Jun 24, 2010 - 1:39 pm
I am a 48 year old female. I was feeling nausea and having dry heaves for several months before the docs decided to scope me. They suspected GERD but found nothing. They took two random biopsies. One of them showed a cancer cell. This was in December 2009. They recommended total gastrectomy because the likelihood of the cancer returning or being in other areas of the stomach were high and scoping and checking biopsies every three months might not catch the cancer before it spread further.
In January 2010, I had my entire stomach removed. Since then - no matter what anti nausea drugs I take - I am still nauseous 24 hours a day. I have great difficulty keeping even the smallest amount of solids/liquids down no matter how I try. I have lost 70 pounds in six months. My doctors have checked everything out and they say everything is functioning correctly. Gee thanks but that doesn't help.
I receive IV fluids weekly because dehydration has been an issue (hospitalized at least 6 times in last 5 months and numerous emergency room visits). They installed a PICC line (semi-permanent iv) because of collapsing/worn out veins. The surgeon is thinking about re-inserting a J-tube for feedings. I don't want this. I've been out on disability leave since January. I am tired (exhausted), no energy, and miserable.
I've read through the discussions on similar topics and have tried everything offered by other discussion posters. Does anyone have any new ideas? Has or is anyone else going through similar months after surgery.
Second question: my doctors got all the cancer without needing radiation or chemo - but in reading what others have experienced after dx, I wonder if my docs weren't to quick to remove the entire stomach? It was presented as only "cure" for my stomach cancer. Not that I can do anything about it now but just curious about what others think.