I was shocked to learn....
because then they are (wait for it....) GLOATING!!!!!! What???????????????
I don't know about you all, but I CELEBRATE each and every piece of news that my family here share that show that their lives are returning to 'normal'....sigh....wow!
I also was in the trenches....as you all know...lost my hair, 65 pounds, and my ability to digest milk products. AND from the treatment to save my life now have the bones of a 90 year old woman...and I need to choose what I eat, depending on where I am going...lol!
The only gloating that I may do, at least my intention, is against the beast...I have stared it down twice!!!!
Hugs, Kathi
Comments
-
CELEBRATE
Celebrate and GLOAT all you want! You've earned it.
There is nothing better than hearing about those that have fought the beast and won. It gives hope to those of us still in battle.
If there is someone that doesn't think long-term survivors should share, they'll just have to ignore it. Way too many of us NEED you all to share and continue to give us HOPE!0 -
Where would it be?
If it wasn't for long time survivor's, where would our hope be, for us newbies?
I love each and every success story. You all gave me hope, and I will always be thankful for that!!!
Winter Marie0 -
just more idiot comments from idiot minds
That anybody would feel that a long term survivor is anything but inspiration is ridiculous! What else do the rest of us have to aspire to? I most certainly wish I could find myself in the category of long term NED! Kathi, you enjoy your life, it has definitely been hard won!
mary0 -
I love hearing people are doing well
It gives me hope and helps be believe that I too can become one of them.0 -
OMG!! I LOVE hearing frommsccolon said:just more idiot comments from idiot minds
That anybody would feel that a long term survivor is anything but inspiration is ridiculous! What else do the rest of us have to aspire to? I most certainly wish I could find myself in the category of long term NED! Kathi, you enjoy your life, it has definitely been hard won!
mary
OMG!! I LOVE hearing from the long term survivors!! It gives Rick and I so much hope of having a wonderful future together. For us, Craig, Phil and so many others are our inspiration. I know it's been very hard for them along the way, but just knowing that it's possible to make 7 years and counting (in Craig's case), gives us so much hope! I wish all long term survivors would log in and tell us their stories of survival. I want, no, need, Rick to be part of that very special club. May everyone out here become a member! Love to all, Cynthia0 -
I've heard this myth..
And I've searched the archives for "gloat" and "gloating", and
can't find any references to it.
Where or when did that myth start?
The closest thing I've found was awhile back:
"NED for three years - how about those of you who are NED for longer"
Any of us that have been lucky enough to have had decent
results from whatever "therapy" we took, aren't afraid to tell
someone else. I certainly don't feel that I would be "gloating"
to say that it's been four years after surgery with a clean slate.
But I do hate to say it too much, due to the natural fear that
I will somehow "jinx" myself..... Superstition? Maybe.... Yes.
Of course it's superstition. Who in their right mind wants to
"jinx" themselves?
But to make matters worse - Since I come across as hating
western medicine, and encourage TCM or other alternatives,
I can't help but get this "feeling" that someone somewhere is
rooting for my demise, just to "prove" that my choices are the
wrong choices.... My own surgeon insinuated as much.....
Yes, that's probably a pretty damned paranoid, cynical assumption,
but paranoia and cynicism comes with being a "different" thinker.
Seriously..... cancer is an insidious disease, and can strike any
one of us down regardless of what we do. If we're still alive,
it can be attributed to anything one wants to attribute it to, or
nothing at all. It can be deemed "sheer luck", for all it's worth.
On the new "long term survivors" forum, you might begin to
see the ravages of cancer; the scars of body and mind, that
comes from this damned dreaded malady called "cancer".
You can see what the ravages of treatment models can do
"long-term", and how it really should matter what route you
take in seeking a path through the battleground of cancer.
My long-term scars include a digestive system that will never
again operate properly due to surgical procedures. But I'm
fortunate to not have the scars from radiation poisoning, or
permanent neurological scars from toxic chemicals.
We all suffered, and there is absolutely nothing about having, or
having had cancer, to "gloat" about.
It's like having your house burn to the ground, or losing everything
in a tornado........ you lose a lot. Not losing your life, is nothing to
"gloat" over, or be "proud" about.
The losses aren't always as evident as they are to those that have lost.
May we all have better health!
John0 -
I hope that's not true!
Kathi, You + the other long-term survivors are nothing but pure inspiration + hope for. I cannot believe anyone would ever say there is "gloating" going on. I am really sorry if someone did say this. You + the others are nothing but supportive + for that I am truly grateful.0 -
JohnJohn23 said:I've heard this myth..
And I've searched the archives for "gloat" and "gloating", and
can't find any references to it.
Where or when did that myth start?
The closest thing I've found was awhile back:
"NED for three years - how about those of you who are NED for longer"
Any of us that have been lucky enough to have had decent
results from whatever "therapy" we took, aren't afraid to tell
someone else. I certainly don't feel that I would be "gloating"
to say that it's been four years after surgery with a clean slate.
But I do hate to say it too much, due to the natural fear that
I will somehow "jinx" myself..... Superstition? Maybe.... Yes.
Of course it's superstition. Who in their right mind wants to
"jinx" themselves?
But to make matters worse - Since I come across as hating
western medicine, and encourage TCM or other alternatives,
I can't help but get this "feeling" that someone somewhere is
rooting for my demise, just to "prove" that my choices are the
wrong choices.... My own surgeon insinuated as much.....
Yes, that's probably a pretty damned paranoid, cynical assumption,
but paranoia and cynicism comes with being a "different" thinker.
Seriously..... cancer is an insidious disease, and can strike any
one of us down regardless of what we do. If we're still alive,
it can be attributed to anything one wants to attribute it to, or
nothing at all. It can be deemed "sheer luck", for all it's worth.
On the new "long term survivors" forum, you might begin to
see the ravages of cancer; the scars of body and mind, that
comes from this damned dreaded malady called "cancer".
You can see what the ravages of treatment models can do
"long-term", and how it really should matter what route you
take in seeking a path through the battleground of cancer.
My long-term scars include a digestive system that will never
again operate properly due to surgical procedures. But I'm
fortunate to not have the scars from radiation poisoning, or
permanent neurological scars from toxic chemicals.
We all suffered, and there is absolutely nothing about having, or
having had cancer, to "gloat" about.
It's like having your house burn to the ground, or losing everything
in a tornado........ you lose a lot. Not losing your life, is nothing to
"gloat" over, or be "proud" about.
The losses aren't always as evident as they are to those that have lost.
May we all have better health!
John
Here's to a long happy life for you!0 -
Yipeeee
We need to celebrate everything and no matter how little it might seem to one, it might be a big celebration to another. Sharing anyone's experience is so important to this board. We love to hear their impact. Thanks for your struggles and the posts that you do. You help so many here.
Hugs! Kim0 -
Some people
are just idiots, if they say that. Celebration is in order for the long term survivors!
John, the board wouldn't be the same without you so screw (can I say that?) them if anyone thinks anything should happen to you. And if you're just being terribly paranoid about it ... they have herbs for that too! (said with love & a giggle)0 -
Kathy, I am so happy for
Kathy, I am so happy for those who get into remission! What are we fighting for if not that!There are days when I read about someone who is struggling and realize I am doing well, then there are the days when nothing makes me happy! those are just my "poor me days".
I can hardly wait for the day when this site is not needed because we are ALL doing great!
Jean0 -
Hey JohnJohn23 said:I've heard this myth..
And I've searched the archives for "gloat" and "gloating", and
can't find any references to it.
Where or when did that myth start?
The closest thing I've found was awhile back:
"NED for three years - how about those of you who are NED for longer"
Any of us that have been lucky enough to have had decent
results from whatever "therapy" we took, aren't afraid to tell
someone else. I certainly don't feel that I would be "gloating"
to say that it's been four years after surgery with a clean slate.
But I do hate to say it too much, due to the natural fear that
I will somehow "jinx" myself..... Superstition? Maybe.... Yes.
Of course it's superstition. Who in their right mind wants to
"jinx" themselves?
But to make matters worse - Since I come across as hating
western medicine, and encourage TCM or other alternatives,
I can't help but get this "feeling" that someone somewhere is
rooting for my demise, just to "prove" that my choices are the
wrong choices.... My own surgeon insinuated as much.....
Yes, that's probably a pretty damned paranoid, cynical assumption,
but paranoia and cynicism comes with being a "different" thinker.
Seriously..... cancer is an insidious disease, and can strike any
one of us down regardless of what we do. If we're still alive,
it can be attributed to anything one wants to attribute it to, or
nothing at all. It can be deemed "sheer luck", for all it's worth.
On the new "long term survivors" forum, you might begin to
see the ravages of cancer; the scars of body and mind, that
comes from this damned dreaded malady called "cancer".
You can see what the ravages of treatment models can do
"long-term", and how it really should matter what route you
take in seeking a path through the battleground of cancer.
My long-term scars include a digestive system that will never
again operate properly due to surgical procedures. But I'm
fortunate to not have the scars from radiation poisoning, or
permanent neurological scars from toxic chemicals.
We all suffered, and there is absolutely nothing about having, or
having had cancer, to "gloat" about.
It's like having your house burn to the ground, or losing everything
in a tornado........ you lose a lot. Not losing your life, is nothing to
"gloat" over, or be "proud" about.
The losses aren't always as evident as they are to those that have lost.
May we all have better health!
John
You are an inspiration to me. You make me *THINK*
No one in their right mind wants to see your demise.
-Pat0 -
Please continue 'gloating'
If what you do is "gloat" well then PLEASE continue to gloat. I find hope and happiness in your posts. You make me smile. You give me hope and encouragement. Celebrate/ gloat whatever...just keep on doing it for all our sakes
-Pat0 -
Yes, please gloat onJaylo969 said:Please continue 'gloating'
If what you do is "gloat" well then PLEASE continue to gloat. I find hope and happiness in your posts. You make me smile. You give me hope and encouragement. Celebrate/ gloat whatever...just keep on doing it for all our sakes
-Pat
John,
Yes, please gloat on
John, I love to read your posts. You take the time for every one and that can be very time consuming. You are entitled to speak your mind and your opinion matters.0 -
keep on gloating!
Kathi,
I HAVE to hear stories of survivorship- they give me hope. I would be very sad and discouraged if no survivor ever came on this board and told us how they are, and that they are still NED. I can only imagine that someone who would think it was gloating to talk about how they survived cancer is a very selfish person. WHY would anyone not rejoice in someone else beating the cancer beast? Maybe they are just so down that it's not them instead. Yeah, that's probably a normal thought..."Why can't that be me?" But, maybe it WILL in the future! Even if not, well I would definitely never want others to experience the demise of cancer too.
Please keep gloating, Kathi! (and I use that term with a smile- I don't think it's gloating at all- just sharing good news and giving others hope!)
Hugs,
Lisa0 -
just we need youlisa42 said:keep on gloating!
Kathi,
I HAVE to hear stories of survivorship- they give me hope. I would be very sad and discouraged if no survivor ever came on this board and told us how they are, and that they are still NED. I can only imagine that someone who would think it was gloating to talk about how they survived cancer is a very selfish person. WHY would anyone not rejoice in someone else beating the cancer beast? Maybe they are just so down that it's not them instead. Yeah, that's probably a normal thought..."Why can't that be me?" But, maybe it WILL in the future! Even if not, well I would definitely never want others to experience the demise of cancer too.
Please keep gloating, Kathi! (and I use that term with a smile- I don't think it's gloating at all- just sharing good news and giving others hope!)
Hugs,
Lisa
not sense to be here without people like you!
Hugs.0 -
may we all have better health!!John23 said:I've heard this myth..
And I've searched the archives for "gloat" and "gloating", and
can't find any references to it.
Where or when did that myth start?
The closest thing I've found was awhile back:
"NED for three years - how about those of you who are NED for longer"
Any of us that have been lucky enough to have had decent
results from whatever "therapy" we took, aren't afraid to tell
someone else. I certainly don't feel that I would be "gloating"
to say that it's been four years after surgery with a clean slate.
But I do hate to say it too much, due to the natural fear that
I will somehow "jinx" myself..... Superstition? Maybe.... Yes.
Of course it's superstition. Who in their right mind wants to
"jinx" themselves?
But to make matters worse - Since I come across as hating
western medicine, and encourage TCM or other alternatives,
I can't help but get this "feeling" that someone somewhere is
rooting for my demise, just to "prove" that my choices are the
wrong choices.... My own surgeon insinuated as much.....
Yes, that's probably a pretty damned paranoid, cynical assumption,
but paranoia and cynicism comes with being a "different" thinker.
Seriously..... cancer is an insidious disease, and can strike any
one of us down regardless of what we do. If we're still alive,
it can be attributed to anything one wants to attribute it to, or
nothing at all. It can be deemed "sheer luck", for all it's worth.
On the new "long term survivors" forum, you might begin to
see the ravages of cancer; the scars of body and mind, that
comes from this damned dreaded malady called "cancer".
You can see what the ravages of treatment models can do
"long-term", and how it really should matter what route you
take in seeking a path through the battleground of cancer.
My long-term scars include a digestive system that will never
again operate properly due to surgical procedures. But I'm
fortunate to not have the scars from radiation poisoning, or
permanent neurological scars from toxic chemicals.
We all suffered, and there is absolutely nothing about having, or
having had cancer, to "gloat" about.
It's like having your house burn to the ground, or losing everything
in a tornado........ you lose a lot. Not losing your life, is nothing to
"gloat" over, or be "proud" about.
The losses aren't always as evident as they are to those that have lost.
May we all have better health!
John
I second that!!!
I love the long termers they did and continue to give me hope and inspiration. Not to mention the gift of friendship I have with them too.
God Bless US ALL...
Hugs
Beth0 -
Keep the positive stories coming
For those of us still in the trenches it's very much needed to hear about those who have either conquered the beast, or at least beaten it into submission. I have hope of conquering cancer because some of you have, without that there would be less hope. Enjoy your news and don't hesitate to share! Traci0 -
My favorite part
Hearing about long time survivors is what brought me to this discussion forum. When things were rough, I fed on it, it was an inspiration, it was a light at the end of the tunnel.
It lightened up my spirit.
Please keep those stories coming. My good news, is that my husband and I are leaving for our first vacation (post cancer)he's all clear with our insurance now and we,re ready to go.
I'M JUST SO HAPPY. Here's to all long time survivors and to the up and coming long time survivors.
Theresa0
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