least. I usually jump right on things like this,but I didn't this time. Afraid I would get the report early and read something I did not understand and it would just add worry to the waiting. You know how they like to use the big words when they talk to each other. They could make it a lot simplier to say exactly what they mean without trying to impress each other with how many big words they know. I got a report one time that had about 20 or so multi-syllable words in one paragraph that made no sense at all. I asked another Dr. what it meant. He said it must be a new graduate trying to impress all the other Drs.He told me what it meant and said it was actually useless information.It had me scared for 3 days. Certainly does not impress me one bit. Thanks for the reply and well wishes. John(FNHL-1-4A-5/10)

merrywinner's picture
merrywinner
Posts: 621
Joined: Aug 2009

I can't tell you how happy I am for you. Congratulations. Mary

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Mary,
Thanks for the response. it does make me feel a lot better now. I only had to wait a week for the results. Take care. John(FNHL-1-4A-5/10)

tcvine's picture
tcvine
Posts: 174
Joined: Aug 2010

Hey John,

I'm a little late, but just want to add my congratulations to every one else's. Yes, remission is the Word! Great to hear that it continues for you! Really, really good to hear.

Tom (DLBCL-Stage 4-7/10-Remission)

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Tom,
Thank you and yes it was great to hear that word. john(FNHL-1-4A-5/10)

onlytoday's picture
onlytoday
Posts: 601
Joined: Jun 2010

John,

So glad that you got that great news!!!! What a relief. Boy, this NHL sure keeps us on our toes.

Enjoy! I know you will.

Love ya,

Donna

MZNHL Stage IV 05/10 - REMISSION 01/11/11

COBRA666's picture
COBRA666
Posts: 2413
Joined: May 2010

Donna,
You are so right about this stuff keeping us on our toes. Thank you for responding. How have you been? John(FNHL-1-4A-5/10)

Michele23
Posts: 168
Joined: Mar 2011

Enjoy every minute of this freedom.Happy for you,Michele

truckingalong
Posts: 444
Joined: Aug 2010

Hi, John,

Wow, I am relieved to hear of the good news. Keep on truckin!!

Liz

scuttlebug
Posts: 59
Joined: Mar 2011

john so sorry im post usualy i read your post. congratulains on your good news whenever i have a pet scan i call every day untill i get an anwser. remeber the chemo keeps working for a while. denise

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