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Deb_needhope have ?/new and dont know how to address users

kimbee1218
Posts: 29
Joined: Jun 2010

Deb_needhope,

I was reading your post about your Mom and the Drs saying they thought it might be SC instead of NSC. How did they figure it out. My Dad had a bronchoscopy and the Dr that perfromed came out right after and told us it was SC and he didnt need to wait for the biopsy report. 2 wks later the onocologists say the Pathology report reads that it is Squamus cell which is NSC. The Dr that did bronchoscopy is an experienced 30+ year Pulmonary Dr. and he was soooo sure of what he saw. My main problem is that the onocolists are acting like it is no big deal and say we go by pathology report not Dr eye. Didnt even pose a question in their mind. My Dads symptoms came so fast and he is going down so fast, I want to be sure that he gets the right treatment. How did your Mom make out? Thanks for any info.

Kim

deb_needhope
Posts: 38
Joined: Jun 2010

Hi Kim, So regarding the first diagnosis, the first oncologist told us it was non-small cell which is what the pathologists read. We then went to a different hospital (better logistics to our home and better equipment such as cyberknife etc.) We consulted w/new oncologist. They asked that the tissues be sent to their hospital for review. She then went over the treatment options. They were going to do Cyberknife on the brain to shrink that tumor, then chemo. We had the cyberknife prep appointment, then the 2nd Oncologist told us that the first Oncologist from the first hospital called and said they thought the pathology report from them was wrong.. Said that their board reviewed her results and it looked like small cell. So the 2nd hospital, did their own pathology results from the tissues sent over from her biopsy. They confirmed that it was small cell. Cyberknife was then cancelled.. Guess it doesn't work well with small cell? We were disappointed/frustrated with the results/mistake but glad we're treating the right diagnosis. She did chemo last Monday 4hrs), Tues and Wed about 2hrs and is going great. She took her anti-nausea meds as directed and hasn't got sick at all. She's at my house now and we're keeping her away from crowds (malls, restuarants etc.) while her immune system is low.. The only thing that she has had is constipation, so we're working on that. Hope all goes well with your Dad.. From what I've read, Non-small cell doesn't grow as fast and there are more clinical trials. Next cycle for my Mom starts on 7/12, 7/13 & 7/14. We're taking it day by day and hoping and praying for the best. Keep in touch!.. Deb.

kimbee1218
Posts: 29
Joined: Jun 2010

Deb
I am glad to hear that your Mom is doing well and getting the right treatment. I am so worried that my Dad will get the wrong treatment and not even have a chance. 1st Drs want to start his treatment 7/6 and our 2nd opinion appt is on 7/20. 2nd opinion is trying to get us in this week to confirm diagnosis to make sure that he gets the right treatment. It is so confusing to think about how they can get a pathology dx wrong. I hope your Mom continues to do well, keep me posted. Kim

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