HELP!!!!!

najely99
najely99 Member Posts: 11
edited March 2014 in Breast Cancer #1
HI MY NAME IS NAJELY AND RECENTLY MY MOM WAS DIAGNOSE WITH BREAST CANCER IN JUNE, SHORTLY IN THAT SAME MONTH THE DOCTOR DECIDED THAT IT WILL BE BETTERIF SHE HAD A MASECTOMY SINCE WE HAVE A HISTORY OF BREAST CANCER IN OUR FAMILY, WELL AFTER THAT HER ONC DECIDED THAT SHE SHOULD HAVE FOUR ROUNDS OF CHEMOTHERAPY INCLIDING THE DRUGS TAXOTER AND CYTOXAN BUT MY MOM HAD AN ALLERGIC REACTION TO TAXOTERE AND WAS GIVEN ONLY CYTOXAN FOR HER FIRST TREATMENT, THEY ALSO DECIDED THAT SHE WILL CONTINUE HER LAST THREE CHEMO WITH A PORTER AND NOT THRU THE VEINS, I WOULD LIKE TO KNOW IF ANYONE HAS HADA EXPERIENCE WITH THIS PORTER AND WAT ARE SOME SYMPTOMS? HER SIDE EFFECTS FROM HER FIRST CHEMO HAVE BEEN MILD SO FAR, SHE DID FEEL NAUSEUS AFTER CHEMO AND WAS TIRED ALL DAY THAT DAY, SHE HASNT LOSS HAIR YET BUT DOES HAVE SENSITIVE SKIN WHICH ITCHES ALOT AND SOMETIMES BLEED A LITTLE BIT. IM KINDA SCARED BECAUSE THIS IS ALL NEW TO ME AND THE WORSE PART IS SHE LIVES TWO HOURS AWAY FROM ME SO I DONT GET TO SEE HER THAT MUCH MAYBE LIKE TWICE A MONTH BUT WE TALKED EVERYDAY AND I ALWAYS TRY TO KEEP HER POSITIVE AND TRY TO GIVE HER ADVISE TO DRINK LOTS OF WATER SINCE I HAVE BEEN RESEARCHING ALOT ABOUT BREAST CANCER....

Comments

  • Rague
    Rague Member Posts: 3,653 Member
    I have a port and have had
    I have a port and have had it for over a year now. It was put in the day before my first A/C. For me it was never a choice as to rather I wanted it or not - I have great veins and wanted to keep them that way so to me it was only logical to go with the port. As I'm IBC, it only makes sense to me (and all my Drs) to keep it 'just in case'.

    A port does take the infusion to a vein - it is just via a surgically implanted device as opposed to sticking a needle into a close to the skin vein. The biggest inconvience with having a port after the end of chemo is that every 4 weeks you have to go in and have it flushed - but that only takes a few minutes and is painless if you have EMLA cream to numb the area.

    I had a little tenderness in the incision site for a couple of days but no pain. I was giving riding lessons and riding myself 2 days after implant - I did get out of doing heavy barn chores for 2 weeks though as hubby and Son insited on doing them for 2 weeks - then it was back to norm with me doing almost all the work LOL.

    Hair doesn't usually leave til about 14 - 16 days after first infusion.

    I would talk to Dr about the skin bleeding.

    You'll get lots of replies with all sort of answers - we're all so different.

    Susan
  • Pinkpower
    Pinkpower Member Posts: 437
    Hello nejely99, I have a
    Hello nejely99, I have a medi port and it was put in about a week b4 my 1st chemo of Taxotere, Carboplatin and Herceptin. But with my chemo I was also giving benydryle & other nausea meds b4 each treatment, I think this really helped and I had no allergic reactions to the chemo.(well except for the burn/rash that showed up on different parts of my skin) My opinion, I think the port is a better choice. Chemo really does take a toll on your veins.

    Lupe
  • Rague
    Rague Member Posts: 3,653 Member
    Pinkpower said:

    Hello nejely99, I have a
    Hello nejely99, I have a medi port and it was put in about a week b4 my 1st chemo of Taxotere, Carboplatin and Herceptin. But with my chemo I was also giving benydryle & other nausea meds b4 each treatment, I think this really helped and I had no allergic reactions to the chemo.(well except for the burn/rash that showed up on different parts of my skin) My opinion, I think the port is a better choice. Chemo really does take a toll on your veins.

    Lupe

    With the A/C I had oral
    With the A/C I had oral Benadryl and as usual when I've taken it before it did nothing to me. With the Taxol though they gave the Benadryl IV and I would go "nighty night" within a very short time so I always had a bed on Taxol. I always woke up about 1/2 hr before the end of the Taxol infusion and was OK.
  • najely99
    najely99 Member Posts: 11
    Rague said:

    With the A/C I had oral
    With the A/C I had oral Benadryl and as usual when I've taken it before it did nothing to me. With the Taxol though they gave the Benadryl IV and I would go "nighty night" within a very short time so I always had a bed on Taxol. I always woke up about 1/2 hr before the end of the Taxol infusion and was OK.

    THANKS FOR THE ANSWER, I
    THANKS FOR THE ANSWER, I WOULD LIKE TO MENTION THAT MY MOM IS GOING TO START A/C CHEMO NEXT WEEK AND HOPEFULLY IT WILL GO MUCH BETTER THAN THE TAXOTERE.....
  • tommaseena
    tommaseena Member Posts: 1,769
    najely99 said:

    THANKS FOR THE ANSWER, I
    THANKS FOR THE ANSWER, I WOULD LIKE TO MENTION THAT MY MOM IS GOING TO START A/C CHEMO NEXT WEEK AND HOPEFULLY IT WILL GO MUCH BETTER THAN THE TAXOTERE.....

    taxotere
    I have a port and it is a life saver. I hate needles so the nurses put a freeze spray on before, not all places use the freeze spray, and I don't feel it. I started off with A/C then Taxol(same drug as taxotere) w/Herceptin. Most people if they are going to have a reaction to Taxol/taxotere it is the second time and the nurses watch for a reaction and then stop the drip and then may start it again but very slowly. I never had a reaction but have seen others have reactions. They always gave benedryl through the port before treatment.

    I wish your mother the best.

    Margo
  • Rague
    Rague Member Posts: 3,653 Member

    taxotere
    I have a port and it is a life saver. I hate needles so the nurses put a freeze spray on before, not all places use the freeze spray, and I don't feel it. I started off with A/C then Taxol(same drug as taxotere) w/Herceptin. Most people if they are going to have a reaction to Taxol/taxotere it is the second time and the nurses watch for a reaction and then stop the drip and then may start it again but very slowly. I never had a reaction but have seen others have reactions. They always gave benedryl through the port before treatment.

    I wish your mother the best.

    Margo

    While on chemo, the CCI I
    While on chemo, the CCI I went to had numbing spray that worked fine. The day of my last Taxol I had to go up to have a scan before chemo, the hospital had no numbing spray and it definately HURT without it. After the end of chemo, I've been going to my local VA clinic for my flushes - they don't have the spray there so my PA gave me generic EMLA cream to use and it is even better than the spray.

    There was a nurse in my 'room' the whole time with my first Taxol. After that I was just kept hooked to the machine which went to the station. My temp was always low fo they would turn up the heat and bring me heated 'bankies'.
  • webbwife50
    webbwife50 Member Posts: 394
    Hi Najely
    I too had a port and am very gratefull the technology is available. I was given a lidocaine cream to apply to the skin above where the port was place and I never felt anything when they hooked me up for chemo. Sounds like your mom and her onc. have a treatment plan in place for her, and you should try not to worry any more than necessary. I know my daughters were very upset and worried, seeing me go through such hard treatments, bilat mast., 4 rounds of AC and 4 of Taxol, and then recon. Even now I know they worry every time I go in for a follow-up, every 3 months. I do hope your mother is not alone. The first few rounds of chemo, I suppose, would have been doable alone, but once it had started to build up, I needed help. I have a wonderful husband who took excellent care of me, God bless him, I hope your mother has someone there for her. It can also make a big difference in staying positive and hopeful. Chemo was very hard for me.
    But I'm done with treatment now and life is good!
    God bless you both,
    Alison
  • Rague
    Rague Member Posts: 3,653 Member

    Hi Najely
    I too had a port and am very gratefull the technology is available. I was given a lidocaine cream to apply to the skin above where the port was place and I never felt anything when they hooked me up for chemo. Sounds like your mom and her onc. have a treatment plan in place for her, and you should try not to worry any more than necessary. I know my daughters were very upset and worried, seeing me go through such hard treatments, bilat mast., 4 rounds of AC and 4 of Taxol, and then recon. Even now I know they worry every time I go in for a follow-up, every 3 months. I do hope your mother is not alone. The first few rounds of chemo, I suppose, would have been doable alone, but once it had started to build up, I needed help. I have a wonderful husband who took excellent care of me, God bless him, I hope your mother has someone there for her. It can also make a big difference in staying positive and hopeful. Chemo was very hard for me.
    But I'm done with treatment now and life is good!
    God bless you both,
    Alison

    We're all so different!
    I did ALL my 16 chemos (4 A/C and then 12 Taxol) and my 25 rads myself. Hubby or our adult Son would have gone with me IF I had asked but I never did. With A/C, I just read and watched TV. With Taxol, I went "nighty night" as soon as the IV Benadryl started. I didn't want either of them sitting there watching poison being pumped into me. They knew what was happening but I didn't/don't see any reason that either should have had to sit there staring at me, knowing that Poison was being pumped into me. Hubby was very concerned about me (we've been married 34 years) as was Son. Between the 2 of them they took over the horse care all last winter, Hubby did all he could to keep me eating though I did loose 40 lbs. If you needed someone to sit and hold your hand I'm so glad that you someone but not all need or want that - nor is it right for all.

    We're all so different! Thankfully!

    Susan
  • cahjah75
    cahjah75 Member Posts: 2,631
    Najely
    I have a Purple Power Port and get Taxotere/Cytoxan cocktail with Neulasta shot the following day. I had my 3rd treatment today. I get a bag of fluids, Benadryl and antinausea meds prior to chemicals. I also take Decadron (steroid) the day before and for 2 days after. I take Emend (antinausea) 1 hour before treatment and following 2 days. My side effects have been mild diarrhea taken care of with Immodium. I get bloated and have gained weight from the Decadron. It also makes my face & head break out about 10 days later. I'm achy Friday evening til Monday morning after the Neulasta. I have a mild sore throat and use Biotene toothpaste and mouthwash and throat spray. It helps to eat more frequent smaller meals following chemo to avoid heartburn, nausea, etc. I drink lots of water before, during and after. Staying hydrated flushes the chemo through the body and helps avoid constipation. I also use plastic silverware and have not had any metal taste in my mouth. I hope all this helps. It is hard since you can't be with her and live 2 hrs away. Take care and I hope your mom does well with treatment.
    {{hugs}} Char
  • najely99
    najely99 Member Posts: 11
    cahjah75 said:

    Najely
    I have a Purple Power Port and get Taxotere/Cytoxan cocktail with Neulasta shot the following day. I had my 3rd treatment today. I get a bag of fluids, Benadryl and antinausea meds prior to chemicals. I also take Decadron (steroid) the day before and for 2 days after. I take Emend (antinausea) 1 hour before treatment and following 2 days. My side effects have been mild diarrhea taken care of with Immodium. I get bloated and have gained weight from the Decadron. It also makes my face & head break out about 10 days later. I'm achy Friday evening til Monday morning after the Neulasta. I have a mild sore throat and use Biotene toothpaste and mouthwash and throat spray. It helps to eat more frequent smaller meals following chemo to avoid heartburn, nausea, etc. I drink lots of water before, during and after. Staying hydrated flushes the chemo through the body and helps avoid constipation. I also use plastic silverware and have not had any metal taste in my mouth. I hope all this helps. It is hard since you can't be with her and live 2 hrs away. Take care and I hope your mom does well with treatment.
    {{hugs}} Char

    HANGING IN THERE
    ONCE AGAIN THANK YOU ALL FOR ALL THE ADVICE AND ANSWERS THAT EVERYONE HAS POSTED UP FOR ME...
    IM GOING TO TELL MY MOM THAT SHE SHOULD ASK IF THERE IS ANY NUMB CREAM OR SPRAY TO HAVE BEFORE HER TREATMENT BEGINS, IM GOING TO SEE HER THIS WEEKEND SO IM REALLY EXITED I HAVENT SEEN HER FOR ALMOST A MONTH NOW, HER NEXT CHEMO THERAPY IS ON THE 29 OF THIS MONTH EVEN THOUGH SHE HAD HER PORT ON THE 17 OF THIS MONTH SO I REALLY DOUBT THAT THEY WOULD DO ANY CHEMO DUE TO THE STITCHES ON HER SKIN, RIGHT??? WE WILL SEE... SHE WILL HAVE A COMBO CHEMO OF A/C FOR AN HOUR AND FORTY FIVE MINUTES, SHE TOLD ME LAST NIGHT THAT SHE IS BEGINING TO FEEL SOME SORES INSIDE OF HER MOUTH WHICH I GUESS THATS NORMAL, RIGHT??? I JUST WANT THIS TO BE OVER WITH... I ALSO HAD A BREAST U/S IN JUNE AND THEY TOLD ME I HAD ALOT OF FIBROSIS, THE TECH SHE DIDNT SEE ANYTHING ABNORMAL BUT I HAVE TO CHECK MYSELF SINCE WE HAVE BREAST CANCER HISTORY IN OUR FAMILY
  • Rague
    Rague Member Posts: 3,653 Member
    najely99 said:

    HANGING IN THERE
    ONCE AGAIN THANK YOU ALL FOR ALL THE ADVICE AND ANSWERS THAT EVERYONE HAS POSTED UP FOR ME...
    IM GOING TO TELL MY MOM THAT SHE SHOULD ASK IF THERE IS ANY NUMB CREAM OR SPRAY TO HAVE BEFORE HER TREATMENT BEGINS, IM GOING TO SEE HER THIS WEEKEND SO IM REALLY EXITED I HAVENT SEEN HER FOR ALMOST A MONTH NOW, HER NEXT CHEMO THERAPY IS ON THE 29 OF THIS MONTH EVEN THOUGH SHE HAD HER PORT ON THE 17 OF THIS MONTH SO I REALLY DOUBT THAT THEY WOULD DO ANY CHEMO DUE TO THE STITCHES ON HER SKIN, RIGHT??? WE WILL SEE... SHE WILL HAVE A COMBO CHEMO OF A/C FOR AN HOUR AND FORTY FIVE MINUTES, SHE TOLD ME LAST NIGHT THAT SHE IS BEGINING TO FEEL SOME SORES INSIDE OF HER MOUTH WHICH I GUESS THATS NORMAL, RIGHT??? I JUST WANT THIS TO BE OVER WITH... I ALSO HAD A BREAST U/S IN JUNE AND THEY TOLD ME I HAD ALOT OF FIBROSIS, THE TECH SHE DIDNT SEE ANYTHING ABNORMAL BUT I HAVE TO CHECK MYSELF SINCE WE HAVE BREAST CANCER HISTORY IN OUR FAMILY

    You don't have to wait any
    You don't have to wait any prolonged period to use the port. A couple here had had their port put in in the morning and had chemo that afternoon. For me, my port was put in on Aug 25, '09 and I started chemo the next day, Aug 26, '09. There were no external stitches - there were disolving internal ones and 2 steri-strips across the exterior.

    Of course I don't really know but I would think that as she is changing chemos that they want to wait til the last is totally out of her system before starting a different drug(s).
  • pscheer
    pscheer Member Posts: 56 Member
    najely99 said:

    HANGING IN THERE
    ONCE AGAIN THANK YOU ALL FOR ALL THE ADVICE AND ANSWERS THAT EVERYONE HAS POSTED UP FOR ME...
    IM GOING TO TELL MY MOM THAT SHE SHOULD ASK IF THERE IS ANY NUMB CREAM OR SPRAY TO HAVE BEFORE HER TREATMENT BEGINS, IM GOING TO SEE HER THIS WEEKEND SO IM REALLY EXITED I HAVENT SEEN HER FOR ALMOST A MONTH NOW, HER NEXT CHEMO THERAPY IS ON THE 29 OF THIS MONTH EVEN THOUGH SHE HAD HER PORT ON THE 17 OF THIS MONTH SO I REALLY DOUBT THAT THEY WOULD DO ANY CHEMO DUE TO THE STITCHES ON HER SKIN, RIGHT??? WE WILL SEE... SHE WILL HAVE A COMBO CHEMO OF A/C FOR AN HOUR AND FORTY FIVE MINUTES, SHE TOLD ME LAST NIGHT THAT SHE IS BEGINING TO FEEL SOME SORES INSIDE OF HER MOUTH WHICH I GUESS THATS NORMAL, RIGHT??? I JUST WANT THIS TO BE OVER WITH... I ALSO HAD A BREAST U/S IN JUNE AND THEY TOLD ME I HAD ALOT OF FIBROSIS, THE TECH SHE DIDNT SEE ANYTHING ABNORMAL BUT I HAVE TO CHECK MYSELF SINCE WE HAVE BREAST CANCER HISTORY IN OUR FAMILY

    I have a port and I also had
    I have a port and I also had sores in my mouth. I didn't use the numbing creme and I never felt pain when they used my port. They would tell me to take a deep breath and when I did, they would stick the port. Mine felt just like a needle stick, which doesn't bother me. (We are all different) The mouth sores came and I started using biotene toothpaste and a soft toothbrush. Biotene is sold at Walgreens and other drugstores over the counter. I don't know if they have it at Walmart or not. Mouthwashes may have alcohol and that irritates the sores. She can make her own mouthwash at home. 3/4 teaspoon baking soda in a 16 ounce container of water or 1/2 teaspoon in an 8 ounce container of water. There were a few days the sores would have been too irritated to have a toothbrush bumping into them in my mouth so I used the mouthwash instead of brushes and I also flossed. If she uses the mouthwash a lot, like 5 times a day, it will help the sores. She should of course, let her Dr. know about the mouth sores and any other side effects. Now, here's something nice to think about...At Francelux.com they have a link called Good Wishes. Go there and pick out a free silk head covering. They will give it to anyone who experiences hair loss due to illness. I cried like a baby the day mine arrived because it was so soft and beautiful. All the employees sign a card and it is soooooo sweet! Those head covering would cost like 70.00 dollars if you had to pay for them. Mine turned out to be my favorite head covering and belive me, I had a lot of them and 6 wigs!!!!
  • najely99
    najely99 Member Posts: 11
    pscheer said:

    I have a port and I also had
    I have a port and I also had sores in my mouth. I didn't use the numbing creme and I never felt pain when they used my port. They would tell me to take a deep breath and when I did, they would stick the port. Mine felt just like a needle stick, which doesn't bother me. (We are all different) The mouth sores came and I started using biotene toothpaste and a soft toothbrush. Biotene is sold at Walgreens and other drugstores over the counter. I don't know if they have it at Walmart or not. Mouthwashes may have alcohol and that irritates the sores. She can make her own mouthwash at home. 3/4 teaspoon baking soda in a 16 ounce container of water or 1/2 teaspoon in an 8 ounce container of water. There were a few days the sores would have been too irritated to have a toothbrush bumping into them in my mouth so I used the mouthwash instead of brushes and I also flossed. If she uses the mouthwash a lot, like 5 times a day, it will help the sores. She should of course, let her Dr. know about the mouth sores and any other side effects. Now, here's something nice to think about...At Francelux.com they have a link called Good Wishes. Go there and pick out a free silk head covering. They will give it to anyone who experiences hair loss due to illness. I cried like a baby the day mine arrived because it was so soft and beautiful. All the employees sign a card and it is soooooo sweet! Those head covering would cost like 70.00 dollars if you had to pay for them. Mine turned out to be my favorite head covering and belive me, I had a lot of them and 6 wigs!!!!

    AN UPDATE ON MOM
    HEY EVERYONE MY MOM JUST HAD HER SECOND CHEMO on SEPT. 29, 2010 AND I HAVE TO TELL U THAT SHE DID NOT ANY EACTION TO THE A/C COMBINATION, THANK GOD. EVEN THOUGH THEY FOUND THAT HER PORT GOT A LITTLE INFECTED AND NOW THEY WANT HER TO HAVE SURGERY TO REMOVE IT AND PUT IN A NEW ONE, HAS ANYONE EVER EXPERIENCE THIS??? IM GOING TO HAVE TO GO WITH HER ON THE DAY OF HER SURGEY EVEN THOUGH IM GUESSING ITS A QUICK PROCEDURE.... WELL ANYWAYS AFTER CHEMO SHE SAYS THAT SHE WAS NASEUS THE WHOLE NIGHT AND THREW UP THE WHOLE NIGHT BUT THE DAY AFTER SHE FELT LIKE NOTHING HAD HAPPENED THE DAY BEFORE, I JUST WANT THINGS TO HURRY UP AND FINISH WITH THIS
    WHOLE SITUATION.... THANK YOU ALL FOR EVRYTHING...
  • shy violet
    shy violet Member Posts: 167
    najely99 said:

    AN UPDATE ON MOM
    HEY EVERYONE MY MOM JUST HAD HER SECOND CHEMO on SEPT. 29, 2010 AND I HAVE TO TELL U THAT SHE DID NOT ANY EACTION TO THE A/C COMBINATION, THANK GOD. EVEN THOUGH THEY FOUND THAT HER PORT GOT A LITTLE INFECTED AND NOW THEY WANT HER TO HAVE SURGERY TO REMOVE IT AND PUT IN A NEW ONE, HAS ANYONE EVER EXPERIENCE THIS??? IM GOING TO HAVE TO GO WITH HER ON THE DAY OF HER SURGEY EVEN THOUGH IM GUESSING ITS A QUICK PROCEDURE.... WELL ANYWAYS AFTER CHEMO SHE SAYS THAT SHE WAS NASEUS THE WHOLE NIGHT AND THREW UP THE WHOLE NIGHT BUT THE DAY AFTER SHE FELT LIKE NOTHING HAD HAPPENED THE DAY BEFORE, I JUST WANT THINGS TO HURRY UP AND FINISH WITH THIS
    WHOLE SITUATION.... THANK YOU ALL FOR EVRYTHING...

    Yes I have had my port for 3
    Yes I have had my port for 3 years and love it. I have had infections in the port...this can happen because of the blood flow that goes through the body and can get picked up by the port. The med team is on it and that is the right thing to do. Have the doctors go over worry signs about the port so you both know what to watch for. My port has carried me through two battles with breast cancer, and I feel bad for patients who don't have a port. I had infections and problems with picc lines prior to port.
  • Rague
    Rague Member Posts: 3,653 Member
    pscheer said:

    I have a port and I also had
    I have a port and I also had sores in my mouth. I didn't use the numbing creme and I never felt pain when they used my port. They would tell me to take a deep breath and when I did, they would stick the port. Mine felt just like a needle stick, which doesn't bother me. (We are all different) The mouth sores came and I started using biotene toothpaste and a soft toothbrush. Biotene is sold at Walgreens and other drugstores over the counter. I don't know if they have it at Walmart or not. Mouthwashes may have alcohol and that irritates the sores. She can make her own mouthwash at home. 3/4 teaspoon baking soda in a 16 ounce container of water or 1/2 teaspoon in an 8 ounce container of water. There were a few days the sores would have been too irritated to have a toothbrush bumping into them in my mouth so I used the mouthwash instead of brushes and I also flossed. If she uses the mouthwash a lot, like 5 times a day, it will help the sores. She should of course, let her Dr. know about the mouth sores and any other side effects. Now, here's something nice to think about...At Francelux.com they have a link called Good Wishes. Go there and pick out a free silk head covering. They will give it to anyone who experiences hair loss due to illness. I cried like a baby the day mine arrived because it was so soft and beautiful. All the employees sign a card and it is soooooo sweet! Those head covering would cost like 70.00 dollars if you had to pay for them. Mine turned out to be my favorite head covering and belive me, I had a lot of them and 6 wigs!!!!

    Perhaps I should clarify
    There was no pain while the port was being used ONCE the needle had been inserted - it was the needle 'stick'/insertion tht caused pain the time it was accessed with no numbing spray or cream. The stick into the port without the spray was much worse than an arm (or even hand) 'stick' for me.
  • Rague
    Rague Member Posts: 3,653 Member

    Yes I have had my port for 3
    Yes I have had my port for 3 years and love it. I have had infections in the port...this can happen because of the blood flow that goes through the body and can get picked up by the port. The med team is on it and that is the right thing to do. Have the doctors go over worry signs about the port so you both know what to watch for. My port has carried me through two battles with breast cancer, and I feel bad for patients who don't have a port. I had infections and problems with picc lines prior to port.

    My port had only been in for
    My port had only been in for a little over 13 months and it "ain't a'gonna" come out til Dr's insist it has to. Got me through 2 diffferent batchs of chemo with no issues. Being IBC it's more than likly that 'the shoe will fall again' so I want it to stay there as ready as posssible. With my port already there it is a little bit of a life line in my mind so there it stays. Yes in a way it is a bit of an 'incovience' to go in every 4 weeks for flush but there is also a bit of comfort in doing it - I'm still fighting. I have great veins and want to keep them that way so there is no way that I would have taken a chance on damaging them.

    Just me and how I think -

    Susan
  • KathiM
    KathiM Member Posts: 8,028 Member
    I'm part of the old guard...treatment over 4 years ago...
    BUT my BIGGEST suggestion is ALWAYS 'stay hydrated'. I drank a total of 4 quarts of WATER the day before, day of, and day after infusion...peed forever, but it flushed the chemo from places that weren't necessary (bladder, kidneys).

    With Taxol, I didn't lose my hair. With Adriamycin (The A of the AC), I did, at about day 14. But, now, years later, I have a full, healthy head of MUCH less grey hair!!!!

    Welcome to the site! You are such a great comfort to mom, I'm sure. I was 49 when diagnosed with rectal cancer. 6 months later, started treatment on breast cancer...now cancer free for over 4 years.

    Hugs, Kathi
  • najely99
    najely99 Member Posts: 11
    KathiM said:

    I'm part of the old guard...treatment over 4 years ago...
    BUT my BIGGEST suggestion is ALWAYS 'stay hydrated'. I drank a total of 4 quarts of WATER the day before, day of, and day after infusion...peed forever, but it flushed the chemo from places that weren't necessary (bladder, kidneys).

    With Taxol, I didn't lose my hair. With Adriamycin (The A of the AC), I did, at about day 14. But, now, years later, I have a full, healthy head of MUCH less grey hair!!!!

    Welcome to the site! You are such a great comfort to mom, I'm sure. I was 49 when diagnosed with rectal cancer. 6 months later, started treatment on breast cancer...now cancer free for over 4 years.

    Hugs, Kathi

    IN NEED OF SOME LOTION...
    HEY EVRYONE ONCE AGAIN THANKS FOR THE ADVICE AND OPINIONS, WELL MY MOM HAS BEEN FEELING QUITE NAUSEUS AND SHE HAS TOLD ME THAT SHE HAS BEEN WITH DIAREAH WHICH I KNOW MIGHT BE SOME SIDE EFFECTS FROM THE CHEMO BUT I WANTED TO SEE IF ANYONE CAN RECOMEND ME A LOTION SO THAT MY MOM CAN USE FOR HER SENSITIVE SKIN PLEASE I WOULD REALLY APPREACITE IT IF ANY ONE CAN TELL ME WAHT KIND OF LOTION TO BUT HER, ON ANOTHER NOTE I NEED YOU GUYS TO TELL ME WHAT MY MOM SHOULD EAT, LIKE FOR EXAMPLE HEALTHY SUFF.... THANKS AGAIN FOR EVERY ADVICE THAT EVERYONE HAS SHARE WITH ME:)
  • KathiM
    KathiM Member Posts: 8,028 Member
    najely99 said:

    IN NEED OF SOME LOTION...
    HEY EVRYONE ONCE AGAIN THANKS FOR THE ADVICE AND OPINIONS, WELL MY MOM HAS BEEN FEELING QUITE NAUSEUS AND SHE HAS TOLD ME THAT SHE HAS BEEN WITH DIAREAH WHICH I KNOW MIGHT BE SOME SIDE EFFECTS FROM THE CHEMO BUT I WANTED TO SEE IF ANYONE CAN RECOMEND ME A LOTION SO THAT MY MOM CAN USE FOR HER SENSITIVE SKIN PLEASE I WOULD REALLY APPREACITE IT IF ANY ONE CAN TELL ME WAHT KIND OF LOTION TO BUT HER, ON ANOTHER NOTE I NEED YOU GUYS TO TELL ME WHAT MY MOM SHOULD EAT, LIKE FOR EXAMPLE HEALTHY SUFF.... THANKS AGAIN FOR EVERY ADVICE THAT EVERYONE HAS SHARE WITH ME:)

    I'm a natural kind of gal...
    Well, and none of the anti-nausea drugs worked, anyway...

    I SIPPED ginger ale (the real stuff...Vernors), and sucked hard licorice. Ate small bits of stuff, whenever I felt like it, not held to 3 meals a day. Mom will learn which of her post-infusion days are her 'bad' ones. I was infused on a Wednesday, and my Saturday...well, I stayed on the couch (except the trips to the toilet), slept, nibbled---by far my worst day. By Sunday morning, I was back to normal. For the loose stool, I ate banannas and/or cheese.

    As far as eating. Whatever tastes good. This is not necessarily the time for healthy 'rocks and sticks'...more about comfort and calories...

    As far as lotion/cream...body-wise I used my same lotion...Vaseline Intensive Care. BUT for my head/scalp I bought some Mary Kay intensive product. If you ask a rep, they lovingly call it 'Axle grease'...it's pink and thick, and comes in a jar....truly amazing for super dry skin...

    Hugs, Kathi