Trembling/shaking with chemo?

Stefi
Stefi Member Posts: 31
edited March 2014 in Colorectal Cancer #1
Today my mom called me after she had a weird episode. She was in her kitchen and all of a sudden her arms started almost convulsing. Her legs got weak and she had to sit on the kitchen floor until it stopped. It only lasted a minute or so but was very scary to her. She had just gotten home from grocery shopping at Wal-Mart and was so thankful it didnt happen while she was driving. She called her onc's office and they said it was probably some neuropothy. Have any of you every experienced anything like this?

Comments

  • Nana b
    Nana b Member Posts: 3,030 Member
    #2
    Hi
    I don't think I did, at least not to that extent. I hope she feels better!
  • abrub
    abrub Member Posts: 2,174 Member
    #3
    A friend had a similar problem
    and felt she was the only one in the world, tho she referred to hers as "Chattering Teeth Syndrome" as that is what affected her the most. I'll pop her thread to the top if I can find it.
  • wifeandmom
    wifeandmom Member Posts: 31
    #4
    abrub said:

    A friend had a similar problem
    and felt she was the only one in the world, tho she referred to hers as "Chattering Teeth Syndrome" as that is what affected her the most. I'll pop her thread to the top if I can find it.

    Had a 'lite' version......
    I had a 'lite' version of what your mom experienced. For me, it was most likely a combination of the chemo, dehydration, and low-ish blood pressure. Does your mom tend to have low blood pressure? That can also contribute to the shakes, especially when also dehydrated. I hope your mom feels better and has no more of those scary episodes.
    Regards,
    Dorothy
  • coloCan
    coloCan Member Posts: 1,944 Member
    #5
    wifeandmom said:

    Had a 'lite' version......
    I had a 'lite' version of what your mom experienced. For me, it was most likely a combination of the chemo, dehydration, and low-ish blood pressure. Does your mom tend to have low blood pressure? That can also contribute to the shakes, especially when also dehydrated. I hope your mom feels better and has no more of those scary episodes.
    Regards,
    Dorothy

    Is your mother on oxaliplatin?
    I had extreme, uncontollable shaking as I alternated from burning up to freezing, with difficulty catching my breath.......Had it both before(once) and after (three times)surgery, tho much worse and more frightening after surgery while on FOLFOX.....Onc had to delete the oxi from my regimen as a result (I was terrified of another such attack/reaction, as they lasted at least an hour )..,....steve
  • Lifeisajourney
    Lifeisajourney Member Posts: 216
    #6
    Lots of neuro problems
    from folfox. You didn't say what see she is on, but folfox caused mostly neuro problems with me. I had three Really Bad falls, luckly on carpet. Arms/legs went to jelly and went face first down, did not put arms up as you would usually do to stop fall, they were like jelly. This started after about 2 or 3 sessions, only made it thru 7. I also walked funny and talked funny. Other then numb feet/hands, most everything has come back, but it was scary. Off folfox since 5/09. I would let onco know. Pat
  • Lifeisajourney
    Lifeisajourney Member Posts: 216
    #7
    Lots of neuro problems
    from folfox. You didn't say what see she is on, but folfox caused mostly neuro problems with me. I had three Really Bad falls, luckly on carpet. Arms/legs went to jelly and went face first down, did not put arms up as you would usually do to stop fall, they were like jelly. This started after about 2 or 3 sessions, only made it thru 7. I also walked funny and talked funny. Other then numb feet/hands, most everything has come back, but it was scary. Off folfox since 5/09. I would let onco know. Pat
  • bfiscus
    bfiscus Member Posts: 3
    #8
    Absolutely had the shakes and convulsions with chemo. My entire body would knot up but especially calves, thighs and forearms. Mine would occur within 2 hours of the infusion [oxaliplatin] completing. Minor cramping off and on after that until I was permitted back in the gym. My chemo finished in May 2010 but I still experience considerable neuropathy in my feet and fingers. I'm told 'time' takes care of that but that seems to be oncologist speak for "maybe it will get better' and 'maybe not'.

Discussion Boards