results of yesterday's CT/PET & CA125

lindaprocopio
lindaprocopio Member Posts: 1,980
edited March 2014 in Ovarian Cancer #1
Well, not the news I wanted but it could have been much worse. My CA125 went up from 34.6 to 53.9, and 2 of the 3 lymph nodes that had disappeared on my last CT/PET lit up again. (sigh)

The news on my scan is unofficial, but here's what I learned: The para-aortic lymph node that lit up is really tiny and wasn't even measured. The lymph node under my arm was 1.0 x 1.3 cm and lit up a bright SUV of 7.8. The weird thing is that I can't even feel anything under there with my fingers, and cancerous lymph nodes in the armpit are always hard, I've read. I was told that sometimes when the same nodes light up off and on that they may just be nodes that are easily irritated. I don't know. Maybe I'm just grasping at straws here.

I see my chemo-onc Thursday for my official review of the scan and his recommendations. I see my gyne-onc Monday for his recommendation, although we already talked about the various possible scenarios when I saw him last week. My gyne-onc said if only really little nodes lite up and only 1 or 2, he would still be inclined to have me do nothing and just be monitored for a couple more months. (We'll see if these 2 little lymph nodes meet his definition of 'really little'.)

Earlier we'd talked about doing surgery and removing a node if that was possible this time, and try and get a physical confirmation if this is really a recurrence. I think I'd like him to cut out that node under my arm if it is large enough for him to even FIND it in there, and biopsy it. I figure if it's cancerous, well then I've cut the cancer out of me. And if it's not, I'm not going to worry about that other node in the para-aorta that lights up 6 months ago, doesn't light up 3 months ago, and lights up again now. I looked up the surgery to remove the armpit node and it's just a fast in-and-out surgery with a few days of drainage and discomfort but no biggie. & I want to have live tissue assays done and sent to John Hopkins if I can swing that.

& I'm going to see if I can get some antibiotics or anti-inflammatories before my next scan.

Naturally, I'm bummed. But I'm not stunned and heart-broken or anything like that. I got a 4 month 'spring break' from treatment at least. I'll let you know what my 2 oncologists say, and I'll be surprised if they agree.

Comments

  • azgrandma
    azgrandma Member Posts: 609 Member
    I agree
    I definatley would have it removed
    Thngs will be ok you'll see
  • kayandok
    kayandok Member Posts: 1,202 Member
    Hi LInda,
    thanks for the update, and so sorry it wasn't a better report. I am inspired by your attitude and fighting spirit. I vote for the surgery, and a chemo assay, if you can swing it. I think it is the only way to go. Clearity Foundation also does a blue print on your tumor, if you haven't already heard of them, and will test for the other experimental stuff too, including avastin. (I just remembered are not OvCa. I wonder if they would do it anyway....... worth a shot.)

    And you are right about our two onco docs not agreeing, lol. It does put a bit more of the burden on your shoulders, but worth hearing two professional views, I think.

    Hugs,
    Kathleen
  • LPack
    LPack Member Posts: 645
    Light up
    Linda,

    I remember last year when I had my first and only PET scan and just prayed I would not light up like a Christmas tree!! I did light up in a couple areas but even at that it was NOT conclusive. So much for technology.

    And my CA125 has surely varied this first recurrence.

    I believe I would want the node removed too. I have been a month off chemo now and feel so much better.

    Thanks for keeping us updated and love your attitude.

    Living for Eternity,
    Libby ♥
  • BonnieR
    BonnieR Member Posts: 1,526 Member
    Sending a hug
    Hi Linda, Just wanted to send a hug your way, along with prayers. You are such a strong amazing women I know this news will not knock down. BTW love this picture ... your smile is radiant. Hugs Bonnie
  • BonnieR
    BonnieR Member Posts: 1,526 Member
    Sending a hug
    Opps... puter froze and posted twice :-)
  • lindaprocopio
    lindaprocopio Member Posts: 1,980
    BonnieR said:

    Sending a hug
    Opps... puter froze and posted twice :-)

    Today I saw my chemo-oncologist for his opinion on my scans.
    I swear my body must be incredibly weird and unique. I met with my chemo-onc today to review Monday's CT/PET results. He did a side-by-side comparison of my CT/PET slides from back in November 2009 when these same 2 nodes last lit up. Both are considerably smaller than they were back in November (although of course, they weren't lit up at all back in February 2010 when I had that amazing NED CT/PET). So he said we're still in better shape than we were in November and I did get that glorious 4-month chemo break, so it was worth it to me.

    What made this visit so surreal is that my chemo-onc said that he just NEVER sees endometrial cancer metastasize to the inguinal nodes, which usually light up for breast cancer. Although he said this is highly unlikely, he said that we COULD be dealing with a 2nd primary cancer: breast cancer. Highly unusual, and very unlikely as I recently had a clear mammogram and nothing in my breasts lit up on Monday's PET,...but he just feels that particular lymph node lighting up so bright on the PET twice is just strange. (And yet my gyne-onc always feels under my armpits for any swellings, etc.,... so how unusual really IS it???)

    But here's the kicker: He said that if this was a 2nd primary cancer INSTEAD of endometrial cancer mets, this would be VERY good news for me. Breast cancer is curable; recurrent endometrial cancer isn't. Who would ever think that a 2nd entirely different cancer could be GOOD news???

    So the plan is to cut that node out and biopsy it and find out what's going on. Maybe I'll get super-lucky and it will be benign. And if it is cancerous, I'll be glad to have it out of my body. Plus he said we'd do HER2 testing, etc. on the new tissue which will help guide our treatment decisions going forward. Because this particular node is associated almost always with breast cancer, the surgery would be done by a breast cancer oncologist/surgeon since he would have the most experience. Unfortunately, this surgeon just went away on a 3-week vacation, but my chemo-onc is going to call him for a referral. But I'm thinking that I will be leaving for my cruise next week and not back until the 5th, and my chemo-onc is going away while I am gone and not back until June 10th, so I'll bet it'll take the 3 weeks until this surgeon is back for them to schedule the surgery anyway.

    Although he didn't want us to get too far ahead of ourselves, we talked about what treatment would be next if the node comes up malignant. He thinks fractionated weekly carbo/taxol, but didn't rule out doxil. He did say that he wouldn't consider radiation under my arm since we would be ignoring the tiny para-aortic node that also lit up, and that we should go with some sort of chemo. He said that he likes to give hormone therapy only when you have no evidence of disease, to hold you in remission longer (an area where my gyne-onc disagrees with him.)

    I see my wonderful gyne-onc on Monday for his input into this mysterious saga. Never a dull moment, eh?
  • LPack
    LPack Member Posts: 645

    Today I saw my chemo-oncologist for his opinion on my scans.
    I swear my body must be incredibly weird and unique. I met with my chemo-onc today to review Monday's CT/PET results. He did a side-by-side comparison of my CT/PET slides from back in November 2009 when these same 2 nodes last lit up. Both are considerably smaller than they were back in November (although of course, they weren't lit up at all back in February 2010 when I had that amazing NED CT/PET). So he said we're still in better shape than we were in November and I did get that glorious 4-month chemo break, so it was worth it to me.

    What made this visit so surreal is that my chemo-onc said that he just NEVER sees endometrial cancer metastasize to the inguinal nodes, which usually light up for breast cancer. Although he said this is highly unlikely, he said that we COULD be dealing with a 2nd primary cancer: breast cancer. Highly unusual, and very unlikely as I recently had a clear mammogram and nothing in my breasts lit up on Monday's PET,...but he just feels that particular lymph node lighting up so bright on the PET twice is just strange. (And yet my gyne-onc always feels under my armpits for any swellings, etc.,... so how unusual really IS it???)

    But here's the kicker: He said that if this was a 2nd primary cancer INSTEAD of endometrial cancer mets, this would be VERY good news for me. Breast cancer is curable; recurrent endometrial cancer isn't. Who would ever think that a 2nd entirely different cancer could be GOOD news???

    So the plan is to cut that node out and biopsy it and find out what's going on. Maybe I'll get super-lucky and it will be benign. And if it is cancerous, I'll be glad to have it out of my body. Plus he said we'd do HER2 testing, etc. on the new tissue which will help guide our treatment decisions going forward. Because this particular node is associated almost always with breast cancer, the surgery would be done by a breast cancer oncologist/surgeon since he would have the most experience. Unfortunately, this surgeon just went away on a 3-week vacation, but my chemo-onc is going to call him for a referral. But I'm thinking that I will be leaving for my cruise next week and not back until the 5th, and my chemo-onc is going away while I am gone and not back until June 10th, so I'll bet it'll take the 3 weeks until this surgeon is back for them to schedule the surgery anyway.

    Although he didn't want us to get too far ahead of ourselves, we talked about what treatment would be next if the node comes up malignant. He thinks fractionated weekly carbo/taxol, but didn't rule out doxil. He did say that he wouldn't consider radiation under my arm since we would be ignoring the tiny para-aortic node that also lit up, and that we should go with some sort of chemo. He said that he likes to give hormone therapy only when you have no evidence of disease, to hold you in remission longer (an area where my gyne-onc disagrees with him.)

    I see my wonderful gyne-onc on Monday for his input into this mysterious saga. Never a dull moment, eh?

    Unique indeed!
    Just goes in shows us how true scripture is!!

    We are uniquely made...................

    Libby ☺
  • nancy591
    nancy591 Member Posts: 1,027 Member

    Today I saw my chemo-oncologist for his opinion on my scans.
    I swear my body must be incredibly weird and unique. I met with my chemo-onc today to review Monday's CT/PET results. He did a side-by-side comparison of my CT/PET slides from back in November 2009 when these same 2 nodes last lit up. Both are considerably smaller than they were back in November (although of course, they weren't lit up at all back in February 2010 when I had that amazing NED CT/PET). So he said we're still in better shape than we were in November and I did get that glorious 4-month chemo break, so it was worth it to me.

    What made this visit so surreal is that my chemo-onc said that he just NEVER sees endometrial cancer metastasize to the inguinal nodes, which usually light up for breast cancer. Although he said this is highly unlikely, he said that we COULD be dealing with a 2nd primary cancer: breast cancer. Highly unusual, and very unlikely as I recently had a clear mammogram and nothing in my breasts lit up on Monday's PET,...but he just feels that particular lymph node lighting up so bright on the PET twice is just strange. (And yet my gyne-onc always feels under my armpits for any swellings, etc.,... so how unusual really IS it???)

    But here's the kicker: He said that if this was a 2nd primary cancer INSTEAD of endometrial cancer mets, this would be VERY good news for me. Breast cancer is curable; recurrent endometrial cancer isn't. Who would ever think that a 2nd entirely different cancer could be GOOD news???

    So the plan is to cut that node out and biopsy it and find out what's going on. Maybe I'll get super-lucky and it will be benign. And if it is cancerous, I'll be glad to have it out of my body. Plus he said we'd do HER2 testing, etc. on the new tissue which will help guide our treatment decisions going forward. Because this particular node is associated almost always with breast cancer, the surgery would be done by a breast cancer oncologist/surgeon since he would have the most experience. Unfortunately, this surgeon just went away on a 3-week vacation, but my chemo-onc is going to call him for a referral. But I'm thinking that I will be leaving for my cruise next week and not back until the 5th, and my chemo-onc is going away while I am gone and not back until June 10th, so I'll bet it'll take the 3 weeks until this surgeon is back for them to schedule the surgery anyway.

    Although he didn't want us to get too far ahead of ourselves, we talked about what treatment would be next if the node comes up malignant. He thinks fractionated weekly carbo/taxol, but didn't rule out doxil. He did say that he wouldn't consider radiation under my arm since we would be ignoring the tiny para-aortic node that also lit up, and that we should go with some sort of chemo. He said that he likes to give hormone therapy only when you have no evidence of disease, to hold you in remission longer (an area where my gyne-onc disagrees with him.)

    I see my wonderful gyne-onc on Monday for his input into this mysterious saga. Never a dull moment, eh?

    wow
    You seem to have a lot going on!!! Good luck with everything. Please keep us updated!!
  • Tina Brown
    Tina Brown Member Posts: 1,036 Member

    Today I saw my chemo-oncologist for his opinion on my scans.
    I swear my body must be incredibly weird and unique. I met with my chemo-onc today to review Monday's CT/PET results. He did a side-by-side comparison of my CT/PET slides from back in November 2009 when these same 2 nodes last lit up. Both are considerably smaller than they were back in November (although of course, they weren't lit up at all back in February 2010 when I had that amazing NED CT/PET). So he said we're still in better shape than we were in November and I did get that glorious 4-month chemo break, so it was worth it to me.

    What made this visit so surreal is that my chemo-onc said that he just NEVER sees endometrial cancer metastasize to the inguinal nodes, which usually light up for breast cancer. Although he said this is highly unlikely, he said that we COULD be dealing with a 2nd primary cancer: breast cancer. Highly unusual, and very unlikely as I recently had a clear mammogram and nothing in my breasts lit up on Monday's PET,...but he just feels that particular lymph node lighting up so bright on the PET twice is just strange. (And yet my gyne-onc always feels under my armpits for any swellings, etc.,... so how unusual really IS it???)

    But here's the kicker: He said that if this was a 2nd primary cancer INSTEAD of endometrial cancer mets, this would be VERY good news for me. Breast cancer is curable; recurrent endometrial cancer isn't. Who would ever think that a 2nd entirely different cancer could be GOOD news???

    So the plan is to cut that node out and biopsy it and find out what's going on. Maybe I'll get super-lucky and it will be benign. And if it is cancerous, I'll be glad to have it out of my body. Plus he said we'd do HER2 testing, etc. on the new tissue which will help guide our treatment decisions going forward. Because this particular node is associated almost always with breast cancer, the surgery would be done by a breast cancer oncologist/surgeon since he would have the most experience. Unfortunately, this surgeon just went away on a 3-week vacation, but my chemo-onc is going to call him for a referral. But I'm thinking that I will be leaving for my cruise next week and not back until the 5th, and my chemo-onc is going away while I am gone and not back until June 10th, so I'll bet it'll take the 3 weeks until this surgeon is back for them to schedule the surgery anyway.

    Although he didn't want us to get too far ahead of ourselves, we talked about what treatment would be next if the node comes up malignant. He thinks fractionated weekly carbo/taxol, but didn't rule out doxil. He did say that he wouldn't consider radiation under my arm since we would be ignoring the tiny para-aortic node that also lit up, and that we should go with some sort of chemo. He said that he likes to give hormone therapy only when you have no evidence of disease, to hold you in remission longer (an area where my gyne-onc disagrees with him.)

    I see my wonderful gyne-onc on Monday for his input into this mysterious saga. Never a dull moment, eh?

    Hi Linda
    Your post was very interesting as you may have a second primary on your breast. I will be going for an appointment at my local breast institute as I have a family history of breast cancer. I think that once you have cancer and are in the SYSTEM at your hospital - you are very well looked after. As soon as you have worries or things out of the ordinary - they are on it. You get very quick referrals and treatment.

    I wish you very very good luck and keep us informed of your progress.

    Tina xx
  • kayandok
    kayandok Member Posts: 1,202 Member

    Today I saw my chemo-oncologist for his opinion on my scans.
    I swear my body must be incredibly weird and unique. I met with my chemo-onc today to review Monday's CT/PET results. He did a side-by-side comparison of my CT/PET slides from back in November 2009 when these same 2 nodes last lit up. Both are considerably smaller than they were back in November (although of course, they weren't lit up at all back in February 2010 when I had that amazing NED CT/PET). So he said we're still in better shape than we were in November and I did get that glorious 4-month chemo break, so it was worth it to me.

    What made this visit so surreal is that my chemo-onc said that he just NEVER sees endometrial cancer metastasize to the inguinal nodes, which usually light up for breast cancer. Although he said this is highly unlikely, he said that we COULD be dealing with a 2nd primary cancer: breast cancer. Highly unusual, and very unlikely as I recently had a clear mammogram and nothing in my breasts lit up on Monday's PET,...but he just feels that particular lymph node lighting up so bright on the PET twice is just strange. (And yet my gyne-onc always feels under my armpits for any swellings, etc.,... so how unusual really IS it???)

    But here's the kicker: He said that if this was a 2nd primary cancer INSTEAD of endometrial cancer mets, this would be VERY good news for me. Breast cancer is curable; recurrent endometrial cancer isn't. Who would ever think that a 2nd entirely different cancer could be GOOD news???

    So the plan is to cut that node out and biopsy it and find out what's going on. Maybe I'll get super-lucky and it will be benign. And if it is cancerous, I'll be glad to have it out of my body. Plus he said we'd do HER2 testing, etc. on the new tissue which will help guide our treatment decisions going forward. Because this particular node is associated almost always with breast cancer, the surgery would be done by a breast cancer oncologist/surgeon since he would have the most experience. Unfortunately, this surgeon just went away on a 3-week vacation, but my chemo-onc is going to call him for a referral. But I'm thinking that I will be leaving for my cruise next week and not back until the 5th, and my chemo-onc is going away while I am gone and not back until June 10th, so I'll bet it'll take the 3 weeks until this surgeon is back for them to schedule the surgery anyway.

    Although he didn't want us to get too far ahead of ourselves, we talked about what treatment would be next if the node comes up malignant. He thinks fractionated weekly carbo/taxol, but didn't rule out doxil. He did say that he wouldn't consider radiation under my arm since we would be ignoring the tiny para-aortic node that also lit up, and that we should go with some sort of chemo. He said that he likes to give hormone therapy only when you have no evidence of disease, to hold you in remission longer (an area where my gyne-onc disagrees with him.)

    I see my wonderful gyne-onc on Monday for his input into this mysterious saga. Never a dull moment, eh?

    Very interesting!
    Thanks for sharing, keep us posted, Linda,
    kathleen
  • Karen9182
    Karen9182 Member Posts: 60

    Today I saw my chemo-oncologist for his opinion on my scans.
    I swear my body must be incredibly weird and unique. I met with my chemo-onc today to review Monday's CT/PET results. He did a side-by-side comparison of my CT/PET slides from back in November 2009 when these same 2 nodes last lit up. Both are considerably smaller than they were back in November (although of course, they weren't lit up at all back in February 2010 when I had that amazing NED CT/PET). So he said we're still in better shape than we were in November and I did get that glorious 4-month chemo break, so it was worth it to me.

    What made this visit so surreal is that my chemo-onc said that he just NEVER sees endometrial cancer metastasize to the inguinal nodes, which usually light up for breast cancer. Although he said this is highly unlikely, he said that we COULD be dealing with a 2nd primary cancer: breast cancer. Highly unusual, and very unlikely as I recently had a clear mammogram and nothing in my breasts lit up on Monday's PET,...but he just feels that particular lymph node lighting up so bright on the PET twice is just strange. (And yet my gyne-onc always feels under my armpits for any swellings, etc.,... so how unusual really IS it???)

    But here's the kicker: He said that if this was a 2nd primary cancer INSTEAD of endometrial cancer mets, this would be VERY good news for me. Breast cancer is curable; recurrent endometrial cancer isn't. Who would ever think that a 2nd entirely different cancer could be GOOD news???

    So the plan is to cut that node out and biopsy it and find out what's going on. Maybe I'll get super-lucky and it will be benign. And if it is cancerous, I'll be glad to have it out of my body. Plus he said we'd do HER2 testing, etc. on the new tissue which will help guide our treatment decisions going forward. Because this particular node is associated almost always with breast cancer, the surgery would be done by a breast cancer oncologist/surgeon since he would have the most experience. Unfortunately, this surgeon just went away on a 3-week vacation, but my chemo-onc is going to call him for a referral. But I'm thinking that I will be leaving for my cruise next week and not back until the 5th, and my chemo-onc is going away while I am gone and not back until June 10th, so I'll bet it'll take the 3 weeks until this surgeon is back for them to schedule the surgery anyway.

    Although he didn't want us to get too far ahead of ourselves, we talked about what treatment would be next if the node comes up malignant. He thinks fractionated weekly carbo/taxol, but didn't rule out doxil. He did say that he wouldn't consider radiation under my arm since we would be ignoring the tiny para-aortic node that also lit up, and that we should go with some sort of chemo. He said that he likes to give hormone therapy only when you have no evidence of disease, to hold you in remission longer (an area where my gyne-onc disagrees with him.)

    I see my wonderful gyne-onc on Monday for his input into this mysterious saga. Never a dull moment, eh?

    Indeed...
    Because life isn't confusing enough for you... Iagree, removal of the node for biopsy seems like the appropriate course of action. In my opinion if it's cancer, I don't want it...just make it disappear by what ever means necessary. I'll deal with the fallout later. My surgeon took a needle biopsy before the surgery and it wound up going to the tumor board for discussion...they werent sure what it was. They tested for liver, breast and colon, but were pretty sure it was something 'feminine' because of the estrogen receptors. They decided on ovarian, only to change their minds post surgery to peritoneal cancer.
    But aSECOND primary cancer?? Wow. A lot of information. Hang in there you are an intelligent, level-headed woman from the sounds of things have faith and keep fighting regardless of where the attack is coming from. You have it in you. I will keep you in my thoughts and prayers for the best news possible for you.
    Hugs to you...
    Karen
  • Today I saw my chemo-oncologist for his opinion on my scans.
    I swear my body must be incredibly weird and unique. I met with my chemo-onc today to review Monday's CT/PET results. He did a side-by-side comparison of my CT/PET slides from back in November 2009 when these same 2 nodes last lit up. Both are considerably smaller than they were back in November (although of course, they weren't lit up at all back in February 2010 when I had that amazing NED CT/PET). So he said we're still in better shape than we were in November and I did get that glorious 4-month chemo break, so it was worth it to me.

    What made this visit so surreal is that my chemo-onc said that he just NEVER sees endometrial cancer metastasize to the inguinal nodes, which usually light up for breast cancer. Although he said this is highly unlikely, he said that we COULD be dealing with a 2nd primary cancer: breast cancer. Highly unusual, and very unlikely as I recently had a clear mammogram and nothing in my breasts lit up on Monday's PET,...but he just feels that particular lymph node lighting up so bright on the PET twice is just strange. (And yet my gyne-onc always feels under my armpits for any swellings, etc.,... so how unusual really IS it???)

    But here's the kicker: He said that if this was a 2nd primary cancer INSTEAD of endometrial cancer mets, this would be VERY good news for me. Breast cancer is curable; recurrent endometrial cancer isn't. Who would ever think that a 2nd entirely different cancer could be GOOD news???

    So the plan is to cut that node out and biopsy it and find out what's going on. Maybe I'll get super-lucky and it will be benign. And if it is cancerous, I'll be glad to have it out of my body. Plus he said we'd do HER2 testing, etc. on the new tissue which will help guide our treatment decisions going forward. Because this particular node is associated almost always with breast cancer, the surgery would be done by a breast cancer oncologist/surgeon since he would have the most experience. Unfortunately, this surgeon just went away on a 3-week vacation, but my chemo-onc is going to call him for a referral. But I'm thinking that I will be leaving for my cruise next week and not back until the 5th, and my chemo-onc is going away while I am gone and not back until June 10th, so I'll bet it'll take the 3 weeks until this surgeon is back for them to schedule the surgery anyway.

    Although he didn't want us to get too far ahead of ourselves, we talked about what treatment would be next if the node comes up malignant. He thinks fractionated weekly carbo/taxol, but didn't rule out doxil. He did say that he wouldn't consider radiation under my arm since we would be ignoring the tiny para-aortic node that also lit up, and that we should go with some sort of chemo. He said that he likes to give hormone therapy only when you have no evidence of disease, to hold you in remission longer (an area where my gyne-onc disagrees with him.)

    I see my wonderful gyne-onc on Monday for his input into this mysterious saga. Never a dull moment, eh?

    This comment has been removed by the Moderator
  • saundra
    saundra Member Posts: 1,370 Member

    Today I saw my chemo-oncologist for his opinion on my scans.
    I swear my body must be incredibly weird and unique. I met with my chemo-onc today to review Monday's CT/PET results. He did a side-by-side comparison of my CT/PET slides from back in November 2009 when these same 2 nodes last lit up. Both are considerably smaller than they were back in November (although of course, they weren't lit up at all back in February 2010 when I had that amazing NED CT/PET). So he said we're still in better shape than we were in November and I did get that glorious 4-month chemo break, so it was worth it to me.

    What made this visit so surreal is that my chemo-onc said that he just NEVER sees endometrial cancer metastasize to the inguinal nodes, which usually light up for breast cancer. Although he said this is highly unlikely, he said that we COULD be dealing with a 2nd primary cancer: breast cancer. Highly unusual, and very unlikely as I recently had a clear mammogram and nothing in my breasts lit up on Monday's PET,...but he just feels that particular lymph node lighting up so bright on the PET twice is just strange. (And yet my gyne-onc always feels under my armpits for any swellings, etc.,... so how unusual really IS it???)

    But here's the kicker: He said that if this was a 2nd primary cancer INSTEAD of endometrial cancer mets, this would be VERY good news for me. Breast cancer is curable; recurrent endometrial cancer isn't. Who would ever think that a 2nd entirely different cancer could be GOOD news???

    So the plan is to cut that node out and biopsy it and find out what's going on. Maybe I'll get super-lucky and it will be benign. And if it is cancerous, I'll be glad to have it out of my body. Plus he said we'd do HER2 testing, etc. on the new tissue which will help guide our treatment decisions going forward. Because this particular node is associated almost always with breast cancer, the surgery would be done by a breast cancer oncologist/surgeon since he would have the most experience. Unfortunately, this surgeon just went away on a 3-week vacation, but my chemo-onc is going to call him for a referral. But I'm thinking that I will be leaving for my cruise next week and not back until the 5th, and my chemo-onc is going away while I am gone and not back until June 10th, so I'll bet it'll take the 3 weeks until this surgeon is back for them to schedule the surgery anyway.

    Although he didn't want us to get too far ahead of ourselves, we talked about what treatment would be next if the node comes up malignant. He thinks fractionated weekly carbo/taxol, but didn't rule out doxil. He did say that he wouldn't consider radiation under my arm since we would be ignoring the tiny para-aortic node that also lit up, and that we should go with some sort of chemo. He said that he likes to give hormone therapy only when you have no evidence of disease, to hold you in remission longer (an area where my gyne-onc disagrees with him.)

    I see my wonderful gyne-onc on Monday for his input into this mysterious saga. Never a dull moment, eh?

    Whirlwind
    What a whirlwind you have been in. My gyn/onc does not want to do radiation either although the colon surgeon put markers in for it during the surgery. He says chemo but not until I heal from the surgery.
    Thanks for sharing your news. I did the hormone therapy and it did hold back my cancer growth for awhile. 11 months before my CA125 got so high we had to start chemo again. The two doses of Doxil I had and the surgery lowered my counts from 433 to 70. I hope you go on that cruise and just forget the medical situation for awhile. I loved going on mine and don't regret it at all. Hugs, Saundra
  • BonnieR
    BonnieR Member Posts: 1,526 Member
    saundra said:

    Whirlwind
    What a whirlwind you have been in. My gyn/onc does not want to do radiation either although the colon surgeon put markers in for it during the surgery. He says chemo but not until I heal from the surgery.
    Thanks for sharing your news. I did the hormone therapy and it did hold back my cancer growth for awhile. 11 months before my CA125 got so high we had to start chemo again. The two doses of Doxil I had and the surgery lowered my counts from 433 to 70. I hope you go on that cruise and just forget the medical situation for awhile. I loved going on mine and don't regret it at all. Hugs, Saundra

    No Radiation either
    Saundra, the colon docs are so use to saying radiation..mine said the same to me. But very very unlikely that my gyn/onc would ever consider radiation, but I already knew that.

    Pray you are doing well, so good to see you posting again. Hugs Bonnie