New desperately seeking advice for unremitting reflux post sx

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unremitting gastric reflux
okay William..
not to bore your with all the details of my husbands journey - I'll try to be succinct.
He was staged at level 2, no mets to other organs, no lymph involvement. Horray. tumour as I have discovered, was relatively small. Just 2cm but it was deeply embedded in the esophagus at the GI junction. So it was growing inwards, not clogging the esophagus.
Chemo consisted of 35 days continuous 5 FU and three treatments of Oxyliplatin. A LOT. my husband had only two treatments of Oxyliplatin due to severe side effects. Genetically he was born with only one kidney, who knew. We joked he must have given it away without realizing.
5FU was tough. he did not complete the entire plan. Nurse missed the port and pumped the stuff into his pectoral muscle by mistake. He had a PE during the treatment.
Radiation 28 treatments completed but not consecutively.
radiation by all accounts killed the tumour according to the surgeon at Beth Israel, no evidence of the cancer at surgery. Which was MIE. We got a second opinon at Dartmouth Hitchcok in NH, but they are still in the dark ages, doing the 'open procedure'. In view of the fact he has issues with his heart, our feeling was the surgery here would kill him. We opted for the Boston surgeon instead who had good survival rates and was willing to operate feeling he had a good shot at a cure. The boston surgeon was wonderful, we liked him alot. Very compassionate not overburdened with the god complex and ego.
Surgery on May 8 2009.
Good recovery initially. But very soon problems set in. Jaundice, heart rate uncontrolled, kidney started to fail, ICU dilerium, massive infection around the mendastinium i may have mis-spelled that, anastamosis leak. Later on, illius, no sounds of life in the digestive tract, mismanaged feeding tube - at this point i may have gone slightly mad!
Botox was injected into his pylorus to stop the pouring out of brown liquid into the bulb collector at the site of the anastomosis, the same stuff he now routinely throws up.
26 days in ICU before being moved to surgical recovery.
on the 46 day he stated I was coming to collect him - he was going home to NH. Which he did. By that time the anastomosis had been resolved he had a feeding tube in place. never ate anything by mouth in the hospital. Water was withheld for a very, very long time, sheer torture because he was awake, not comatose. I feel this contributed to his intestinal issues. I became rather vicious to the medical profession, for which i am contrite, now but the experience has left me distrustful of the white coats and my husband unwilling to allow undue procedures.
Three days after coming home he had a raging fever had to be admitted to local hospital. His surgeon was very concerned - my husband flat out refused to be transported back to Boston. I won't print the exact quote so the Boston surgeon assisted with care long distance. No one figured out why he had a fever, although the mention of possibly necrotizing tissue was terrifying. Nothing dead internally it was finally decided.
A week in the hospital, blood transfussions, and metabolic righting..
He has never had any respite from constant naseua, ever.
We know the vagus nerve was cut part of the surgery.. naturally no one admitted to doing this, its SOP. But it is WRONG. VERY WRONG. Vagus nerve, as we all know is important for telegraphing messages stomach to brain.
I struggle daily with the fact that the entire esophagus was removed, please i mean no offense, but it was radical surgery, perhaps more than he truly needed.
He had the stomach pulled up, after the top portion removed, that's what I meant by stomach being cut up. Could have worded it better.

He has been hospitalized three times since May 09 always with the same issues, naseua and vomitting. No has answers other than dont eat after (pick a time). There are slow motility issues, so Reglan prscribed. I say are we now waiting for Tardives Dyskenesia to set in?

On the outside, my husband looks pretty good, just those healed stab wounds from laproscopic equipment not a big swath of incision scar, but the inside is of course, very different.
He cannot sleep on his left side for even one minute without reguritation.
He takes his meds religiously but we cannot seem to get far ahead of the puking.
Certainly it must be a nutritional thing but lately i think this is going on:
How much bile and digestive juices does a human body produce daily.. whatever amount it is.. i was told by a dietician it was about 48 fluid ounzes (?!) but this seems excessive - I believe he produces more than the average person. Regardless of surgical rearrangement, this still happens everyday. The old Yankee expression goes something along the lines of you can't put 10lbs of .. into a 5lb bag. That surely is the crux of the problem.? But how to manage the acid production?
I will say, sorry for this long post.. that there is precious little knowledge on how to manage folks after the surgery.. Historically no one lived long enough to have these problems, but now the surgery is perfected, but there is a serious lag time in terms of management of the aftermath.
thanks for your suggestions.. i was advised you had the research links and you certainly helped me.
Truebrit.