Chemo Brain???????

Kathy T
Kathy T Member Posts: 22
edited March 2014 in Ovarian Cancer #1
Wondering if anyone is having what they call chemo brain? I have finished my chemo in december and have the achy bones which I hear is normal--but also been having this fog in my head. Sometimes I will forget simple things like phone numbers or the way to spell something. Gets very annoying!!! People have said this is normal, but was wondering if anyone else has this and how long it may lasts. Thanks for you help!!

Comments

  • kathryn1
    kathryn1 Member Posts: 88
    Chemo brain
    Hi,
    I have it too. I finished chemo in Nov.. It's not as bad as it was and I don't know how long it will take to go away. Hopefully soon!!!!
  • mopar
    mopar Member Posts: 1,972 Member
    I HAD IT TOO
    It eventually goes away. Wish I could tell you when. But it sure is a common side affect. Sometimes I almost felt as though I were 'out of my body'. Weird, but take comfort - it gets better.

    (((HUGS)))!
    Monika
  • Tina Brown
    Tina Brown Member Posts: 1,036 Member
    Chemo brain
    I had to smile when I saw your post. I refer to my brain as "mush" I can be having a conversation with a friend and at the end of it I will say to her - "what did I just say?" I forget everything and remember nothing. I used to be really mentally alert but only today I was playing cards & I had volunteered to keep score. I couldn't do it...... I could not add up. Simple mental arithmatic but my brain couldn't cope. I am half through my chemo and was kinda hoping it would improve at the end BUT maybe I'll have to be patient a while longer lol xxxxxx

    PS I have had to edit this 3 times :)
  • Chemo brain
    I had to smile when I saw your post. I refer to my brain as "mush" I can be having a conversation with a friend and at the end of it I will say to her - "what did I just say?" I forget everything and remember nothing. I used to be really mentally alert but only today I was playing cards & I had volunteered to keep score. I couldn't do it...... I could not add up. Simple mental arithmatic but my brain couldn't cope. I am half through my chemo and was kinda hoping it would improve at the end BUT maybe I'll have to be patient a while longer lol xxxxxx

    PS I have had to edit this 3 times :)

    This comment has been removed by the Moderator
  • Mwee
    Mwee Member Posts: 1,338
    I can relate...
    Sometimes I find that I can't spell ordinary words, but that does go away in time.
    (((HUGS))) Maria
  • msfanciful
    msfanciful Member Posts: 559
    Ooooh Yes!
    "Chemo brain" is

    Ooooh Yes!

    "Chemo brain" is very real. I think the effects of the chemo lingers differently for each person; but it truly does begin to lessen after a while. It kinda hit me one day i.e., "hey I'm mentally sharp as a tack today!"

    I hate to admit it, but after the "chemo brain" left me; I kind of missed it. I got used to using it as an excuse for many of my mental lapses. LOL!

    The sensation does feel a bit surreal? But; you are definitely not alone!

    Hang in there,

    Sharon
  • Chemo_Princess
    Chemo_Princess Member Posts: 105
    Chemo Brain
    Yep, I've been dealing with chemo brain for months. I say I'm 31 going on 92 because I can't remember anything anymore. I always forget what I am doing, for example I'll go to the kitchen to get a glass of tea and when I walk in the kitchen I go totally blank. It takes me a while to remember what I went in there for. It used to really bother me but now I'm used to it and I am able to laugh at myself. This was kinda funny--I was going to eat left over pizza for breakfast one day but when I looked in the fridge it wasn't there. I looked in the cabinet and there was the pizza. I put it in the pyrex dish and then put the dish back in the cabinet. duh!! :-)
  • LPack
    LPack Member Posts: 645
    Most Definitely!
    Chemo brain is real and is even in one of my pamphlets on what to expect with chemo. I had it first time around and don't think it left before I started on chemo again.

    Now what were we just talking about? (just kidding)

    Libby ☺
  • rockchicksurvivor
    rockchicksurvivor Member Posts: 45

    Chemo brain
    I had to smile when I saw your post. I refer to my brain as "mush" I can be having a conversation with a friend and at the end of it I will say to her - "what did I just say?" I forget everything and remember nothing. I used to be really mentally alert but only today I was playing cards & I had volunteered to keep score. I couldn't do it...... I could not add up. Simple mental arithmatic but my brain couldn't cope. I am half through my chemo and was kinda hoping it would improve at the end BUT maybe I'll have to be patient a while longer lol xxxxxx

    PS I have had to edit this 3 times :)

    chemo brain
    I feel the same way as Tina! I can forget what I said and talked about sometimes min. or hrs ago besides other things?! I know I have chemo brain, lol!
  • Mawty
    Mawty Member Posts: 133
    LPack said:

    Most Definitely!
    Chemo brain is real and is even in one of my pamphlets on what to expect with chemo. I had it first time around and don't think it left before I started on chemo again.

    Now what were we just talking about? (just kidding)

    Libby ☺

    Chemo Brain at Work
    I work full time through chemo as much as I can, but I can't say I'm like I was. Everything takes much longer. I'm an editor, and I can still edit like a banshee, but it's all the other stuff -- coming up with words, figuring out priorities, filing. They seem to become so hard for me. I've always had a very clean desk. Now my desk looks like Andy Rooney's -- well, not THAT bad! But It's because I can't figure out where to put stuff. I used to just handle and get rid or file. No more. Chemo brain is very, very real for me.
  • gdpawel
    gdpawel Member Posts: 523 Member
    Chemo Brain
    It is estimated that maybe one in five people who undergo chemotherapy will experience what many cancer survivors frequently refer to as "chemobrain" or "chemofog." Women and men who experience chemobrain typically say that they feel that they are not able to concentrate, have a hard time remembering things, have trouble finding the right word when speaking or writing, or can't multitask the way they used to.

    This type of cognitive dysfunction is a problem that cancer survivors have been talking about for years. Only recently, though, have researchers begun studying the impact of chemotherapy on cognitive functioning. But it's not an easy area to study. Part of the problem is sorting out which problems are due to chemotherapy and which are due to having a serious illness like cancer that can result in physical debilitation, depression, sleep disruption, hormone shifts (not just sex hormones, but thyroid, melatonin, etc.), and fatigue--all of which can affect cognitive functioning.

    For older women, the impact of chemotherapy may be compounded by the natural aging process, which, in and of itself, can be related to the development of cognitive problems. There is some evidence that verbal fluency and word recall changes for some women but not others as they age and their estrogen levels fall. So it is possible that the problems some women think are due to chemotherapy might just be what they'd be experiencing anyway at their age and stage of life. For younger women, the cognitive side effects related to chemotherapy may be compounded by the fact that chemotherapy can put them directly into menopause, which in and of itself causes hormonal changes that can affect cognitive functioning.

    There are a number of theories as to why chemobrain may occur. One is that some types of chemotherapy can cross the blood/brain barrier. Another is that the cognitive problems are created by free radicals, the toxic elements that many types of chemotherapy produce. And yet another is that some people have a genetic background that makes them more susceptible to the effects of chemotherapy. Most likely it is not just one factor but many factors that combine to set the stage for chemobrain to occur. However, we still have a lot to learn before we will be able to explain why this problem affects some people and not others or why these problems persist after treatment stops.

    You should definitely speak with your doctor about the problems you are experiencing to try to rule out other causes. Your doctor should review with you whether depression, the use of medications that are sedating, or sleep problems that are causing fatigue could be factors in the cognitive problems you are experiencing. Developing coping strategies such as making lists, using a tape recorder or Dictaphone, carrying a personal calendar or diary, or taking notes during conversations can also be helpful.

    Doing puzzles to stimulate your mind may be helpful. So can reducing stress--which not only can result from such cognitive problems but can also cause them--may also be helpful. Support groups, meditation, and yoga may offer benefits as well.

    Journal of Clinical Oncology
    January 15, 2002