I am dancing with Ned

kikz
kikz Member Posts: 1,345 Member
edited March 2014 in Ovarian Cancer #1
Went to my surgeon today to have my port removed. He had a bit of trouble because my body had built up a protective webbing. Dr said your body wants to keep it. I told him I like to save things. He laughed. He had quite a time and said your body is really holding on to it. I told him it was probably because he took so many other parts out.

We met in his office after along with my mom and my cousin. Dr explained that there is sn 80% chance of recurrance but 20% chance it will never come back. He said I am in remission, no evidence of disease. I prefer no evidence of disease. Remission sounds like it is lurking while no evidence of disease sounds like it's gone! He said it will take 6 months to a year for all symptoms from chemo to go away. I told him I feel like my old self already. I just need to gain more stamina and my legs feel weak. I will only see him once a year while I will see my oncologist and have a CA 125 every three months.

He gave me a hug and I thanked him. My mom hugged him and thanked him for saving her daughter's life.

So I am dancing with Ned. I hope I let him lead. I will be putty in his hands so he can keep me safe. Today is a great day.

Thank you all for sharing this with me. Love, Karen

Comments

  • Mwee
    Mwee Member Posts: 1,338
    #2
    Dance on and on
    I'm so happy for you. I love good news. :)
    ((HUGS))) Maria
  • kikiz
    kikiz Member Posts: 94
    #3
    Mwee said:

    Dance on and on
    I'm so happy for you. I love good news. :)
    ((HUGS))) Maria

    Congrats
    Always so great to hear good news.
    Lori
  • Mum2bellaandwilliam
    Mum2bellaandwilliam Member Posts: 412
    #4
    Fantastic!
    So pleased for you, I hope your dance in neds arms lasts forever xxx
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #5
    Ain't it grand? You keep
    Ain't it grand? You keep right on dancing, hon. We aren't jealous of NED; he can have as may girlfriends as he wants and none of us will mind a bit. In fact, we hope every woman on this board will get a chance at a long-term relationship with NED.

    Remission and NED are exactly the same thing, but if you like "no evidence of disease" better, then by all means, that's the one you should use.

    I had to have my port removed because it eroded thru my skin, but after much deliberation, I had another one put in, so I could use it to finish my year of Taxol (consolidated therapy....AKA maintenance). Now I have matching scars on my upper chest. Lovely.

    Carlene
  • srwruns
    srwruns Member Posts: 343
    #6
    This is such wonderful news!
    This is such wonderful news! Keep on dancing! Susan
  • Cafewoman53
    Cafewoman53 Member Posts: 735 Member
    #7
    Dance , dance, dance !
    Great
    Dance , dance, dance !
    Great News !
  • lindaprocopio
    lindaprocopio Member Posts: 1,980
    #8
    Cafewoman53 said:

    Dance , dance, dance !
    Great
    Dance , dance, dance !
    Great News !

    Dance on! Dance on!
    Great news!!

    "I could have danced all night; I could have danced all night, and still have danced some more! I could have spread my wings and done a thousand things I'd never done before"...

    Do the 1000 things you never did before!! BE JOYOUS!

    (now I'll be humming that tune all day in my head....)
  • kayandok
    kayandok Member Posts: 1,202 Member
    #9
    Congratulations!
    I'm so happy for you Karen, I hope you dance forever♬♪❤
    kathleen
  • nancy591
    nancy591 Member Posts: 1,027 Member
    #10
    happy for you
    Wishing you all the best!
  • MK_4Dani
    MK_4Dani Member Posts: 314
    #11
    WOO HOO!
    Plenty of room on the the dance floor! Congrats!
    mary
  • kellyh33
    kellyh33 Member Posts: 287
    #12
    NED
    Amazing news Karen! Keep on dancing and keep on celebrating and know we are celebrating with you :)
  • South Jersey
    South Jersey Member Posts: 89
    #13
    kellyh33 said:

    NED
    Amazing news Karen! Keep on dancing and keep on celebrating and know we are celebrating with you :)

    Wonderful news... keep on
    Wonderful news... keep on dancing!
  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #14
    Karen....I was just
    Karen....I was just wondering about the decision to have your port removed....was this something that had to be done, because of problems with it, or is this your doctor's standard procedure?

    Will you have a new port placed, if you have a recurrence?

    My port eroded thru my skin, after my initial treatment, but while I was on monthly Taxol consolidation therapy. My choices were to (1) have the port removed and finish the Taxol via IV, or (2) remove the port and discontinue the Taxol, or (3) have a new port placed, so I could finish the Taxol and leave it for any possible recurrence. I chose door number three.

    I am NED, too, but I had planned to leave the port in place for at least two years, just in case.

    Carlene
  • kikz
    kikz Member Posts: 1,345 Member
    #15
    Hissy_Fitz said:

    Karen....I was just
    Karen....I was just wondering about the decision to have your port removed....was this something that had to be done, because of problems with it, or is this your doctor's standard procedure?

    Will you have a new port placed, if you have a recurrence?

    My port eroded thru my skin, after my initial treatment, but while I was on monthly Taxol consolidation therapy. My choices were to (1) have the port removed and finish the Taxol via IV, or (2) remove the port and discontinue the Taxol, or (3) have a new port placed, so I could finish the Taxol and leave it for any possible recurrence. I chose door number three.

    I am NED, too, but I had planned to leave the port in place for at least two years, just in case.

    Carlene

    I guess it is standard procedure. I didn't really have a problem with the port. During my second to last infusion I started getting pain and they could not find a reason. I made it through but it hurt a lot. I was apprehensive the next time so they had me take a vicodin and also gave me ativan so I basically slept through it.

    I am not sure if a port would be used for a recurrence. My veins are pretty well shot at this point but I'm hoping they get back to normal or better at least. I had taxol(day 1) intravenously, then carboplatin(day 2) through the port and then taxol(day 8) through the port.

    My understanding was chemo given through the port in my abdoman gave me the best result. The surgeon asked how many infusions I completed. I told him 8 and he said that was icing on the cake.

    Karen
  • azgrandma
    azgrandma Member Posts: 609 Member
    #16
    kikz said:

    I guess it is standard procedure. I didn't really have a problem with the port. During my second to last infusion I started getting pain and they could not find a reason. I made it through but it hurt a lot. I was apprehensive the next time so they had me take a vicodin and also gave me ativan so I basically slept through it.

    I am not sure if a port would be used for a recurrence. My veins are pretty well shot at this point but I'm hoping they get back to normal or better at least. I had taxol(day 1) intravenously, then carboplatin(day 2) through the port and then taxol(day 8) through the port.

    My understanding was chemo given through the port in my abdoman gave me the best result. The surgeon asked how many infusions I completed. I told him 8 and he said that was icing on the cake.

    Karen

    so happy for you
    thanks great
  • azgrandma
    azgrandma Member Posts: 609 Member
    #17
    kikz said:

    I guess it is standard procedure. I didn't really have a problem with the port. During my second to last infusion I started getting pain and they could not find a reason. I made it through but it hurt a lot. I was apprehensive the next time so they had me take a vicodin and also gave me ativan so I basically slept through it.

    I am not sure if a port would be used for a recurrence. My veins are pretty well shot at this point but I'm hoping they get back to normal or better at least. I had taxol(day 1) intravenously, then carboplatin(day 2) through the port and then taxol(day 8) through the port.

    My understanding was chemo given through the port in my abdoman gave me the best result. The surgeon asked how many infusions I completed. I told him 8 and he said that was icing on the cake.

    Karen

    so happy for you
    thanks great
  • azgrandma
    azgrandma Member Posts: 609 Member
    #18
    kikz said:

    I guess it is standard procedure. I didn't really have a problem with the port. During my second to last infusion I started getting pain and they could not find a reason. I made it through but it hurt a lot. I was apprehensive the next time so they had me take a vicodin and also gave me ativan so I basically slept through it.

    I am not sure if a port would be used for a recurrence. My veins are pretty well shot at this point but I'm hoping they get back to normal or better at least. I had taxol(day 1) intravenously, then carboplatin(day 2) through the port and then taxol(day 8) through the port.

    My understanding was chemo given through the port in my abdoman gave me the best result. The surgeon asked how many infusions I completed. I told him 8 and he said that was icing on the cake.

    Karen

    so happy for you
    thanks great
  • azgrandma
    azgrandma Member Posts: 609 Member
    #19
    kikz said:

    I guess it is standard procedure. I didn't really have a problem with the port. During my second to last infusion I started getting pain and they could not find a reason. I made it through but it hurt a lot. I was apprehensive the next time so they had me take a vicodin and also gave me ativan so I basically slept through it.

    I am not sure if a port would be used for a recurrence. My veins are pretty well shot at this point but I'm hoping they get back to normal or better at least. I had taxol(day 1) intravenously, then carboplatin(day 2) through the port and then taxol(day 8) through the port.

    My understanding was chemo given through the port in my abdoman gave me the best result. The surgeon asked how many infusions I completed. I told him 8 and he said that was icing on the cake.

    Karen

    so happy for you
    thanks great

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