How worried should I be???
Thanks!!!
Comments
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Valerie, I would be very
Valerie, I would be very concerned. Did your liver enzymes ever drop? You mentioned they remained high for many months after chemo ended.
Didn't you also test positive for the genetic marker that shows cc runs in the family.
Go and enjoy your time away.0 -
My liver enzymes never diddianetavegia said:Valerie, I would be very
Valerie, I would be very concerned. Did your liver enzymes ever drop? You mentioned they remained high for many months after chemo ended.
Didn't you also test positive for the genetic marker that shows cc runs in the family.
Go and enjoy your time away.
My liver enzymes never did go back to normal. And yes, I tested positive for HNPCC. I'm going to try to enjoy our anniversary weekend, but I know it wont be without the thoughts of this. Thanks Diane0 -
If the test comes backzenmonk said:concern
I would also be very concerned at this point. Its hard to speculate until the tests come back.
Praying.
If the test comes back positive for cancer, does that make me a stage IV. I don't know.0 -
Yes to Stage IV
Hi Valerie
You become a Stage IV whenever the original cancer spreads to the other organ.
I was a IIb when I got my Dx - and then it spread to my liver - and I became a Stage IV.
We thought it went to my lungs but tumor was benign - I 've got a new spot in lung just 3 months after surgery - might be or might not be.
Right now, things can't be changed this weekend, so try and have some nice moments with your husband...try not and let the worry overshadow some good fun...nothing will happen this weekend for things to get out of control.
Then, you can talk to your onc and put the battle plan together and go from there.
I know it's easy to say don't worry - just went back through it again last week. But it lasted one evening and then I said no more - I'm going to redirect my energies and then do my homework and then get after it.
Nice to meet you BTW. I hope you have some fun this w/end...happy anniversary.
-Craig0 -
Met
If the spot on your liver does come back as cancer, then, unfortunately, it does make you a Stage IV as Craig said. I won't tell you not to worry, that will be impossible. What I will tell you is go enjoy your anniversary. Worrying will not change things. If it is only one met you have tons of options so once you get your testing, come back and let the board know and they will respond like crazy to you. We are going away for the weekend, just on overnighter. We just don't live the cancer 24/7 anymore, because it doesn't change anything so go out and enjoy your weekend. What will be, will be. Take care - Tina0 -
Hi Valerie!geotina said:Met
If the spot on your liver does come back as cancer, then, unfortunately, it does make you a Stage IV as Craig said. I won't tell you not to worry, that will be impossible. What I will tell you is go enjoy your anniversary. Worrying will not change things. If it is only one met you have tons of options so once you get your testing, come back and let the board know and they will respond like crazy to you. We are going away for the weekend, just on overnighter. We just don't live the cancer 24/7 anymore, because it doesn't change anything so go out and enjoy your weekend. What will be, will be. Take care - Tina
It's nice to be meet you! Welcome to our wonderful second family! I am a Stage 4 cc with multiple mets to my liver, diagnosed Jan 18, 2009, and still here...there are alot of things they can do with the liver these days, depending on how many tumors and how big they are..I am inoperable, my liver is like having shattered glass all over it is how my onc explained it, but I have been on Folfiri and Avastin, which did shrink the tumors, but still not enough to be operate. They do have plenty of chemo drugs and treatments though, the onc will choose what they think will be best for you. Like all said, just enjoy life though, each day as it comes
Hugsss!
~Donna0 -
Valerie isn't a newbie.
Valerie isn't a newbie.
She's been around (Stage III) for about 2 years. Her brother is Stage III and had no chemo. Clear for many years (8 or 9??). Her father and uncle both had cc and her son, in his early 30's, was dx'd around the time I joined. Kras mutant (right Valerie?)0 -
I could telldianetavegia said:Valerie isn't a newbie.
Valerie isn't a newbie.
She's been around (Stage III) for about 2 years. Her brother is Stage III and had no chemo. Clear for many years (8 or 9??). Her father and uncle both had cc and her son, in his early 30's, was dx'd around the time I joined. Kras mutant (right Valerie?)
from when she joined, and the amount of posts she has that she wasn't new, but I hadn't seen her post till now, so even if she's coming back after being gone for awhile, I can still welcome her
Hugsss!
~Donna0 -
Thanks to all of you. Idianetavegia said:Valerie isn't a newbie.
Valerie isn't a newbie.
She's been around (Stage III) for about 2 years. Her brother is Stage III and had no chemo. Clear for many years (8 or 9??). Her father and uncle both had cc and her son, in his early 30's, was dx'd around the time I joined. Kras mutant (right Valerie?)
Thanks to all of you. I read the post all the time because you guys are wonderful people, and even though you become NED, I still feel as though no one knows me like someone whose going through and been through what I have. Diane you are good. Such a great memory. I am HNPCC though. That's alright! love you guys.
Valerie0 -
Worry?
Valerie -
There's a lot of assumption here, that the "spot" is:
A. Cancer
B. Colon cancer that has metastasized.
That's a whole lot of assumption!
First.. it could be granuloma, or it could be fat, or any number
of other things as "far fetched" as the angle the scan was taken at.
So, before you even begin to worry, you want to make sure it's
even cancer.
Second..... If..... it is determined to be cancer, the question is:
what kind of cancer.
If it is liver cancer...... you are NOT a stage four, you would be
a stage -whatever- your colon cancer was, plus
a stage -whatever- your liver cancer is. You would have two
different cancers, each staged for what they are.
And yeah, that is VERY possible.
I would stop worrying, and wait for the tests. I would then seek
other opinions, and demand biopsies to determine exactly the type
of cancer, if it is cancer. In fact, getting a second (or third) opinion
is always best, even if the tests are negative. I would want to make
sure it's negative, just as much as I would want to be sure it's positive.
But in the meantime, you have nothing to worry about. Spots come
and go; you'll burn a lot of energy worrying about everything that
happens since you've been diagnosed with cancer...
It's normal to worry; we all do it. I get a hangnail, and I think
it's cuticle cancer...
Best of health!0 -
Thank you John23. This isJohn23 said:Worry?
Valerie -
There's a lot of assumption here, that the "spot" is:
A. Cancer
B. Colon cancer that has metastasized.
That's a whole lot of assumption!
First.. it could be granuloma, or it could be fat, or any number
of other things as "far fetched" as the angle the scan was taken at.
So, before you even begin to worry, you want to make sure it's
even cancer.
Second..... If..... it is determined to be cancer, the question is:
what kind of cancer.
If it is liver cancer...... you are NOT a stage four, you would be
a stage -whatever- your colon cancer was, plus
a stage -whatever- your liver cancer is. You would have two
different cancers, each staged for what they are.
And yeah, that is VERY possible.
I would stop worrying, and wait for the tests. I would then seek
other opinions, and demand biopsies to determine exactly the type
of cancer, if it is cancer. In fact, getting a second (or third) opinion
is always best, even if the tests are negative. I would want to make
sure it's negative, just as much as I would want to be sure it's positive.
But in the meantime, you have nothing to worry about. Spots come
and go; you'll burn a lot of energy worrying about everything that
happens since you've been diagnosed with cancer...
It's normal to worry; we all do it. I get a hangnail, and I think
it's cuticle cancer...
Best of health!
Thank you John23. This is actually the first time that I've laughed today. That "cuticle cancer" did it for me. I get the message. Thanks so much. Valerie0 -
John is right..
Hi,
I just wanted to say I agree w/ John. Go have fun and celebrate your anniversary. First of all, it might not even be cancer. All you can do is wait for the next scan and see what happens. Even if it is cancer, one met to the liver is very curable still. It is certainly something that can be taken care of. .7 cm is very, very small.
Take a deep breath and try to hang in there. Of course you are going to worry, but it is going to be OK one way or another!
-Susan H.0 -
Again, thank you guys soshmurciakova said:John is right..
Hi,
I just wanted to say I agree w/ John. Go have fun and celebrate your anniversary. First of all, it might not even be cancer. All you can do is wait for the next scan and see what happens. Even if it is cancer, one met to the liver is very curable still. It is certainly something that can be taken care of. .7 cm is very, very small.
Take a deep breath and try to hang in there. Of course you are going to worry, but it is going to be OK one way or another!
-Susan H.
Again, thank you guys so much. I feel so much warmth, love, and sensitivity from this group; unlike any other group or discussion board that I know. Believe me, I 've seen others. I'm grateful for you.
Valerie0 -
Shoot Valerie!vchildbeloved said:Again, thank you guys so
Again, thank you guys so much. I feel so much warmth, love, and sensitivity from this group; unlike any other group or discussion board that I know. Believe me, I 've seen others. I'm grateful for you.
Valerie
T thought that said 7 and not .7. That is very, very small! 1/4th inch instead of almost 4 inches. Whew.
Question, you previously said they couldn't remove the cancerous lymph node. Did you ever find out why it was not removed?0 -
Diane, they did remove the 1dianetavegia said:Shoot Valerie!
T thought that said 7 and not .7. That is very, very small! 1/4th inch instead of almost 4 inches. Whew.
Question, you previously said they couldn't remove the cancerous lymph node. Did you ever find out why it was not removed?
Diane, they did remove the 1 positive node.I apologize if I said differently. This new spot in the liver is .7 she said. I guess to me size doesn't matter, just doing what it takes to fix it, WHATEVER it is.0 -
Sorry about your news
Vslerie,
I sure hate what you are goiing through. Don't worry too much until you have more information. And if it turns out to be a single, small tumor, they will do a biopsy to see if it is cancer. If it is, you can be treated. My husband David's liver surgeon at M D Anderson says a solitary tumor that can be resected gives you an excellent chance for a cure - over 70%. So hopefully it is just a cyst. but no matter what it is, you can get through it. Please celebrate your anniversary and try not to worry too much.
Sending you hugs,
Priscilla in San Antonio0
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