Mayo Clinic, Hondo & NED all go together

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Hondo
Hondo Member Posts: 6,636 Member
edited March 2014 in Head and Neck Cancer #1
Well there is some very good news from the Mayo Clinic. They did a biopsy on me and it came back NED for any C, they still want to review the MD Anderson PET scan for a final judgment but as the doctor said with the biopsy being negative on any cancer she don’t think anything will change.

As far as to why I am in so much pain they can’t really said only advise me on how to manage it. There is a lot of swelling in the head this is due to being treated twice with radiation, and as the doctor said I am one of the very lucky one to be in the condition I am in.

Anyway I will keep my appointment now with MD Anderson on the 1st & 2nd of next month and hope I can find more answers to the question about pain and weakness.

To all of you my CSN family I greatly appreciate all your thought and prayers in our behalf

Hondo
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Comments

  • luv2cut1
    luv2cut1 Member Posts: 288
    #2
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    Hondo that is great!
    Hondo,
    That is fantastic news! I just wish they could know for sure the cause of your pain! Here is to them being able to treat it successfully and return you to a good quality of life. Prayers with you always.
    Myka
  • Hondo
    Hondo Member Posts: 6,636 Member
    #3
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    luv2cut1 said:

    Hondo that is great!
    Hondo,
    That is fantastic news! I just wish they could know for sure the cause of your pain! Here is to them being able to treat it successfully and return you to a good quality of life. Prayers with you always.
    Myka

    Myka
    Thank you so much for the prayers, some how the pain don't hurt so much now that I know it is not cancer. The mind is a very strong tool sometimes
  • staceya
    staceya Member Posts: 720
    #4
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    Hondo said:

    Myka
    Thank you so much for the prayers, some how the pain don't hurt so much now that I know it is not cancer. The mind is a very strong tool sometimes

    What a blessing! I am so
    What a blessing! I am so relieved for you.
    Hopefully, you will get some ideas for pain relief at your next appt.
    Stacey
  • Hondo
    Hondo Member Posts: 6,636 Member
    #5
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    staceya said:

    What a blessing! I am so
    What a blessing! I am so relieved for you.
    Hopefully, you will get some ideas for pain relief at your next appt.
    Stacey

    Hi Stacey
    Thanks and yes you are right maybe the next doctor will be the one for the pain.

    I do want to share with all who has NPC cancer there is a ENT doctor here at the Mayo clinic who has worked with a lot of us NPC cancer people and really knows what she is doing and know what she is seeing. I was very relaxed after meeting her and having her do the biopsy right in her office without putting me under.

    Thanks again and take care
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #6
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    Swelled Head
    I didn't really think of you having a swelled head when we met and had dinner in Tampa....:)

    Glad there are no signs of cancer, definitely good news there. Hoping that fishing trip will be in the near future....

    Best always bro, give your wife a hug, and hope the son is doing well also.

    John
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #7
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    Skiffin16 said:

    Swelled Head
    I didn't really think of you having a swelled head when we met and had dinner in Tampa....:)

    Glad there are no signs of cancer, definitely good news there. Hoping that fishing trip will be in the near future....

    Best always bro, give your wife a hug, and hope the son is doing well also.

    John

    Great news. So glad if came
    Great news. So glad if came back NED. Now hopefully they can get to the bottom of the pain and fix that.
  • Pam M
    Pam M Member Posts: 2,196
    #8
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    Good to Hear
    THAT's the news we were waiting for. Hoping for more good news to come.
  • adventurebob
    adventurebob Member Posts: 691
    #9
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    Hallelujah
    That's some good news. Praying for your pain relief and continued healing. Hang in there Hondo. It'll get better soon. All my best to you.

    Bob
  • Scambuster
    Scambuster Member Posts: 973
    #10
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    adventurebob said:

    Hallelujah
    That's some good news. Praying for your pain relief and continued healing. Hang in there Hondo. It'll get better soon. All my best to you.

    Bob

    Way to go Hondo !!!
    Yeahh - excellent news my friend. Tears of joy for you. Wow what a relief for you and all of us here. I'm over the moon.. Now we will all beam some good energy over your way to find and fix your pain Hondo, and I'm sure it can be done. You have overcome many difficulties to get here so I am confident the doctors will find a way to make the pain go away and stay away.

    Enjoy the great news and relief.
    Scam
  • stevenl
    stevenl Member Posts: 587
    #11
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    Scambuster said:

    Way to go Hondo !!!
    Yeahh - excellent news my friend. Tears of joy for you. Wow what a relief for you and all of us here. I'm over the moon.. Now we will all beam some good energy over your way to find and fix your pain Hondo, and I'm sure it can be done. You have overcome many difficulties to get here so I am confident the doctors will find a way to make the pain go away and stay away.

    Enjoy the great news and relief.
    Scam

    NO C!!!
    Hondo, that is great news. Now get the pain under control. Wish they could tell you for sure what was causing it.

    All the best to you my friend,
    Steve
  • Jimbo55
    Jimbo55 Member Posts: 590 Member
    #12
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    Hondo My Man
    Great news Hondo, what a relief it must be. And just knowing it isn't cancer has to lessen the pain even just a bit. Cheers

    Jimbo
  • Glenna M
    Glenna M Member Posts: 1,576
    #13
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    Great news!!!
    Great news Hondo, there isn't much news that is better than hearing your biopsy came back negative for cancer.

    Hopefully they will soon be able to determine what is causing your pain and help you with that.

    Stay well,
    Glenna
  • rozaroo
    rozaroo Member Posts: 665
    #14
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    Glenna M said:

    Great news!!!
    Great news Hondo, there isn't much news that is better than hearing your biopsy came back negative for cancer.

    Hopefully they will soon be able to determine what is causing your pain and help you with that.

    Stay well,
    Glenna

    Way to go!
    Congratulation's on your wonderfull new's Hondo! I am so happy for you & your Family!
  • Landranger25
    Landranger25 Member Posts: 210 Member
    #15
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    rozaroo said:

    Way to go!
    Congratulation's on your wonderfull new's Hondo! I am so happy for you & your Family!

    Great news!
    Hondo that is good news. You have given so much to all of us here on CSN and I am so glad that you are doing well. I am sorry you are having to deal with the pain. I hope you/they can find a way to make this manageable for you. Take care and regards to your family. Keep it up.

    Mike
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #16
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    Good news!
    Great news! NED

    Like you plan and check out for more help.

    Do not like the pain and praying you find a way to deal with it.

    Hang in there.
  • denistd
    denistd Member Posts: 597
    #17
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    fisrpotpe said:

    Good news!
    Great news! NED

    Like you plan and check out for more help.

    Do not like the pain and praying you find a way to deal with it.

    Hang in there.

    No C
    My life and everybody's life on this forum just improved with this knowledge, God bless you and yours man. Denis
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #18
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    Oh Ya
    I love it when i look down the CSN board and see Hondo, Hondo, Hondo, Hondo stacked above each other in the post line.

    Keep them coming!
  • Pumakitty
    Pumakitty Member Posts: 652
    #19
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    fisrpotpe said:

    Oh Ya
    I love it when i look down the CSN board and see Hondo, Hondo, Hondo, Hondo stacked above each other in the post line.

    Keep them coming!

    I am so happy to read
    I am so glad to hear this good news. I hope they can get your pain under control. Have a wonderful holiday.

    Kathy
  • mixleader
    mixleader Member Posts: 267 Member
    #20
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    WooHoo
    Way, to go, Hondo. Some things just don't seem quite so bad when you know they're not cancer. I am happy for you and I sure hope that somebody can figure out your source of pain. Man, it's great to hear happy news like this.

    Roger
  • dennis318
    dennis318 Member Posts: 349 Member
    #21
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    mixleader said:

    WooHoo
    Way, to go, Hondo. Some things just don't seem quite so bad when you know they're not cancer. I am happy for you and I sure hope that somebody can figure out your source of pain. Man, it's great to hear happy news like this.

    Roger

    Glad for you!!
    Always seem to be the last, glad for ya Hondo. Take it easy of you can, Have a good weekend everyone! Dennis

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