Just venting

cbeckman
cbeckman Member Posts: 14
edited March 2014 in Caregivers #1
Im 40 years old and taking care of my mom who has stage 4 stomach cancer. I have nobody to help me, nobody to count on or talk to. My moms been doing fairly good for what she has and up until the day before yesturday, I thought she was going to be ok for a while. Monday we talked about going in and getting rehydrated, and talking to the doc about maybe getting a feeding tube to get some nurishment in her. She was ok with all this. sh had an appointment with the oncologist yesturday so she wanted to wait and talk to him then. Then things changed suddenly changed. Monday night she was a little disoriented. Tuesday morning she was a little more disoriented. She told me to take the ceiling fan out of the door, then she couldnt find the restroom even though she was right by it. then I found her going potty on a trash can. I called her doc, told them (the receptionist) that she wasnt going to make the appointment that I was going to take her to the hospital. Then I helped my mom, back to the bedroom, told her to rest for a little bit so I could take my son to school. He was late, I took him at 9:30. the school is across the street from my house so I was only gone 10mins enough to take him, sign him in and come back home. when I got home she was sleeping. Noing she hasn't slept much the last couple of days, I thought I would let her rest for a little bit and when she got up I would take her. I had an appointment for myself at 10:15 so I decided to go to that, had my neighbor check on her,and was home by 11:30. When I got home she was still sleeping, but now she is making weird breathing noises. I tried to wake her up, but she wouldnt get up for nothing. I called 911, they came and took her to the local hospital. They said her eyes were fixated and believed she overdosed on her pain meds. I dont understand that because I moniter EVERYTHING she does, she doesn't take the full dose (its liquid morphine) and she vomits everything up that she swallows. then they told me she was having a siesure and took off. I followed and arrived when she did. When she came to she was extremely combative and delusional. They wanted her to be admitted and I asked them if they could transport her to the hospital that she is treated at for the cancer *we live in michigan and her doc is in Indiana 20mins away)After talking to her Doc, the did the transfer. I called my brother who hasnt seen or talked to her in almost a year, he lives about 15 miles from me. After he found out she had cancer, he never called, never came to see her, never did anything at all. The last time he seen her she waighed 160, now she is only 106. He showed up at the hospital, yelled at me told me to f myself said I'm not taking care of my mom, told me I should know why she is in this state and blamed me for everything, then told me to F myself. I keep track of EVERYTHING, how mush she eats, drinks, meds, how often she uses the restroom, her temperature, when she goes to the doc, what she they do for her... There is no way I could do more. I have a book I carey with me and right everything down, along with researching everything. There is not a question the Doc's can ask me that Idont have an answer for. Then he decides to get in my face, over my mom in the hospital bed and demand answers on what I did that caused her to be in this condition. M y brother is a mean alcoholic and not seeing her for a year or talking to her, I can understand why he would be in shock to see her like this, But It was SO HARD to have to go through all that! I just told him everything that happened, what I did, what the Doc said and if he needed more answers to call the Doc, I dont have them. He did talk to the doc, I dont know what was said cuz he left the room, but he came back being a little nicer to me, just a little. He left, then they were getting ready to run more tests, so I left. I came home a fell asleep. I woke up to my boyfriend walking in the door Yelling at me because I didnt get his tire fixed today like I was supposed too, Everyday he finds something new to yell at me for. I have to work, take care of my mom, take care of my 8yr old son, do all the house stuff... I do everything! No help at all! I miss a lot of work becasue if my moms not feeling well, I stay with her, I miss to take her to appointments. I'm falling behind on everything and now, I am getting yelled at by everyone! I so cant stand this!!!!!! I want to just pack up and leave, I really think that once this all blows over I will sell my house and get away from everyone. When ever anyone needs something, they call me, I'm the only one that does anything, but now I need help, and all I get is yelled at, disrespected and treated like crap. I love my mom and I am going to see her through this, but nobody seems to care about anyone but themselves and I am trying so hard to keep it together but they are waring me down. My mom, I can handle taking care of her, I have been through cancer a few times with people, so I know what to look for and I know the end result. I am strong enough to handle it. But I cant handle the treatment I am getting from the lazy, selfish people around me that say they love me, but treat me so horribly. The ironic thing is, the Doc always asks my opinion on thing because I keep a detailed record of everything that goes on with her. So now that I have released this, I'm going to do a little more research then off to bed so I can be at the hospital at 6am to see the Doc when he makes his rounds. Goodnight and sorry if you read this, it was just me needeing to vent!

Comments

  • mswijiknyc
    mswijiknyc Member Posts: 421
    Honey I been there done that
    Honey I been there done that got the damn T shirt. I'm going thru the same thing w my husband. It's a rough row to hoe and if you ever need something you let me know.
  • HeartofSoul
    HeartofSoul Member Posts: 729 Member
    Candy,(CBeckman) Your doing
    Candy,(CBeckman) Your doing all that you can and then going the extra mile each and everytime. Its who you are, your identity, what you expect from yourself. Your heart is what defines you right? It can be frustrating and exhasting being a caregiver, employee, mother, spouse, meeting deadlines and finding time for yourself. Despite the lack of appreciation others express to you, always remember one thing. You step up for others during both good times and difficult times and you do it because giving of yourself to others is who you are. Your compassionate, determined, and want to make a difference.
    Dont change, the world needs more human beings like you


    Cancer, a Common Bond to the Ultimate Test of Friendship

    "Our Time to Heal"

    Being diagnosed with cancer
    separates our friends from pretenders
    Cancer provides a litmus test
    for those who we can trust
    Because our quest is to survive
    and do all that we can to thrive
    No cancer patient should be left to ask why

    Why a brother is now elusive as a butterfly
    Or why a spouse has now misplaced their loyalty
    You slowly see a difference in your friends
    and while you try to justify their actions
    its not something you can honestly defend
    Sometimes it feels as if you’re just a distraction

    When we return to our work environment
    Our colleagues seem to have misplaced their sentiment
    We spend many days reflecting on what we did wrong
    But we do not find anything that suggests we do not belong

    As we look for a kinder and more gentler world
    We remember the songs that we grew up with
    You remember those favorite places with those greener pastures
    And the acorns that attracted nature’s playful squirrels

    Some of us turn to reading and writing
    Others discover the little things in life
    We try and find a common bond
    With others that we have come to be very fond

    We walked many of the same rugged rock formations
    And know in our hearts
    that each of us had our moment of quiet celebrations
    as our lives have taken a new path with a new start

    We are hurt that those of us that we thought we could count upon
    Gradually slipping away from us, eerily setting just below the sun
    We have no answer when our friends appear in distant shadows
    And find inside our soul an aching feeling which is ever so hollow

    We have not changed nor do we intend to
    We will always take the high ground as its our creed
    and be there for others in need cause they are human too
    Even for those who abandoned us in our time of greatest need

    by Steve Heart of Soul
    2 time cancer survivor and caregiver to others, both family and friends,
  • Vicky DeRosia
    Vicky DeRosia Member Posts: 17
    Funny I am reading your
    Funny I am reading your story tonight my mom is acting the same way but we are at the hospital been here since Sunday tonight she is seeing snowmobiles in the room the doctors aren't sure why all of this is happening other than now after 3 months with stint ,kidney now is not working,My mom has really gone down hill since her last chemo.But really wants to live to see christmas.My sisters and I rushed to hospital Sunday told mom may not make it, so after they found out she probably will live a little longer guess what they all left and I a have been here day and night since because mom pantics if I am not right there.Don't get me wrong they do help I told them we all have drifferent strengths if they need a break take it because the worse hasn't hit us yet so get rested, the problem is they really aren't getting rested or have come to give me a little break without wanting me to put out other family fires it is crazy!I feel as if my mom can't even die in peace or grace because they keep telling her their promblems and she worries about them.I am just venting and tired.I have never seen my mom cry so much ,hurt so much, and so confused it is a little scary and dishearting.And I love her so much.She wants to keep fighting I really think the end is coming.But back to you some family members can not face the person being sick because they can't fix it and they are angry with themselves and need to blame someone so right now they are comfortable with blaming you and deep down they know you wouldn't hurt your loved one they themselves feel helpless.They need prayers.You just keep doing what you are so you know what you did was right for and your love one .Your brother needs to come to his own terms his own way on what is happening.God bless you!
  • cbeckman
    cbeckman Member Posts: 14

    Honey I been there done that
    Honey I been there done that got the damn T shirt. I'm going thru the same thing w my husband. It's a rough row to hoe and if you ever need something you let me know.

    Thanks you. Hope things get
    Thanks you. Hope things get better for you as well.
  • cbeckman
    cbeckman Member Posts: 14

    Candy,(CBeckman) Your doing
    Candy,(CBeckman) Your doing all that you can and then going the extra mile each and everytime. Its who you are, your identity, what you expect from yourself. Your heart is what defines you right? It can be frustrating and exhasting being a caregiver, employee, mother, spouse, meeting deadlines and finding time for yourself. Despite the lack of appreciation others express to you, always remember one thing. You step up for others during both good times and difficult times and you do it because giving of yourself to others is who you are. Your compassionate, determined, and want to make a difference.
    Dont change, the world needs more human beings like you


    Cancer, a Common Bond to the Ultimate Test of Friendship

    "Our Time to Heal"

    Being diagnosed with cancer
    separates our friends from pretenders
    Cancer provides a litmus test
    for those who we can trust
    Because our quest is to survive
    and do all that we can to thrive
    No cancer patient should be left to ask why

    Why a brother is now elusive as a butterfly
    Or why a spouse has now misplaced their loyalty
    You slowly see a difference in your friends
    and while you try to justify their actions
    its not something you can honestly defend
    Sometimes it feels as if you’re just a distraction

    When we return to our work environment
    Our colleagues seem to have misplaced their sentiment
    We spend many days reflecting on what we did wrong
    But we do not find anything that suggests we do not belong

    As we look for a kinder and more gentler world
    We remember the songs that we grew up with
    You remember those favorite places with those greener pastures
    And the acorns that attracted nature’s playful squirrels

    Some of us turn to reading and writing
    Others discover the little things in life
    We try and find a common bond
    With others that we have come to be very fond

    We walked many of the same rugged rock formations
    And know in our hearts
    that each of us had our moment of quiet celebrations
    as our lives have taken a new path with a new start

    We are hurt that those of us that we thought we could count upon
    Gradually slipping away from us, eerily setting just below the sun
    We have no answer when our friends appear in distant shadows
    And find inside our soul an aching feeling which is ever so hollow

    We have not changed nor do we intend to
    We will always take the high ground as its our creed
    and be there for others in need cause they are human too
    Even for those who abandoned us in our time of greatest need

    by Steve Heart of Soul
    2 time cancer survivor and caregiver to others, both family and friends,

    THank you Steve! That is
    THank you Steve! That is very beautiful! You should definitly publish it. I think your words would help so many of us. Thank you again.
  • cbeckman
    cbeckman Member Posts: 14

    Funny I am reading your
    Funny I am reading your story tonight my mom is acting the same way but we are at the hospital been here since Sunday tonight she is seeing snowmobiles in the room the doctors aren't sure why all of this is happening other than now after 3 months with stint ,kidney now is not working,My mom has really gone down hill since her last chemo.But really wants to live to see christmas.My sisters and I rushed to hospital Sunday told mom may not make it, so after they found out she probably will live a little longer guess what they all left and I a have been here day and night since because mom pantics if I am not right there.Don't get me wrong they do help I told them we all have drifferent strengths if they need a break take it because the worse hasn't hit us yet so get rested, the problem is they really aren't getting rested or have come to give me a little break without wanting me to put out other family fires it is crazy!I feel as if my mom can't even die in peace or grace because they keep telling her their promblems and she worries about them.I am just venting and tired.I have never seen my mom cry so much ,hurt so much, and so confused it is a little scary and dishearting.And I love her so much.She wants to keep fighting I really think the end is coming.But back to you some family members can not face the person being sick because they can't fix it and they are angry with themselves and need to blame someone so right now they are comfortable with blaming you and deep down they know you wouldn't hurt your loved one they themselves feel helpless.They need prayers.You just keep doing what you are so you know what you did was right for and your love one .Your brother needs to come to his own terms his own way on what is happening.God bless you!

    I am sorry for you too. I'm
    I am sorry for you too. I'm finding that if one person steps up for the needs of a family member, the rest of the family pretty much excuses themself. I think in thier mind they feel that the cancer patient is being taking care of so they don't need to put forth as much effort. Everyone shows up when they think the end is near, but they don't want to inconvenience themselfs through the journey of getting there. We need to remember that WE are the ones that have given ALL that we can, The person we care for knows what we are doing and for me, that gives me strangth. In this battle I have had some really close times with my mom, over the weekend we laughed about shaving her head because her hair is starting to fall out. I told her I would buy her a nit hat and glue he hair to it and nobody would ever know she looks like Mr. Clean. Than we laid in her bed and watched Charlie St. Cloud. I was teaching her how to play games on the computer..That didn't go so well, but it was fun. We have our good times that the rest of them will miss out on. But I think in this horrible time of my mom's cancer, that thing I will always charish the most is yesturday. She is still in and out of it, she remembers me, then doesn't. But I was really sick yesturday, I still made it up to the Hospital at 6am. I was resting on the rail of her bed with my head down on it, She was telling the nurse to remove the "chains" on her bed, then she looked at me, started rubbing my hair and was singing me a lullaby. That right there was worth everything!
    As for my brother, he is getting worse, I get chewed out again, because I am the power of attorney. After getting screamed at I had to remind him, that he wasnt there, and didnt want to be. Mom maid the decisions she wanted. I told him that he is more than welcome to be apart of this and There in no reason to be fighting. It's just unreal, how this is turning out. I've heard other familys talk about how they fight and what not, but I never dreamed I would be put into this position. Why can't people over look, their greed and just try to do whats best for their loved one. If my mom had her witts about her, she would be so hurt to see this. Dispite every effort I do to make it stop, He just keeps coming back with more. My brother is a mean Alcoholic, and he's bringing it to the hospital. My mom doesnt need to see this and I don't need it either! if he wants to help than help, but leave the attitude at the bar.
  • grandmafay
    grandmafay Member Posts: 1,633 Member
    Venting Is Good
    It is good to vent and many here understand what a difficult journey this is. I don't have anything to add to what others have said. I just want you to remember that you are doing the best you can. That is the most you can expect of yourself. Don't let others lay guilt trips on you for anything. Your priorities need to be your mom and your son. The others are adults and they can take care of themselves. Obviously, your brother is trying to throw his guilt trip on you. If he yells at you, walk away. You don't have to put up with that. The same goes for the boyfriend. Yelling and bad language is not acceptable. You have enough on your plate without that. Be sure that you are getting enough rest, too. I know that's not easy, but you need to take care of yourself for that little boy. Hugs and prayers, Fay
  • cbeckman
    cbeckman Member Posts: 14
    I want to thank everyone for
    I want to thank everyone for your posts, it has helped tramendisly! Although my brother is still giving me a hard time, he now has a better understanding based on information he is recieving. I will be deleting this blog (if possible) So I can direct my brothers attention to this website in hopes that it will help answer his questions/confusions as it has helped me. Once again thank you So very much.

    Steve (heartofsoul) Hope you dont mind that I printed your poem. I have it with my mix off memories (things I like to keep)Thank you for that.
  • HeartofSoul
    HeartofSoul Member Posts: 729 Member
    cbeckman said:

    I want to thank everyone for
    I want to thank everyone for your posts, it has helped tramendisly! Although my brother is still giving me a hard time, he now has a better understanding based on information he is recieving. I will be deleting this blog (if possible) So I can direct my brothers attention to this website in hopes that it will help answer his questions/confusions as it has helped me. Once again thank you So very much.

    Steve (heartofsoul) Hope you dont mind that I printed your poem. I have it with my mix off memories (things I like to keep)Thank you for that.

    thank you for printing the
    thank you for printing the poem as I hope you gain strength from it. I also have your mom in my prayers. she is lucky to have you
  • mukamom
    mukamom Member Posts: 402

    thank you for printing the
    thank you for printing the poem as I hope you gain strength from it. I also have your mom in my prayers. she is lucky to have you

    What a
    nightmare from your brother and boyfriend and what strength you have taking care of your mom! She is so lucky to have you as a daughter, helping her to fight this beast.

    I know you can't lose the brother, but I would sure lose the boyfriend (just sayin). You don't have to take that crap. Not even in the best of times and certainly not now.

    Vent away..we will listen and support you!

    Merry Christmas

    Angela
  • This comment has been removed by the Moderator