Tell Me about your Lumpectomy Experience...
I know St. Josephs has a great reputation and feel like I am in good hands. That being said, I am still feeling a little scared was wondering if any of you that have been thru this could outline the procedure for me? My biggest fear was that the nurse mentioned something about a tube being stuck down my throat and I wasn't sure what that was all about....
Comments
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All surgeries are not the same
Call your surgeons office and ask what the procedure entails. My doc was super, he explained in detail. I had a wire guided lumpectomy and the 'bee sting' injectable dye to detect node involvement. And he ordered a happy pill for me because I was apprehensive to say the least.
You're in my prayers and I'll be waiting for your post to let us know how it went.
Sue0 -
I had a lumpectomy... yes,
I had a lumpectomy... yes, all the pretest stuff is a pain... they didn't inform me either, so I was like you...scrambeling around trying to get everything done before hand. Once I got to the hospital they took me back into the preop area and had me change. They put an iv in my hand... I do hate iv's. The antithesiologist came in and talked to me for a few moments, mainly to make sure I didn't have previous bad experiences under local. My surgon came in right before hand and just gave me a friendly pep talk. Then they gave me a relaxing med... good stuff ... just enough to make me loopy... and take away some of the anxiety of going into the operating room.
When I woke up I had a drain tube...sometimes they are needed, sometimes they are not, so be prepared for one just in case... Mine was in for 10 days, it helps with draining fluid build up... I was a little loopy on the way home rested the rest of the day... and pretty much for several more to follow...
I did take some pain medication the first 24 hours but I hated the way it made me feel so I switched to advil to take the edge off... all in all it was doable... gosh...seems we say alot of that around here..."doable"... but I guess there just isn't any other way to put it.
Take a deep breath... we are all here for you!
Hugs,
~T0 -
I had my lumpectomy almost ataleena said:I had a lumpectomy... yes,
I had a lumpectomy... yes, all the pretest stuff is a pain... they didn't inform me either, so I was like you...scrambeling around trying to get everything done before hand. Once I got to the hospital they took me back into the preop area and had me change. They put an iv in my hand... I do hate iv's. The antithesiologist came in and talked to me for a few moments, mainly to make sure I didn't have previous bad experiences under local. My surgon came in right before hand and just gave me a friendly pep talk. Then they gave me a relaxing med... good stuff ... just enough to make me loopy... and take away some of the anxiety of going into the operating room.
When I woke up I had a drain tube...sometimes they are needed, sometimes they are not, so be prepared for one just in case... Mine was in for 10 days, it helps with draining fluid build up... I was a little loopy on the way home rested the rest of the day... and pretty much for several more to follow...
I did take some pain medication the first 24 hours but I hated the way it made me feel so I switched to advil to take the edge off... all in all it was doable... gosh...seems we say alot of that around here..."doable"... but I guess there just isn't any other way to put it.
Take a deep breath... we are all here for you!
Hugs,
~T
I had my lumpectomy almost a year ago and I was also scared, but it really wasn't too bad. I had done all the pre test stuff at my gp's office, but they forgot to send it to the hospital, so we had to wait on that. This after they wanted to do it all again. As is said, we are all different and each experience is different, but I'm sure you'll do fine. I had an RX for pain pills, got it filled, but only used 1. Best of luck and warmest thoughts.0 -
All are different...
I keep in mind that all surgeries are different ~ and I've had over 5 through life... with that being said, I had a lumpectomy 12/7/10. I was anxious before as well - had all of the pre-ops, etc.
On the morning of surgery - I had dye injected for a sentinel node biopsy during surgery. Once on the table prior to surgery, after a few questions asked - I was given that 'happy' juice and woke up feeling - not as bad as I'd expected (no overnight stay). Fortunately, I didn't have a drain tube or anything and only took the pain meds once that night and once or twice the next day - but not because I was in so much pain, I was 'chasing' the pain as they say. I switched to over the counter pain meds since. Once home, I slept a lot, watched tv a lot and surfed the web. Lots of swelling under my arm - once my neighbor (a nurse), told me to keep my arm elevated so that air could get in there, the swelling eased somewhat.
It is my hope that this could go the same for others. But I always keep in mind that all surgeries are different. And each of mine were totally different.
Better health to you ~ we can do this. WE WILL DO THIS!0 -
Lumpectomy 3-22-10LVG said:All are different...
I keep in mind that all surgeries are different ~ and I've had over 5 through life... with that being said, I had a lumpectomy 12/7/10. I was anxious before as well - had all of the pre-ops, etc.
On the morning of surgery - I had dye injected for a sentinel node biopsy during surgery. Once on the table prior to surgery, after a few questions asked - I was given that 'happy' juice and woke up feeling - not as bad as I'd expected (no overnight stay). Fortunately, I didn't have a drain tube or anything and only took the pain meds once that night and once or twice the next day - but not because I was in so much pain, I was 'chasing' the pain as they say. I switched to over the counter pain meds since. Once home, I slept a lot, watched tv a lot and surfed the web. Lots of swelling under my arm - once my neighbor (a nurse), told me to keep my arm elevated so that air could get in there, the swelling eased somewhat.
It is my hope that this could go the same for others. But I always keep in mind that all surgeries are different. And each of mine were totally different.
Better health to you ~ we can do this. WE WILL DO THIS!
I had all my pre op done a couple of days before. I reported the day of surgery to the mammogram dept. for the needle localization, this is where they place a wire to the tumor using an ultrasound machine. It was not bad at all. From there I went to have the dye injected(sentinnel node mapping) for the sentinnel node biopsy during surgery. I then went to pre-op waited there for a bit, surgeon came in and talked to me, then got the shot of I don't care what you do to me lol. My surgery was just under 2 hrs, spent about 1 1/2 hrs in recovery then headed home. I think I used 2-3 pain pills in all because they told me to stay ahead of the pain. I slept good that night and felt pretty good. I had some soreness but not a lot of what I would consider bad pain. God Bless
(((Hugs))) Janice0 -
I had a lumpectomy on 4/12/10Boppy_of_6 said:Lumpectomy 3-22-10
I had all my pre op done a couple of days before. I reported the day of surgery to the mammogram dept. for the needle localization, this is where they place a wire to the tumor using an ultrasound machine. It was not bad at all. From there I went to have the dye injected(sentinnel node mapping) for the sentinnel node biopsy during surgery. I then went to pre-op waited there for a bit, surgeon came in and talked to me, then got the shot of I don't care what you do to me lol. My surgery was just under 2 hrs, spent about 1 1/2 hrs in recovery then headed home. I think I used 2-3 pain pills in all because they told me to stay ahead of the pain. I slept good that night and felt pretty good. I had some soreness but not a lot of what I would consider bad pain. God Bless
(((Hugs))) Janice
My experience sounds almost exactly like what Janice had. I did have a drain after the surgery but the dr. removed it in 2 days because there was no fluid. I was really scared before it all happened because I had never had any surgery and had no idea what to expect. It was not nearly as bad as I had imagined. It is something that I hope you will be able to get through without much trouble.
Hugs,
Georgia0 -
Mine was done on 3/31/09.ladyg said:I had a lumpectomy on 4/12/10
My experience sounds almost exactly like what Janice had. I did have a drain after the surgery but the dr. removed it in 2 days because there was no fluid. I was really scared before it all happened because I had never had any surgery and had no idea what to expect. It was not nearly as bad as I had imagined. It is something that I hope you will be able to get through without much trouble.
Hugs,
Georgia
My sentinal node dye was injected while I was under anesthesia so I had no pain there. I don't know why every hospital doesn't do it that way. I went to Yale New Haven Hospital which is a research hospital so maybe it is a new method but I would ask you surgeon about it. I walked into the operating room and got onto the table myself. I was out before I knew it and when I woke up I had very little pain. My surgery was actually called breast conserving surgery or a partial mastectomy because they took more than they do during a normal lumpectomy. My breast looks great. She did the cut alone my aerola so it doesn't show now. My breasts don't match perfectly but I really don't care. My husband calls them droopy and perky. LOL. The pain was minimal and I only missed 5 days of work. My surgeon said I could go back after 2 days but then again she never had her breast cut. I needed pain meds for 1 day but the pain wasn't really bad. I had to wear a sports bra for awhile. Best of all, the cancer was removed and I had no node involvement. The good new made everything easier to take. Hugs.
Roseann0 -
My experienceroseann4 said:Mine was done on 3/31/09.
My sentinal node dye was injected while I was under anesthesia so I had no pain there. I don't know why every hospital doesn't do it that way. I went to Yale New Haven Hospital which is a research hospital so maybe it is a new method but I would ask you surgeon about it. I walked into the operating room and got onto the table myself. I was out before I knew it and when I woke up I had very little pain. My surgery was actually called breast conserving surgery or a partial mastectomy because they took more than they do during a normal lumpectomy. My breast looks great. She did the cut alone my aerola so it doesn't show now. My breasts don't match perfectly but I really don't care. My husband calls them droopy and perky. LOL. The pain was minimal and I only missed 5 days of work. My surgeon said I could go back after 2 days but then again she never had her breast cut. I needed pain meds for 1 day but the pain wasn't really bad. I had to wear a sports bra for awhile. Best of all, the cancer was removed and I had no node involvement. The good new made everything easier to take. Hugs.
Roseann
Was just about like everyone else's. The only hang up I had was before they took be in to surgery they realized they hadn't given me a pregnancy test!! LOL!! I was 53!!!! But it's standard procedure, so we had to wait on the results which took about 20 min.
I was sure to remind them for my next surgery!!0 -
sorry you had to run around like chicken
I must say My surgery was much better then I expected as far as pain and recovery! I had mine just under 3 yrs ago. It took me 3 wks to even look at myself in mirror...and not near as bad as I expected. I am sure I had the tube down my throat..No one mentioned so to me...I didnt' think about it..I have had many surgeries (non cancer related)-I assume had tube then. (I tell Drs tell me as LITTLE as you can)
I hope all goes well...I"ll be thinkning of you..0 -
preg. test...pattimc said:My experience
Was just about like everyone else's. The only hang up I had was before they took be in to surgery they realized they hadn't given me a pregnancy test!! LOL!! I was 53!!!! But it's standard procedure, so we had to wait on the results which took about 20 min.
I was sure to remind them for my next surgery!!
too funny...
when I had my lump. done...I have such bad bad veins (and now can only use ONE arm) they finally gave up on Preg. test...but they wrote on my chart Patient Refused..i wanted to put staff couldn't get...ahhhhhh(I was 49 and menopausal but I guess stranger things have happened)0 -
As everyone said eachdisneyfan2008 said:sorry you had to run around like chicken
I must say My surgery was much better then I expected as far as pain and recovery! I had mine just under 3 yrs ago. It took me 3 wks to even look at myself in mirror...and not near as bad as I expected. I am sure I had the tube down my throat..No one mentioned so to me...I didnt' think about it..I have had many surgeries (non cancer related)-I assume had tube then. (I tell Drs tell me as LITTLE as you can)
I hope all goes well...I"ll be thinkning of you..
As everyone said each surgery is different. To answer your question about the tube down the throat. It sounds like they are going to use general anesthesia. You will be totally out when they put the tube in and it will be gone when you wake up so don't even worry about it. You might have a scratchy throat after but it is pretty uneventful. My surgery was wire guided bilateral lumpectomies. I had the shots into the breast for the sentinel node biopisies. They stung but for me wasn't bad. Then I went to the mammography room and had the wires places in each breast (not everyone has this). They numbed my breasts and I didn't feel a thing. I was sitting down in a chair when they did this as it takes awhile. The pressure on my breast was not as tight as a mammogram, firm but not not pinching. They put styrofoam cups (coffee cups I think) over each of wire (my doctor prefers the caps be left in place), put my gown back on and I was wheeled out. My hubby started laughing when I asked if I looked like Madonna with my newly enlarged pointy boobs. In the ER I was given the loopy juice, wheeled into surgery, asked to move onto the table and then I woke up in recovery. I didn't have any drains, very little pain, and I went home shortly after. They gave me pain pills which I never used as tylenol was sufficient but don't hestitate to use pain pills and use them early if you need them. I had my surgery the day before Thanksgiving and I had Thanksgiving at my home the next day (others did all the work). I took it easy for the next 4 days and went back to work on Monday. I had asked for the week off but since I was feeling okay and I was going to do radiation and maybe chemo I wanted to save my time. I healed quickly and easily with no complications. Again, everyone's surgery, recouperation, etc. is different. I hope that yours is as uncomplicated as mine was. I know that others have not been as fortunate. But we have all gotten through it and so will you. It is unfortunate that your team didn't tell you what pre tests you needed. That only increases the strain and you didn't need that. And that they didn't tell you more about the surgery. I had a breast care specialist who was the first person I saw after my diagnosis. She went over everything in general, mastectomy, lumpectomy, lymphodema, node biopsy, chemo, radiation etc. I was also given an online link to go to that explained the lumpectomy and mastectomy that I could view. It was great and even had times that it allowed you to write any questions you had and at the end you could print out a summary and your questions to take with you to the surgeon visit. There was also one for anesthesia. A few days later I met my surgeon, had appointments for blood tests, pre-aenesthia consult, EKG, etc. This whole process made everything so much easier. I did not go to a big cancer center but I do belong to what I consider a great healthcare provider. They sent me to a lymphodema class for breast cancer patients after surgery and I could have had a private consult with therapy if needed. They sent me to a top notch facility for my radiation that was close to home. I couldn't have been given better care. For me it is important to go to appointments and ask questions but not everyone wants to know. My sister was the total opposite, don't tell me anything just do it. And that works for her. Like our surgeries, we are each so different in our need to know. Do what works for you? Be your own best advocate and if it helps take along a second set of ears. That can be so helpful.
Again, I hope that your surgery and follow up care goes as well as mine did. My prayers will be with you on this journey. We are a great group and will be here for you every step of the way.
Stef0 -
Lumpectomyfauxma said:As everyone said each
As everyone said each surgery is different. To answer your question about the tube down the throat. It sounds like they are going to use general anesthesia. You will be totally out when they put the tube in and it will be gone when you wake up so don't even worry about it. You might have a scratchy throat after but it is pretty uneventful. My surgery was wire guided bilateral lumpectomies. I had the shots into the breast for the sentinel node biopisies. They stung but for me wasn't bad. Then I went to the mammography room and had the wires places in each breast (not everyone has this). They numbed my breasts and I didn't feel a thing. I was sitting down in a chair when they did this as it takes awhile. The pressure on my breast was not as tight as a mammogram, firm but not not pinching. They put styrofoam cups (coffee cups I think) over each of wire (my doctor prefers the caps be left in place), put my gown back on and I was wheeled out. My hubby started laughing when I asked if I looked like Madonna with my newly enlarged pointy boobs. In the ER I was given the loopy juice, wheeled into surgery, asked to move onto the table and then I woke up in recovery. I didn't have any drains, very little pain, and I went home shortly after. They gave me pain pills which I never used as tylenol was sufficient but don't hestitate to use pain pills and use them early if you need them. I had my surgery the day before Thanksgiving and I had Thanksgiving at my home the next day (others did all the work). I took it easy for the next 4 days and went back to work on Monday. I had asked for the week off but since I was feeling okay and I was going to do radiation and maybe chemo I wanted to save my time. I healed quickly and easily with no complications. Again, everyone's surgery, recouperation, etc. is different. I hope that yours is as uncomplicated as mine was. I know that others have not been as fortunate. But we have all gotten through it and so will you. It is unfortunate that your team didn't tell you what pre tests you needed. That only increases the strain and you didn't need that. And that they didn't tell you more about the surgery. I had a breast care specialist who was the first person I saw after my diagnosis. She went over everything in general, mastectomy, lumpectomy, lymphodema, node biopsy, chemo, radiation etc. I was also given an online link to go to that explained the lumpectomy and mastectomy that I could view. It was great and even had times that it allowed you to write any questions you had and at the end you could print out a summary and your questions to take with you to the surgeon visit. There was also one for anesthesia. A few days later I met my surgeon, had appointments for blood tests, pre-aenesthia consult, EKG, etc. This whole process made everything so much easier. I did not go to a big cancer center but I do belong to what I consider a great healthcare provider. They sent me to a lymphodema class for breast cancer patients after surgery and I could have had a private consult with therapy if needed. They sent me to a top notch facility for my radiation that was close to home. I couldn't have been given better care. For me it is important to go to appointments and ask questions but not everyone wants to know. My sister was the total opposite, don't tell me anything just do it. And that works for her. Like our surgeries, we are each so different in our need to know. Do what works for you? Be your own best advocate and if it helps take along a second set of ears. That can be so helpful.
Again, I hope that your surgery and follow up care goes as well as mine did. My prayers will be with you on this journey. We are a great group and will be here for you every step of the way.
Stef
I had my lumpectomy in Feb of this year! I am getting close to the one year mark. I had to see my GP before surgery to get the all clear to be able to have surgery. I then had to have the pre-op tests, ekg blood work, etc. On the day of surgery, I arrived early the day of surgery. They started off putting in the IV. I was wheeled down to the mammogram area, where they did place the wire in to guide them in surgery. They used the mammogram machine for this. Not as bad as having your mammo. I was having the sentinal node biopsied, so they had someone from nublear medicine come in and inject the dye, or whatever it is. They did this around my nipple, a shot at 12 o'clock, three, six, etc. It felt like a bee sting. They told me that the nuclear dye was not harmful to others. Then after that I had to massage the breast to make the dye flow to the nodes. Then they sent me for ct scan or MRI, I am not sure which, but to take markings for surgery. I finally made it to surgery. I did not have to have a drain put in. I had no nodes that were positive for cancer! My hardest part of surgery was the pain I felt under my arm, and at the same time was very nausous from the antthesia! The area of the lumpectomy never did heart that much. I think that I felt very little shooting pains in that area. I felt more pain in my armpit(the area they cut for the sentinal node removal) I still have some pain in that area. Remember that they are cutting through muscle and possibly tendons. It is important that you do the exercises that they give you to regain the strength in those muscles. After recovery, I went back to my room, and went home later afternoon. Recovery at home went well, The hospital sent pain pills, I had to stop taking them as they made me very sick. I took off a week and a half of work. No lifting of more than 2 lbs. I lift sometimes 50 lbs at work. Do not be afraid to call your Dr. with any concerns, My thoughts and prayers are with you! Mary0 -
Mine was May 4th
DEFINITELY ask your surgeon's office to give you details! One of the random things I wouldn't have guessed is that you're not supposed to take any ibuprofen or other anti-inflammatories 7-10 days before. Press for the info/list! In general, I found it really important to feel in control of a lot of this, so I asked questions, kept a notebook going with new ones, and pressed for information. It really helped me get through things.
My experience earlier this year:
A week/two before: EKG, basic blood work
Day before the surgery: nuclear dye for the sentinel node
Morning of: wire guide inserted by the radiologist (literally painless after the quick TINY injection of anesthesia), then a GENTLE mammo so they could confirm it was in the right place. Taken up on an elevator to the pre-op area, where I was given a pregnancy test, and then I got to put on the Jiffy-Pop hat and sat in a big recliner for a while. My surgeon's assistant came by, followed by the anesthesiologist. IV prepped, I walked in to the OR, got on the table, and chatted w/my surgeon before I was put out.
In the Recovery area, an ice pack was put on the wound underneath a compression garment (I referred to it as my tube top--something TOTALLY foreign to this woman, as I have DD cups). For 24 hours after surgery, I iced on/off and I think it really helped keep the swelling down. I took the pain Rx for the first 24 hours to get 'ahead' of it (as advised), but didn't need it after the 2nd night. BABY THAT ARM as they tell you to! :-)
I was totally anal; went in with a typed note listing my allergies (even stuff you think doesn't matter, such as shellfish), the medications I'd been on, and the anesthesia drug that my oral surgeon had used when I had wisdom teeth pulled two months before--because I did BEAUTIFULLY on it. He said he would mix the same 'cocktail' for me, and happily, I had no side effects from it. I gave a copy of the note to my family in case someone asked them any of these questions (doubtful thanks to HIPPA laws, but I thought it made sense!).
Fwiw, 7 months later and even after a 2nd (shorter) surgery to clear the margins a bit more (at the request of the radiation onc), my scars (node and tumor) are (if it makes any sense) beautiful. I'm grateful I had the option of a lumpectomy.
We'll all be with you on 1/6...please give us an update when you can.
Curlz0 -
Now I can sleep nightsCurlz said:Mine was May 4th
DEFINITELY ask your surgeon's office to give you details! One of the random things I wouldn't have guessed is that you're not supposed to take any ibuprofen or other anti-inflammatories 7-10 days before. Press for the info/list! In general, I found it really important to feel in control of a lot of this, so I asked questions, kept a notebook going with new ones, and pressed for information. It really helped me get through things.
My experience earlier this year:
A week/two before: EKG, basic blood work
Day before the surgery: nuclear dye for the sentinel node
Morning of: wire guide inserted by the radiologist (literally painless after the quick TINY injection of anesthesia), then a GENTLE mammo so they could confirm it was in the right place. Taken up on an elevator to the pre-op area, where I was given a pregnancy test, and then I got to put on the Jiffy-Pop hat and sat in a big recliner for a while. My surgeon's assistant came by, followed by the anesthesiologist. IV prepped, I walked in to the OR, got on the table, and chatted w/my surgeon before I was put out.
In the Recovery area, an ice pack was put on the wound underneath a compression garment (I referred to it as my tube top--something TOTALLY foreign to this woman, as I have DD cups). For 24 hours after surgery, I iced on/off and I think it really helped keep the swelling down. I took the pain Rx for the first 24 hours to get 'ahead' of it (as advised), but didn't need it after the 2nd night. BABY THAT ARM as they tell you to! :-)
I was totally anal; went in with a typed note listing my allergies (even stuff you think doesn't matter, such as shellfish), the medications I'd been on, and the anesthesia drug that my oral surgeon had used when I had wisdom teeth pulled two months before--because I did BEAUTIFULLY on it. He said he would mix the same 'cocktail' for me, and happily, I had no side effects from it. I gave a copy of the note to my family in case someone asked them any of these questions (doubtful thanks to HIPPA laws, but I thought it made sense!).
Fwiw, 7 months later and even after a 2nd (shorter) surgery to clear the margins a bit more (at the request of the radiation onc), my scars (node and tumor) are (if it makes any sense) beautiful. I'm grateful I had the option of a lumpectomy.
We'll all be with you on 1/6...please give us an update when you can.
Curlz
Thanks guys..you don't know how much I appreciated reading all of these...Looks like your experiences were the same yet slightly different...at least I have a better idea of what to expect now.0 -
Hi Mrs. Gadgetmrs gadget said:Now I can sleep nights
Thanks guys..you don't know how much I appreciated reading all of these...Looks like your experiences were the same yet slightly different...at least I have a better idea of what to expect now.
My lumpectomy is scheduled for Jan. 4 and like you I'm scared. My surgeon is wonderful and sent me for all the pretesting earlier.My only complaint is that I had to ask about what type of breast cancer I have and I found out that I'm hormone receptive negative--so there is a possiblity of chemo which wasn't even discussed before. I was told that they would have told me that later, but because I asked, they are telling me now. So I guess the moral is ask questions!
Good luck ---I'll keep you in my thought and please do the same for me
Denise0 -
Hi Mrs. Gadgetpbrndm5 said:Hi Mrs. Gadget
My lumpectomy is scheduled for Jan. 4 and like you I'm scared. My surgeon is wonderful and sent me for all the pretesting earlier.My only complaint is that I had to ask about what type of breast cancer I have and I found out that I'm hormone receptive negative--so there is a possiblity of chemo which wasn't even discussed before. I was told that they would have told me that later, but because I asked, they are telling me now. So I guess the moral is ask questions!
Good luck ---I'll keep you in my thought and please do the same for me
Denise
I had my lumpectomy at St. Josephs in Orange. I also had to do the blood work, a mamogram and EKG prior to the surgery. On the day of surgery I first went to the Pavillion for the wire placement and then I was walked over to the hospital on the elevated walkway (wearing a hospital gown over my pants). I had a odd experience with the anestheisologist - you can P.M. me and I'll tell you the details. My surgery was in the afternoon so I stayed overnight at the hospital my room was private I think all the rooms are private. I'd be happy to talk with you about my experience. Love Surf0
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