Udate on me...

HollyID
HollyID Member Posts: 946 Member
edited March 2014 in Colorectal Cancer #1
It's been a while since I've given you all an update and thought I'd do it in one fell swoop instead of many little posts.

Talked to my onc for the first time on Monday the 11th of January. Our appointment was about two hours long and he wanted to make sure that we didn't leave with any questions unanswered. We didn't. I brought my 45+ questions and he answered every one of them... mostly through chit-chatting, but some were directly asked. I then talked to several of his chemo nurses. Funny how I've worked with most of them in some capacity or other. hehehe... They talked about regimen, what to expect, etc. I'm so confident that I have a good crew working with me. When I left of office, we'd already ordered the CT body scan, and appointment with my surgeon to insert my power port and then surgery itself. It was a long, good productive day.

CT on Tuesday. Onc and surgeon will have results tomorrow. I already promised myself that I wouldn't get scanxiety. I didn't. Nobody called to tell me results, but in our world, no news is usually good news. I was right. I asked about them today and they were totally clear. They could obviously see changes in my colon, that my gallbladder is missing, but everything else was clear. Does this make my T3 N1 Mx into a T3 N1 M0? I think so! WooHoo!!

Wednesday signed consent for port insertion. Inserted on Thursday morning under a general anesthesia. Easy-Peasy. I don't tell physicians this because it goes to their heads, but my surgeon really walks on water -- and not only in the winter. He did an EXCELLENT job with the port. I still don't feel it. It was sore the night I came home and couldn't sleep on the surgical side, but other than that... perfectly placed.

Today, went back to onc's for 1st does of FOLFOX. I'm home now and wearing the little "Woosh-making-machine" in a fanny pack but, so far it's been OK. I did forget about the cold water thing and I could feel the start of "shards of glass" feeling. I'll go back tomorrow for more good stuff and then back in Thursday to take the pump off and get a neupogen injection. I'm wondering how I'll feel Friday, Saturday and Sunday which is when I'm scheduled to go back to work. I guess time will only tell. I laughed today because my blood work couldn't have been better. I'm guessing it will only look this way today. LOL

Thanks everyone for sharing your stories so I knew what I could expect/not expect. :) There's good and bad about chemo, but if faced with this same diagnosis, or even a stage II, there would be no way I wouldn't have given this bugger a chance to park and grow some place else. My daughter called me a azz-kicker (from the movie Con-air). Someone else told me I'm tougher than boiled owl $hit and the cancer should be nervous it parked itself in my body. (I'm still not quite sure how tough that is, but I'm guessing pretty tough?!)

Love to all!

Holly

Comments

  • geotina
    geotina Member Posts: 2,111 Member
    Under control
    Holly - it sounds like you have things under control, are well informed and prepared and that, in my opinion, is half the battle. When the anxiety level is way down, you are more relaxed and comfortable and able to tolerate things better. It sounds like you are getting your drugs over 2 days with the pump off on the 3rd day. That was the way George did it. I noted that most get their drugs all in one day. I often wondered if George getting the whole Folfox thing over a 2 day period made it more tolerable for him. I asked once and was told that was the way our onc did it, felt patients tolerated it better that way. Well 1 down and 11 to go. Now get some comfy clothes on, curl up with a good TV program and get a good night's sleep and keep putting one foot in front of the other. You will be fine, you are prepared for side effects and hopefully they will be tolerable. Tina
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    Hi Holly,
    Thanks for the

    Hi Holly,

    Thanks for the update. I am glad things are going so well for you. You have a great attitude, which is part of the battle!
  • Buzzard
    Buzzard Member Posts: 3,043 Member
    AnneCan said:

    Hi Holly,
    Thanks for the

    Hi Holly,

    Thanks for the update. I am glad things are going so well for you. You have a great attitude, which is part of the battle!

    Holly....enjoy the feeling .....
    Glad everything is doing as well as it is...That all sounds great and hopefully also you will be one of the few that it simply doesn't bother. The cold thing will dictate itself...It will tell you when to stop cold drinks and holding cold stuff. Remember sunkist orange is great lukewarm..:)...The side effects may hit you all at once but hopefully not to bad. The main thing is staying ahead of the game, way ahead. Let your Dr and nurses know everything thats going on no matter how small you think it is. Being an RN you will try to be stronger, but if you don't relinguish that state of mind and be a little wuss for at least a little while the side effects will be worse, so don't be superwoman, use what the medical profession has for you for ease of treatment. You are doing chemical warfare inside your body and it depends on you to defend it. You serve it and it will serve you. It will go far in your journey down this short path you have left. Almost Home smiley, almost home....Keep smiling, it certainly does fit you .....Love and Hope, Buzz
  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    Why?
    Why are you getting a

    Why?

    Why are you getting a neupogen shot? I never needed anything like that.
  • krf
    krf Member Posts: 98
    You rock Holly! I love how
    You rock Holly! I love how armed and ready you were for appointments and are for treatment. You are owning your own care and I believe that makes a huge difference.
    Love and luck to you!
    Kim
  • kimby
    kimby Member Posts: 797
    Update
    You're my kind of girl! Humor in the face of everything. It works. It's very powerful in maintaining a good attitude and making life worth living. Sometimes it just makes things bearable!

    Grins and Giggles,

    Kimby
  • JDuke
    JDuke Member Posts: 438
    kimby said:

    Update
    You're my kind of girl! Humor in the face of everything. It works. It's very powerful in maintaining a good attitude and making life worth living. Sometimes it just makes things bearable!

    Grins and Giggles,

    Kimby

    Holly
    So glad to hear that things are progressing smoothly. You have such a good attitude and that is so very important. I hope that you breeze through your treatments and this is soon all in the past.
    Warmly,
    Joanne
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    Glad
    Holly,

    I'm glad this all went so well for you! Thanks for giving us such a complete update. I think you're going to fo just FINE!

    *hugs*
    Gail
  • HollyID
    HollyID Member Posts: 946 Member

    Why?
    Why are you getting a

    Why?

    Why are you getting a neupogen shot? I never needed anything like that.

    I asked him the same question....
    It was one of my 45+ questions, in fact.

    He does it prophylactically in all myelosuppressive chemo drugs -- as a "just in case". 5-FU is a myelosuppressive neo-plastic. I will get this shot every other week. In fact, he uses this regimen a lot because the prevention of bone marrow suppression is easier to deal with than an already depressed bone marrow. My chances of forgoing a chemo session goes down because I don't have to wait for my marrow to pump up my cells. Plus, decreased chances of infection. It's all about prevention.

    I really hope that all made sense.
  • lisa42
    lisa42 Member Posts: 3,625 Member
    my onc does the shots proactively too
    Hi Holly,

    You have a great attitude about it all! My onc also would give me a neulasta shot everytime I would get my 5FU pump unhooked, whether or not my white count was really low. This was different with the onc I had for the first year and a half. He only gave me shots twice when my count was really low. He had me skip a treatment a different time, without giving me a shot. My onc now says he'd rather not risk my count going low, risking me getting an infection. Different oncs seem to have different approaches on this.

    Lisa
  • abmb
    abmb Member Posts: 311
    Thanks for the update, you
    Thanks for the update, you sound very positive and head strong. Just don't give up or it sounds as though your daughter will let you have it. Take care and God Bless. Margaret
  • Shayenne
    Shayenne Member Posts: 2,342
    abmb said:

    Thanks for the update, you
    Thanks for the update, you sound very positive and head strong. Just don't give up or it sounds as though your daughter will let you have it. Take care and God Bless. Margaret

    Hey Holly!
    Sounds like you're all set and ready to go to battle the crap out of this monster. Nausea and Hair thinning was the most problems for me, so make sure you stay on top of that by taking them every few hours, even if you don't feel queasy.

    I only needed that Neupogen shot once throughout my treatment, and I been on it almost a year.

    Glad your port was put in a good place! Make sure you get a prescription for a lidocaine cream, EMLA cream, it's a topical numbing cream to put on top of it before they access the port, you put it on for about an hour, very thick, then put a piece of saran wrap on top of it, so it doesn't smear on your clothes, it works wonders!! you won't feel that needle going in at all.

    I wish you luck in your journey, and best wishes, we're all here for you!!

    Hugsss!
    ~Donna
  • Sundanceh
    Sundanceh Member Posts: 4,392 Member
    This Post Slipped By Me
    Hi Holly

    I echo what everyone has already said before me - you've got a tough veneer and you've got your plan together.

    I sure don't want to step in front of you - I might get hurt, LOL :)

    Seriously though, it sounds like a plan - there's a guy here, what's his name? Oh, yeah, Buzzard :)

    One of his famous lines is "Love it when a plan comes together."

    Just paying tribute to you, Buzzard :)

    Sounds good, Holly - I can't wait to see what happens next!

    -Craig