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"colic" with Folfiri/Xeliri

taraHK
Posts: 1961
Joined: Aug 2003

Hi. I'm on Xeliri (similar to Folfiri) plus Avastin. I'm experiencing what my doctor refers to as "colic" (stomach cramps). This is in addition to the periodic diarrhea of course! The colic is pretty bad this round. Has anyone else experienced this and any suggestions for relief of the discomfort? I take Immodium for diarrhea, but I don't think that will help with the cramps (?).

Tara

AnneCan
Posts: 3692
Joined: Oct 2009

At what point in your cyle do you get them?

taraHK
Posts: 1961
Joined: Aug 2003

It seems a little unprectible. If there is a pattern, I haven't been able to figure it out. Today is Day 7 of my cycle.

Tara

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

can't help you no problems with my stomach for the moment, (thanks God).What round are you?
hope is getting better very soon!
Best!

taraHK
Posts: 1961
Joined: Aug 2003

I've recently had round #7. I've had diarrhea previous rounds and also some stomach cramps but today was quite intense -- Hope you manage to escape this!

Jaylo969
Posts: 827
Joined: Jan 2010

I have gastritis and had some harsh stomach problems taking Folfox...not sure if it was what you call 'colic'. Gas pains, stomach upset, heartburn/reflux. My Doc had me taking Zantac in AM, Prilosec in PM, and Pepcid Complete as needed. Pepcid complete seemed to be the one that really helped relieve the discomfort.Not sure if this is the same as what you are experiencing so ask your doc to recommend something.

-Pat

taraHK
Posts: 1961
Joined: Aug 2003

Thanks Pat. My onc recommended Buscopan and also Holopan (may have different names in the States). I got hold of Holopan -- hopefully it will work but thanks for the other suggestions esp the Pepcid.....I appreciate it

Tara

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

l went to the loo and ot was a little beat soft, not dieareha at all but
just in case l had just an imodium pill, and Damn l regret that ! Cramps ,pain and
everything some times is better to live the things go alone!
Get better!
Feel sorry for the faults but lm on an iPhone !

taraHK
Posts: 1961
Joined: Aug 2003

Yes, I understand what you mean. With 'traveller's diarrhea', etc., I have always believed it is maybe better to let nature take its course. And, under normal circumstances, if I take one immodium, "that is it" for several days!

But, the diarrhea that can be a side effect of CPT-11 (which I truly hope you escape, of course) is really something different. When my doc was warning me about it, I asked him how I would know (I have a colostomy, so bowel movements are a little different). "You will know", he said -- and I did! It is rather dramatic. For example, today I took 4 immodium within 5 hours, and that did not stop the diarrhea -- it took 2 more (all within 7 hours). Sorry for this very explicit (frank/open) conversation! But, it can be life-threatening so we need to be aware.....

Best,
Tara

AnneCan
Posts: 3692
Joined: Oct 2009

I don't think I have experienced what you are describing. When I am getting my infusion I sometimes get really bad cramps + a couple of times they have given me an under-the-skin injection (I forget what it is) which clears it very quickly.

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

is what I got for the stomach cramping that would start during infusion. I had intestinal cramping, and hyocyamine helps TREMENDOUSLY with that. I didn't have stomach cramping except during infusion. Sure hope you get on top of this!
mary

taraHK
Posts: 1961
Joined: Aug 2003

Thanks for this, Mary -- I do get atropine shots during infusion. But I've never had cramps during infusion. Mine hit (together with diarrhea) several days later. The timing seems a bit unpredictable but this time was Day 7/8. i got some pills from doc now for (later) colic. Thanks for your good wishes.

Tara

vhtqm1's picture
vhtqm1
Posts: 107
Joined: Feb 2010

if marijuana is legal i've known this to relax but not stop the digestive tract.

ed

taraHK
Posts: 1961
Joined: Aug 2003

Thanks, Ed. Not legal where I live but this is interesting/useful.....Gosh, that plant has all sorts of useful features!

Tara

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