Going Down Hill

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amcp
amcp Member Posts: 251 Member
edited March 2014 in Colorectal Cancer #1
I have been gone awhile. Reminder my husband was diagnosed with stage 4 colorectal cancer in 8/06. Colostomy in 9/06 then two plus years of chemo nothing stopped the monster. Then in 12/31/09 sent to Vanderbilt for possibility of phase one clinical trial. Surgery for removal of one cancerous nodule in right lung ..removed 4% of lung 2/09. Then in 4/09 surgery to remove 75% of right lobe of liver which cancer had grown an attached to diaphram. Told NED. In 7/09 cancer returned in both lungs..multiple nodules...started Phase 1 clinical trial. After months removed from trial ...cancer progressing! Cancer now in lymph nodes,,,neck...abdomin...behind kidney...Start 2nd phase 1 clinical trial...told have 1 yr to 6 mns. trial will not help but might help someone else later on. Trial stopped after a couple of months..cancer continues to grow. Start 3rd phase 1 clinical trial...getting sick..loosing weight...10 lbs lost in 3 weeks...more pain...removed from trial on Monday 7/19/10..cancer has grown in number and size in the lungs...cancer behind kidney has grown considerably in a month...looks like recurrance of cancer in liver area...told two to 4 months. Sent home for three weeks...double pain medication ..take every 6 hours continually until next appt to see if can keep ahead of pain. Put back on clinical trial list. Have driven 196 plus miles each way for over 36 times since 12/09. You post have given me such comfort and support. Especially those from Eric, Craig, Clift, Donna, Kinby, Jennie and so many others. Just wanted to update you because we are family ...you understand better than anyone. Keep fighting...you have got to beat this monster. Love you all and keeping you all in my thoughts and prayers.
Anna

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  • AnneCan
    AnneCan Member Posts: 3,673 Member
    #2
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    Anna,I am sorry to hear
    Anna,

    I am sorry to hear this, + in fact hope it is incorrect information; I hope there is something that can help your husband. You both are putting up an amazing fight; with travel, treatments tried etc. Please take good care + let us know how things are going.
  • angelsbaby
    angelsbaby Member Posts: 1,165 Member
    #3
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    AnneCan said:

    Anna,I am sorry to hear
    Anna,

    I am sorry to hear this, + in fact hope it is incorrect information; I hope there is something that can help your husband. You both are putting up an amazing fight; with travel, treatments tried etc. Please take good care + let us know how things are going.

    Anna
    I am sorry to hear your husband is not doing well. My prayers are going out to you and your husband,


    michelle
  • Sonia32
    Sonia32 Member Posts: 1,071 Member
    #4
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    Anna
    both you and your husband are in my thoughts and prayers
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    #5
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    So sorry
    Anna, I'm praying for you and your husband. I know this is a very hard time for both of you.

    *hugs*
    Gail
  • Nana b
    Nana b Member Posts: 3,030 Member
    #6
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    tootsie1 said:

    So sorry
    Anna, I'm praying for you and your husband. I know this is a very hard time for both of you.

    *hugs*
    Gail

    So sorry to read this.
    So sorry to read this. Prayers that something will be found to help him! Hugs to you!
  • Fight for my love
    Fight for my love Member Posts: 1,522 Member
    #7
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    Dear Anna,you and your
    Dear Anna,you and your husband are in my prayers.Your husband has made lots of miracles already,let's hope for another.Best wishes to you and your family.Take care.
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #8
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    Dear Anna
    Dear Anna,
    I am sorry to hear that things aren't going well for your husband. You two have gone through so much. You will be in my prayers.

    Aloha,
    Kathleen
  • Paula G.
    Paula G. Member Posts: 596
    #9
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    So sorry, Anna. I wish there
    So sorry, Anna. I wish there was something I could do or say. Just know that I am thinking about you and your husband and I hope that there is still another trial that can help slow it down.

    It's easy to say STAY STRONG but not so easy to do. Love Paula
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252 Member
    #10
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    Paula G. said:

    So sorry, Anna. I wish there
    So sorry, Anna. I wish there was something I could do or say. Just know that I am thinking about you and your husband and I hope that there is still another trial that can help slow it down.

    It's easy to say STAY STRONG but not so easy to do. Love Paula

    Anna
    I'm so sorry. There just isn't anything I can say to ease the pain of what you are both going through. I just want you to know I'm thinking about you, and hoping for the best, and that he can keep the pain under control.
  • sfmarie
    sfmarie Member Posts: 602
    #11
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    Anna
    What a true love you have for your husband. It is not easy being the caregiver and I pray that you have the strength to also take care of yourself and your husband. He must be the love of your life.
    Keep fighting! It sounds like he is in good hands with the clinical trials and I am happy he is on a list of some sort.
    Thank you for your kind words to everyone else on this board. I agree, Fight on.
    Marie
  • idlehunters
    idlehunters Member Posts: 1,787 Member
    #12
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    Kathryn_in_MN said:

    Anna
    I'm so sorry. There just isn't anything I can say to ease the pain of what you are both going through. I just want you to know I'm thinking about you, and hoping for the best, and that he can keep the pain under control.

    Hey Anna
    Thanks so much for the update on Frank. I have had you guys on my mind for a while now as well as in my prayers. This just makes me so sad. You guys have been thru the wringer over and over. I so admire your persistance and will. You are both an inspiration to us all. Anna, if you want to talk please do not hesitate to call me. You got my number. Please tell Frank I am thinking about him and sending heavy duty GOOD VIBES his way. Love to you both.

    Jennie
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #13
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    Sorry
    So sorry to hear this news. You have been a wonderful caretaker. Hoping that the pain medication works. Prayers coming both your way. Thanks for being such a support for this group and your husband.

    Kim
  • mom_2_3
    mom_2_3 Member Posts: 953 Member
    #14
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    Anna
    Anna,

    What a difficult time you are both going through. I am thinking of you both....

    Amy
  • christinecarl
    christinecarl Member Posts: 543 Member
    #15
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    I am sorry
    I swear the only thing worse than having colon cancer yourself, is watching a loved one struggle with it, I hope for strength and peace for you both. :(
  • eric38
    eric38 Member Posts: 583
    #16
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    Amcp
    I am so sorry to hear this and I am glad I was able to provide an encouraging word or two along the way. Things have been rough on the cancer board lately.
  • impactzone
    impactzone Member Posts: 551 Member
    #17
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    eric38 said:

    Amcp
    I am so sorry to hear this and I am glad I was able to provide an encouraging word or two along the way. Things have been rough on the cancer board lately.

    So sorry... I am frustrated
    So sorry... I am frustrated at the slow pace of care and research while we spend so much money on stupid stuff... Prayers headed your way right now.
    Chip
  • ADKer
    ADKer Member Posts: 147
    #18
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    impactzone said:

    So sorry... I am frustrated
    So sorry... I am frustrated at the slow pace of care and research while we spend so much money on stupid stuff... Prayers headed your way right now.
    Chip

    Frustrated
    I am with you - frustrated at the inability of medical science to do more to treat this disease. I am not yet in dire straits but I have multiple lung mets for which we cannot seem to find an effective treatment. I am so strong physically - it absolutely disgusts me that medical science cannot do better.
  • John23
    John23 Member Posts: 2,122 Member
    #19
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    aarraagghh

    Listen, I did Traditional Chinese Medicine; I used Chinese herbs
    instead of mainstream medicine.

    But you don't have to chose one or the other, you can do the
    mainstream chemo, and you can do TCM along with it, or juicing,
    or anything else......

    It's worth the try, isn't it?

    I'm so, so sick of seeing my friends suffer. I have lost so many
    friends this year, and each one swore by the mainstream medicine
    they took, and refused to try anything else.

    There are other options that can be taken along with chemo if you
    so insist, but please, don't keep putting all your marbles in one bag.

    I am going to have to take a break from this forum... It's 3am again
    another night, and I just can't continue crying over this stuff anymore.

    I hope those that need to find a way, find that way; I wish I had a
    brighter light to shine......


    Best of health to all.


    John
  • sharpy102
    sharpy102 Member Posts: 368 Member
    #20
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    sorry Anna
    @Anna: I lost whom I could pray too...but that doesn't mean I will not cross my fingers for your husband..I will..I just wish I could do more to people...but I will be a scientist and I will not let the cancer win! This is something I promised to myself, to my mom and to life!!! It makes me sooooooooo mad to read/hear how people are losing. I cannot let that happen...enough is enough! It has taken away waaaaay too many people, now it's time for a revenge! Good luck to your husband, tell him not to give up! Fight, fight, fight! I will think of you and your husband and will HOPE!
    Please take care,
    - Sophie

    Ps: I like your name...my mom's name was Anna. It's the most beautiful name one can ever have!!!
  • amcp
    amcp Member Posts: 251 Member
    #21
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    sharpy102 said:

    sorry Anna
    @Anna: I lost whom I could pray too...but that doesn't mean I will not cross my fingers for your husband..I will..I just wish I could do more to people...but I will be a scientist and I will not let the cancer win! This is something I promised to myself, to my mom and to life!!! It makes me sooooooooo mad to read/hear how people are losing. I cannot let that happen...enough is enough! It has taken away waaaaay too many people, now it's time for a revenge! Good luck to your husband, tell him not to give up! Fight, fight, fight! I will think of you and your husband and will HOPE!
    Please take care,
    - Sophie

    Ps: I like your name...my mom's name was Anna. It's the most beautiful name one can ever have!!!

    Thanks to all
    Thanks to each of you that wrote to encourage on in this vicious fight. It seems we won some battle but won't win the war. Just praying that the pain can be kept down and are so thankful for each day we still have together. We keep each one of your in our prayers and thoughts. You all have been such a comfort to me, when I up to all hours not sleeping. Cancer is such a terrible disease...I saw my mother suffer and die with this monster back in 1987 and now I am watching my husband. A cure needs to be found or at least what is causing such a rampage of this disease. Love and best wishes to each of you. Again thanks so much for taking a moment of your time to support and encourage us.
    Anna

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