not the news anyone wants to hear

heidijez
heidijez Member Posts: 441
edited March 2014 in Breast Cancer #1
yesterday's appointment was a very difficult one. my cancer is so aggressive, growing so fast that it has my doctors' heads spinning. in 9 days i went from liver being totally clear to liver being blasted with cancer. i have bone mets. am in so much pain that i cannot walk. for the first time ever, my doctors are talking about prognosis. at worst i have six months. still hoping to find a chemo drug that will keep me alive a while longer. to say i am overwhelmed is an understatement. i am not giving up yet, but it is getting harder to be optimistic.

thank you, all my sisters and brothers in pink, i don't know how i would get through this without you.

p.s. it turns out that my dr. knows meena's dr. personally and they are in discussions about my case, trying to save me the hassle of traveling to see him in person, but we will have to see what comes of that.
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Comments

  • meena1
    meena1 Member Posts: 1,003
    #2
    Oh, Heidi I am so sorry to
    Oh, Heidi I am so sorry to hear your news. But then I read the p.s. and saw that your doctor knows my doctor, so I am hoping that he can do something for you. He is in an expert in IBC. But if you do have to come to Philly, let me know! This cancer is so aggressive it is so scary. I guess I have been "lucky" (and i use that word loosely), that I am Her2 positive so I can get Herceptin. We are praying for you
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #3
    so sorry -with your dr appt...
    I will be thinking of you daily..hoping your feel better and so sorry about being in pain!

    hugs coming your way
  • Snowkitty
    Snowkitty Member Posts: 295
    #4
    Heidi, I am so sorry for
    Heidi, I am so sorry for this terrible news. I will continue to pray for you in the hope there will be some good news in the future.

    Take care, Cindy
  • jnl
    jnl Member Posts: 3,869 Member
    #5
    Snowkitty said:

    Heidi, I am so sorry for
    Heidi, I am so sorry for this terrible news. I will continue to pray for you in the hope there will be some good news in the future.

    Take care, Cindy

    Heidi, I don't know what to
    Heidi, I don't know what to say. This is awful, just awful. I will pray that there is a chemo or something out there that can help you. I am glad your oncologist knows Meena's. Maybe something good will come from that.


    Prayers for you,


    Leeza
  • KathyLQ
    KathyLQ Member Posts: 100
    #6
    Heidi
    I'm sending you my biggest HUG!
  • Boppy_of_6
    Boppy_of_6 Member Posts: 1,138
    #7
    KathyLQ said:

    Heidi
    I'm sending you my biggest HUG!

    Heidi
    I am so soryy for the news you received. My prayers and thoughts are with you. God Bless
    (((Hugs))) Janice
  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    #8
    Heartbreaking...
    Absolutely the worst sort of update - what we all fear. Damned evil beast has a mind of its own...

    With continued prayers, I'm sincerely hoping the collaboration between doctors will result in a more positive prognosis, Heidi. Including relief from your pain as quickly as possible.

    I have typed the following words too many times here on the board: I really, really wish I had a magic wand...

    Wishing you inner strength and resolve, to continue the good fight.

    Kindest regards, Susan
  • weazer
    weazer Member Posts: 440
    #9
    Christmas Girl said:

    Heartbreaking...
    Absolutely the worst sort of update - what we all fear. Damned evil beast has a mind of its own...

    With continued prayers, I'm sincerely hoping the collaboration between doctors will result in a more positive prognosis, Heidi. Including relief from your pain as quickly as possible.

    I have typed the following words too many times here on the board: I really, really wish I had a magic wand...

    Wishing you inner strength and resolve, to continue the good fight.

    Kindest regards, Susan

    Heidi, I'm so sad...
    to hear this news, You are in my prayers and I hope they can find a way to help you!
    And is there anyway to manage your pain?
    Your Doctors will also be in my thoughts that they will be able to find a way make your pain managable and that they can come up with a chemo that will help.
    I too am triple negative:(
    Lots of Hugs and well wishes coming your way.
    Karie
  • sal314
    sal314 Member Posts: 599 Member
    #10
    So, So Sorry...
    it truly sucks! My thoughts and prayers are with you.

    Have you looked into "Therasphere" radiation therapy for your liver mets? It's somewhat new and not available everywhere, but they are finding it to be very promising for liver cancer and liver mets. If you google "Therasphere Therapy" you should find a link to their webesite.

    They place little glass beads directly into the liver through an artery in the leg. The radiation from the beads kills the liver mets without killing other healthy surrounding tissue. It's done on an outpatient bases and the side effects are minimal.

    I know that they will only do it if the cancer hasn't spread too far. But you could still be a canadate even with a few mets elsewhere. It may be worth looking into as it could give you more time. As for the doctor's prognosis, remember they are only doctor's and are giving you their best guess! I have several friends that had liver mets and mets to other areas that were told they only had months, but lived for quite a bit longer!

    I know it's not what anyone want to hear, but you have to keep fighting and make the most of everyday. Oh...and the doctor's should be able to control your pain! You may want to look into seeing a pain specialist. There is no reason cancer patiences have to be in pain these days.

    Blessings,

    Sally
  • smalldoggroomer
    smalldoggroomer Member Posts: 1,184
    #11
    I don't know what to say. I
    I don't know what to say. I am so Sad, Mad, Heartbroken. I wish I could say some thing that would make it all better. I wish I could give you a hug. some times this dam beast makes me feel so helpless.

    Heidi, I want you to know I think about you all the time. You are in my prayers, and I believe they work. I also have IBC and this could very well be me some day going through what you are going through. I wish I could stop it for you. I pray Meena's Dr can help. God be with you darlin. I am by your side even though I'm far away. Take care Your sister Kay
  • aisling8
    aisling8 Member Posts: 1,627 Member
    #12
    sal314 said:

    So, So Sorry...
    it truly sucks! My thoughts and prayers are with you.

    Have you looked into "Therasphere" radiation therapy for your liver mets? It's somewhat new and not available everywhere, but they are finding it to be very promising for liver cancer and liver mets. If you google "Therasphere Therapy" you should find a link to their webesite.

    They place little glass beads directly into the liver through an artery in the leg. The radiation from the beads kills the liver mets without killing other healthy surrounding tissue. It's done on an outpatient bases and the side effects are minimal.

    I know that they will only do it if the cancer hasn't spread too far. But you could still be a canadate even with a few mets elsewhere. It may be worth looking into as it could give you more time. As for the doctor's prognosis, remember they are only doctor's and are giving you their best guess! I have several friends that had liver mets and mets to other areas that were told they only had months, but lived for quite a bit longer!

    I know it's not what anyone want to hear, but you have to keep fighting and make the most of everyday. Oh...and the doctor's should be able to control your pain! You may want to look into seeing a pain specialist. There is no reason cancer patiences have to be in pain these days.

    Blessings,

    Sally

    Praying
    I am praying for a miracle.

    xoxoxo
    Victoria
  • sea60
    sea60 Member Posts: 2,613
    #13
    smalldoggroomer said:

    I don't know what to say. I
    I don't know what to say. I am so Sad, Mad, Heartbroken. I wish I could say some thing that would make it all better. I wish I could give you a hug. some times this dam beast makes me feel so helpless.

    Heidi, I want you to know I think about you all the time. You are in my prayers, and I believe they work. I also have IBC and this could very well be me some day going through what you are going through. I wish I could stop it for you. I pray Meena's Dr can help. God be with you darlin. I am by your side even though I'm far away. Take care Your sister Kay

    I am so saddened by this news
    I too, am praying for you. God I wish they can finally wipe out cancer! I HATE it!
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #14
    Jeeez Heidi...I wish I knew
    Jeeez Heidi...I wish I knew what to say, and how to help. I do hope you won't have to travel to see Dr. C., and that he'll have some ideas that will help.

    Know that I think about you and pray for you every day.

    Huge hugs,

    Linda
  • 2Floridiansisters
    2Floridiansisters Member Posts: 384 Member
    #15
    Gabe N Abby Mom said:

    Jeeez Heidi...I wish I knew
    Jeeez Heidi...I wish I knew what to say, and how to help. I do hope you won't have to travel to see Dr. C., and that he'll have some ideas that will help.

    Know that I think about you and pray for you every day.

    Huge hugs,

    Linda

    I'm just heartbroken to read this......
    I am also praying for a miracle.
  • Bella Luna
    Bella Luna Member Posts: 1,578 Member
    #16
    Heidi I am so sorry to hear
    Heidi I am so sorry to hear the news. This is such a wicked disease. I will pray for a miracle and for the doctors do something for the pain. Bear Hugs and cheek peck to you dear Sister.
    BL
  • Aortus
    Aortus Member Posts: 967
    #17
    aisling8 said:

    Praying
    I am praying for a miracle.

    xoxoxo
    Victoria

    Like Sally and Victoria
    Moopy and I will continue to pray for you!
  • Heatherbelle
    Heatherbelle Member Posts: 1,226 Member
    #18
    Oh Heidi please know I'm
    Oh Heidi please know I'm keeping you in my prayers, and you're in my mom's as well. I hope they can find that drug that will help you.
    *love and hugs*
    Heather
  • KathiM
    KathiM Member Posts: 8,028 Member
    #19
    I saw your post on FB....
    ...just like there, words escape me. I am sad, and mad and all sorts of emotions with your news. I wish I could just make it go away!!!!!!

    I am putting my arms around you, sweet soul...can you feel them???

    Hugs, Kathi
  • Sunrae
    Sunrae Member Posts: 808
    #20
    Bella Luna said:

    Heidi I am so sorry to hear
    Heidi I am so sorry to hear the news. This is such a wicked disease. I will pray for a miracle and for the doctors do something for the pain. Bear Hugs and cheek peck to you dear Sister.
    BL

    Heidi, Your latest news just
    Heidi, Your latest news just makes all of us sick of heart. You're a strong courageous woman for sharing this with us. Don't give up, drs. aren't always right. Hopefully, something will come along to help you. You are in our thoughts and prayers. Also hope for pain relief too.
  • Pinkpower
    Pinkpower Member Posts: 437
    #21
    Sending you strength, love
    Sending you strength, love and Hope. May you have a Great Xmas with family and friends. I will be praying for you.

    Lupe

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