Mayo Clinic

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Hondo
Hondo Member Posts: 6,636 Member
edited March 2014 in Head and Neck Cancer #1
I have been living in some very bad pain for the passed 5 months now and my local doctors don’t know why. I did an MRI and the Doc here in Lafayette told me my cancer is back and pushing on my brain giving me all the pain.

We went for a second opinion at MD Anderson; they did a PET and said I am cancer free, who do we believe. The Company I work for suggested I get a 3rd opinion so they are sending me to the Mayo Clinic, I will be there on the 18th, just hope they can find the real problem.

My suggestion to everyone is to keep away from small town Clinics, to this day I believe I was radiated the second time for no reason except the Local doctor jumped at a bad PET showing scan tissue that he took for recurring NPC cancer

Keep us in your prayers that they find out what the true problems are and not just a wild guess. God bless and keep all of you as we each walk through this valley in our lives.
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Comments

  • luv2cut1
    luv2cut1 Member Posts: 288
    #2
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    Praying for you Hondo
    Hi Hondo,

    You have been one of the backbones of this board and such a source of inspiration and support for me and, I am sure, many others. Please know that our thoughts and prayers are with you big time.

    Love always,

    Myka
  • Vivi C
    Vivi C Member Posts: 70
    #3
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    Praying for you!
    Praying for you and your family and for wisdom for the doctors to figure out exactly what is going on. God is in control. I pray for peace for you and yours.
    Viv
  • staceya
    staceya Member Posts: 720
    #4
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    Vivi C said:

    Praying for you!
    Praying for you and your family and for wisdom for the doctors to figure out exactly what is going on. God is in control. I pray for peace for you and yours.
    Viv

    You are in my
    You are in my prayers!
    Please keep us posted.
    Stacey
  • luv4lacrosse
    luv4lacrosse Member Posts: 1,410 Member
    #5
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    PRAYERS AND POSITIVE THOUGHT FOR YOU AND FAMILY
    Hondo, my prayers are with you. You should get the answers you need at Mayo.

    God Bless my friend

    Mike
  • GraceLibby
    GraceLibby Member Posts: 88
    #6
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    Thoughts and Prayers
    We'll be keeping you in our thoughts and praying for good news!
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #7
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    GraceLibby said:

    Thoughts and Prayers
    We'll be keeping you in our thoughts and praying for good news!

    Hondo, you are always in my
    Hondo, you are always in my prayers. I will however step it up double time. Hoping you get the answers you need at Mayo. Keep us posted.
  • forme
    forme Member Posts: 1,161 Member
    #8
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    You got it !
    Hi Hondo,
    I am sending you prayers and positive energy that all will work out. Pain is so difficult to live with ,so I hope that is resolved soon.
    Peaceful healing
    Lisha
  • Scambuster
    Scambuster Member Posts: 973
    #9
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    Big Brother Hondo,
    You are
    Big Brother Hondo,

    You are always in our thoughts and I hope they find a good answer for you at Mayo. I have heard many good things about them.

    You have helped so many here and I'm sure many other places lucky enough to have you around. Be sure the family here will be with you as always.

    Scambuster
  • rozaroo
    rozaroo Member Posts: 665
    #10
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    Scambuster said:

    Big Brother Hondo,
    You are
    Big Brother Hondo,

    You are always in our thoughts and I hope they find a good answer for you at Mayo. I have heard many good things about them.

    You have helped so many here and I'm sure many other places lucky enough to have you around. Be sure the family here will be with you as always.

    Scambuster

    Hondo
    I will be thinking of you & wish you my best. May they find the answer's quickly so there will be an end to the pain that you are experiencing! Extra prayer's headed your way!
    God Bless
    Roz
  • Glenna M
    Glenna M Member Posts: 1,576
    #11
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    In my prayers
    I pray every night for everyone who has cancer that He will help us all to become stronger and healthier. I will include an extra prayer for you that Mayo finds answers to your problems and that it is not cancer.

    Prayers and positive thoughts for you and your family.

    Glenna
  • DJG1
    DJG1 Member Posts: 121
    #12
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    Glenna M said:

    In my prayers
    I pray every night for everyone who has cancer that He will help us all to become stronger and healthier. I will include an extra prayer for you that Mayo finds answers to your problems and that it is not cancer.

    Prayers and positive thoughts for you and your family.

    Glenna

    Prayers with you
    Tim,
    I pray also that everyone fighting this nasty C will be healed. I will pray that you find the answers and the pain you have will be removed. You have been an insiration to me and all others here. You deserve to have the best care available. Good Luck and keep us posted.
    Debbie
  • fisrpotpe
    fisrpotpe Member Posts: 1,349 Member
    #13
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    On your team
    We are on your team of supporter and prayers will be shouted out for you, your family and your doctor's.

    I have for you another option for you at Loyola University in Chicago if you need one. Mayo is a great place to go.

    John
  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #14
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    Thoughts & Prayers
    Good Morning Tim,

    You are definitely in my thoughts & prayers buddy.....

    Stay positive, and remember, I owe you a fishing trip...you will collect it.

    If you need anything, you have my information - jguiseppi@aol.com.

    Best Always,
    John
  • Greg53
    Greg53 Member Posts: 849
    #15
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    Skiffin16 said:

    Thoughts & Prayers
    Good Morning Tim,

    You are definitely in my thoughts & prayers buddy.....

    Stay positive, and remember, I owe you a fishing trip...you will collect it.

    If you need anything, you have my information - jguiseppi@aol.com.

    Best Always,
    John

    Hondo
    Hondo

    You're always there for everyone when it comes to providing support. We'll be thinking of you and good outcomes on your trip to Mayo. Positive thoughts and energy coming your way.

    Greg
  • JUDYV5
    JUDYV5 Member Posts: 392
    #16
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    Hondo
    You will be in my prayers. Lets hope they find the source for the pain - and it is not a reoccurance,
  • Noellesmom
    Noellesmom Member Posts: 1,859 Member
    #17
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    prayers
    Prayers for mercy and grace and an answer to your pain, Hondo.

    And lots of hugs!
  • adventurebob
    adventurebob Member Posts: 691
    #18
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    Prayin for ya
    Sorry to read about your pain and medical system difficulties. I feel your frustration. My introduction and immersion into the US' medical system has been frustrating as well. There is so much work required from us as patients to make sure everyone is doing their jobs right it leaves little time for actual rest and living. My prayers are for your pain to be taken away and your doctors to be wise. All my best to you Hondo.

    Bob
  • Jimbo55
    Jimbo55 Member Posts: 590 Member
    #19
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    Hondo
    My friend, my best wishes for your upcoming visit to Mayo. Know we are all here for you and hoping for good results. Cheers

    Jimbo
  • Kent Cass
    Kent Cass Member Posts: 1,898 Member
    #20
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    Hondo
    I hope and Pray that Mayo's can find the cause, and the problem can be fixed w/minimum toll on you, Hondo. Mayo's is first-class. My Mom's MS was diagnosed there, and they come from all over the world to get treated there for a long list of problems. Our journeys are difficult, to be sure, but you know we don't face the obstacles alone. And know the Lord will see you thru this.

    Must also agree with you about the small town thing, especially for H&N. If I'm told of a likely return bout with the C, then I plan on having the U of Iowa on board with my treatment.

    Godspeed, Tim.

    Believe

    kcass
  • Pumakitty
    Pumakitty Member Posts: 652
    #21
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    Praying for you
    You have been a blessing for my family as when faced this horrible beast. Please know we are sending you love and prayers. I feel that this board has become a second family for me and you are the head of that family. Please keep us informed.

    Lots of Love,

    Katt and her family.

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