Eating, the Aftermath

soccerfreaks
soccerfreaks Member Posts: 2,788 Member
edited March 2014 in Head and Neck Cancer #1
So, here is the aftermath and the final word from me on the subject (for now). Even when it seems like the end of the world, it is not. Remember that I had my surgery in October of 2005, more than five years ago (followed by chemo and rads), and am only now, for whatever reason (and I sincerely do not know why) getting it back together, it seems.

Patience is a virtue, it is said, and in this case, it rests its case for me.

I cannot begin to explain the frustration that my wife and I endured, that my entire family endured, as I tried to eat in the past, the missed meals, the missed celebrations, the gaggings, the horrendous throat clearings, the dire attempts by loved ones close and afar to find something that would pass through what was my apparently narrow gateway to nirvana.

Trust me: they tried. My wife, bless her, has done every possible thing to find things that I can eat. And largely failed in the past. My family has sent recipe after recipe. Our friends have made sure to include something, at every venue I DID venture to attend, that I might eat.

Usually, all, in failure. My failure. And that only made it harder and harder to get back on the proverbial saddle, to ride again, especially in the public rodeo. It is so easy under those circumstances to shun the picnics, the parties, the grand affairs, and it is SO much easier for the wife (or hub as the case may be) to finally accept your denial, your refusal, and to go without you, until, finally, as my wife has pointed out to me: Your friends have not left you; you have left your friends.

It is so. It was so. I never stopped loving them, of course. I am not made that way. But I left them. At some point, inadvertently, I left them. The food thing. The social part of food. And so cancer ran me away from them even when I didn't mean for it to happen.

Cancer is like that, and I try to tell people that: cancer will take more than it is designed biologically to take if you let it.

I let it.

Fortunately, friends are stronger than cancer, and, certainly, family is stronger than cancer. Mine, anyway.

In the meantime, again, I cannot, despite my furious analysis, figure out exactly why I am eating again, eating so well, relatively speaking.

I bring it to your attention only to give you hope. There was a time when I really thought I would never eat steak again. I now know that it will happen (I don't count prime rib :)).

It will happen.

Not only that but, while they are all still eating faster than me, I am now watching the clock...and I am not yet Usain Bolt, but I am getting faster :).

Take care, my friends.

Comments

  • D Lewis
    D Lewis Member Posts: 1,581 Member
    Eloquent closing words.
    Especially the part about cancer taking more than it is biologically designed to take, if we let it. That part has happened to us all. I guard against it daily.

    Continue to live well, my friend.

    Deb
  • soccerfreaks
    soccerfreaks Member Posts: 2,788 Member
    D Lewis said:

    Eloquent closing words.
    Especially the part about cancer taking more than it is biologically designed to take, if we let it. That part has happened to us all. I guard against it daily.

    Continue to live well, my friend.

    Deb

    :)
    Thank you ma'am...you do the same!

    Take care,

    Joe
  • Hondo
    Hondo Member Posts: 6,636 Member
    Cancer & Friends
    Very well said Joe somehow we do let the cancer take away more than just our life we allow it to take away people who care about us a lot. I Hope you continue to do well and keep strong.
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    Hondo said:

    Cancer & Friends
    Very well said Joe somehow we do let the cancer take away more than just our life we allow it to take away people who care about us a lot. I Hope you continue to do well and keep strong.

    Thank you.
    Thank you. <3
  • soccerfreaks
    soccerfreaks Member Posts: 2,788 Member

    Thank you.
    Thank you. <3</p>

    :)
    We are getting faster, my friend, we are getting faster :)

    Take care of yourself. The future is a lot more fun than the past.

    Joe
  • buzz99
    buzz99 Member Posts: 404

    :)
    We are getting faster, my friend, we are getting faster :)

    Take care of yourself. The future is a lot more fun than the past.

    Joe

    Well said, soccerfreaks!
    You are so eloquent. Eating is indeed social. Once Buzz is well enough, we will get out more and socialize even if he cannot partake in the meal. We have missed quite a few gatherings already but our absence has been due to Buzz being too sick to attend. Thanks for your words of wisdom!
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    buzz99 said:

    Well said, soccerfreaks!
    You are so eloquent. Eating is indeed social. Once Buzz is well enough, we will get out more and socialize even if he cannot partake in the meal. We have missed quite a few gatherings already but our absence has been due to Buzz being too sick to attend. Thanks for your words of wisdom!

    Buzz
    Hmm. Your statement, 'even if he cannot partake in the meal' just has me thinking. Please realize I am only speaking for myself. Being a very cranky and frustrated person I could not find it in me to attend events where food is served even tho I couldn't eat. It was just torture to smell it and see it. :( just a heads up if It is too hard for him. I would just come home and cry and cry.... Some people are in the eat just to live camp and I was in the live to eat camp. I've always been pretty food obsessed. It's still tough to eat with others even tho I can eat and swallow a little better now.
  • soccerfreaks
    soccerfreaks Member Posts: 2,788 Member

    Buzz
    Hmm. Your statement, 'even if he cannot partake in the meal' just has me thinking. Please realize I am only speaking for myself. Being a very cranky and frustrated person I could not find it in me to attend events where food is served even tho I couldn't eat. It was just torture to smell it and see it. :( just a heads up if It is too hard for him. I would just come home and cry and cry.... Some people are in the eat just to live camp and I was in the live to eat camp. I've always been pretty food obsessed. It's still tough to eat with others even tho I can eat and swallow a little better now.

    was eater to live, now converted :)
    It is the scents, the sounds, even memories, that pain us most, I think, that offer the most frustration, although desire has to be right up there at the top, along with the emptiness in the stomach.

    And the social aspect of eating? Too huge a subject to get into here.

    People don't get that. I don't think they CAN get that. But they do try, they try.

    Take care,

    Joe
  • micktissue
    micktissue Member Posts: 430

    was eater to live, now converted :)
    It is the scents, the sounds, even memories, that pain us most, I think, that offer the most frustration, although desire has to be right up there at the top, along with the emptiness in the stomach.

    And the social aspect of eating? Too huge a subject to get into here.

    People don't get that. I don't think they CAN get that. But they do try, they try.

    Take care,

    Joe

    Brilliant Joe
    In July I attended the Relay for Life here in Petaluma. I kept, politely, turning down food when it was offered because I could not swallow a thing. People didn't seem to get it. I kept being offered different things to "try" to eat, as if I wasn't trying. Eventually I started to respond by asking for a blender and taking the tube and syringe out. People then started to get the story and a bit queasy.

    I think it is very difficult, unless you've walked this road, to get how socially pervasive eating is. It not something you think about, it is something you do while you are being with people. It is quite fascinating and probably needs a few books on the subject (Joe, how about it?).

    I ate last night, and have been eating since early Nov just about anything I've wanted. it's not easy and takes me about 3 times as long as everyone else to get through it, but I'm eating. I just finished off the left over burger form last night. If I did not need to flush the tube of the backwash I'd be 100% oral imbibation, through the mouth, over the teeth, and down the throat, that is. I think the tube is coming out soon.

    Best,

    Mick
  • JUDYV5
    JUDYV5 Member Posts: 392

    Brilliant Joe
    In July I attended the Relay for Life here in Petaluma. I kept, politely, turning down food when it was offered because I could not swallow a thing. People didn't seem to get it. I kept being offered different things to "try" to eat, as if I wasn't trying. Eventually I started to respond by asking for a blender and taking the tube and syringe out. People then started to get the story and a bit queasy.

    I think it is very difficult, unless you've walked this road, to get how socially pervasive eating is. It not something you think about, it is something you do while you are being with people. It is quite fascinating and probably needs a few books on the subject (Joe, how about it?).

    I ate last night, and have been eating since early Nov just about anything I've wanted. it's not easy and takes me about 3 times as long as everyone else to get through it, but I'm eating. I just finished off the left over burger form last night. If I did not need to flush the tube of the backwash I'd be 100% oral imbibation, through the mouth, over the teeth, and down the throat, that is. I think the tube is coming out soon.

    Best,

    Mick

    Mick
    You truly just made my day.