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What cancer patients, their families, and caregivers need to know about COVID-19.

Waiting to Hear

Posts: 1416
Joined: Mar 2001

Hello all,

I am now waiting to hear from a surgeon and that makes me feel better knowing though I am not sure why this is happening now and not from the start, must just want to see first. I am still at cancer clinic so things will be quicker there. My goodness I just heard how long MRI's are taking outside of the Cancer Clinic in General Public and it is over 15 months for none emergency. That is scary if they believe like they did with me that I didn't have cancer and don't press as emergency. How is early detection possible I am beginning to wonder. Thank God for the our Cancer facilities.

Posts: 5
Joined: May 2010

Where are you living that it takes so long to get testing done? They waited a month to do a CT Scan on my wife and I thought that was too long. They weren't concerned it was cancer and thought she had costochondritis because her blood work was perfect--and still is even with a huge tumor on her liver. I just knew, down deep, that something was wrong with her health. She normally loves exercise and last summer she just stopped going to the gym. It set off warning bells in my head but I just figured she was working a lot and tired. The wait there is just terrifying to me, especially if the folks that are waiting have aggressive cancers. I guess I should be thankful that we have good insurance and live in a place where the doctors are pretty damned responsive.

I'm glad you have cancer facilities too!! Hopefully, they can get this testing done, figure out what is wrong, and get you back on the road to recovery. Please let us know what the surgeon says. After all you've been through I realize that this must be a really stressful time for you and your partner. I'm so sorry you have to go through all of this again. I'm here for you and praying for you and your partner.

Posts: 1416
Joined: Mar 2001

Well that is somewhere we have to leave, because that eats you up and spits you out every time. Yes it is a hard time waiting and wondering but my advice to myself now and everyone else who asks, Stress is a terrible thing and we have to find new ways to cope through it all whatever IT is. Now finding out the MRI shows the same deteriation as those whith MS is just another disease to me. I am just grateful the MRI is picking up something because I knew in my soul something was terribly wrong. I knew it in 2003 but I didn't have MRI then and was told it was menopause and now I cannot deny something is terrbily wrong now that I am tripping and falling down. I have been an amazing athlete through my life and proud of being able to mud and tape drywall for a living after everything I had been through. Now that too has changed and I will have to find my way through this as well.
I was tired for years prior to my INC Breast Cancer. Our good family friend, who's husband is a Doctor asked me a few years ago how I was really doing. This is 12 years surviving, and I aswered and told her that I obviously had been very ill for a long time. My hips killed me for years and I was exhausted not tired. I was getting sick because of this and doctors looked at me like I was insane. Well built, athletic woman who showed no signs of a disease, though no one bothered to look. I finally new what it was like to feel good and could see how long I had signs we all ignored till I was deathly ill. By the way from the time I found my first lump it was six months till the second grew in one week to golf ball size.
How is early detection possible if there isn't some good response and diagnostic testing done. Now finally, in my home province my friends are getting that fast detection necessary but 13 years later. Till now I don't know any young woman who survived less stage of cancer than I had from there, with 28% better success in BC than any other province.
I moved to be with partner knowing in my soul something was terribly wrong and my son needed another person in his life. We had been dating long distance for 4.5 years. The lump just made it clear to the two of us we could be wasting time we could have together if something was terribly wrong. The Son, 13 at the time.
I am sorry you too have to face such fear in mirror. It is hard not to go to every place our minds wonder too and that is the hardest thing.
I am interested more in other symptoms your partner was experiencing before diagnosis if you would share.
I am so glad I can come here because I moved away from all my family and friends and haven't made many since battling for good health more than half my time here. I can't believe sometimes my partner is still here to go through something else. Nothing like the Girl she fell in love with that is for sure. We are at a very good place right now and can't be more grateful for that something I can count on now. I finally feel her support and my son has someone who he too can finally count on since father MIA. I have a great family and have never been closer to parents. I hope you all have others to help you through this. I know how hard it is to ask for help if needed.

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