CSN Login
Members Online: 2

You are here

Today's CT results

AnneCan
Posts: 3692
Joined: Oct 2009

Hi everyone,

I got my CT results today. My CT scan was 2 weeks ago + had been moved up due to increasing CEA numbers. Overall the results were not bad, although there is some growth in some liver tumours. Some of my lymph nodes have actually decreased, as well as a couple of "nodes". Anyway, my onc is switching me from folfiri + avastin to erbitux + irinotecan. I will get weekly treatments (I think I get erbitux every time + irinotecan every other time - lots of info to absorb). I have never been as stressed for results as I was today + I want to get that under better control (onc wants me too also). The onc emphasized the rash of erbitux + said it might upset me when I looked in the mirroe - that kind of scared me. I am nervous about switching, but am also trying to tell myself it is a new opportunity.

Nana b's picture
Nana b
Posts: 3045
Joined: May 2009

I know, It's tough when you have no other choice but to put one foot in front of the other. Keep on pressing! Thinking about you and feeling your apprehension. It is an opportunity, and we are glad that there is one there for you. Hugs!

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

No problem about rush, I'm sure it's going to work definitively!
Just cheer up!
Hugs my dear canouck!

AnneCan
Posts: 3692
Joined: Oct 2009

Thank-you, my optimistic Spanish friend! I plan on this working!

AnneCan
Posts: 3692
Joined: Oct 2009

Thanks for your thoughts! Change is always a bit tough, but I will get through this one.

Jaylo969
Posts: 827
Joined: Jan 2010

Hoping that the new meds do the job for you.I quit looking in the mirror long ago and I don't even have a rash! Take care...a new opportunity might turn out to be a great blessing. I hope so.

Best wishes to you Anne.

-Pat

AnneCan
Posts: 3692
Joined: Oct 2009

Thank-you; I really appreciate your kind words. I am hoping this treatment will kick the sh%$ out of the cancer!

Sundanceh's picture
Sundanceh
Posts: 4408
Joined: Jun 2009

Anne

I could feel your "stress" an entire country away - it was so evident in your postings. I knew you were on high alert for sure and for all the obvious reasons.

I've heard what Erbitux and Vectibix can do to our face, arms, and chest, and I've heard it is not a pretty sight. One of my oncs called it "fire ant face" and that there could be some scarring left over, but maybe not.

If my chemo fails, that will probably be my next stop as well - I'm glad the option is there for you, but wish you did not have to do this.

You're such a "Steady Eddy" and are so wise and under control - you carry yourself with remarkable grace and dignity and I want as many good things as this life has to offer you:)

Thanks for the report and I look forward to the next one.

And BTW, your post the other day that you opened, prompted me to put mine out there - you talked about "long term SURVIVORSHIP" and those words got me to releasing that post the other day.

I wanted to talk about back in November, but time ran out and it was time for Santa Craig, so I just tabled it for this year and was going to wait another month, but it took you, Anne, to get me going.

Whenever I've needed calming and reasssurance, I need look no further than you to set me right; you just have a way with me. You've been a very supportive person and a dear friend to me since I've known you - and I wish it to stay that way.

Thank you always for reading what I write - I live for the feedback and you've never failed me in this area.

Always!
-Craig

AnneCan
Posts: 3692
Joined: Oct 2009

Thank-you so much! You are making me blush! I have been a "Steady Eddie" most of my life but the last little while all my steadiness has truly been tested + that has really bothered me. You are a true friend to me in every sense of the word and I so appreciate your support. I feel honoured if I helped inspire you to post that post the other day (do I get some of the royalties when it becomes a chapter in your best selling book? lol) I think it was one of your best posts ever + that is saying something.(am I biased now that you told me I had a role in it?) The theme "SURVIVORSHIP" is so important to me. You may get tired of me talking about it!
I will just have to see as far as the rash goes; I guess some people get it worse than others + it can come + go. Anyway if it kicks the sh&% out of the cancer, I will put up with it.

Keep smiling!

tina dasilva's picture
tina dasilva
Posts: 644
Joined: Sep 2010

i'm so sorry to hear about the meds not working but im sure the new ones will. also i think if you do get a rash that you would look very cute so stay strong my dear hugs Tina

Anonymous user (not verified)

This comment has been removed by the Moderator

AnneCan
Posts: 3692
Joined: Oct 2009

Thanks for all your good thoughts. I talked to the onc about the antibiotics; I don't think she prescribes it right away. She did say to use a moisturizing cleanser; my skin will become dry. I would love to have everything shrinking but with my CEA climbing I knew that wasn't very likely. I can handle a little growth, + the onc did say there was some shrinkage too. I am sorry you are feeling stress. You take care, too!

AnneCan
Posts: 3692
Joined: Oct 2009

I'll let you know if I look cute. Thanks for the encouragement.

LivinginNH's picture
LivinginNH
Posts: 1458
Joined: Apr 2010

Hi Anne, I'm glad that you'll be able to receive erbitux/irinotecan - may this treatment begin your journey to long term survivorship. Best wishes, Cyn

AnneCan
Posts: 3692
Joined: Oct 2009

I really appreciate your good thoughts + best wishes.

Lori-S's picture
Lori-S
Posts: 1287
Joined: Sep 2010

I am so glad to hear that you got your results. I know you were pretty anxious about it. Sounds a bit of mixed results which it seems is pretty common. Some good news (woo hoo) and some so so news. I'm happy to hear that you have a plan in place. HUGS to you

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

You are the in depth thinker...you will persevere because of who you are....I have the utmost respect for you and your journey will be one of ease and you will succeed in this one as well.........love to you my lady..buzz

AnneCan
Posts: 3692
Joined: Oct 2009

Thank-you from the bottom of my heart for these kind + inspirational words!

AnneCan
Posts: 3692
Joined: Oct 2009

Thanks so much! It is mixed results; maybe the next set of results will be all good! Hugs back to you!

sasjourney
Posts: 395
Joined: Jul 2010

Anne,

I am taking Erbitux and have had three treatments with it so far. I am taking an antibiotic that is helping a lot with the rash. It is very mild right now. Load up on moisturizers because it really dries out the skin.

Hope you have great results with this treatment.

Hugs,
Sara

AnneCan
Posts: 3692
Joined: Oct 2009

Those are good tips. Did you take the antibiotics right from the beginning of treatment? Do you take the antibiotics orally or by IV? Are you on anything else besides erbitux? Sorry for all the questions. Thanks for your good wishes; I want to wish you good results too. Hugs right back to you!

mom_2_3
Posts: 964
Joined: Nov 2008

Sounds like you oncologist has a good plan for you. I hope that the new combination works well for you with minimum side effects. It is hard to wait so long for CT results. Two weeks is a long time. It's great that you had overall news. Keeping you in my thoughts Anne.

Amy

AnneCan
Posts: 3692
Joined: Oct 2009

I think my onc does have a good plan + she is very carin. She spent a lot of time with my husband + I today. Thanks for keeping me in your thoughts.

Crow71's picture
Crow71
Posts: 681
Joined: Jan 2010

I'm glad you got your results so that you can move forward. It's always scary when you change plans, but I think you will do great. The plan sounds well thought out. I hope it works wonders.

AnneCan
Posts: 3692
Joined: Oct 2009

You are so right - change is scary. Thanks for your good thoughts; they are always appreciated.

tootsie1's picture
tootsie1
Posts: 5056
Joined: Feb 2008

Sounds like you got a mixed bag of results, and it has you worried. I'm praying you won't have the horrible rash, and that you will see only positive results.

*hugs*
Gail

AnneCan
Posts: 3692
Joined: Oct 2009

Yes it is a mixed bag but much better than all bad, Thanks for your good wishes!

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Anne,
You right to look at the new treatment as a new opportunity. Maybe the Erbitux is the one that will kick cancers a$$. Hoping for very good results for you.

Aloha,
Kathleen

AnneCan
Posts: 3692
Joined: Oct 2009

This could be the azzkicker! Wouldn't that be nice? Thanks for the good thoughts.

luvmum
Posts: 457
Joined: Dec 2010

Dear Anne,

I'm so so happy to know that the CT scan was not bad! My friend who fights this for more than 10 years and she keeps telling me that as long as there is a plan for you, it will be fine. You never know when the new drugs come out! I will pray for your good respond to the new regimen and with minimal side effects!

Moisturizer helps my mum to minimize her hand and foot pain from oxaliplatin, so just a small reminder that you need to put on moisturizer as often as possible.

All my best wishes to you!
Dora

p.s. Like what Craig said, your support to me help me to go through the toughest first 4 months since my mum was diagnosed. I really appreciate your kind words all the time and speedy respond to my post! (^^)\

AnneCan
Posts: 3692
Joined: Oct 2009

Thanks for all your lovely + kind words. I really appreciate your support. If I have helped you in any way I am happy!

Lovekitties's picture
Lovekitties
Posts: 3327
Joined: Jan 2010

Sorry that the scan results were not better, but also very glad they were not worse.

I am praying that the change up in the chemo will work wonders for you and that you have little to no rash to deal with. If you do, you might want to try coco butter. As a tot my son got into a sand flea nest and his legs were bitten up something awful. And of course he didn't understand that you aren't supposed to scratch them. Nightly treatments of coco butter really helped with the scabbing and the scars.

I hope that you can find something like meditation or yoga to help with the stress management. If you find something which works for you, be sure to let us know as we are all in the same stress mess.

Hugs to you my friend,

Marie who loves kitties

Nana2's picture
Nana2
Posts: 255
Joined: Mar 2010

I'll be praying you get the results you need from the new cocktail Anne. Jim wasn't able to do the Erbitux. He had a reaction to it so he's on irinotican and avastin. We are getting scans done today and Monday so we'll know soon if it's helping. Just keep doing the "next thing" that's all any of us can do.
((HUGS))
April

AnneCan
Posts: 3692
Joined: Oct 2009

I appreciate your prayers. I am sorry Jim couldn't do the erbitux, I hope I will tolerate it. I am hoping for good results from Jim's scans.

AnneCan
Posts: 3692
Joined: Oct 2009

I appreciate all of your supportive words. I do want to find something to relieve stress; it is a priority for me.

Sonia32's picture
Sonia32
Posts: 1078
Joined: Mar 2009

So glad your scan has showed a decrease in some areas. As some have said maybe the new chemo is a blessing in disguise, and it might be the right one for you. Sending you love and hugs from across the pond.

Sonia

AnneCan
Posts: 3692
Joined: Oct 2009

Thank-you for all your good thoughts. Hugs back to you!

geotina's picture
geotina
Posts: 2117
Joined: Oct 2009

Well your scan sounds like good news with a little sad news, I think this is kinda what you expected. I was so hoping it would be all good news with things shrinking and/or staying stable and not a mixed bag.

George is on weekly chemo now but has not had the Erbitux chemo yet. They are doing the KRAS test now in case he has to move to that.

When you sign in go to the search box and put in Erbitux and you can see the old discussions and what people did to stay ahead of the rash. I think it is Phil that has been on this chemo for some time and he might be a good source of info on the rash and what works and what doesn't work.

Best wishes and hugs - Tina

AnneCan
Posts: 3692
Joined: Oct 2009

Thanks for your best wishes + hugs. I think of my results as what I expected; not as good as I hoped for + not as bad as I feared. I did PM Phil + he has responded with lots of helpful comments. I think of you + George often + I hope his KRAS test comes out the "good" way; it is nice to have that option if needed. Hugs back to you!

Annabelle41415's picture
Annabelle41415
Posts: 6183
Joined: Feb 2009

Sorry that the news wasn't better for you but it does seem that there has been some good improvement so that is a very positive thing. Maybe switching you to the new chemo will even be a better weapon for those pesky cells. Getting anxiety better under control is always a problem and if you or your doctor can make magic and have it happen I'd love to know about it. That is very common and one that is expected. Hope you are feeling less anxious now. Hoping this new chemo works good for you.

Kim

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

You just remember that I said you were going to be fine, and I don't take no for an answer. My Canuck Maiden..... lol .......buzzour

also Hi Mrs Annabelle...glad you dropped in ....hope all is well at your home also...Love to you too........buzz

AnneCan
Posts: 3692
Joined: Oct 2009

I hope you are a psychic, because I am counting on you being right! Thanks!

AnneCan
Posts: 3692
Joined: Oct 2009

It is so nice to see your beautiful face! Thanks for all your kind words. I am less anxious; just a little worried about the erbitux.

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Hi Anne,

Not bad results, overall.
I guess your onc has a plan that sounds workable. Definitely take the antibiotics just prior to or at least right when you start the Erbitux- don't wait. It's easier to prevent than to try to recover from the acne rash. Once I had it (and I had it really bad), it took about a month and a half to clear up, but I wasn't given anything at all & didn't know about the antibiotics for it until it was already too late.
You're obviously kras wild, so it should hopefully work well for you.

Take care-
Lisa

AnneCan
Posts: 3692
Joined: Oct 2009

Thanks for your suggestions. I think my onc only gives you the antibiotics if your rash becomes bad. I had a talk with her nurse + she said they won't let it get bad for me + truthfully I haven't seen anyone at my cancer centre with a bad rash. I am wild, so I am hoping for good things. Take good care.

dorookie
Posts: 1736
Joined: Jul 2007

you didnt get better results my friend, I am keeping you in my prayers....I hope this new cocktail will work for you and the rash wont be that bad if at all...

Stay strong..

HUGS
Beth

AnneCan
Posts: 3692
Joined: Oct 2009

I really appreciate your good thoughts.

Erinb
Posts: 295
Joined: Apr 2010

Hi, I'm glad the results weren't bad. I hope the Erbitux mix works well for you. One of the nurses gave my husband some paperwork to fill out about a topical that may help out with the rash? I didn't look over the forms yet because he usually takes his erbitux at the hospital and I don't go to that treatment with him.
I will let you know once we get the drug that is supposed to help. I think Phil takes minocycline (sp) and my husband takes (dioxcycline) sp but it hurts his stomache so he would rather deal with the rash. Maybe ask your doctor which one he would prefer. My doctor said that one was a generic form, but they were from the same family. I don't know if one would be easier on the belly compared to the other.
Erin

AnneCan
Posts: 3692
Joined: Oct 2009

I would be interested to know the name of the topical. I think my doctor will wait to see how bad my rash is. I don't tolerate antibiotics very well. Has your husband been on erbitux very long?

Subscribe to Comments for "Today's CT results"