Parathyroid Cancer

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wifflefrog
wifflefrog Member Posts: 31
edited March 2014 in Head and Neck Cancer #1
Does anyone know where to search, discuss, explore options for individuals with parathyroid carcinoma that has now metasis to the liver and bone. I know its rare and its definitely cancer. Thanks!

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  • Pam M
    Pam M Member Posts: 2,196
    #2
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    Clueless, Sorry
    Wifflefrog,

    Am intrigued by your screen name. Sorry, I don't recall meeting parathyroid patients here (doesn't mean I haven't) I see that you have searched posts here, and have seen some cases of parathyroid being discussed - hope that you can locate someone you can really relate to - I checked another site I visit, and came up blank there. Do well. If you have other questions about your treatment, I'm sure lots of folks here can help.
  • wifflefrog
    wifflefrog Member Posts: 31
    #3
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    Pam M said:

    Clueless, Sorry
    Wifflefrog,

    Am intrigued by your screen name. Sorry, I don't recall meeting parathyroid patients here (doesn't mean I haven't) I see that you have searched posts here, and have seen some cases of parathyroid being discussed - hope that you can locate someone you can really relate to - I checked another site I visit, and came up blank there. Do well. If you have other questions about your treatment, I'm sure lots of folks here can help.

    Thanks
    As you can see its very rare, but doctors have seen it. Just hoping for some feedback to discuss all my concerns. Even basic knowledge is tough to come across as its that rare. Thank you for checking and at least letting me know you were willing to see some options.
  • Hondo
    Hondo Member Posts: 6,636 Member
    #4
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    Hi Frog
    Welcome here to CSN.


    Try this web site http://emedicine.medscape.com/article/280908-overview hope this helps

    All the best to you
    Hondo
  • wifflefrog
    wifflefrog Member Posts: 31
    #5
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    Hondo said:

    Hi Frog
    Welcome here to CSN.


    Try this web site http://emedicine.medscape.com/article/280908-overview hope this helps

    All the best to you
    Hondo

    Website
    Thank you. I know most of this stuff, but always looking for options. I can almost recite most of this medical information. I just need to know of other causes, treatments and where to go from here.
  • wifflefrog
    wifflefrog Member Posts: 31
    #6
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    wifflefrog said:

    Website
    Thank you. I know most of this stuff, but always looking for options. I can almost recite most of this medical information. I just need to know of other causes, treatments and where to go from here.

    In treatment
    Well we have our third Oncologist and he finally started us on a regimen, but he remains unoptimistic which is always a blow to hear. The biggest problem is nobody knows or understands the symptoms, but other people have it. So anyone out there had some connection to it I would love some feedback. thanks!

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